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I always like to here good news too. I know that you should not take any

extra vitamin C. If you eat fruit and just take a multivitamin you don't

need any extra C. When you have scleroderma you have too much collagen and

believe me that C does enhance collagen which is great for other people but

not us. I have been on methotextrate for at least 6 years, I would love to

get off of it but everytime I try my skin seems to tighten and I have diffuse

and don't like to mess with it. I worry about it spreading so when I feel

like I have a flare I usually end up increasing the meth. and it takes care

of it the skin tightening .

What type of scleroderma do you have??

I see Dr. Maureen Mayes she is a scleroderma specialist in Detroit MI. She

just published a book on scleroderma. she is great and I have been lucky

enough to have seen here for the last 8 years.

She put me on the AP without me asking for it, but I don't think she is real

crazy about it. I have done well but have also started with the Shaklee

stuff and the AP at the same time. Maybe I shouldn't of done that because I

have done remarkable well since both.

The AP seemed to help tremendousley with the tendon tightening that I had.

It took it away. I had it in my arms and torso. I hated to reach for

anything because it felt so tight.

I have learned to take the good with the bad with this horrible disease that

had stolen a normal life from me at 26 years of age. Now 35 with a 10 year

old daughter I have a different perspective of life as I'm sure most people

get as they get older.

I try to focus on the positive aspects of my life and to those who see the

obvious disability part of me, well they just don't know me and i try not to

let it bother me anymore. Although that was probably the most difficult part

of it all, my friends and family just see through it all at the person I was

before the scleroderma and still am.

I hope all goes well for you. Remember the most important part of your

treatment is to keep a positive attitude and remember that laughter is great

medicine even if it comes from a comedy shows. :Diane

AP 10 months / Diffuse scleroderma 8 years.

And Doing GREAT

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  • 7 months later...
Guest guest

,

I know quite a few people who took it in large doses too although I never

did. I met the Vit.C Guru, Linus y in Toronto at a health fair at the

Royal York Hotel in the '80's and I know he was elderly but he shook so bad

he could barely hold his notes. I believe in moderation in everything.

If this is the case with the hardening of the arteries I hope there is

something that could reverse it because quite a few people take large doses

of it.

Bev

>

> Just heard the information about large doses of vit C may cause hardening

> of the arteries on the 11:00 PM news.

>

>

>

>

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  • 2 years later...

Hi there!

This is a good link to tell you more about Vit C:

www.howstuffworks.com/vitamin-c3.htm

I have tried for a long time to get my vitamin needs through the food

I eat. My husband is a biologist/chemist and he is forever telling me

that

artificial sources of vitamins (i.e. supplements) are inferior to

direct sources (i.e. food) in many ways - and of course he is a

picture of health without paying much attention to his body or food.

But I found it really hard what with all the different daily

requirements (we are a bi-national family living in a third country

and there are three different reccomendations about daily intake I

can choose from - are people really so different?). I got advice from

a nutrition expert and I am now taking what is called " juice+ " .

Apparently the latest stage of the arts. I decided to give it a go

when I found out that most of the medical doctors I work with pop

these little pills every day...

I think there is a web site for it.

Take care. Have a nice day.

> Hi! I also take vit c, 1000 mg. I know not all supplements are

created

> equal, but what exactly are we supposed to be looking for in Vit C

that

> makes it better (or worse). Cathie

>

>

>

> _________________________________________________________________

> Send and receive Hotmail on your mobile device:

http://mobile.msn.com

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  • 7 months later...
Guest guest

I've recently tried just plain ascorbate. Cheap and easy. He's doing great

on it, which surprised me. He's on about 1 gram.

marti

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Guest guest

i did read a paper somewhere that said vitamin c and i think b1(not

sure wether its that one)

were helpful in nullifying and perhaps removing lead

also vitamin c is synergistic with selenium

wether you are replicating iv glutathione...........?

vitamin c needs a ratio of bioflavionoids i think or cell walls

become weak...you can get nose bleeds

also about filters they can

'load' and dump tosic metals theat they have colected if the are

overloaded whcih might be a bit difficult to tell.....

well its interesting that the plain ascorbate is effective which

might imply it is helping with lead since since calcium ascorbate

being already bound to calcium would not bind to lead whereas plain

ascorbate might.

> I've recently tried just plain ascorbate. Cheap and easy. He's

doing great

> on it, which surprised me. He's on about 1 gram.

>

> marti

>

>

>

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  • 3 months later...

My understanding is that you get diarrhea when you're

taking too much Vitamin C. This seems like a useful

feedback mechanism that the body employs -- it knows

what it's doing after all. Why would you want to

interfere with that? Use it to your advantage and ease

up on the Vitamin C when this occurs. The amount of

Vitamin C our body requires will vary from time to

time. We need this feedback mechanism.

Les Catterall

--

" ph T. " wrote:

>

> Has anyone used Vit C powder and mixed it with baking

> soda? Does this affect the Vit C? Does this really

> allow you to take larger amounts of Vit C without fear

> of diarrhea?

> Joe

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the laxative effect that you get from too much vitamin c is usually from the

acid involved ( ascorbic acid) when you mix baking soda into it you get

sodium ascorbate , a non acid mineral ascorbate which is better tolerated

than the ascorbic acid form. I do NOT recomend the use of baking soda with

cancer patients rather use POTASSIUM bicarbonate ( NOT sodium). You can

readily buy potassium, magnesium, calcium etc ascorbate forms.

I usually recommend a low sodium, high potassium diet for my clients with

cancer...

( the mineral ascorbate form is the preferred form in food and is the form

that other mammels manufacture ...as is the closest to natural as you can

get outside of food)

Alacer Corp make some VERY good mineral ascorbate products!

Re: [ ] Vit C

> My understanding is that you get diarrhea when you're

> taking too much Vitamin C. This seems like a useful

> feedback mechanism that the body employs -- it knows

> what it's doing after all. Why would you want to

> interfere with that? Use it to your advantage and ease

> up on the Vitamin C when this occurs. The amount of

> Vitamin C our body requires will vary from time to

> time. We need this feedback mechanism.

>

> Les Catterall

> --

> " ph T. " wrote:

> >

> > Has anyone used Vit C powder and mixed it with baking

> > soda? Does this affect the Vit C? Does this really

> > allow you to take larger amounts of Vit C without fear

> > of diarrhea?

> > Joe

>

>

>

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Here is a good alternative website by a chemical engineer who has nothing

to sell. He cured himself of prostate cancer.

http://www.cancertherapies.org/

Loren Parks

Re: [ ] Vit C

>

>

> > My understanding is that you get diarrhea when you're

> > taking too much Vitamin C. This seems like a useful

> > feedback mechanism that the body employs -- it knows

> > what it's doing after all. Why would you want to

> > interfere with that? Use it to your advantage and ease

> > up on the Vitamin C when this occurs. The amount of

> > Vitamin C our body requires will vary from time to

> > time. We need this feedback mechanism.

> >

> > Les Catterall

> > --

> > " ph T. " wrote:

> > >

> > > Has anyone used Vit C powder and mixed it with baking

> > > soda? Does this affect the Vit C? Does this really

> > > allow you to take larger amounts of Vit C without fear

> > > of diarrhea?

> > > Joe

> >

> >

> >

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thanks! and here is a place where you can down load Dr Tilden's book

" Toxemia Explained " as well as many other health classics

www.soilandhealth.org just go to the health library and see what they

have...it's a great site.

jeff

Re: [ ] Vit C

> >

> >

> > > My understanding is that you get diarrhea when you're

> > > taking too much Vitamin C. This seems like a useful

> > > feedback mechanism that the body employs -- it knows

> > > what it's doing after all. Why would you want to

> > > interfere with that? Use it to your advantage and ease

> > > up on the Vitamin C when this occurs. The amount of

> > > Vitamin C our body requires will vary from time to

> > > time. We need this feedback mechanism.

> > >

> > > Les Catterall

> > > --

> > > " ph T. " wrote:

> > > >

> > > > Has anyone used Vit C powder and mixed it with baking

> > > > soda? Does this affect the Vit C? Does this really

> > > > allow you to take larger amounts of Vit C without fear

> > > > of diarrhea?

> > > > Joe

> > >

> > >

> > >

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While on the subject of Vitamin C, I have a note scribbled down from a couple

years ago about the Immune Institute of Hunting Beach Calif. having success

using 5,6 semi-benzylated (sp?) Vitamin C in cancer therapy.

Anyone have anything current on this stuff?

Art

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  • 2 months later...

How much Vit. C do you take, ??? Thanks, Sheila

Bliss Workz <blissworkz@...> wrote:Thank you Chuck. It was years ago.

I have been both hyper and hypo in my

life. Perhaps I was hyper back then?

I don't do OTC meds or anything else besides thyroid and my vits. I do the

Vit C as you said. It really does work well.

I do drink coffee and hope to get off of it soon. It's my vice...

Thank you,

Re: examples of drug interactions with thyroid

hormones

> Exactly. The fine print should include a warning for people with

> " thyroid conditions. " It is one of the ingredients in Nyquil, for

> example. However, it is more dangerous for the hyper side than the hypo.

> They don't distinguish, because we can change sides just by changing

> dosage. However, if you know you are hypothyroid, it is probably not

> going to bother you. I use it sparingly anyway, substituting vitamin C,

> which is also a decongestant. BTW, the threshold for C causing diarrhea

> is higher when you have a cold or the flu, so you can take more.

>

> Chuck

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  • 1 year later...

My company is offering flu shots too - I declined.

(Are we going to have to call you Linus J?)

I have an anecdotal personal story about Vit C (and a little B)

Many years ago I was dozing in a lawn chair, apparently with my mouth

hanging open when a wasp flew into my mouth and stung me deep inside

the lower lip. In less than 10 minutes my lower lip swelled to to a

size I didn't think was possible. And the swelling continued under the

jaw, and I really just couldn't beleive what was happening.

I'm usually extremely calm under pressure- but this time I was fighting

panic. I was alone at the time, and didn't think I could make the drive

to the ER.

I threw approximately 15 grams of Vitamin C with about 3 grams of B

in my small coffee bean grinder, pulverized it and mixed it with OJ and

swallowed it.

Amazingly, within 2.5 hrs I was normal. Maybe it would have been OK

in that amount of time if I had done nothing - I don't know.

I had a pretty bad case of diarreah later that day (I'm sure I met

bowel intolerance criteria with the C).

In the early 80's I tried very hard to find someone who would IV Vit C

to me, and of course couldn't find anyone to do it just for my

autoimmune disorders - they pretty much thought I was nuts for asking.

I've often wondered if what I'd read about IV C was true.

(I read L ing, and Adele long ago, and I think there is alot

of truth in Orthomolecular Medicine.)

I think that all water soluble anti-oxidants * do* become oxidants at

some point in their short lives- and all that has to go thru the liver

or kidney's eventually -

so I'm not exactly sure what I think about massive C or any other anti-

oxidant in massive amounts.

But IV- C was always intriguing to me - you can get much more in if

it bypasses the GI system.

Barb

PS- So why isn't some maverick Doc Iv-ing C for some aliment?

>

>

> The company I work for very kindly offered me along with everyone

else a flu

> jab today..I looked up a few facts to enlighten those who wished to be

> enlightened ..came across this ..I think most here will be familiar

with

> much of the contents , but some new stuff in there too

>

>

> http://www.orthomed.com/

> --

> No virus found in this outgoing message.

> Checked by AVG Anti-Virus.

> Version: 7.0.344 / Virus Database: 267.11.14/131 - Release Date:

12/10/2005

>

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The first question must be ..did anyone take a photo with the wasp in your hanging mouth , a good one for the album ...Makes you think though ..Linus ing ..he's no slouch two Nobel prizes no less ...So when he says we need massive amounts of Vit C i suppose we ought to listen...The group doing the Vit C & sea salt seem to be making progress, and the author comes well qualified ,so, who knows ..

-----Original Message-----From: infections [mailto:infections ]On Behalf Of Barb PeckSent: 13 October 2005 03:43infections Subject: [infections] Re: Vit CMy company is offering flu shots too - I declined.(Are we going to have to call you Linus J?)I have an anecdotal personal story about Vit C (and a little B)Many years ago I was dozing in a lawn chair, apparently with my mouth hanging open when a wasp flew into my mouth and stung me deep inside the lower lip. In less than 10 minutes my lower lip swelled to to a size I didn't think was possible. And the swelling continued under the jaw, and I really just couldn't beleive what was happening.I'm usually extremely calm under pressure- but this time I was fighting panic. I was alone at the time, and didn't think I could make the drive to the ER.I threw approximately 15 grams of Vitamin C with about 3 grams of Bin my small coffee bean grinder, pulverized it and mixed it with OJ and swallowed it. Amazingly, within 2.5 hrs I was normal. Maybe it would have been OKin that amount of time if I had done nothing - I don't know.I had a pretty bad case of diarreah later that day (I'm sure I met bowel intolerance criteria with the C).In the early 80's I tried very hard to find someone who would IV Vit Cto me, and of course couldn't find anyone to do it just for my autoimmune disorders - they pretty much thought I was nuts for asking.I've often wondered if what I'd read about IV C was true.(I read L ing, and Adele long ago, and I think there is alot of truth in Orthomolecular Medicine.)I think that all water soluble anti-oxidants * do* become oxidants at some point in their short lives- and all that has to go thru the liver or kidney's eventually - so I'm not exactly sure what I think about massive C or any other anti-oxidant in massive amounts. But IV- C was always intriguing to me - you can get much more in if it bypasses the GI system.BarbPS- So why isn't some maverick Doc Iv-ing C for some aliment?>> > The company I work for very kindly offered me along with everyone else a flu> jab today..I looked up a few facts to enlighten those who wished to be> enlightened ..came across this ..I think most here will be familiar with> much of the contents , but some new stuff in there too > > > http://www.orthomed.com/> --> No virus found in this outgoing message.> Checked by AVG Anti-Virus.> Version: 7.0.344 / Virus Database: 267.11.14/131 - Release Date: 12/10/2005>

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I have my own opinion on the SaltC protocol- and it differs from what

they think is happening.

I think many many people do not have the correct fluid balance in

their bodies (there *is* such a thing as poor water absorption)

And this thing about only raw salt working I don't sgree with either

(and that table salt is bad).

The fact that salt and C is improving their symptoms- I have no

doubt - but it's not becuase the salt is killing bugs.

Alot of the symptoms people have may be caused by one thing - but

they subjectively attribute it to another.

Barb

> >

> >

> > The company I work for very kindly offered me along with

everyone

> else a flu

> > jab today..I looked up a few facts to enlighten those who

wished to be

> > enlightened ..came across this ..I think most here will be

familiar

> with

> > much of the contents , but some new stuff in there too

> >

> >

> > http://www.orthomed.com/

> > --

> > No virus found in this outgoing message.

> > Checked by AVG Anti-Virus.

> > Version: 7.0.344 / Virus Database: 267.11.14/131 - Release Date:

> 12/10/2005

> >

>

>

>

>

>

>

>

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Hi Barb,

> I read L ing, and Adele long ago

Adelle 's books taught me to cook with confidence, and I learned a

lot from her. But at " a 1969 White House Conference on Food and

Nutrition, the panel on deception and misinformation agreed that

was probably the most damaging source of false nutrition information in

the nation. "

http://www.quackwatch.org/04ConsumerEducation/davis.html

I don't know what to make of this paragraph on the website: " In 1971,

a four-year-old victim of 's advice was hospitalized at the

University of California Medical Center in San Francisco. The child

appeared pale and chronically ill. She was having diarrhea, vomiting,

fever, and loss of hair. Her liver and spleen were enlarged, and other

signs suggested she had a brain tumor. Her mother, " a food faddist who

read Adelle religiously, " had been giving her large doses of

vitamins A and D plus calcium lactate. Fortunately, when these

supplements were stopped, the little girl's condition improved. "

Sue ,

Upstate New York

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Yes, wishful thinking is a big feature of the group , every new symptom or worsening of existing symptoms is a "Herx" they attribute pain with toxins from dieing bugs ,they wish , it could be anything especially taking so much salt , Vit C at least has some history & science behind it but salt!! it could set up osmosis or alter electrolytes ..the list is long ...

-----Original Message-----From: infections [mailto:infections ]On Behalf Of Barb PeckSent: 13 October 2005 20:32infections Subject: [infections] Re: Vit CI have my own opinion on the SaltC protocol- and it differs from what they think is happening.I think many many people do not have the correct fluid balance in their bodies (there *is* such a thing as poor water absorption)And this thing about only raw salt working I don't sgree with either(and that table salt is bad).The fact that salt and C is improving their symptoms- I have no doubt - but it's not becuase the salt is killing bugs.Alot of the symptoms people have may be caused by one thing - but they subjectively attribute it to another.Barb> >> >> > The company I work for very kindly offered me along with everyone> else a flu> > jab today..I looked up a few facts to enlighten those who wished to be> > enlightened ..came across this ..I think most here will be familiar> with> > much of the contents , but some new stuff in there too > >> >> > http://www.orthomed.com/> > --> > No virus found in this outgoing message.> > Checked by AVG Anti-Virus.> > Version: 7.0.344 / Virus Database: 267.11.14/131 - Release Date:> 12/10/2005> >> > > > > > >

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I agree, it could treat lwo blood volume, POTS, adrenal problems, but

if someone thinks they're herxing from 1 gram of each...uh uh. And I

can't tell what's happening to folks onj the higher doses. I keep

following the list waiting for something definitive.

> > >

> > >

> > > The company I work for very kindly offered me along with

> everyone

> > else a flu

> > > jab today..I looked up a few facts to enlighten those who

> wished to be

> > > enlightened ..came across this ..I think most here will be

> familiar

> > with

> > > much of the contents , but some new stuff in there too

> > >

> > >

> > > http://www.orthomed.com/

> > > --

> > > No virus found in this outgoing message.

> > > Checked by AVG Anti-Virus.

> > > Version: 7.0.344 / Virus Database: 267.11.14/131 - Release

Date:

> > 12/10/2005

> > >

> >

> >

> >

> >

> >

> >

> >

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BArb

Very good point. I was telling people that salt is not a nice thing

for bacteria to grow in, it virtually halves the amount of possable

growth in a culture.Some bugs are salt tolerant yet they don't

thrive.The idea that your killing bugs is silly because these guys

don't even go down to alcohol mixes easily.

> > >

> > >

> > > The company I work for very kindly offered me along with

> everyone

> > else a flu

> > > jab today..I looked up a few facts to enlighten those who

> wished to be

> > > enlightened ..came across this ..I think most here will be

> familiar

> > with

> > > much of the contents , but some new stuff in there too

> > >

> > >

> > > http://www.orthomed.com/

> > > --

> > > No virus found in this outgoing message.

> > > Checked by AVG Anti-Virus.

> > > Version: 7.0.344 / Virus Database: 267.11.14/131 - Release

Date:

> > 12/10/2005

> > >

> >

> >

> >

> >

> >

> >

> >

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Hi Barb

I had IV vit C in saline 15 years ago, it was the most obviously

effective Tx I have ever been given or taken. Initially it would feel

like an instant tonic, no doubt because it increased my blood volume.

Over the course of IVs things improved in a way I had not experienced

before, and stayed that way for months afterwards.

What I liked most about it was I seemed to make progress with what I

consider to be symptoms related to infections, but only minimal signs

of die off.

Cheers, Tansy

> >

> >

> > The company I work for very kindly offered me along with everyone

> else a flu

> > jab today..I looked up a few facts to enlighten those who wished

to be

> > enlightened ..came across this ..I think most here will be

familiar

> with

> > much of the contents , but some new stuff in there too

> >

> >

> > http://www.orthomed.com/

> > --

> > No virus found in this outgoing message.

> > Checked by AVG Anti-Virus.

> > Version: 7.0.344 / Virus Database: 267.11.14/131 - Release Date:

> 12/10/2005

> >

>

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You're probably correct in you assessment.

How come you didn't do more of them?

Barb

> > >

> > >

> > > The company I work for very kindly offered me along with

everyone

> > else a flu

> > > jab today..I looked up a few facts to enlighten those who

wished

> to be

> > > enlightened ..came across this ..I think most here will be

> familiar

> > with

> > > much of the contents , but some new stuff in there too

> > >

> > >

> > > http://www.orthomed.com/

> > > --

> > > No virus found in this outgoing message.

> > > Checked by AVG Anti-Virus.

> > > Version: 7.0.344 / Virus Database: 267.11.14/131 - Release

Date:

> > 12/10/2005

> > >

> >

>

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Hi Barb

This doctor left the centre where he treated me to set up elsewhere

on his own and the only other places I could find within a practical

travelling distance charged much more. Like many I have financial as

well as physical limitations.

Cheers, Tansy

> > > >

> > > >

> > > > The company I work for very kindly offered me along with

> everyone

> > > else a flu

> > > > jab today..I looked up a few facts to enlighten those who

> wished

> > to be

> > > > enlightened ..came across this ..I think most here will be

> > familiar

> > > with

> > > > much of the contents , but some new stuff in there too

> > > >

> > > >

> > > > http://www.orthomed.com/

> > > > --

> > > > No virus found in this outgoing message.

> > > > Checked by AVG Anti-Virus.

> > > > Version: 7.0.344 / Virus Database: 267.11.14/131 - Release

> Date:

> > > 12/10/2005

> > > >

> > >

> >

>

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  • 2 months later...

Hi Reema,

I am not an expert on vitamin C but I can share with you what I

have learned and what websites I am going by.

The most current research says that vitamin C actually dissolves kidney stones.

I have read that chewable vitamin C is very hard on your teeth and

esophagus. Non-time release will stay in your body for up to 4 hours. Time

release stays for 12 hours.

In my opinion if you take a time release vitamin you would be able to lower your

dose.

_DoctorYourself.com - Kidney Stones_

(http://www.doctoryourself.com/kidney.html)

_The Vitamin C Foundation_ (http://www.vitamincfoundation.org/)

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  • 3 months later...
Guest guest

I think it was who said ascorbic acid isn't vit C. So, what is? And what

should I look for?

>>>>>>>>>>>When I get sick I take upwards of 20 grams a day, so I buy the

powdered form. You can mix it 2:1 with baking soda (non-aluminum)

to buffer the acidity and it pretty much loses the sour flavor and

the byproduct is carbon dioxide, so it's like seltzer water. Add

some fruit juice and you've got a nice spritzer. (I mix it in water

then add fruit juice - add it straight to oj and you get a foam

fountain!)

I think Vit. C is one that's hard to mess up, most of the major

brands are pretty good. Capsules are better than tablets, always,

though, since the cellulose they use to bind the ingredients in the

tablets is more for the machinery that makes them than for our

health and in some studies didn't dissolve very well upon

ingestion. Taking it with something that contains natural vitamin

c, like orange juice is said to boost its effectiveness.

- Renate <<<<<<<<<<<<

----------

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.1.385 / Virus Database: 268.4.1/307 - Release Date: 4/10/2006

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Guest guest

Ascorbic acid most definitely is vitamin C. There are a few other very

minor forms but plain old ascorbic acid is the " main " form of the

vitamin. It's the same molecule that is found in natural sources of the

vitamin.

I bought 3 pounds of ascorbic acid powder a few months ago since I take

it regularly and in large doses to prevent colds etc. I bought the NOW

brand (orange label) which is cheap but very good. I did a Froogle

search on " now ascorbic powder " or something like that and found a place

online that sells it for much cheaper than I can get around here.

Tom

CHRISTINE TAYLOR wrote:

> I think it was who said ascorbic acid isn't vit C. So, what is? And what

should I look for?

> >

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