New to Group

[Guest guest]

Thanks Tawny

On 5/10/07, tdianaok <tdianaok@...> wrote:

>

> Welcome Heidi,....I'm so happy you joined the group. This is a great

> place to be. I'm like you, have a lot of different medical problems.

> I also take methotrexate, along with folic acid. I do have diarrhea,

> but I just live with it. I take the mtx on the weekend, when I know

> I'm close to the house. I hope the Folitinic helps you, let us know.

> I have heard from many the mtx injections are a lot better, so that

> might be the best choice for you. I hope you do well on Enbrel, never

> have tried it. I've heard a lot of good words about it though. Yes,

> we just keep having more and more fun:) You take care, and check back

> in, Tawny

>

>

>

[Guest guest]

Hi and Welcome Tally. I know what you mean. Most people don't understand FM

and some still don't recognize it as a real disease. You really need the help

and support of all your doctors in order to get disability, whether it's

because of FM or other causes.

Carol

In a message dated 5/13/2007 1:57:34 P.M. Pacific Daylight Time,

tally59601@... writes:

I was diagnosed with FM last year. Of course, the other assorted

diseases that come with FM are present and accounted for. I quit my job

as a medicare/medicaid billing clerk before I was fired last year

because the stress added to the severity of the pain, the headaches, and

lack of concentration. The total lack of understanding of the lay

person and also medical staff of this disease is unbelievable. My

supervisor blamed my headaches and pains on the fact that my daughter

and grand-daughter lived with us. At the present time, our local

clinic/hospital only has two PA's on staff. Neither of them understand

FM and have no intention of learning anything. The closest facility,

that has medical staff that knows much about anything, is 300 miles

away.

I have applied for disability but hear nothing but negative feedback on

that. I hear that they don't consider FM and attached problems a reason

to request disability. I am 59 years old, morbidly obese with chronic

depression on top of the rest of the problems. This whole episode

started with polymyalgia rheumatica in 2003 and changed over to FM. I

was given prednisone to combat the PMR which helped with the pain as

long as the dosage was above 20 mg. I was finally able to quit that

medication after more than 3 years. Of course, the weight that I gained

with this medication didn't help with the rest of the crap. I have lost

26 pounds since I quit the med which helps a lot on the joint pain. I

could go on and on about this last year of my life but I know that most

of you know what I am writing about so I don't feel I need to go any

further on this. Thanks for listening to me whine. Tally

************************************** See what's free at http://www.aol.com.

[Guest guest]

Welcome Tally. We all do know about the lay person and regular doctors, heck

some RA doctors. I totally know what you mean I have been in and out of flares

(more in than out). You can whine here anytime it will make you feel better to

know someone is here for you and we are.

My name is Marsha I have RA but wondering if I may have FM. Hope we can help in

some way!!

Marsha

[ ] New to Group

I was diagnosed with FM last year. Of course, the other assorted

diseases that come with FM are present and accounted for. I quit my job

as a medicare/medicaid billing clerk before I was fired last year

because the stress added to the severity of the pain, the headaches, and

lack of concentration. The total lack of understanding of the lay

person and also medical staff of this disease is unbelievable. My

supervisor blamed my headaches and pains on the fact that my daughter

and grand-daughter lived with us. At the present time, our local

clinic/hospital only has two PA's on staff. Neither of them understand

FM and have no intention of learning anything. The closest facility,

that has medical staff that knows much about anything, is 300 miles

away.

I have applied for disability but hear nothing but negative feedback on

that. I hear that they don't consider FM and attached problems a reason

to request disability. I am 59 years old, morbidly obese with chronic

depression on top of the rest of the problems. This whole episode

started with polymyalgia rheumatica in 2003 and changed over to FM. I

was given prednisone to combat the PMR which helped with the pain as

long as the dosage was above 20 mg. I was finally able to quit that

medication after more than 3 years. Of course, the weight that I gained

with this medication didn't help with the rest of the crap. I have lost

26 pounds since I quit the med which helps a lot on the joint pain. I

could go on and on about this last year of my life but I know that most

of you know what I am writing about so I don't feel I need to go any

further on this. Thanks for listening to me whine. Tally

[Guest guest]

Terry Hinderer wrote:

>

>

> >I have applied for disability but hear nothing but negative feedback on

> that. I hear that they don't consider FM and attached problems a reason

> to request disability.

>

I also have Fibromyalgia, along with OA, COPD, RA, Sjogren's Syndrome

and Primary Biliary Cirrhosis (the last three being autoimmune

diseases). I was approved for disability based on clinical depression

rather than any of the diseases. Took me two years to get it. It

helped getting approval on the depression because I had been seeing a

psychologist weekly for 18 months prior to filing the first time. Being

ill can be extremely depressing!

Good luck! You might want to focus more on the depression when filing

for disability rather than the Fibro. I didn't (was denied the first

time and hired an attorney). She was the one that focused on the

depression and got me approved.

Nina

[Guest guest]

Terry Hinderer wrote:

>

>

> >I have applied for disability but hear nothing but negative feedback on

> that. I hear that they don't consider FM and attached problems a reason

> to request disability.

>

I forgot to mention in my last post that 85% of people who apply for SS

disability are not approved the first time they try. If you are denied,

hire an attorney. They only get money if you are approved. That's why

most won't take your case until you have been denied the first time.

Nina

[Guest guest]

Welcome Tally,.....I'm very sorry for all you have went through. Can

you get some type of health through your local state? I will keep you

in my prayers. Just know were all here for you, hugs, Tawny

[Guest guest]

I too applied for disability, however was denied. I am now appealing it,

but not sure I will get it. I am returning to work on Monday and know that

is going to blow it, but I have no choice in the matter. I have medical

bills to pay and almost everyone knows my problems from last week which are

still here. My Disability Attorney said that I shouldn't work, but you have

to do what you have to do. I am worried about feeling tired and wore out,

stress from working and trying to do everything and making the flares worse.

Yes I believe stress is a contributing factor toward flares. Some days I

don't know how I manage to get through the day.

na

_____

From: [mailto: ] On

Behalf Of Nina

Sent: Monday, May 14, 2007 3:54 PM

Subject: Re: [ ] New to Group

Terry Hinderer wrote:

>

>

> >I have applied for disability but hear nothing but negative feedback on

> that. I hear that they don't consider FM and attached problems a reason

> to request disability.

>

I also have Fibromyalgia, along with OA, COPD, RA, Sjogren's Syndrome

and Primary Biliary Cirrhosis (the last three being autoimmune

diseases). I was approved for disability based on clinical depression

rather than any of the diseases. Took me two years to get it. It

helped getting approval on the depression because I had been seeing a

psychologist weekly for 18 months prior to filing the first time. Being

ill can be extremely depressing!

Good luck! You might want to focus more on the depression when filing

for disability rather than the Fibro. I didn't (was denied the first

time and hired an attorney). She was the one that focused on the

depression and got me approved.

Nina

[Guest guest]

Schnauzer Cloud wrote:

>

> >I too applied for disability, however was denied. I am now appealing it,

> but not sure I will get it. I am returning to work on Monday and know that

> is going to blow it, but I have no choice in the matter. I have medical

> bills to pay and almost everyone knows my problems from last week

> which are

> still here. My Disability Attorney said that I shouldn't work, but you

> have

> to do what you have to do. I am worried about feeling tired and wore out,

> stress from working and trying to do everything and making the flares

> worse.

> Yes I believe stress is a contributing factor toward flares. Some days I

> don't know how I manage to get through the day.

>

I'm so sorry to hear of all your problems, the pain, the financial

problems, etc. Been there, done that, and bought the T-shirt. We also

had our car repossessed while we were waiting to get SS on me. We were

very near eviction when the disability was approved and I got two years

back pay (from the date I originally applied). As if being sick and

being in pain isn't enough, there's the financial problems to deal

with. It isn't fair! Stress definitely makes flares worse.

I know once you get on SS you can work a little. They want you to work

so they can take you off SS. I get a letter every year saying they are

going to review my case and ask me to try to go back to work. They

always contact my PCP and he tells them there is no way I can work.

Then I get another letter saying they have decided not to review my case.

Did your attorney say going back to work will totally ruin your case

with SS or will it just cause difficulty?

I'm sure sorry to hear you're having to go through all of this. {{{hugs}}}

Nina

[Guest guest]

na, trying to work may be in your favor, but only if you and work don't

agree with each other. It will show that you've tried to work, but you

couldn't do it for long, assuming it will turn out that way. You'd have an

employer as witness to your ability to work. All of us have medical bills

that may not be paid. I've had to refuse to pay some medical bills, and

understand it doesn't affect your credit score enough to matter. At least

that's what I remember. And Betty, my wife, got her disability within 5

months from application.

Dennis in Eastexas

" It's not Rocket Surgery "

RE: [ ] New to Group

>I too applied for disability, however was denied. I am now appealing it,

> but not sure I will get it. I am returning to work on Monday and know

> that

> is going to blow it, but I have no choice in the matter. I have medical

> bills to pay and almost everyone knows my problems from last week which

> are

> still here. My Disability Attorney said that I shouldn't work, but you

> have

> to do what you have to do. I am worried about feeling tired and wore out,

> stress from working and trying to do everything and making the flares

> worse.

> Yes I believe stress is a contributing factor toward flares. Some days I

> don't know how I manage to get through the day.

>

>

>

> na

[Guest guest]

From: Helen Reicher <hlreicher@...>

Date: 2007/05/22 Tue PM 05:00:05 CDT

Subject: ( ) New to group

Helen...it wouldn't hurt to get a neuropsych done and then you would know for

sure if he has AS. You would not have to medicate him. It sounds like the right

teacher could handle him from what you are saying. I know lots of AS kids in

regular classrooms with just minor modifications. Does he have any fine motor

problems? Those will come to the forefront in first grade as it did with my

daughter. If my daughter did not throw tantrums, she would be maintained in a

regular classroom. Your son sounds like he is manageable.

I am new to the group. My DS will be in first grad next yer. He was having

problems with paying attention, listening, impulse control and other behavio

problems. Not really hyperactivity though. I thought he had ADD and took him to

a therapist. He visited with him for an hour and said he did. He had me make an

appiontment for a med check.I thought it was awful quick to jump on the med band

wagon so I started to reasearch other options.

 A bit of background:  His " problems " have not been that daunting for

me to deal with at home. Not that he is an angel but he is not so bad that I

want to medicate him but his teacher deos. His teacher has always taught 3rd

grade and this was her first year in kindergarten. Also I have a step-ds, 9 who

has sever ADHD. He is on Aderol XR and Colodine (he has tried about all of them)

and finally has it under control.

In my reseach I cam accross aspergers and it fit him so well. It explianed some

of his other quirks. Obsesions, perfectionism, above average inteeligence,

problems conversing. At this point he deos not have problem making frined's but

I think it is because kids his age are not old enough to find his behavior

strange or offensive and older kids just think is his a silly littel kid. I am

fearful of how those attitudes will change as they grow older and better for

opinions of what " normal " behavior is. I know it will eventually get harder for

him.

I love him the way he is and I find thinks his quirks make him special. My worst

fear it to give him medication that will change who he is when he is with me. I

also have spoken to hi s father (he is not around much) who origanly was

diagnosed with ADD and recetnly was diagnosed with Aspergers.

Oh yeah, he deos not want to take medicine and is happy the way he is. He used

to get upset at losing bears (he gets three bears per day) until I stoped

getting upset, now he not only blows it off but is losing fewer. I used to

punish him but no longer do. Everytime he gets in trouble it is always for the

same thing-not followings, instructions, not listening or just getting up and

going to do what ever he wants (especially during thier free time, he will

wonder off).

I meet with the nurse about meds Thursday. I am going to bring up my suspicions

with her and with the thereapist. I would really like to see how he funtions

with a new teacher next year. His daycares have never complained.

Helen

wrote: A support list for parents of

children with Asperger's Syndrome or HFA. Messages In This Digest (25

Messages) 1.1. Re: question From: 1.2. Re: question From:

and/or Robin Lemke 1.3. Re: question From: Roxanna 2a. Re:

disciplining 6 yr old with as... From: Kaye Bates 2b. Re: disciplining 6 yr

old with as... From: Roxanna 2c. Re: disciplining 6 yr old with as... From:

Roxanna 2d. Re: disciplining 6 yr old with as... From: Roxanna 2e. Re:

disciplining 6 yr old with as... From: Liz Bohn 2f. Re: disciplining 6 yr

old with as... From: Liz Bohn 2g. Re: disciplining 6 yr old with as... From:

Roxanna 3.1. Re: question- Kaye- another question From: Kaye Bates 3.2.

Re: question- Kaye- another question From: Roxanna 3.3. Re: question- Kaye-

another question From: Kaye Bates 4.1. Re: Disney Guest Assistance Pass

From: Roxanna 4.2. Re: Disney Guest Assistance Pass From: Roxanna 4.3.

Re: Disney Guest Assistance Pass From: Mills 4.4. Re: Disney Guest

Assistance Pass From: Roxanna 5. lock for fridge From: or Steve

6. How to get disability passes at DW From: daphne_dudek 7.1. Hello

From: lkeni@... 7.2. Re: Hello From: Debbie 8a. Re:

Homeschooling From: Debbie 8b. Re: Homeschooling From: pidder88 9a.

Can a HFA child be a well behaved child and teenager and adult?? From:

hambonemcgee 9b. Re: Can a HFA child be a well behaved child and teenager

and adult?? From: Tonya Hettler View All Topics | Create New Topic Messages

1.1. Re: question Posted by: " " cmcintosh5@...   liquorliz

Tue May 22, 2007 4:52 am (PST) We had a similar reaction with my

stepson. He became VERY disrupted with the

adderol. Sometimes a good ol' detox is what they need and then start over

with lower dose meds along with the therapies. I think you are on the right

track

I also want you to look at these products. A lady I know loves them and I

have seen the difference

In her child.. However I must stress.. Herbal remedies are medicines and you

should consult professionals when using them too..

Here is the link http://www.nativeremedies.com/

Focus is the first one that she uses

Bright spark is the second one

And Mindsoothe Jr.. Is the third..

She swears by it.. And I have seen it with my own eyes!

-- Re: ( ) question

My son was only on the Adderall for 8 weeks. Most people swear he has ADHD,

and if it wasnt for all the rest of his problems I would agree. But total

combined issues, the dx of Asperger's fits him so well. Much like many of

you I would love to " fix " the issues for him, however, I love him as is and

wouldnt change him. The joy he brings me outweighs the struggles we all

have when dealing with the meltdowns/tantrums/impulsivity etc that comes

with having our kids. Not to say if something worked for him I wouldnt give

it a go, but our docs and I agree right now on what we would like to try.

OT/PT/ST social skills training etc. Those things first. If we then need

to work on Anxiety/Depression/OCD or anything else that beings to become a

problem, then yes by all means I will be the first one saying this is not

right, what do we do next? Is it time to try a med(s) etc. I hope the

Adderall continues to work for your family. My neighbor has a son with ADD

and it works really well for him also without the aggression problem.

( ) Can a HFA child be a well behaved child and

teenager and adult??

My daughter is HFA 5 going on 6 end of August and so far she is very

well behaved. My fear is that the behavior issues start later. Were

your kids even-keeled and mellow as smaller children? It seems like the

majority of the posts I have read, the kids have some kind of issue

with meltdowns or fits or some kind of issue. I am greatful for now

but does this start later in life or what? My 13 yr old daughter was a

nightmare as a little girl, but my little one is so good- it is almost

scary- I am just waiting for something NEW to happen. I hope I am

explaining myself right.

Thanks

Heidi- mom to Maizy 5 HFA and Payton 13 ADD

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[Guest guest]

Helen,

One hour doesn't seem like sufficient time for a Dx. My son is

pretty classic and it still took hours of evaluations and forms

completed by parents and teachers. Did you fill out any behavior

forms (scales?) for your son? Get a second opinion if not sure.

Sandy

That's In a message dated 5/20/2007 4:45:04 P.M.

Pacific Daylight Time, laura6307@... writes:

> I was wanting to start him at home next year with homeschooling

> and I

> > was wanting to know if any of you guys do homeschooling too.

>

> ---------------

>

> Many people are homeschooling

> ASlearningAtHome

> and

> HomeschoolingAspies

>

> are two groups for you

>

> ---------------------------------

> See what's free at AOL.com.

>

>

> ---------------------------------

> Building a website is a piece of cake.

> Small Business gives you all the tools to get online.

Back to top Reply to sender | Reply to group | Reply via web post

> Messages in this topic (19) 9a. Can a HFA child be a well

behaved child and teenager and adult?? Posted by: " hambonemcgee "

hambonemcgee@...   hambonemcgee Tue May 22, 2007

12:01 pm (PST) My daughter is HFA 5 going on 6 end of August and

so far she is very

> well behaved. My fear is that the behavior issues start later. Were

> your kids even-keeled and mellow as smaller children? It seems like

the

> majority of the posts I have read, the kids have some kind of issue

> with meltdowns or fits or some kind of issue. I am greatful for now

> but does this start later in life or what? My 13 yr old daughter

was a

> nightmare as a little girl, but my little one is so good- it is

almost

> scary- I am just waiting for something NEW to happen. I hope I am

> explaining myself right.

>

> Thanks

> Heidi- mom to Maizy 5 HFA and Payton 13 ADD

>

> Back to top Reply to sender | Reply to group | Reply via web

post

> Messages in this topic (2) 9b. Re: Can a HFA child be a well

behaved child and teenager and adult?? Posted by: " Tonya Hettler "

txua@...   tzhettler Tue May 22, 2007 12:25 pm (PST)

Our son was tough to deal with when he was young, but has gotten

better

> as he gets older. I think mostly people just write when they are

having

> a problem, so that is why it seems as if so many have troubles.

>

> Tonya

>

> ( ) Can a HFA child be a well behaved child

and

> teenager and adult??

>

> My daughter is HFA 5 going on 6 end of August and so far she is

very

> well behaved. My fear is that the behavior issues start later. Were

> your kids even-keeled and mellow as smaller children? It seems like

the

> majority of the posts I have read, the kids have some kind of issue

> with meltdowns or fits or some kind of issue. I am greatful for now

> but does this start later in life or what? My 13 yr old daughter

was a

> nightmare as a little girl, but my little one is so good- it is

almost

> scary- I am just waiting for something NEW to happen. I hope I am

> explaining myself right.

>

> Thanks

> Heidi- mom to Maizy 5 HFA and Payton 13 ADD

>

> Back to top Reply to sender | Reply to group | Reply via web

post

> Messages in this topic (2) Recent Activity  22 New

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[Guest guest]

His hand writing is horrible but that is all. He does not throw

tantrums as of yet. Well, he will start crying pretty easily. There

are some days he crys all the time but that is only worse when his

dad does not get him when he is supposed to. If everything is going

okay and his schedule is not interupted it really cuts down on that.

In a message dated 5/20/2007 4:45:04

P.M. Pacific Daylight Time, laura6307@... writes:

> I was wanting to start him at home next year with homeschooling

> and I

> > was wanting to know if any of you guys do homeschooling too.

>

> ---------------

>

> Many people are homeschooling

> ASlearningAtHome

> and

> HomeschoolingAspies

>

> are two groups for you

>

> ---------------------------------

> See what's free at AOL.com.

>

>

> ---------------------------------

> Building a website is a piece of cake.

> Small Business gives you all the tools to get online.

Back to top Reply to sender | Reply to group | Reply via web post

> Messages in this topic (19) 9a. Can a HFA child be a well

behaved child and teenager and adult?? Posted by: " hambonemcgee "

hambonemcgee@...   hambonemcgee Tue May 22, 2007

12:01 pm (PST) My daughter is HFA 5 going on 6 end of August

and so far she is very

> well behaved. My fear is that the behavior issues start later.

Were

> your kids even-keeled and mellow as smaller children? It seems

like the

> majority of the posts I have read, the kids have some kind of

issue

> with meltdowns or fits or some kind of issue. I am greatful for

now

> but does this start later in life or what? My 13 yr old daughter

was a

> nightmare as a little girl, but my little one is so good- it is

almost

> scary- I am just waiting for something NEW to happen. I hope I am

> explaining myself right.

>

> Thanks

> Heidi- mom to Maizy 5 HFA and Payton 13 ADD

>

> Back to top Reply to sender | Reply to group | Reply via web

post

> Messages in this topic (2) 9b. Re: Can a HFA child be a well

behaved child and teenager and adult?? Posted by: " Tonya Hettler "

txua@...   tzhettler Tue May 22, 2007 12:25 pm (PST)

Our son was tough to deal with when he was young, but has gotten

better

> as he gets older. I think mostly people just write when they are

having

> a problem, so that is why it seems as if so many have troubles.

>

> Tonya

>

> ( ) Can a HFA child be a well behaved

child and

> teenager and adult??

>

> My daughter is HFA 5 going on 6 end of August and so far she is

very

> well behaved. My fear is that the behavior issues start later.

Were

> your kids even-keeled and mellow as smaller children? It seems

like the

> majority of the posts I have read, the kids have some kind of

issue

> with meltdowns or fits or some kind of issue. I am greatful for

now

> but does this start later in life or what? My 13 yr old daughter

was a

> nightmare as a little girl, but my little one is so good- it is

almost

> scary- I am just waiting for something NEW to happen. I hope I am

> explaining myself right.

>

> Thanks

> Heidi- mom to Maizy 5 HFA and Payton 13 ADD

>

> Back to top Reply to sender | Reply to group | Reply via web

post

> Messages in this topic (2) Recent Activity  22 New

MembersVisit Your Group TV American Idol Rank your

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steps. Connect with others. Need to Reply? Click one of

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[Guest guest]

The teacher and I both did but sicne we were thinking it was ADD

they were forms geared towards those behaviors. I have found some

pretty exstensive ones on the interent that I will be bringing with

me tomorrow.

In a message dated 5/20/2007 4:45:04 P.M.

> Pacific Daylight Time, laura6307@ writes:

> > I was wanting to start him at home next year with homeschooling

> > and I

> > > was wanting to know if any of you guys do homeschooling too.

> >

> > ---------------

> >

> > Many people are homeschooling

> > ASlearningAtHome

> > and

> > HomeschoolingAspies

> >

> > are two groups for you

> >

> > ---------------------------------

> > See what's free at AOL.com.

> >

> >

> > ---------------------------------

> > Building a website is a piece of cake.

> > Small Business gives you all the tools to get online.

> Back to top Reply to sender | Reply to group | Reply via web post

> > Messages in this topic (19) 9a. Can a HFA child be a

well

> behaved child and teenager and adult?? Posted by: " hambonemcgee "

> hambonemcgee@   hambonemcgee Tue May 22, 2007

> 12:01 pm (PST) My daughter is HFA 5 going on 6 end of August

and

> so far she is very

> > well behaved. My fear is that the behavior issues start later.

Were

> > your kids even-keeled and mellow as smaller children? It seems

like

> the

> > majority of the posts I have read, the kids have some kind of

issue

> > with meltdowns or fits or some kind of issue. I am greatful for

now

> > but does this start later in life or what? My 13 yr old daughter

> was a

> > nightmare as a little girl, but my little one is so good- it is

> almost

> > scary- I am just waiting for something NEW to happen. I hope I

am

> > explaining myself right.

> >

> > Thanks

> > Heidi- mom to Maizy 5 HFA and Payton 13 ADD

> >

> > Back to top Reply to sender | Reply to group | Reply via web

> post

> > Messages in this topic (2) 9b. Re: Can a HFA child be a

well

> behaved child and teenager and adult?? Posted by: " Tonya

Hettler "

> txua@   tzhettler Tue May 22, 2007 12:25 pm (PST)

> Our son was tough to deal with when he was young, but has gotten

> better

> > as he gets older. I think mostly people just write when they are

> having

> > a problem, so that is why it seems as if so many have troubles.

> >

> > Tonya

> >

> > ( ) Can a HFA child be a well behaved

child

> and

> > teenager and adult??

> >

> > My daughter is HFA 5 going on 6 end of August and so far she is

> very

> > well behaved. My fear is that the behavior issues start later.

Were

> > your kids even-keeled and mellow as smaller children? It seems

like

> the

> > majority of the posts I have read, the kids have some kind of

issue

> > with meltdowns or fits or some kind of issue. I am greatful for

now

> > but does this start later in life or what? My 13 yr old daughter

> was a

> > nightmare as a little girl, but my little one is so good- it is

> almost

> > scary- I am just waiting for something NEW to happen. I hope I

am

> > explaining myself right.

> >

> > Thanks

> > Heidi- mom to Maizy 5 HFA and Payton 13 ADD

> >

> > Back to top Reply to sender | Reply to group | Reply via web

> post

> > Messages in this topic (2) Recent Activity  22

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[Guest guest]

HI DEAN, are you still reacting to something in your environment? do

you know how they went about decontaminateing your wood furniture? did

they use chemicals? do you react to chemicals? can you see any mold

spots actually growing in the wood? how well did they clean in the

cracks? if you are now also sensative to chemicals,perfumes ect. have

you rid your environment of them? really hard to answer your question,

more info. may help. you might try putting all these wood items in one

room and shutting it off and see if you fell better, if so, chances are

they are contaminated. if they used some kind of chemical you may be

reacting to it to.

>

> I was wondering if anyone could answer my question here: I had a mold

> problem in a former place of residence and reported it to the building

> inspectors. I know my question might seem like I am not knowledgable

> about molds, in which I have to say I am not. I have been sick for

> about 5 1/2 years, no voice to speak and had surgery not to long ago.

> Now, I took all the wood furniture from the previous home, it was

> disinfected real well by a company. How do I know that it is not

> contaminated, or that I am not cross-contaminating where I am now?

> They said they don't totally guarantee me that there are no spores,

> etc on the furniture. I didn't take anything like mattress, just the

> wood items. Would appreciate your opinions. Thanks, Dean

>

[Guest guest]

Jeanine, thank you for replying to my post. To put it simply, I am not sure

what they used on the furniture to " decontaminate " . My reactions, well I don't

know if I want to call them reactions at this point from when I am in my home

now due to the fact there is no mold here. From being in the moldy environment

for so long, and being very ill they don't feel that I will see a difference in

my health. I think what they were telling me the attacks on my body, immune

system and all were so severe I will be ill for a long time and just might not

get better. The molds have done the damage, how does one recover from

this.....I could not tell you. As far as chemical sensitivity, not horrific in

any way. I am not around bleach or ammonia, can't stand the orders but I feel

alot of people are like that anyways. Other orders, some seem to be stronger

than others and I don't like it. I don't know if I made myself clear, but with

the brain fog I can't remember what they used on

the furniture. Thanks, Dean

who <jeaninem660@...> wrote: HI DEAN,

are you still reacting to something in your environment? do

you know how they went about decontaminateing your wood furniture? did

they use chemicals? do you react to chemicals? can you see any mold

spots actually growing in the wood? how well did they clean in the

cracks? if you are now also sensative to chemicals,perfumes ect. have

you rid your environment of them? really hard to answer your question,

more info. may help. you might try putting all these wood items in one

room and shutting it off and see if you fell better, if so, chances are

they are contaminated. if they used some kind of chemical you may be

reacting to it to.

>

> I was wondering if anyone could answer my question here: I had a mold

> problem in a former place of residence and reported it to the building

> inspectors. I know my question might seem like I am not knowledgable

> about molds, in which I have to say I am not. I have been sick for

> about 5 1/2 years, no voice to speak and had surgery not to long ago.

> Now, I took all the wood furniture from the previous home, it was

> disinfected real well by a company. How do I know that it is not

> contaminated, or that I am not cross-contaminating where I am now?

> They said they don't totally guarantee me that there are no spores,

> etc on the furniture. I didn't take anything like mattress, just the

> wood items. Would appreciate your opinions. Thanks, Dean

>

---------------------------------

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[Guest guest]

hang in there with us. time and being in a mold free place can help

but you may also need to advoid any scented products or chemicals.

sometimes its takes time to become aware of things that will further

aggervate your illness. I know you'll get some good advice here.

sorry, its just hard for me to write much and I have some vision

problems that are makeing it very hard to see the keyboard. maybe

someone here can add on. did you take any cloths or other things that

may be contaminated?

> >

> > I was wondering if anyone could answer my question here: I had

a mold

> > problem in a former place of residence and reported it to the

building

> > inspectors. I know my question might seem like I am not

knowledgable

> > about molds, in which I have to say I am not. I have been sick

for

> > about 5 1/2 years, no voice to speak and had surgery not to long

ago.

> > Now, I took all the wood furniture from the previous home, it

was

> > disinfected real well by a company. How do I know that it is not

> > contaminated, or that I am not cross-contaminating where I am

now?

> > They said they don't totally guarantee me that there are no

spores,

> > etc on the furniture. I didn't take anything like mattress,

just the

> > wood items. Would appreciate your opinions. Thanks, Dean

> >

>

>

>

>

>

>

> ---------------------------------

> Be a better Globetrotter. Get better travel answers from someone

who knows.

> Answers - Check it out.

>

> ---------------------------------

> The fish are biting.

> Get more visitors on your site using Search Marketing.

>

>

[Guest guest]

Moldvictor,

You mentioned:

> they don't feel that I will see a difference in my health.

> I think what they were telling me the attacks on my body, immune

> system and all were so severe I will be ill for a long time and

> just might not get better. The molds have done the damage,

> how does one recover from this.....I could not tell you.

Who is the " they " ? You need to read Mold Warriors and find a

doctor that you can treat you using that protocol. It is true that

once you get so ill, the damage can be permanent, but the CSM

protocol will at least remove the toxins to try to reduce your body's

burden. Your ability to recover also depends upon your genes - 25%

of the population has genes that once they're exposed to mold you

will not get well without something like the CSM to bind the toxins.

Be well,

B

[Guest guest]

Please don't shoot me but I have to disagree..some of us will get well

without CSM. I go to a doctor who uses the CSM protocal and my doctor

feels I have a GREATER chance of getting well without it and I am full

of toxins..in fact, my doctor does not feel CSM will be in my best

interest. One shoe, does not fit all.

Your ability to recover also depends upon your genes - 25%

> of the population has genes that once they're exposed to mold you

> will not get well without something like the CSM to bind the toxins.

>

> Be well,

> B

>

[Guest guest]

I know there are many that take CSM. Has anyone finished with this

medication. It seems like you have to take it for years. Just

wondering.

--- In , " mhbarnes_99 " <mary.h.barnes@...>

wrote:

>

> Moldvictor,

>

> You mentioned:

>

> > they don't feel that I will see a difference in my health.

> > I think what they were telling me the attacks on my body, immune

> > system and all were so severe I will be ill for a long time and

> > just might not get better. The molds have done the damage,

> > how does one recover from this.....I could not tell you.

>

[Guest guest]

My kids are no longer taking the CSM and I'll be checking back with

Dr. Shoemaker to see if they should be on a maintenance dose. The

reality is, though, as pointed out by an article posted earlier

today, mold is everywhere. So, the potential for exposure is quite

high on a daily basis for many of us. My theory for my boys is that

as long as they're living in a safe house and get outside and stay

active, they likely won't need maintenance doses of CSM. I,

personally, likely will need to take it at least semi-regularly for a

very longtime. I was on it 4x/day for 10 months and then switched to

twice a day for 3 months and now take it once a day. But, I know on

days when I get exposed (like the dentist office earlier this week),

I can feel it and it takes days to recover. Of course, I think I'm

likely a worse case scenario with the dreaded/mold genotype and

having been sick for so long.

So, I think it's a very, very individual thing.

B.

> >

> > Moldvictor,

> >

> > You mentioned:

> >

> > > they don't feel that I will see a difference in my health.

> > > I think what they were telling me the attacks on my body,

immune

> > > system and all were so severe I will be ill for a long time and

> > > just might not get better. The molds have done the damage,

> > > how does one recover from this.....I could not tell you.

> >

>

[Guest guest]

Hi Jackie,

I would love to hear what treatment protocol your doctor does use as

I do have a very good friend that can't tolerate CSM and she has

doctors that are using other treatments, but she's not getting well.

My sister has improved using alternative therapies without CSM, but

she is not fully well (I've offered to pay her visit to Dr. Shoemaker

as she lives in land, so she could EASILY get into see him).

From what I've read the phospholipid exchange is the only other

protocol that might be as effective as CSM (I did have one friend who

could not tolerate CSM do well on that), but that is far more

expensive than the CSM (my friend had to stop it and became quite ill

again) and requires much more regular visits to the doctor's offices.

Per my previous posting, I did say " something like CSM " as I 100%

agree that everyone is different and totally acknowledge that not

everyone can tolerate CSM. For me personally, who has done lots and

lots of alternative detox treatments since I got Lyme almost 4 years

ago, the CSM has been the most effective. But, certainly, whatever

your doctor suggests is absolutely what you should be following, as I

am just sharing my personal experiences and information I've gleaned

over the past year since I've come to accept the severity of illness

caused by just a " little bit " of mold.

Peace and Healing,

B.

>

> Please don't shoot me but I have to disagree..some of us will get

well

> without CSM. I go to a doctor who uses the CSM protocal and my

doctor

> feels I have a GREATER chance of getting well without it and I am

full

> of toxins..in fact, my doctor does not feel CSM will be in my best

> interest. One shoe, does not fit all.

>

>

> Your ability to recover also depends upon your genes - 25%

> > of the population has genes that once they're exposed to mold you

> > will not get well without something like the CSM to bind the

toxins.

> >

> > Be well,

> > B

> >

>

[Guest guest]

I can't believe how many people show up with dx's of any kind after one hour with a "professional." It just seems so wrong. I personally do not medicate because teachers want it. And I get pretty upset when teachers want to discuss dosages or particular medications with me. There is even a report that states "mother was hostile when discussion about medication was brought up." lol, yep. Because it is so easy for some people to say "medicate" and blame the problem on the child with little regard to finding out what the problem is and other ways to resolve it. So I wouldn't recommend you medicate to make the teacher happy. You should evaluate what problems he had in class and determine if those problems require medication to help him learn. You don't want him struggling constantly to pay attention or getting in trouble a lot because he can't sit still. That would be a good reason to discuss meds with a qualified doctor.

OTOH, there is nothing wrong with using medication. When it is necessary, it can be a wonderful tool. It isn't a magic fix, though! So teacher would still need to work on behavior techniques with or without the meds.

Meds will not change who the person is or make them into someone else. It doesn't work that way. Meds are not supposed to make a kid into a "zombie" (another common myth) and if the meds do that, you've got the wrong meds or the wrong dosage. So you don't have to worry that it will change "who he is" as it doesn't. It should address the problems for which it is being taken, which only enables the child to function better.

RoxannaAutism Happens

Re: ( ) disciplining 6 yr old with as...Roxanna,My DS also 10 (AS) just had a similar situation, yesterday. At the end of recess one of the teachers asked him to help bring in the soccer balls and he was trying to kick them in when some kids came up and took them away and called him a loser or some such thing because he couldn't kick the ball and they were able to get it away from him. This caused an immediate melt down and DS ran into the gym and began hitting his head against the gym wall (luckily it is padded so it was only bruised not a concusion (sp?). This happened 2 HOURS after our IEP meeting where we discussed his goals, one if which is for him not to hit his head on anything. It took them so long to find him, his whole forehead was red, still not sure how long it went on. They know he gets picked on, and they know his reaction is very intense.... Guess that IEP goal is down the drain.....I just feel like no matter what I do, we get nowhere...Big sigh...Sorry, it's late. Tomorrow is another day.Sandy In a message dated 5/20/2007 4:45:04 P.M. Pacific Daylight Time, laura6307 writes:I was wanting to start him at home next year with homeschooling and I > was wanting to know if any of you guys do homeschooling too.---------------Many people are homeschoolingASlearningAtHome andHomeschoolingAspies are two groups for you---------------------------------See what's free at AOL.com. ---------------------------------Building a website is a piece of cake. Small Business gives you all the tools to get online.

Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (19)

9a.

Can a HFA child be a well behaved child and teenager and adult??

Posted by: "hambonemcgee" hambonemcgee hambonemcgee

Tue May 22, 2007 12:01 pm (PST)

My daughter is HFA 5 going on 6 end of August and so far she is very well behaved. My fear is that the behavior issues start later. Were your kids even-keeled and mellow as smaller children? It seems like the majority of the posts I have read, the kids have some kind of issue with meltdowns or fits or some kind of issue. I am greatful for now but does this start later in life or what? My 13 yr old daughter was a nightmare as a little girl, but my little one is so good- it is almost scary- I am just waiting for something NEW to happen. I hope I am explaining myself right.ThanksHeidi- mom to Maizy 5 HFA and Payton 13 ADD

Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (2)

9b.

Re: Can a HFA child be a well behaved child and teenager and adult??

Posted by: "Tonya Hettler" txuaearthlink (DOT) net tzhettler

Tue May 22, 2007 12:25 pm (PST)

Our son was tough to deal with when he was young, but has gotten betteras he gets older. I think mostly people just write when they are havinga problem, so that is why it seems as if so many have troubles.Tonya-----Original Message-----From: [mailto: ] On Behalf Of hambonemcgeeSent: Tuesday, May 22, 2007 1:58 PM Subject: ( ) Can a HFA child be a well behaved child andteenager and adult??My daughter is HFA 5 going on 6 end of August and so far she is very well behaved. My fear is that the behavior issues start later. Were your kids even-keeled and mellow as smaller children? It seems like the majority of the posts I have read, the kids have some kind of issue with meltdowns or fits or some kind of issue. I am greatful for now but does this start later in life or what? My 13 yr old daughter was a nightmare as a little girl, but my little one is so good- it is almost scary- I am just waiting for something NEW to happen. I hope I am explaining myself right.ThanksHeidi- mom to Maizy 5 HFA and Payton 13 ADD

Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (2)

Recent Activity

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[Guest guest]

Welcome Samiyah

I am fairly new to the group myself. I have RA, Fibro and Chronic Fatigue......

It's a great group of people here..

Rose

Tammy <twizzler3_13849@...> wrote: Hello

every one I am new to the group...My name is Tammy..but I am

called Samiyah..I have Fibromyalgia and had it since 1989 but fully

diagnosed in 1992...I hope to get to know many people here...and

discus some of my fibro problems and what ever else is on my

mind...take care and god bless...here is to a pain free day...gentle

hugs...

---------------------------------

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[Guest guest]

>

> Hello every one I am new to the group...My name is Tammy..but I am

> called Samiyah..I have Fibromyalgia and had it since 1989 but fully

> diagnosed in 1992...I hope to get to know many people here...and

> discus some of my fibro problems and what ever else is on my

> mind...take care and god bless...here is to a pain free day...gentle

> hugs...

>

Hello & Welcome, join the crowd.. We love having you with us.

[Guest guest]

Thank you for the warm welcome..I hope everyone is having a pain free day...take

care and god bless.. Tammy from Egypt

Tammy

---------------------------------

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