Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 Adrienne, To give you a different perspective and add to what a said regarding infants and children. When I was in first grade (6 yo?) I was diagnosed with juvenile rheumatoid arthritis. At that point I don't believe I was able to even fully understand the disease or make a fully competent decision. From first through fifth grade my parents and doctors at CHOPs tried multiple drugs only to be lucky enough to have MTX be in it's experimental stage and be part of the study. During fifth grade my RA went into remission for the next 17 years only to recently have my RA flare up again. I do fully believe the MTX and an outstanding group of JRA specialists were the reason for this remission as mental development at 11 still did not have me fully understanding the disease or the world around me. I respect your idea and find it interesting but wanted to add some experiences to your knowledge base. Best Wishes, > Hi > I'm Adrienne from England. I was diagnosed with RA a year ago and in that > time I've been trying to make it go away through changing my diet radically > and taking supplements like fish oils, vitamins and glucosamine. > > The attacks have reduced in severity and length but I've just recently > accepted that RA is here to stay. > > I'm particularly interested in learning how to live with this disease, > particularly to get some kind of psychological perspective. I've been > reading a fascinatng book called The HEaling Power of Illness by Thorwald > Dethlefsen which gives some insight into illness and this one in particular. > Do any of you feel that at some level we have chosen this illness and that > we can make different choices? I expect I'll offend some of you who have not > come across this concept by saying this; forgive me. Has anyone found a way > to live with RA that doesn't involve drugs? > > Many thanks > Adrienne CAmpbell > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 That's a hard question to answer, Jennie. I would have to do some research in order to decide. But of the several diseases that I have, I like diabetes the best. That's because there are things that I can do to control it, such as eating fewer carbs and exercising. RA seems to be out of one's control, but Enbrel is doing a very good job of controlling it for now. Sue On Thursday, September 9, 2004, at 08:25 AM, Jennie G wrote: > Sue, > > Just out of curiousity - what disease would you have picked? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 > Hi > I'm Adrienne from England. I was diagnosed with RA a year ago and in that > time I've been trying to make it go away through changing my diet radically > and taking supplements like fish oils, vitamins and glucosamine. I did that, too. > Do any of you feel that at some level we have chosen this illness and that > we can make different choices? It's possible. Has anyone found a way > to live with RA that doesn't involve drugs? No. I tried everything else first, and was very nervous about the meds. However, the drugs have been a godsend to me. I continue to use complementary therapies such as acupuncture, massage, supplements, etc. I didn't realize how must I trusted/appreciated science unil I got RA. There are a lot of theories out there re: alternative treatments, but when joint damage is at stake, I want to see some evidence. S Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2004 Report Share Posted September 10, 2004 Hi Adrienne I am Judith and also in the UK I have been diagnosed with RA for just over 4 years now. It took me a longtime to accept that I had the disease, I don't believe that anyone would choose to have this disease - why would anyone want this disease? I have just started taking Leflunomide (Arava) together with Sulphasalizine and touch wood do not seem to have had any side effects other than feeling a little nauseous. I did go through a period of denial and stopped taking medication and all that happened was my condition worsened I have accepted what my rheumatologist says in order to prevent flares and joint deformity it is very important to treat the RA often very aggressively and as early as possible. I don't think that diet vitamins etc would put your condition into remission but alongside conventional medicines it may help. I think you have to be guided by your consultant and I am lucky as I have a very understanding one that I trust. Kind wishes Judith Re: Methotrexate > > Do you guys notice a difference in side effects sometimes from week > to week, or once you get past any initial side effects, is it > generally OK? I've been taking methotrexate orally for about 5 months > now. Some weeks I'm fine...just a little fatigue the next day, but > no nausea. But every once in a while, I'll feel really lousy for > about two days after taking it, almost like I've got the flu or > something. I haven't been able to find any kind of pattern, like how > much water or food I've had. I always take it with food and I try to > drink plenty of water afterwards. > > > > > > > Hi , > > > > << One question you asked somewhere in there was about swelling and > itching > > in your legs. That sound like water retention to me. When I > retain fluid in > > my thighs, they itch like crazy. What causes it for me is not the > RA, but the > > meds. Prednisone and anti-inflamatories are notorious for causing > fluid > > retention. >> > > > > I've definitely been having issues with fluid-retention - it was > one of the > > first things my rheumy pointed out on my initial visit. She put me > on lasix > > (and potassium) right away and I promptly dropped 35 of the 40 > pounds I put on in > > 5 months at college - I'm only 5 feet tall, so as you can imagine, > I feel > > *much* better now! It's also nice to have a solution for how in > the world I > > managed to put on half again my original body weight in such a > short amount of > > time. I knew I wasn't eating *that* much.... > > > > I digress (as usual). My question would perhaps have been better > phrased, " Is > > there any connection between RA and fluid retention that is *not* > drug > > related? " This comes about because I wasn't on NSAIDs or pred (to > speak of... a > > single two week burst I think?) when the massive weight gain > started. It just > > occurred to me to wonder if this might have in fact been an early > (if bizarre) > > indication of RA - or some kind of fallout due to RA - that I'd > missed. > > > > In any case, there's no doubt that it's fluid and not " true " weight > gain, so > > I guess I can be grateful for that. Being on the lasix has also > resulted in my > > feet looking semi-normal for the first time in about 12 years... > they've > > never been completely normal of course, but they've also had some > weird skin > > issues for a long, *long* time, which now appear resolved. I'd > ascribe the fluid > > retention to the CP, and that may be a minor factor, but till very > recently I've > > always been an ambulatory biped-type creature (i.e. only using my > chair for > > long distances), so I can't imagine that's the whole puzzle... who > knows. > > > > Thanks for the help! > > > > Meg > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2004 Report Share Posted October 1, 2004 Hi Judy, Welcome to this informative, interesting and friendly group. You were so fortunate to grow up drinking goat's milk every day. I think it's wonderful you have already found a source of fresh milk. Perhaps it will not seem so expensive when you find other ways to cut costs. Fresh milk, as you know from experience, has such wonderful nutrition compared store bought milk. Maybe a goat farm is nearby too. It might be less expensive. It will take time to find sources, but it is fun to talk to farmers and other people interested in whole foods, so I think you will enjoy the experience. If you are looking for budget guidlines on food for your family, until you set up a homestead, I would suggest reading Nouishing Traditions, the cookbook by the founder of Weston A. Price Foundation, Sally Fallon. In it is a section on Limited-Time Limited- Budget Guidlines. It's in the back of the book. I have found it very helpful. Do you have a food co-op in your area.? Will your health food store allow a discount on cases of food? Maybe there is a WAP chapter in NH. You can quickly find out at the Weston A. Price web site. (www.westonaprice.org) I'm sure they would help you too. Sheila --- In , " kblackclaw " <temair@a...> wrote: > Hi, I was just told about this group on another list I'm on. My name > is Judy and I live in NH. I am 28, married and have four daughters. > As a child, I grew up on a small homestead raising Toggenburg dairy > goats. I found the Weston A. Price website and finally realized why > I was never sick growing up. I am now trying to guide my family onto > a healthy, wholesome diet. My husband is on the Atkins diet, so it > isn't a huge change for him, and I have just been slowly converting > my kids. The hardest part that I have found is finding good food at > prices we can afford. I just got a quote from a local farmer for raw > milk and she sells it for twice the price of store-bought milk. But > WIC doesn't cover raw milk. (They won't even allow whole milk > after the child turns 2.) I live in an apartment right now, but once > I start working again, we hope to start a homestead. So that is me > in a nutshell. I see this is an active group and I hope I can > contribute. > > Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2004 Report Share Posted October 1, 2004 Thanks for the welcome. When we moved and couldn't take the goats, cow's milk tasted so strange to me. It was very sweet. I have the library looking for that cookbook. I called today and they are looking for it to ILL for me. I asked about food coops and it seems the nearest one is 45 minutes away and I have no car during the day. Since I stay at home, time isn't an issue, but budget definitely is. I will check and see if there is a WAP chapter here. Thanks for the ideas. Hmm... it is also fair season. I could ask the local 4-H group, too. There is a year-round farmstand here in town, just 2 miles from me, and they have great stuff, too. The clerk I spoke to estimated that about 40% of their stock was organic, and they are building an addition dedicated just to organics. They rock! Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2004 Report Share Posted October 1, 2004 >There is a year-round >farmstand here in town, just 2 miles from me, and they have great stuff, >too. The clerk I spoke to estimated that about 40% of their stock was >organic, and they are building an addition dedicated just to organics. They >rock! Do you have a house or apartment? What I've found is that I can grow a LOT just using little pots on my balcony. Mind you we have 5 acres, but my most useful garden is the one one the balcony! Collards are exceptionally easy and will grow in many climates in the winter: salad greens are a cool weather crop too. Kale too. And herbs are super easy. We grew potatoes this year for the first time, in a little plot 4ft by 4t or so. Man, we got a lot of potatoes! It doesn't take much space to get good results. Our biggest " bang for the buck " though is berries ... in this area they grow wild all over, and you just have to get out there and pick them and freeze them (or make wine or jam). Organic berries are very pricey, but easy to get for free in season. Also apples ... there are loads of them falling off trees all over, and plums ... the owners don't use the crop so are quite happy to have someone take them off the tree. With relatives we take the apples and offer tree-trimming service for free, or give them some jam or wine in return. I've also known people who volunteer time to help out a local farmer in exchange for produce or meat. A lot of farmers are older and can't afford help, and it's a great way to learn about farming too. One family would help with the harvest each year, in exchange for some food. So my advice is: scrape together enough money for a chest freezer (I " earned " mine via a garage sale) then start gleaning! If you have spare time and less income, you may be able to sell some jam at your local farmer's market or some such: Christmas craft sales are coming up too. Heidi Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2004 Report Share Posted October 1, 2004 Hi Judy, The 4-H is a terrfic idea. Have fun at the fair! There is a lot of imformation about whole food preparation in Nourishing Traditions. I have never read it all, but I have had a wonderful education from what I have read so far and from the discussions on this web site. There was a discussion about other books we like too, not so long ago, so maybe in the future you might enjoy some of them. I'm sure you are very busy with your children and never have a lot of free time to be reading. I remember those days when my two were an almost full time job. Any way NT recipes and knowledge will be more than enough fun for a long time. It's great you have a farm stand all year round and so near your apartment. Lucky you! We have a farmer's market here in Bend OR for a few more weeks and then it closes for the winter. I will really miss going to it. If I go at the end of the day I can find the best bargins. I'll look forward to any questions you send our way. Sheila > Thanks for the welcome. When we moved and couldn't take the goats, cow's > milk tasted so strange to me. It was very sweet. I have the library > looking for that cookbook. I called today and they are looking for it to > ILL for me. I asked about food coops and it seems the nearest one is 45 > minutes away and I have no car during the day. Since I stay at home, > time isn't an issue, but budget definitely is. I will check and see if > there is a WAP chapter here. Thanks for the ideas. Hmm... it is also fair > season. I could ask the local 4-H group, too. There is a year- round > farmstand here in town, just 2 miles from me, and they have great stuff, > too. The clerk I spoke to estimated that about 40% of their stock was > organic, and they are building an addition dedicated just to organics. They > rock! > > Judy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2004 Report Share Posted October 2, 2004 I have an apartment, and the soil in the yard here has lead. We found out after the state tested it when my kids got lead poisoning. I have a black thumb, and this is the first year I got anything to survive -- 1 bean plant, which produced one bean, that shriveled and turned yellow before it was ready to be picked. I keep trying though. Some day I will have a green thumb. Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2004 Report Share Posted October 2, 2004 >I have an apartment, and the soil in the yard here has lead. We found out >after the state tested it when my kids got lead poisoning. I have a black >thumb, and this is the first year I got anything to survive -- 1 bean plant, >which produced one bean, that shriveled and turned yellow before it was >ready to be picked. I keep trying though. Some day I will have a green >thumb. > >Judy I get these big growing containers at the hardware store (they are on sale in the spring for $5 each) and fill them with potting soil. Then I amend the soil with fish fertilizer and worm compost. I'm sure there are better ways to do it. The containers can be set out in the yard or wherever, they are only a foot and a half square, but that is enough to grow lettuce and collards. They are really easy to grow! But just try one plant in a pot and see how it goes, start small ... it's not as hard as it seems. Alaska Fish Fertilizer is really neat, you just use it when you water the plant, and it has microbes etc. to nourish the soil. Heidi Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2004 Report Share Posted October 2, 2004 > I get these big growing containers at the hardware store (they are on sale > in the spring for $5 each) and fill them with potting soil. This year I grew my tomato plants inside in large buckets and they have been so much fun. I love seeing the tomatoes with the sunlight shining through, they are like little jewels, and with them being in my living room I never foget to check and see if they need water. We've had many nights below freezing already, but inside my tomatoes are still growing and producing. I've one Brussel sprout plant that I started late and brought inside, I hope it will produce. They're all sitting in a south facing window. Heidi, where are you finding Alaska Fish Fertilizer? (I live in Alaska and this is the first I've heard of it.) I put our aquarium water on the plants. : ) Rhea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2004 Report Share Posted October 3, 2004 >We've had many nights below >freezing already, but inside my tomatoes are still growing and producing. >I've one Brussel sprout plant that I started late and brought inside, I hope >it will produce. They're all sitting in a south facing window. My dream project is to enclose our South-facing porch and be able to grow tomatoes all winter! We do get a lot of sunny days, but the frost at night kills plants. I never thought of tomatoes indoors though! >Heidi, where are you finding Alaska Fish Fertilizer? (I live in Alaska and >this is the first I've heard of it.) I put our aquarium water on the >plants. : ) It is very common around here, in most of the stores. I'd guess you can get it mailorder if nothing else. It is fermented fish, and smells like Thai fish sauce. It works amazingly well ... the only problem is, if you have a dog around, they will eat the soil, they love the stuff. I'd guess it is easy enough to make ... puree some fish heads, add some kefir juice or whey, and let it sit (outside!). (I don't ferment fish by themselves for eating because it is possible to grow botulism on them and I don't know enough about the process, but for plants ...) I think aquarium water is a great idea though! Our duck pond water smells like it would be wonderful for plants too. > Heidi Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2004 Report Share Posted October 3, 2004 At 01:50 PM 10/3/04 -0700, you wrote: >My dream project is to enclose our South-facing porch and be able >to grow tomatoes all winter! We do get a lot of sunny days, but >the frost at night kills plants. I never thought of tomatoes indoors though! I'm trying that this year (as is my Sissy) - taking cuttings of my plants, rooting and then replanting in pots indoors over winter. The one thing I haven't figured out yet, though, is that in order to fruit properly, tomatoes are looking for either a) day length or warm temps. And I can't for the life of me remember which one, I coulda sworn I saw it in SOME reference book or another that I have, but can't find it again. Anyone know? The surprise was finding out that tomatoes are actually tender perennials, not annuals. It bodes well, though, for the experiment! If I had enough room to make it worth it, I'd go for growing peas this winter in the " sunroom " - which is basically an unheated addition to the house, but it faces SSE, so theoretically, it would work in terms of light and relative cool/warmth. *toddles off singing " Oh Christmas Peas, Oh Christmas Peeeeaaaassss!!!! " * MFJ Everything connects. The Universe is not THAT chaotic. Beauty can still be found in the most amazing places. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 >If I had enough room to make it worth it, I'd go for growing peas this >winter in the " sunroom " - which is basically an unheated addition to the >house, but it faces SSE, so theoretically, it would work in terms of light >and relative cool/warmth. I have this GREAT grow light that gives sunlight-level light. All I need is a room so that most of the light is daylight, then supplement for a few hours in the evening ... >*toddles off singing " Oh Christmas Peas, Oh Christmas Peeeeaaaassss!!!! " * Arrrggh! or ... hmmm, a wreath of little peas? Heidi Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 At 12:19 AM 10/4/04 -0700, you wrote: >or ... hmmm, a wreath of little peas? > I dunno, I think they'd start to rattle around together after a while - then people would have too much warning, they'd hear me coming and be able to get away ... Oh, wait, you said wreath, not necklace. MFJ Everything connects. The Universe is not THAT chaotic. Beauty can still be found in the most amazing places. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Hi . Welcome to the group. My daughter is getting her helmet tomorrow and I am a bit nervous about it. She is 6 months old. How is your son handling the helmet? How long does he have to wear it? How are you doing with him having the helmet? I am a bit nervous as I don't know what to expect. Well, feel free to email anytime. Let me know how it goes and I will let you know how my experience is. Shari > > Hi > I am new to the group. My son is 8 months and we got his > helmet yesterday. He seems to be doing okay so far. I just posted > his first picture. I have been concerned about his head for 5 > months and have found a lot of support just browsing the messages on > this sight. Thanks to all of you who share your experiences, it has > really helped me. > > - > Haverhill, MA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 The fit looks good, I'm glad that he is adjusting well. Natasha > > Hi > I am new to the group. My son is 8 months and we got his > helmet yesterday. He seems to be doing okay so far. I just posted > his first picture. I have been concerned about his head for 5 > months and have found a lot of support just browsing the messages on > this sight. Thanks to all of you who share your experiences, it has > really helped me. > > - > Haverhill, MA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Hi Shari Mikey is doing okay with it. He is on the same schedule as Amy's son..1 hour on 1 hour off. He took a nap with it this morning and went right to sleep. He has already figured out where it is held together and keeps playing with the velcro. He has been a bit fussier than usual but he is also getting another tooth. Mikey is 8 months old (older than I would have liked for him to start with this). They said that he will have to wear for 3-4 months and that with this type of banding they usually don't wear them much longer than their 1st birthday. I'm proabably having a harder time than him. He loves people so much and thrives on attention from everyone and anyone....I just don't want the helmet to get in the way of that. Anyway, Good luck with your daughter tomorrow and thanks for teh support! Haverhill, MA Son started 10/13/04 I know it's nerve racking but don't worry too much. I think they are so young that they will adapt pretty well. > > > > Hi > > I am new to the group. My son is 8 months and we got his > > helmet yesterday. He seems to be doing okay so far. I just > posted > > his first picture. I have been concerned about his head for 5 > > months and have found a lot of support just browsing the messages > on > > this sight. Thanks to all of you who share your experiences, it > has > > really helped me. > > > > - > > Haverhill, MA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Welcome to the group and !! What kind of helmet is in? My son jacob wore a DOC band, and just graduated Tuesday the 12th. This time will fly by for you. was banded at 13months, and only wore his band for 7wks/5days. You're not too late to get started, you're still at a good age for correction! We are proof that late starters cna get good correction. best of luck in the weeks ahead!! kelli TX mommy to jacob banded 12/23/03 - 01/28/04 and again 08/19/04 - 10/12/04 > > Hi > I am new to the group. My son is 8 months and we got his > helmet yesterday. He seems to be doing okay so far. I just posted > his first picture. I have been concerned about his head for 5 > months and have found a lot of support just browsing the messages on > this sight. Thanks to all of you who share your experiences, it has > really helped me. > > - > Haverhill, MA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Hello, Welcome to the group.My son was banded 8/20 DOC and this group is wonderful and give you a lot of info. Your son will do OK .Good Luck to you and your son. Imelda NJ DOC band 8/20kristin8288 <kristinmmurphy@...> wrote: HiI am new to the group. My son is 8 months and we got his helmet yesterday. He seems to be doing okay so far. I just posted his first picture. I have been concerned about his head for 5 months and have found a lot of support just browsing the messages on this sight. Thanks to all of you who share your experiences, it has really helped me.-Haverhill, MAFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 Hi Kelli Thanks for the encouragement. Mikey is adjusting really well, he doesn't seem to mind it very much. To tell you the truth everything happened really fast when we made the desicion to get the helmet and I'm not even sure what kind it is. It is made by orthoamerica. We went to Children's Hospital in Boston for everything. I hope the time goes by quickly. It sounds like didn't take very long. It must feel good to be done! Thanks again. Mom to Banded 10/13/04 > > > > Hi > > I am new to the group. My son is 8 months and we got his > > helmet yesterday. He seems to be doing okay so far. I just posted > > his first picture. I have been concerned about his head for 5 > > months and have found a lot of support just browsing the messages > on > > this sight. Thanks to all of you who share your experiences, it > has > > really helped me. > > > > - > > Haverhill, MA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 Welcome to the group I look forward in following 's journey. Sandy Willow's Mom Torticollis resolved Cranio Germany Grad > > Hi > I am new to the group. My son is 8 months and we got his > helmet yesterday. He seems to be doing okay so far. I just posted > his first picture. I have been concerned about his head for 5 > months and have found a lot of support just browsing the messages on > this sight. Thanks to all of you who share your experiences, it has > really helped me. > > - > Haverhill, MA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 , Welcoem to the group. I'm glad you've found it helpful. I was reading your post about getting his band and I looked at the pics. He is a cutie!! I just want to pinch those cheeks The helmet looks great. Did you say dh did the paint job. Very nice! I don't mean to scare you but his band looks a little small. Did you say he was cranky? Does he have red spots or any irritation marks? It looks really high on the forehead. Is he in a starband or hangar band? Most Starbands and hangar bands I have seen are low - just above the eyebrows. In fact most parents of banded babies are worried they site too low. The back looks ok, but it just doesn't look like the STARband pics on the Orthomerica site. http://www.orthomerica.com/products/cranial/starband.htm mom to na DOC Grad 2/04 Tort Resolved SC kristin8288 <kristinmmurphy@...> wrote: HiI am new to the group. My son is 8 months and we got his helmet yesterday. He seems to be doing okay so far. I just posted his first picture. I have been concerned about his head for 5 months and have found a lot of support just browsing the messages on this sight. Thanks to all of you who share your experiences, it has really helped me.-Haverhill, MAFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2004 Report Share Posted October 16, 2004 Hi Thanks for the info. Everything happened so fast once we met with the neurosurgeon that I have been a little overwhelmed trying to learn everything. I will call his orthotist and ask about the fit. I have been watching for redness and he's been okay so far. Last night was was his first night with it and he was okay this morning but I definitely want to make sure it fits perfectly. - > > Hi > I am new to the group. My son is 8 months and we got his > helmet yesterday. He seems to be doing okay so far. I just posted > his first picture. I have been concerned about his head for 5 > months and have found a lot of support just browsing the messages on > this sight. Thanks to all of you who share your experiences, it has > really helped me. > > - > Haverhill, MA > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 Hi , My name is and I am new to this group. My son Nick is 7 months old and has plagio and tort also. It has been a difficult month for us . It all happened so quickly. One minute I am w/ my pedeatrician and the next a neurologist sent us for the CT. It was very hard watching our child be sedated but he was a trooper.Your baby will be fine too. It is standard I guess to confirm that it is plagio and nothing else. We were so worried and scared until e got the results. Hang in there. <jensworld17@...> wrote: Hi there,I am the mom to a little angel, Brady (6.5 months old) At 4 months old, the ped talked to me about tort and we tried some repo tech. at our 6 mo appt, the dr. recommended we see CranialTech - I was so scared but they are the nicest people ever - they agreed that Brady had a mod-severe case of plagio and would consult with my ped. Dr wrote the script and faxed it last Friday - BUT THEN called me Saturday and said that he really would like us to get a CT scan for his brain first this week.....my husband took the call and I think was caught off gaurd and really didn't ask too many questions. The scan is set up for Thursday and he will be under sedation - ugggg! Has anyone had a doctor want a CT scan - am I freaked out about nothing? Thank you in advance - I am really addicted to reading everyones stories. Take Care, - mom to BradyFor more plagio info Quote Link to comment Share on other sites More sharing options...
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