New to Group

[Guest guest]

Hi …don’t be too

freaked out about the CT scan. They usually do a CT or xrays to rule out

more serious conditions. Some dr’s don’t request them, some

do. Let us know how the scan goes and how your appt at Cranial Tech goes

too. And welcome to the group!

Becky (’s mom) in Pgh, PA

new to group

Hi there,

I am the mom to a little angel, Brady (6.5 months

old) At 4 months

old, the ped talked to me about tort and we tried

some repo tech.

at our 6 mo appt, the dr. recommended we see

CranialTech - I was so

scared but they are the nicest people ever - they

agreed that Brady

had a mod-severe case of plagio and would consult

with my ped. Dr

wrote the script and faxed it last Friday - BUT

THEN called me

Saturday and said that he really would like us to

get a CT scan for

his brain first this week.....my husband took the

call and I think

was caught off gaurd and really didn't ask too

many questions. The

scan is set up for Thursday and he will be under

sedation - ugggg!

Has anyone had a doctor want a CT scan - am I

freaked out about

nothing? Thank you in advance - I am really

addicted to reading

everyones stories.

Take Care,

- mom to Brady

For more

plagio info

[Guest guest]

Hello ,

welcome to the group. I'm glad that your ped is on the ball. It is

great to have an early diagnoses and actually a ped being ok with

the band.

CTs are pretty common to rule out that the sutures are fusing

early. Some docs do Xrays, but the CT is really the best way in

making 100% sure that the sutures are still open.

Which sedation are they using? The oral, or the IV? If you have

questions then please call your ped back, and make sure they answer

all your quesions before going for the CT. It is important to be ok

with whatever they do.

Sandy Willow's mom

torticollis resolved

Cranio Germany Grad

--- In Plagiocephaly , " " <jensworld17@y...>

wrote:

>

> Hi there,

> I am the mom to a little angel, Brady (6.5 months old) At 4 months

> old, the ped talked to me about tort and we tried some repo tech.

> at our 6 mo appt, the dr. recommended we see CranialTech - I was

so

> scared but they are the nicest people ever - they agreed that

Brady

> had a mod-severe case of plagio and would consult with my ped. Dr

> wrote the script and faxed it last Friday - BUT THEN called me

> Saturday and said that he really would like us to get a CT scan

for

> his brain first this week.....my husband took the call and I think

> was caught off gaurd and really didn't ask too many questions.

The

> scan is set up for Thursday and he will be under sedation -

ugggg!

> Has anyone had a doctor want a CT scan - am I freaked out about

> nothing? Thank you in advance - I am really addicted to reading

> everyones stories.

> Take Care,

>

> - mom to Brady

[Guest guest]

Hi ,

Welcome to the group!!

A lot of doctors want to rule out and possibility of Cranio before

they proceed with a helmet. My daughters doctor had her head x-rayed

prior to getting the helmet. This happens all of the time. Better

safe than sorry.

, mom to Makenna LLUMC helmet grad '03

-- In Plagiocephaly , " " <jensworld17@y...>

wrote:

>

> Hi there,

> I am the mom to a little angel, Brady (6.5 months old) At 4 months

> old, the ped talked to me about tort and we tried some repo tech.

> at our 6 mo appt, the dr. recommended we see CranialTech - I was

so

> scared but they are the nicest people ever - they agreed that

Brady

> had a mod-severe case of plagio and would consult with my ped. Dr

> wrote the script and faxed it last Friday - BUT THEN called me

> Saturday and said that he really would like us to get a CT scan

for

> his brain first this week.....my husband took the call and I think

> was caught off gaurd and really didn't ask too many questions.

The

> scan is set up for Thursday and he will be under sedation -

ugggg!

> Has anyone had a doctor want a CT scan - am I freaked out about

> nothing? Thank you in advance - I am really addicted to reading

> everyones stories.

> Take Care,

>

> - mom to Brady

[Guest guest]

Hi , welcome to the group. GL with the CT scan. I think it

will go better than expected. Why not just regular xrays only?

I'm glad to hear that you have a Cranial Tech nearby for the helmet.

From what I hear, you will be in good hands.

Sue

Colin F., 13 mos.

STARband grad 9/04

brachy

--- In Plagiocephaly , " " <jensworld17@y...>

wrote:

>

> Hi there,

> I am the mom to a little angel, Brady (6.5 months old) At 4 months

> old, the ped talked to me about tort and we tried some repo tech.

> at our 6 mo appt, the dr. recommended we see CranialTech - I was so

> scared but they are the nicest people ever - they agreed that Brady

> had a mod-severe case of plagio and would consult with my ped. Dr

> wrote the script and faxed it last Friday - BUT THEN called me

> Saturday and said that he really would like us to get a CT scan for

> his brain first this week.....my husband took the call and I think

> was caught off gaurd and really didn't ask too many questions. The

> scan is set up for Thursday and he will be under sedation - ugggg!

> Has anyone had a doctor want a CT scan - am I freaked out about

> nothing? Thank you in advance - I am really addicted to reading

> everyones stories.

> Take Care,

>

> - mom to Brady

[Guest guest]

Hi ,

A lot of drs want CT scans to rule out craniosyntosis (premature fusing of the sutures). Most kids don't have this and it is precautionary. Try to remain calm until the results come in - I know not easy. A number of the children on this board have had the same test.

mom to na <jensworld17@...> wrote:

Hi there,I am the mom to a little angel, Brady (6.5 months old) At 4 months old, the ped talked to me about tort and we tried some repo tech. at our 6 mo appt, the dr. recommended we see CranialTech - I was so scared but they are the nicest people ever - they agreed that Brady had a mod-severe case of plagio and would consult with my ped. Dr wrote the script and faxed it last Friday - BUT THEN called me Saturday and said that he really would like us to get a CT scan for his brain first this week.....my husband took the call and I think was caught off gaurd and really didn't ask too many questions. The scan is set up for Thursday and he will be under sedation - ugggg! Has anyone had a doctor want a CT scan - am I freaked out about nothing? Thank you in advance - I am really addicted to reading everyones

stories. Take Care, - mom to BradyFor more plagio info

[Guest guest]

Hello

Welcome to the group. Glad you found us. I love the name Sydney

Lorelei. There is something you don't hear everyday. )

Good to hear that you, and your ped are on the ball. Getting that

PT started is the most important step. Work on the tort. Let us

know how the fitting goes for the STARband.

Sandy Willow's Mom

Wishing a Merry Christmas

--- In Plagiocephaly , " & Joe " <slmrn98@b...>

wrote:

>

> Hi everyone! I am so glad I have found this group! The files

have

> already given me a ton of info! Our little Sydney Lorelei is 4

1/2

> months and will be getting her STARband in 2 weeks, and begins her

> PT for tort tomorrow. We had her head scaned the other day, and

her

> cephalic ratio is 100% Probably the only time in her little life

> that being 100% is bad! LOL! Her plagio is a direct result of

> being 2 months premature and having HORRIBLE reflux (which

> thankfully is better on medication!) which prevented her from

having

> any tummy time. Now that she is holding her head up quite well on

> her own, she spends as much time as possible in her Jumparoo or in

> her front carrier.

> Like many of you, our insurance, Coventry Health Care of Ga., does

> not cover cranial orthotics. The really ironic thing to me is

that

> I work at a rather large metro Atlanta hospital system (Coventry

is

> the admin of our health care policy) that offers services to treat

> plagio & tort! I have already printed out a few of the great

> letters in the files to use as a reference while writing my

appeals

> letter (thank you thank you to all who have shared!). If anyone

> has any other advice on how to get them to pay, please email it

to

> me!

>

> Thanks!

> & Sydney

> PS - love all the cuties in the photos!

[Guest guest]

and Sydney,

Welcome to the group. I'm glad you have found the files useful. Do you know what the specific reason for the denial from insurance was? Maybe someone can offer more help than the files.

mom to na

DOC Grad 2/04

Tort Resolved

South Carolina

www.thefilyaws.com & Joe <slmrn98@...> wrote:

Hi everyone! I am so glad I have found this group! The files have already given me a ton of info! Our little Sydney Lorelei is 4 1/2 months and will be getting her STARband in 2 weeks, and begins her PT for tort tomorrow. We had her head scaned the other day, and her cephalic ratio is 100% Probably the only time in her little life that being 100% is bad! LOL! Her plagio is a direct result of being 2 months premature and having HORRIBLE reflux (which thankfully is better on medication!) which prevented her from having any tummy time. Now that she is holding her head up quite well on her own, she spends as much time as possible in her Jumparoo or in her front carrier.Like many of you, our insurance, Coventry Health Care of Ga., does not cover cranial orthotics. The really ironic thing

to me is that I work at a rather large metro Atlanta hospital system (Coventry is the admin of our health care policy) that offers services to treat plagio & tort! I have already printed out a few of the great letters in the files to use as a reference while writing my appeals letter (thank you thank you to all who have shared!). If anyone has any other advice on how to get them to pay, please email it to me!Thanks! & SydneyPS - love all the cuties in the photos!For more plagio info

[Guest guest]

Hi,

Welcome to the group! You're baby is at a great age to receive

excellent correction from a band.

It's really not good for Sydney to be in a Jumparoo since she has

torticollis. Check out this link:

http://www.plagiocephaly.org/torticolliskids/helpful.htm

Please keep us posted on her progress and your insurance.

--- In Plagiocephaly , " & Joe " <slmrn98@b...>

wrote:

>

> Hi everyone! I am so glad I have found this group! The files have

> already given me a ton of info! Our little Sydney Lorelei is 4 1/2

> months and will be getting her STARband in 2 weeks, and begins her

> PT for tort tomorrow. We had her head scaned the other day, and

her

> cephalic ratio is 100% Probably the only time in her little life

> that being 100% is bad! LOL! Her plagio is a direct result of

> being 2 months premature and having HORRIBLE reflux (which

> thankfully is better on medication!) which prevented her from

having

> any tummy time. Now that she is holding her head up quite well on

> her own, she spends as much time as possible in her Jumparoo or in

> her front carrier.

> Like many of you, our insurance, Coventry Health Care of Ga., does

> not cover cranial orthotics. The really ironic thing to me is that

> I work at a rather large metro Atlanta hospital system (Coventry is

> the admin of our health care policy) that offers services to treat

> plagio & tort! I have already printed out a few of the great

> letters in the files to use as a reference while writing my appeals

> letter (thank you thank you to all who have shared!). If anyone

> has any other advice on how to get them to pay, please email it to

> me!

>

> Thanks!

> & Sydney

> PS - love all the cuties in the photos!

[Guest guest]

Welcome to the group!

Good luck with ins. I had to appeal and won. All of the info. is

either here are can be found in links. I look forward to hearing

your updates and positive ins. outcome.

Sue

Colin F., 15 mos.

STARband grad

--- In Plagiocephaly , " & Joe " <slmrn98@b...>

wrote:

>

> Hi everyone! I am so glad I have found this group! The files have

> already given me a ton of info! Our little Sydney Lorelei is 4 1/2

> months and will be getting her STARband in 2 weeks, and begins her

> PT for tort tomorrow. We had her head scaned the other day, and

her

> cephalic ratio is 100% Probably the only time in her little life

> that being 100% is bad! LOL! Her plagio is a direct result of

> being 2 months premature and having HORRIBLE reflux (which

> thankfully is better on medication!) which prevented her from

having

> any tummy time. Now that she is holding her head up quite well on

> her own, she spends as much time as possible in her Jumparoo or in

> her front carrier.

> Like many of you, our insurance, Coventry Health Care of Ga., does

> not cover cranial orthotics. The really ironic thing to me is that

> I work at a rather large metro Atlanta hospital system (Coventry is

> the admin of our health care policy) that offers services to treat

> plagio & tort! I have already printed out a few of the great

> letters in the files to use as a reference while writing my appeals

> letter (thank you thank you to all who have shared!). If anyone

> has any other advice on how to get them to pay, please email it to

> me!

>

> Thanks!

> & Sydney

> PS - love all the cuties in the photos!

[Guest guest]

Hello ,

Here is the email of . Her son was banded around that

age time frame. I think maybe 18months. She doesn't check the

board on a reg basis, so I added her email. Good luck, oh and leave

out the space of the email. sugrilljuno (DOT) com

Sandy Willow's Mom

Cranio Germany Grad

www.geocities.com/samipa74/Willow_Lanette.html

> Has anyone had there child banded after the child turned 17

months. My story is long and frustrating, but if anyone has info.

for the possibility of the band helping at this late stage, I would

appreciate it.

> Thanks.

>

[Guest guest]

Hi ,

Welcome to the group! We have had a few members band their child at

a later age. Would you care to share your story?

Natasha

> Has anyone had there child banded after the child turned 17

months. My story is long and frustrating, but if anyone has info.

for the possibility of the band helping at this late stage, I would

appreciate it.

> Thanks.

>

[Guest guest]

Hi ,

My daugher had severe plagio and wore 2 DOCbands from 4-11 mos, but

then regressed and wore another from 15.5-19.5 mos. Her progress in

that last band was remarkable. If you look in our photos/before and

after/DOCband/Hannah B section you can see hers, plus another baby

who was banded at 19.5 mos. Also look at and s pics

for other " older " baby correction. The only band you have the

option of at this age is the DOCband (www.cranialtech.com). If you

don't live close to one of those locations you can look into Angel

Flight for free air transportation. Good luck. You can read about

my daughter's experience as an " older " baby wearing a helmet here:

http://hannahsnoggin.typepad.com/

, mom to Hannah (24 mos), DOCgrad

Cape Cod, Ma

> Has anyone had there child banded after the child turned 17

months. My story is long and frustrating, but if anyone has info.

for the possibility of the band helping at this late stage, I would

appreciate it.

> Thanks.

>

[Guest guest]

Hi . Welcome to te group. As you have already been told we

have a number of members who used a DOC band for their child at your

child's age and had success with it. YOu have already been givein

some great information so I will just say again, welcome.

Becky, mom to , repo grad in Pgh, PA

> Has anyone had there child banded after the child turned 17

months. My story is long and frustrating, but if anyone has info.

for the possibility of the band helping at this late stage, I would

appreciate it.

> Thanks.

>

[Guest guest]

Your experience is not unusual, and I am absolutely sure that your body is

rejecting the foreign objects placed in it. I have heard from many, many

women with similar complaints.

Lynda

At 05:47 PM 1/14/2005, you wrote:

>Hi,

>

>I just found the group today and I'm so glad I did.

>

>I had my breast augmentation surgery almost three years ago and for the

>most part I

>didn't have many problems. Last year though, I started having really bad

>pain in my bones

>and joints and I've had blood tests done but the doctor's havent been able

>to find

>anything. I'm tired and achy all the time now. I'm only 26 but I feel like

>an old lady and its

>only getting worse. I never thought it could be cause by the implants but

>now I'm not so

>sure. I really don't want to have to get them removed but if it means

>being healty again,

>that's what I'll do.

>

>I would really appreciate any help or suggestions. Thanks!

>

>-Zoe

>

>

>

>

>

>

[Guest guest]

Zoe,

The only way you'll know for sure if it's your

implants is to have them removed! . . . Not a good

option, but it's better than gradually getting sicker

and sicker!

One thought though . . . check out the detox

treatments

/files/

It's possible that you may respond to some of them.

The one that comes to mind is to change your diet to a

very healthy, no sugar, no refined grains diet . . .

Organic as possible. Drink plenty of pure water . . .

1/2 ounce for every pound of body weight.

In the meantime, check out the recommended surgeons

and see if you can start making arrangements. If you

should be able to detox before you're scheduled, you

may be able to keep your implants a while longer. You

do know that you will have to replace them

periodically, don't you?

The surgeons we recommend know that it's very

important to remove the implants en bloc and use

drains. That means removing the capsule that forms

around the implant with the implant still inside. If

you'll read back a week or so, you'll find a very good

article about why capsules must be removed. Too many

surgeons don't take this seriously!

Hugs and prayers,

Rogene

[Guest guest]

Hi there,

Congratulations for taking responsibility for finding

out what's going on with you! . . . It seems as though

that's what one has to do to get well! Thank God for

the Internet!

Dr. Kolb is a very good about detox programs that can

help after having implants removed. Did she tell you

about any detox programs? Do you know anything about

detox programs? If you'll click on the first link

below this message, you will find detox programs we

recommend for those who have had breast implants.

What condition were your implants in when they were

removed? . . . Did they look like new, or were they

deteriorating? . . . Someone told me that their chin

implant had actually crumbled! If the implants looked

like new, it's unlikely you're experiencing a reaction

to the silicone. But, there could have been bacteria

introduced with your implants were put in, or when

they were removed.

Do you know what a mycoplasma bacterial infection is?

It might be worth doing an Internet search for

mycoplasma bacterial infections and see if that fits

your symptoms. A number of women with breast implants

have been found to have myco infections. The treatment

is fairly simple . . . Antibiotic protocol that

consists of small amounts of antibiotics several times

as week for as long as two years. The difficult part

of the treatment is that you must stay on a diet that

will control Candida since antibiotics kill the

beneficial organisms that control Candida.

Shingles affect only one side of the body and the pain

is severe. There are blisters associated with

shingles. They can reoccur from time to time. Have you

done any Internet search for information about

shingles? Being under stress can cause shingles to

occur.

I hope this helps. Keep digging! . . . I'm sure you'll

find the answer!

Hugs and prayers,

Rogene

--- lurkula84 <lurkula84@...> wrote:

>

> hi everyone. I had cheek implants made of hard

> silicone for 9 years

> which Dr Kolb took out last March. Last winter I

> literally woke up

> one day with severe pain on the right side of my

> face and within a

> few days I was severely weak and tired, had numbness

> in my

> extremities, muscle spasms, heat throughout the

> upper part of my

> body though no visible body temperature, and a host

> of other

> symptoms. Even though I attributed all of this to

> the implants, not

> one doctor I saw did. I went back to my p.s. who

> pawned me off to

> his wife/dermatologist who proceeded to tell me it

> was shingles. I

> found Dr. Kolb on the Internet and she said she

> thought I either had

> an infection around the cheek implants which were

> causing an immune

> reaction or was just developing an autoimmune

> disease from having

> these things inside me for a period of time. At any

> rate, she

> thought it imperative that they come out for my

> health to improve.

> Long story short, it has been nine months since

> removal, and while

> some symptoms like fatigue, shortness of breath,

> heat throughout my

> body, severe pain around the implants are gone,

> other symptoms

> emerged following explant that have remained

> constant since. I'm

> curious to know if any of you have pain

> swallowing/choking

> sensation, pain under ribs on both sides, spasms in

> tongue and

> extremities. Also, did anyone develop new symptoms

> after explant

> and is it likely that these will dissipate over

> time? thanx

>

>

>

>

[Guest guest]

-

Hi and welcome to our group! I just wrote you a long reply and then

my computer just lost it somehow! That is so frustrating. I have

had every symptom you have mentioned. And everyone of them can be a

symptom of fibromyalgia ( one of the conditions most often linked to

implants. Also silicone implant syndrome. I am so glad you had the

cheek implants out.

It does sound like you have seen improvements and that is very

encouraging. New symptoms cropping up is not all that unusual.

Also, I know that Dr.Kolb is big on detoxification. Have you been

doing any of that? I know she has developed protocols. Have you

been back in contact with her? If you are detoxing, are you aware

that the detoxing itself can cause increased or new symptoms while

the body is trying to eliminate the toxins? When this happens, it

is wise to cut back and slow down on the detoxification process. If

you are not detoxing it would probably be a big benefit to do so.

We have alot of info on this site on different ways to detox and to

get better. Having a good diet and drinking plenty of water is

important. Eliminating sugar, cutting down on grains and starches

and making sure to get alot of raw food-organic--helps your immune

system. So does killing off candida and other pathogens. Doing

liver, colon, and other cleanses, using a far infrared sauna, and

trying various supplements often helps. Have you had any tests run

for thyroid, adrenal function, hormones? There are still many

things you can do to improve your health and time itself will still

help. Some women on here didn't reach alot better health for 2 or

more years. Every one is different. Some women felt better

immediately.

Many women have symptoms that disappear and reappear at intervals.

Usually, each time they come back they are less severe and stay a

shorter length of time. So I think that your new symptoms may very

well leave also at some point. I also think that some of your

symptoms that are better, may worsen again and then leave again.

Don't get discouraged. As long as you are getting overall better

and better, the steps backwards aren't significant. Feel free to

ask any other questions and we will try to be of help.

Hugs, kathy

-- In , " lurkula84 " <lurkula84@y...>

wrote:

>

> hi everyone. I had cheek implants made of hard silicone for 9

years

> which Dr Kolb took out last March. Last winter I literally woke up

> one day with severe pain on the right side of my face and within a

> few days I was severely weak and tired, had numbness in my

> extremities, muscle spasms, heat throughout the upper part of my

> body though no visible body temperature, and a host of other

> symptoms. Even though I attributed all of this to the implants,

not

> one doctor I saw did. I went back to my p.s. who pawned me off to

> his wife/dermatologist who proceeded to tell me it was shingles.

I

> found Dr. Kolb on the internet and she said she thought I either

had

> an infection around the cheek implants which were causing an

immune

> reaction or was just developing an autoimmune disease from having

> these things inside me for a period of time. At any rate, she

> thought it imperative that they come out for my health to

improve.

> Long story short, it has been nine months since removal, and while

> some symptoms like fatigue, shortness of breath, heat throughout

my

> body, severe pain around the implants are gone, other symptoms

> emerged following explant that have remained constant since. I'm

> curious to know if any of you have pain swallowing/choking

> sensation, pain under ribs on both sides, spasms in tongue and

> extremities. Also, did anyone develop new symptoms after explant

> and is it likely that these will dissipate over time? thanx

[Guest guest]

Hi ,

Welcome to the group. Based on your description I might agree with you that his flat spot is inuterine constraint issue due to being breech. That will be very difficult to correct with repo. na had inuterine constraint flatness and I was told it was more difficult to correct with repo. Of course she also had tort - so double whammy. Are you near a CT? I would ask your ped for a referral to get a free evaluation - no harm done. If you aren't near a CT I would call a local ortho and ask if they would do a free consult. You've been doing repo. He is past the AAP recommended repo age (5 months). I think it makes sense to get a second opinion since you are still concerned. na was not diagnosed until my dr saw the evaluation info from CT. He agreed she had a somewhat abnormal headshape but he wasn't going to call it plagio. With the data from CT he was able to call it plagio and write the RX.

CT doesn't do diagnosis. They are not drs. They do an evaluation and make a recommendation. It's up to the dr to write the rx and give the diagnosis. Keep us posted.

mom to na

DOC Grad 2/04

Tort Resolved

South Carolina

www.thefilyaws.comevandenheuvel <evandenheuvel@...> wrote:

Hello,its so wonderful to have support like this!Serious ? about my son's flat spot.Some history... Elijah was breeched - he was always in the same spotin utero- and was succesfully moved before his birth. He wasdiagnosed at 4 months with tort and is getting good PT. Elijah is 6months now and is progressing well. His PED is wonderful and hasbeen very supportive of any referrals that i have needed.BUT I have a question about his flat spot. He has never beenofficially diagnosed with plagio, but there is an obvious ( obviousat least to mom) flat spot opposite his tilt. I also can see somefacial assymetry and "clues" typical of plagio ( part of his lower lip sticks out, one ear is higher than the other, a cheek seems fuller than the other, one eye seems more open than the other) . THe strange thing is that this flat spot

is NOT where his "bald" spot is. THe bald spot on Elijah is located right on the back of his head, where it has a nice round shape.THe flat spot is to the left of this bald spot. He does well withrepositioning so i am thinking that this flat spot wont get betterwith any repo.Is this flat spot from him being breeched, and staying in ths same spot in utero? Will it correct itself with repositioning? DO i need to look into a DOC or STAR band? Is this something that i should get diagnosed at Cranial Tech, or who should i get a diagnosis about the plagio?Thank you for your help!emilyFor more plagio info

[Guest guest]

You do not need a referral just to get the eval from CT, but you will

need prescription if you decide to go ahead and band. Your ped can

write it if agreeable, or if not CT can give you names of band

friendly docs to see.

Dara

>

>

> Hello,

>

> its so wonderful to have support like this!

> Serious ? about my son's flat spot.

> Some history... Elijah was breeched - he was always in the same spot

> in utero- and was succesfully moved before his birth. He was

> diagnosed at 4 months with tort and is getting good PT. Elijah is 6

> months now and is progressing well. His PED is wonderful and has

> been very supportive of any referrals that i have needed.

> BUT I have a question about his flat spot. He has never been

> officially diagnosed with plagio, but there is an obvious ( obvious

> at least to mom) flat spot opposite his tilt. I also can see some

> facial assymetry and " clues " typical of plagio ( part of his lower

> lip sticks out, one ear is higher than the other, a cheek seems

> fuller than the other, one eye seems more open than the other) .

THe

> strange thing is that this flat spot is NOT where his " bald " spot

is.

> THe bald spot on Elijah is located right on the back of his head,

> where it has a nice round shape.

> THe flat spot is to the left of this bald spot. He does well with

> repositioning so i am thinking that this flat spot wont get better

> with any repo.

> Is this flat spot from him being breeched, and staying in ths same

> spot in utero? Will it correct itself with repositioning? DO i need

> to look into a DOC or STAR band? Is this something that i should

get

> diagnosed at Cranial Tech, or who should i get a diagnosis about

the

> plagio?

>

> Thank you for your help!

> emily

>

>

>

>

>

>

> For more plagio info

[Guest guest]

Welcome. I would love to type a better response, but it is NUTS at my house today. I would take your son to Cranial Tech for a free evaluation. That would give you better information to then be able to make an informed decision. Good luck and please let us know how it goes.

Christy - mom to Kennedy

Brachy/plagio/tort

DOC band 11/23/04 - due to graduate 2/11/05

Tulsa, OKevandenheuvel <evandenheuvel@...> wrote:

Hello,its so wonderful to have support like this!Serious ? about my son's flat spot.Some history... Elijah was breeched - he was always in the same spotin utero- and was succesfully moved before his birth. He wasdiagnosed at 4 months with tort and is getting good PT. Elijah is 6months now and is progressing well. His PED is wonderful and hasbeen very supportive of any referrals that i have needed.BUT I have a question about his flat spot. He has never beenofficially diagnosed with plagio, but there is an obvious ( obviousat least to mom) flat spot opposite his tilt. I also can see somefacial assymetry and "clues" typical of plagio ( part of his lower lip sticks out, one ear is higher than the other, a cheek seems fuller than the other, one eye seems more open than the other) . THe strange thing is that this flat spot

is NOT where his "bald" spot is. THe bald spot on Elijah is located right on the back of his head, where it has a nice round shape.THe flat spot is to the left of this bald spot. He does well withrepositioning so i am thinking that this flat spot wont get betterwith any repo.Is this flat spot from him being breeched, and staying in ths same spot in utero? Will it correct itself with repositioning? DO i need to look into a DOC or STAR band? Is this something that i should get diagnosed at Cranial Tech, or who should i get a diagnosis about the plagio?Thank you for your help!emilyFor more plagio info

[Guest guest]

Hi there

I would also like to encourage you to get an opinion either at CT or

another plagio specialist. It may be that you look into this and

discover that a helmet is not the way you want to go or it is not

recommended for your son. However, from what you have said about the

facial asymmetry (protruding cheek etc) it is definitely worth

getting an opinion. They are experienced at CT and can also tell you

about the likely success. This would be good starting at six months,

but interuterine restraint is harder to treat than plain old

positional plagio, so you should start as soon as possible if you

have even the slightest inkling that this is the way to go.

I've read quite a few posts from parents recently who have waited or

it is too late to get a helmet and this makes me really sad. I don't

think helmets are the only way to go at all, but from what you have

said, I don't think repo is probably going to be able to solve this

one. Far better to look into it now and see a specialist (or two)

and get the information you need on plagio, and at least have the

option of a helmet which could provide good correction at your

child's age.

By the way- there is a helpful severity assessment tool in Links-

Severity Assessment of Plagio. If you look at this it will help you

see how you think your little one compares- the further to the right

the more severe. Tort can also cause facial asymmetry (the last

series of pictures at the bottom of the handout shows tort related

plagio), and it sounds like you are managing that really well, so

the question is whether there would be further benefit from a

helmet, and that is something the experts will be able to help with.

Good luck and do let us know how you get along

Hannah (mum to Lucia, London, UK)

Cranio grad

>

> Hello,

>

> its so wonderful to have support like this!

> Serious ? about my son's flat spot.

> Some history... Elijah was breeched - he was always in the same

spot

> in utero- and was succesfully moved before his birth. He was

> diagnosed at 4 months with tort and is getting good PT. Elijah is 6

> months now and is progressing well. His PED is wonderful and has

> been very supportive of any referrals that i have needed.

> BUT I have a question about his flat spot. He has never been

> officially diagnosed with plagio, but there is an obvious ( obvious

> at least to mom) flat spot opposite his tilt. I also can see some

> facial assymetry and " clues " typical of plagio ( part of his lower

> lip sticks out, one ear is higher than the other, a cheek seems

> fuller than the other, one eye seems more open than the other) .

THe

> strange thing is that this flat spot is NOT where his " bald " spot

is.

> THe bald spot on Elijah is located right on the back of his head,

> where it has a nice round shape.

> THe flat spot is to the left of this bald spot. He does well with

> repositioning so i am thinking that this flat spot wont get better

> with any repo.

> Is this flat spot from him being breeched, and staying in ths same

> spot in utero? Will it correct itself with repositioning? DO i

need

> to look into a DOC or STAR band? Is this something that i should

get

> diagnosed at Cranial Tech, or who should i get a diagnosis about

the

> plagio?

>

> Thank you for your help!

> emily

>

>

>

>

>

>

> For more plagio info

[Guest guest]

,

You have already received great replies that answered your questions

and concerns, so I am just posting you to welcome you to the group!

Please keep us posted on how Elijah is doing, and let us know if you

decide to go for a consult for a helmet/band.

Take care,

Christie (Mom to Repo'd Remy)

>

> Hello,

>

> its so wonderful to have support like this!

> Serious ? about my son's flat spot.

> Some history... Elijah was breeched - he was always in the same

spot

> in utero- and was succesfully moved before his birth. He was

> diagnosed at 4 months with tort and is getting good PT. Elijah is 6

> months now and is progressing well. His PED is wonderful and has

> been very supportive of any referrals that i have needed.

> BUT I have a question about his flat spot. He has never been

> officially diagnosed with plagio, but there is an obvious ( obvious

> at least to mom) flat spot opposite his tilt. I also can see some

> facial assymetry and " clues " typical of plagio ( part of his lower

> lip sticks out, one ear is higher than the other, a cheek seems

> fuller than the other, one eye seems more open than the other) .

THe

> strange thing is that this flat spot is NOT where his " bald " spot

is.

> THe bald spot on Elijah is located right on the back of his head,

> where it has a nice round shape.

> THe flat spot is to the left of this bald spot. He does well with

> repositioning so i am thinking that this flat spot wont get better

> with any repo.

> Is this flat spot from him being breeched, and staying in ths same

> spot in utero? Will it correct itself with repositioning? DO i

need

> to look into a DOC or STAR band? Is this something that i should

get

> diagnosed at Cranial Tech, or who should i get a diagnosis about

the

> plagio?

>

> Thank you for your help!

> emily

[Guest guest]

Hi ,

My daughter was not officially diagnosed with Plagio until she was 6

months old, though we first noticed her flat spot at around 2

months. We started repo at about four months but were unsuccussful,

even though it seems like her flat spot never touched any surface.

She too developed a bald spot (on her round side), but it was

actually more in the middle of her head, to the left of the area

that was most often resting on a flat surface - I don't know how to

explain that! You should definitely try with the repo, but consider

the possibility that it might not provide the results that you're

looking for. It certainly doesn't hurt to go for a free consult at

CT. They will tell you whether your son would benefit from a band.

Good luck!!!

Lee

> >

> > Hello,

> >

> > its so wonderful to have support like this!

> > Serious ? about my son's flat spot.

> > Some history... Elijah was breeched - he was always in the same

> spot

> > in utero- and was succesfully moved before his birth. He was

> > diagnosed at 4 months with tort and is getting good PT. Elijah

is 6

> > months now and is progressing well. His PED is wonderful and has

> > been very supportive of any referrals that i have needed.

> > BUT I have a question about his flat spot. He has never been

> > officially diagnosed with plagio, but there is an obvious (

obvious

> > at least to mom) flat spot opposite his tilt. I also can see some

> > facial assymetry and " clues " typical of plagio ( part of his

lower

> > lip sticks out, one ear is higher than the other, a cheek seems

> > fuller than the other, one eye seems more open than the other) .

> THe

> > strange thing is that this flat spot is NOT where his " bald "

spot

> is.

> > THe bald spot on Elijah is located right on the back of his

head,

> > where it has a nice round shape.

> > THe flat spot is to the left of this bald spot. He does well with

> > repositioning so i am thinking that this flat spot wont get

better

> > with any repo.

> > Is this flat spot from him being breeched, and staying in ths

same

> > spot in utero? Will it correct itself with repositioning? DO i

> need

> > to look into a DOC or STAR band? Is this something that i should

> get

> > diagnosed at Cranial Tech, or who should i get a diagnosis about

> the

> > plagio?

> >

> > Thank you for your help!

> > emily

[Guest guest]

First welcome to the group,my name is Carol and I have Dominick 4MO.

plagio/tort. Dominick has the same bald spot you talk about, not sure

why it goes bald there, but he does.I am sure you have had excellent

advice already, so I just wanted to say welcome.

>

> Hello,

>

> its so wonderful to have support like this!

> Serious ? about my son's flat spot.

> Some history... Elijah was breeched - he was always in the same spot

> in utero- and was succesfully moved before his birth. He was

> diagnosed at 4 months with tort and is getting good PT. Elijah is 6

> months now and is progressing well. His PED is wonderful and has

> been very supportive of any referrals that i have needed.

> BUT I have a question about his flat spot. He has never been

> officially diagnosed with plagio, but there is an obvious ( obvious

> at least to mom) flat spot opposite his tilt. I also can see some

> facial assymetry and " clues " typical of plagio ( part of his lower

> lip sticks out, one ear is higher than the other, a cheek seems

> fuller than the other, one eye seems more open than the other) .

THe

> strange thing is that this flat spot is NOT where his " bald " spot

is.

> THe bald spot on Elijah is located right on the back of his head,

> where it has a nice round shape.

> THe flat spot is to the left of this bald spot. He does well with

> repositioning so i am thinking that this flat spot wont get better

> with any repo.

> Is this flat spot from him being breeched, and staying in ths same

> spot in utero? Will it correct itself with repositioning? DO i need

> to look into a DOC or STAR band? Is this something that i should

get

> diagnosed at Cranial Tech, or who should i get a diagnosis about

the

> plagio?

>

> Thank you for your help!

> emily

[Guest guest]

Hi

It def sounds as if your son has his plagio from in utero. If I

were you, I would continue to repo, but also get him evaluated for

the plagio. The sooner you band (if this is what you are

considering) the better the results. Ears are also to correct last,

and the heigth difference will more than likely not go away. My

daughter had that too, and even though her ears lined up really

well, one is still slightly highter, and the doc said that this

would stay.

Sandy Willow's Mom

Torticollis resolved

Cranio Germany Grad

http://www.geocities.com/samipa74/Willow_Lanette.html

>

> Hello,

>

> its so wonderful to have support like this!

> Serious ? about my son's flat spot.

> Some history... Elijah was breeched - he was always in the same

spot

> in utero- and was succesfully moved before his birth. He was

> diagnosed at 4 months with tort and is getting good PT. Elijah is 6

> months now and is progressing well. His PED is wonderful and has

> been very supportive of any referrals that i have needed.

> BUT I have a question about his flat spot. He has never been

> officially diagnosed with plagio, but there is an obvious ( obvious

> at least to mom) flat spot opposite his tilt. I also can see some

> facial assymetry and " clues " typical of plagio ( part of his lower

> lip sticks out, one ear is higher than the other, a cheek seems

> fuller than the other, one eye seems more open than the other) .

THe

> strange thing is that this flat spot is NOT where his " bald " spot

is.

> THe bald spot on Elijah is located right on the back of his head,

> where it has a nice round shape.

> THe flat spot is to the left of this bald spot. He does well with

> repositioning so i am thinking that this flat spot wont get better

> with any repo.

> Is this flat spot from him being breeched, and staying in ths same

> spot in utero? Will it correct itself with repositioning? DO i

need

> to look into a DOC or STAR band? Is this something that i should

get

> diagnosed at Cranial Tech, or who should i get a diagnosis about

the

> plagio?

>

> Thank you for your help!

> emily