New to Group

[Guest guest]

I would recommend HNI's enzymes. We tried Kirkman's but didn't see any

improvements. We used HNI's for awhile and then started him back on a regular

diet.

We haven't had any problems. We use Peptizye, ZymePrime and No Fenol.

HTH

Rhonda in CA

[Guest guest]

> have heard Houston enzymes are better. My question is, Is there

> anyone who has used the Houston enzymes and come off the diet with

> them? If so which enzymes were they? How long were they given before

> gluten and casein were reintroduced?

I used all three HNI enzymes for my kids until they no longer needed

enzymes. My kids left gfcf with Peptizyde [or you can use AFP

Peptizyde], but I still had to remove OTHER foods that the enzymes did

not address.

Usually, you should wait until you are sure your child is tolerating

the enzymes, before trying to leave gfcf. So maybe 3 weeks. And

challenge one food at a time, so you can determine if your child might

be okay with one but not the other.

Dana

[Guest guest]

One thing I would add: if you do see effects, especially because

you'll be on vacation and not able to get the perfect foods

(possibly), try to observe if it is really gluten/casein causing the

reaction and not other foods. My son is off the diet but he still

reacts to potatoes, corn syrup, puffed rice, artificial

colors/preservatives/flavors, most spices, and yeast in food. He is

fine with gluten/casein, as long as he takes enzymes with them.

The first time I challeneged gfcf with enzymes, I was giving him all

sorts of the above ingredients because they were in our " challenge "

foods. Then when he reacted, I didn't realize he really could

tolerate the gluten with enzymes, but not those other foods. I was

so conditioned by that point to see gluten and casein (and soy) as

the worst possible offenders, it didn't even occur to me that these

other ingredients could cause worse effects.

We also tried kirkman's enzymes first, but didn't see any results.

My son has been off the diet 3 years now, with no problems, and many

improvements from when he was gfcf. Prior to that, he took Houston

enzymes about six months while he was gfcf.

Amy

> I am new to this group and had a few questions. We have been gfcf

for

> 3 years, and had tried the enzymes at kirkmans very early on. We

quit

> after about 4 months without seeing any gains and when infractions

> happened we always saw the effects.

>

> We are getting ready to go on vacation and I am sure infractions

will

> happen. Lately if it was a small amount we did not see a

reaction. I

> have heard Houston enzymes are better. My question is, Is there

> anyone who has used the Houston enzymes and come off the diet with

> them? If so which enzymes were they? How long were they given

before

> gluten and casein were reintroduced?

>

> Thanks,

>

>

[Guest guest]

We did gfcf for a couple of years as well. We also used the Kirkman's enzymes

also with no reaction. We just started with the Houston's about two months ago

and love them. I now take them along with all three kids. is my

ASD son and I give him the AFP-Peptizyde, No Phenol and Zyme Prime. We have let

him come partially off his diet with few negative effects. I let him eat off

diet except I only allow extremely little dairy. That is just something noone

in our family tolerates well. What I did learn is that I should have taken him

off the diet slowly, one food at a time. Not all kids can tolerate everything

even with enzymes. By allowing one new food at a time, you will know if there

is something he still can't eat.

I wish you well. It does make it so much easier to go on vacation without

stressing over foods. There is enough stress traveling with kids!

Good Luck, hope this helps!

in Cocoa

Hatcher <woman.n.a.shoe@...> wrote:

I am new to this group and had a few questions. We have been gfcf for

3 years, and had tried the enzymes at kirkmans very early on. We quit

after about 4 months without seeing any gains and when infractions

happened we always saw the effects.

We are getting ready to go on vacation and I am sure infractions will

happen. Lately if it was a small amount we did not see a reaction. I

have heard Houston enzymes are better. My question is, Is there

anyone who has used the Houston enzymes and come off the diet with

them? If so which enzymes were they? How long were they given before

gluten and casein were reintroduced?

Thanks,

---------------------------------

[Guest guest]

Hi ,

Welcome to the group! The place that will be providing Noah with his

STARband should be able to answer all of your insurance questions.

Since he's going to be banded during the summer, you're going to have

to dress him lighter than normal. Let us know how your appointment goes.

--- In Plagiocephaly , " lickjohnson " <lickjohnson@y...>

wrote:

> Hi, my name is . My son, Noah, was diagnosed with

> plagiocephaly at 6 months by his pediatrician. Yesterday we saw a

> neorosurgeon who prescribed a star band. He has his appointment in a

> little less than two weeks for that. Any advice on how to prepare

> would be appreciated: i.e. Contacting the insurance company, what

> products are best to keep Noah as comfortable as possible during the

> summer months, etc. Any help is much appreciated, thanks!

[Guest guest]

Hi ,

Welcome to the group! The place that will be providing Noah with his

STARband should be able to answer all of your insurance questions.

Since he's going to be banded during the summer, you're going to have

to dress him lighter than normal. Let us know how your appointment goes.

--- In Plagiocephaly , " lickjohnson " <lickjohnson@y...>

wrote:

> Hi, my name is . My son, Noah, was diagnosed with

> plagiocephaly at 6 months by his pediatrician. Yesterday we saw a

> neorosurgeon who prescribed a star band. He has his appointment in a

> little less than two weeks for that. Any advice on how to prepare

> would be appreciated: i.e. Contacting the insurance company, what

> products are best to keep Noah as comfortable as possible during the

> summer months, etc. Any help is much appreciated, thanks!

[Guest guest]

,

Welcome to the group. Insurance should be filed by the provider, but

you can call your company ahead of time to be sure they will cover it

and how much out of pocket money you will need. Take pictures of

Noah's headshape before the band so you have a record of how his

correction is going. You can even start him a folder here under

plagiokids. Be sure to take a picture straight down on the top of his

head, wet his hair if neccessary. Get each side view and a front view.

We do have folders in the files section here for helping baby adjust

to the band and on how to get a good fit. Read these before you get

fitted for the band so you will know if there is a problem. Summer is

pretty much the same as it would be with an infant, except you will

dress him even lighter. Watch his temp., extra fluids when hot,

becareful in the sun, make sure you buy a couple of youth or adult

type floppy hats to fit over the band. Let us know how the appt. goes

and if you post his pictures, we'd love to see them.

CAROLG

--- In Plagiocephaly , " lickjohnson " <lickjohnson@y...>

wrote:

> Hi, my name is . My son, Noah, was diagnosed with

> plagiocephaly at 6 months by his pediatrician. Yesterday we saw a

> neorosurgeon who prescribed a star band. He has his appointment in

a

> little less than two weeks for that. Any advice on how to prepare

> would be appreciated: i.e. Contacting the insurance company, what

> products are best to keep Noah as comfortable as possible during the

> summer months, etc. Any help is much appreciated, thanks!

[Guest guest]

,

Welcome to the group. Insurance should be filed by the provider, but

you can call your company ahead of time to be sure they will cover it

and how much out of pocket money you will need. Take pictures of

Noah's headshape before the band so you have a record of how his

correction is going. You can even start him a folder here under

plagiokids. Be sure to take a picture straight down on the top of his

head, wet his hair if neccessary. Get each side view and a front view.

We do have folders in the files section here for helping baby adjust

to the band and on how to get a good fit. Read these before you get

fitted for the band so you will know if there is a problem. Summer is

pretty much the same as it would be with an infant, except you will

dress him even lighter. Watch his temp., extra fluids when hot,

becareful in the sun, make sure you buy a couple of youth or adult

type floppy hats to fit over the band. Let us know how the appt. goes

and if you post his pictures, we'd love to see them.

CAROLG

--- In Plagiocephaly , " lickjohnson " <lickjohnson@y...>

wrote:

> Hi, my name is . My son, Noah, was diagnosed with

> plagiocephaly at 6 months by his pediatrician. Yesterday we saw a

> neorosurgeon who prescribed a star band. He has his appointment in

a

> little less than two weeks for that. Any advice on how to prepare

> would be appreciated: i.e. Contacting the insurance company, what

> products are best to keep Noah as comfortable as possible during the

> summer months, etc. Any help is much appreciated, thanks!

[Guest guest]

Hi ,

Welcome to the group! Where will your son be getting his STARband

from? It is very important that you make sure the orhto you will be

working with is experience w/treating plagio babies. The STARband

facility should handle all the insurance stuff for you, though it may

be helpful to call now and find out if they require a letter of

medical necessity to be filed w/your claim. This way you could get

the neuro to write it now instead of having to wait on it. Keep us

posted!

, mom to Hannah, DOCgrad

Cape Cod, Ma

http://hannahsnoggin.tyepad.com

--- In Plagiocephaly , " lickjohnson " <lickjohnson@y...>

wrote:

> Hi, my name is . My son, Noah, was diagnosed with

> plagiocephaly at 6 months by his pediatrician. Yesterday we saw a

> neorosurgeon who prescribed a star band. He has his appointment in

a

> little less than two weeks for that. Any advice on how to prepare

> would be appreciated: i.e. Contacting the insurance company, what

> products are best to keep Noah as comfortable as possible during the

> summer months, etc. Any help is much appreciated, thanks!

[Guest guest]

Hi ,

Welcome to the group! Where will your son be getting his STARband

from? It is very important that you make sure the orhto you will be

working with is experience w/treating plagio babies. The STARband

facility should handle all the insurance stuff for you, though it may

be helpful to call now and find out if they require a letter of

medical necessity to be filed w/your claim. This way you could get

the neuro to write it now instead of having to wait on it. Keep us

posted!

, mom to Hannah, DOCgrad

Cape Cod, Ma

http://hannahsnoggin.tyepad.com

--- In Plagiocephaly , " lickjohnson " <lickjohnson@y...>

wrote:

> Hi, my name is . My son, Noah, was diagnosed with

> plagiocephaly at 6 months by his pediatrician. Yesterday we saw a

> neorosurgeon who prescribed a star band. He has his appointment in

a

> little less than two weeks for that. Any advice on how to prepare

> would be appreciated: i.e. Contacting the insurance company, what

> products are best to keep Noah as comfortable as possible during the

> summer months, etc. Any help is much appreciated, thanks!

[Guest guest]

Hi. Noah is getting his STARband at Children's Healthcare of

Atlanta's Orthotics & Prosthetics Department. His neurosurgeon said

he has moderate to severe plagio. I contacted my insurance company

and the person I talked to had never heard of any kind of band

before. He asked a couple people around him who also had never

heard of it. So he suggested that I have the doc call and talk to

them about it. So my plan today is to request that they call the

insurance before my appointment to get that rolling. He has

physical thereapy in about a week and a half, same day that he sees

the orthotics & prosthetics dept. Hopefully that won't be too much

for him to handle in one day, any suggestions?

Does anyone know what the average percentage of improvement is for a

7 month old with moderate to severe plagio?

> > Hi, my name is . My son, Noah, was diagnosed with

> > plagiocephaly at 6 months by his pediatrician. Yesterday we saw

a

> > neorosurgeon who prescribed a star band. He has his appointment

in

> a

> > little less than two weeks for that. Any advice on how to

prepare

> > would be appreciated: i.e. Contacting the insurance company,

what

> > products are best to keep Noah as comfortable as possible during

the

> > summer months, etc. Any help is much appreciated, thanks!

[Guest guest]

Hi. Noah is getting his STARband at Children's Healthcare of

Atlanta's Orthotics & Prosthetics Department. His neurosurgeon said

he has moderate to severe plagio. I contacted my insurance company

and the person I talked to had never heard of any kind of band

before. He asked a couple people around him who also had never

heard of it. So he suggested that I have the doc call and talk to

them about it. So my plan today is to request that they call the

insurance before my appointment to get that rolling. He has

physical thereapy in about a week and a half, same day that he sees

the orthotics & prosthetics dept. Hopefully that won't be too much

for him to handle in one day, any suggestions?

Does anyone know what the average percentage of improvement is for a

7 month old with moderate to severe plagio?

> > Hi, my name is . My son, Noah, was diagnosed with

> > plagiocephaly at 6 months by his pediatrician. Yesterday we saw

a

> > neorosurgeon who prescribed a star band. He has his appointment

in

> a

> > little less than two weeks for that. Any advice on how to

prepare

> > would be appreciated: i.e. Contacting the insurance company,

what

> > products are best to keep Noah as comfortable as possible during

the

> > summer months, etc. Any help is much appreciated, thanks!

[Guest guest]

At 08:00 PM 6/2/2005, you wrote:

>Hello everyone. My name is Bea, married, and I have three children,

>ages 13, 11, and 18 mos. My youngest child, Mason, was born with some

>health issues. He babbles but doesn't really make out words yet. He

>is beginning to imitate things that I say, but doesn't say make out

>words on his own.

IMO if Mason is babbling and starting to imitate words, that's a good sign

that he may just be a late talker...my apraxic son did neither of those

things at 18 mos...... (or at age two or 2 1/2 for that matter ! ) If in

your gut you feel there is a problem, I'm get him evaluated; maybe you can

get some services, which never hurts.....good luck!!

-Lis, Brittany and

[Guest guest]

i think for sure you should get a home teacher who is reliable. I totally agree

about putting your child with a school that has more children. he will have

plenty of time to be exposed to school. the indiv attention will most

beneficial for him

chris

masonsmommy3 <masonsmommy3@...> wrote:

Hello everyone. My name is Bea, married, and I have three children,

ages 13, 11, and 18 mos. My youngest child, Mason, was born with some

health issues. He babbles but doesn't really make out words yet. He

is beginning to imitate things that I say, but doesn't say make out

words on his own. I'm not sure what his speech should be at this

age. He has always been a little behind in his motor skills as well.

We were approved for some home visits through the county but the

teacher was ill a few times and I just felt like she wasn't reliable

so we terminated our visits. Now I'm not sure what to do. There is

what we call a " regional center " here in town that works with children

who are challenged in different areas. I didn't want to go this route

when he was younger because I didn't want to expose him to germs,

etc. But now that he's over a year old, I'm considering it. I just

wonder if I'm dragging my feet over this and need to get going on

something or if he'll come around and is doing fine. Just need some

of your input on what to do. Thanks for listening.

Bea, mom to Meghan-13, Marcus-11, Mason-18 mos.

[Guest guest]

Nichol -

Your muscle pain and weakness sounds like you might have a form of myositis.

You can read my story at www.rheumatic.org on the medical histories page

(Lee Dermatomyositis). There are a few different forms of myositis -

Dermatomyositis affects the skin and the muscles (proximal closest to the

trunk of your body - thighs, arms, shoulders) the rash can be any where -

but usually starts on your face. Also another sign of DM is Gottron's

Papules (bumps on your knuckles / mechanics hands). Polymyositis is similar

to DM without the rash. Ask your doc to check your CPK (muscle enzyme) it

is a simple blood test. I had just the rash first, then a few weeks later

my muscles ached and burned. Docs first thought it Polymorphus Ligh

erruption (sun sensitivity) my ANA came back elevated and they thought it

was Lupus and said it was joint pain I had - but I wasn't sure. It seemed

like my muscles more than my joints. I went to a rheumy and he noticed my

Gottron's Papules and thought DM. My CPK came back elevated and the muscle

biopsy was conclusive for DM. I used Antibiotic Therapy and I am in

remission now.

My first signs of weakness were difficulty rising from a chair, brushing my

hair or teeth, going up stairs, walking, driving (arms would get tired)...

If I can help in anyway just write! LDutro@...

Liesl

[Guest guest]

Not true.

Your husband's TSC will not be affected. Your son's dx will get you " Q " Coded at

the base you are at. Where are stationed at?

We are her at s AFB and my 5 1/2 yr old has been " Q' coded, so we are here

for a little due to the fact that the servcies he needs can be met here( as far

as school goes.)

Hope that helps

Son, Austin, 5 1/2 yrs, AS/HFA

( ) New to Group

Hi!!

My 4 1/2 year old son was just diagnosed with Asperger's Syndrome and

I am rather lost in the whole sea of information. It seems like the

answer and advise you get varies from person to person.

My first question is more to ease my husbands mind then for me. He

says that by giving him this label and making it known to the school

and on his medical records, he wont be able to ever have " top secret

clearance " and that there are jobs he wont get because of it. Is this

true?

Thank you,

Mandi s

[Guest guest]

:

Great response--Right on target--Very well said!!

Sincerely,

Dr. Giuliani

President -National Association of Parents with Children in Special Education

1201 Pennsylvania Avenue, N.W.

Suite 300

Washington DC, 20004

drgiuliani@...

_www.napcse.org_ (http://www.napcse.org)

In a message dated 6/11/2005 1:40:28 PM Eastern Standard Time,

suso903tomb@... writes:

Mandi,

Welcome to our group!

Is your husband concerned about his own clearance? If so, he shouldn't be.

My husband sought a clearance after all this came to light about our son,

and he is getting it. So it certainly hasn't hurt his prospects any.

About your son. His own prospects would be more compromised without the

diagnosis going on record. My husband and I just discussed this. The risks

for something serious happening as the result of your son not getting the

services he needs far outweigh any risks that a diagnosis would pose to

your son's or husband's career. (My dh has ADHD and is medicated.)

Untreated AS can be quite serious, as has been the case with our son. I

could kick myself that his diagnosis came at age 7, after he had struggled

for too long. (He was diagnosed previously with RAD -- he's adopted --

which is about as scary a diagnosis as anyone can get, and my dh still got

his clearances with that. After that diagnosis came sensory integration

dysfunction, ADHD and bipolar disorder. The ADHD and BP diagnoses are still

with us.)

As far as I understand it, what the people who do the clearances are

looking for are people whose home lives are manageable but not necessarily

perfect. When they grow concerned and deny clearances, there is usually

evidence that things are spiraling out of control ... serious debt

problems, child with repeated arrests on record, substance abuse, physical

abuse ... My husband adds that AS is quite common, even among the people

the government seeks to give clearances to. If AS was a liability, how

would the government or its contractors find so many talented software

engineers? He says, " AS and nerds tend to go together. "

In my father's field, many people have untreated mental illness. It's so

sad. They are so worried about losing their ability to work in their fields

that they won't seek help for themselves and their families. This is

tragic. My father has his own problems and living with him was not fun, let

me tell you. His refusal to seek counseling led to my parents' divorce when

I was 11 and to my leaving his house to live with my mother. When I think

back on the painful decisions he made to spare his career, I wonder if it

was all worth it.

I beg you not to let such considerations color your decision to seek

supports for your son in school. My son was mainstreamed until he was 7,

with minimal supports. Then, as academic standards rose and as the class

grew more regimented, all hell broke loose. My son is now in a

" high-functioning " SDC and partially " included " in general ed with an aide.

He is doing much, much better now. I've never regretted our decision to

make his special needs known to the school, and I don't suspect that we

will ever regret it.

Also remember that with proper supports and treatment now, your son should

learn the social behavior he needs to perform well in school and in life.

He might not need much support later if he gets the help he needs at this

young age.

Best wishes,

T.

Mom of Sasha, 7 -- AS, BP, mild CP

and Gena, 5

both kids adopted as babies

At 04:47 AM 6/11/2005 +0000, you wrote:

>Hi!!

>

>My 4 1/2 year old son was just diagnosed with Asperger's Syndrome and

>I am rather lost in the whole sea of information. It seems like the

>answer and advise you get varies from person to person.

>

>My first question is more to ease my husbands mind then for me. He

>says that by giving him this label and making it known to the school

>and on his medical records, he wont be able to ever have " top secret

>clearance " and that there are jobs he wont get because of it. Is this

>true?

>

>Thank you,

>Mandi s

>

>

>

>

>

>Autism...Solve the Puzzle!

>

>Post message:

>

>Unsubscribe: -unsubscribe

>

>List owner: -owner

>

>

> Links

>

>

>

>

------------------------

[Guest guest]

> by giving him this label and making it known to the school

> and on his medical records, he wont be able to ever have " top secret

> clearance " and that there are jobs he wont get because of it. Is

this

> true?

>

According to my son's psychologist, by having the official label, in

the future he can not be discriminated against. Many with AS do not

come across in interview situations as well as their resumee

represents. This will keep them on equal footing to get jobs they are

qualified for. Just a thought.

[Guest guest]

Mandi,

Welcome to our group!

Is your husband concerned about his own clearance? If so, he shouldn't be.

My husband sought a clearance after all this came to light about our son,

and he is getting it. So it certainly hasn't hurt his prospects any.

About your son. His own prospects would be more compromised without the

diagnosis going on record. My husband and I just discussed this. The risks

for something serious happening as the result of your son not getting the

services he needs far outweigh any risks that a diagnosis would pose to

your son's or husband's career. (My dh has ADHD and is medicated.)

Untreated AS can be quite serious, as has been the case with our son. I

could kick myself that his diagnosis came at age 7, after he had struggled

for too long. (He was diagnosed previously with RAD -- he's adopted --

which is about as scary a diagnosis as anyone can get, and my dh still got

his clearances with that. After that diagnosis came sensory integration

dysfunction, ADHD and bipolar disorder. The ADHD and BP diagnoses are still

with us.)

As far as I understand it, what the people who do the clearances are

looking for are people whose home lives are manageable but not necessarily

perfect. When they grow concerned and deny clearances, there is usually

evidence that things are spiraling out of control ... serious debt

problems, child with repeated arrests on record, substance abuse, physical

abuse ... My husband adds that AS is quite common, even among the people

the government seeks to give clearances to. If AS was a liability, how

would the government or its contractors find so many talented software

engineers? He says, " AS and nerds tend to go together. "

In my father's field, many people have untreated mental illness. It's so

sad. They are so worried about losing their ability to work in their fields

that they won't seek help for themselves and their families. This is

tragic. My father has his own problems and living with him was not fun, let

me tell you. His refusal to seek counseling led to my parents' divorce when

I was 11 and to my leaving his house to live with my mother. When I think

back on the painful decisions he made to spare his career, I wonder if it

was all worth it.

I beg you not to let such considerations color your decision to seek

supports for your son in school. My son was mainstreamed until he was 7,

with minimal supports. Then, as academic standards rose and as the class

grew more regimented, all hell broke loose. My son is now in a

" high-functioning " SDC and partially " included " in general ed with an aide.

He is doing much, much better now. I've never regretted our decision to

make his special needs known to the school, and I don't suspect that we

will ever regret it.

Also remember that with proper supports and treatment now, your son should

learn the social behavior he needs to perform well in school and in life.

He might not need much support later if he gets the help he needs at this

young age.

Best wishes,

T.

Mom of Sasha, 7 -- AS, BP, mild CP

and Gena, 5

both kids adopted as babies

At 04:47 AM 6/11/2005 +0000, you wrote:

>Hi!!

>

>My 4 1/2 year old son was just diagnosed with Asperger's Syndrome and

>I am rather lost in the whole sea of information. It seems like the

>answer and advise you get varies from person to person.

>

>My first question is more to ease my husbands mind then for me. He

>says that by giving him this label and making it known to the school

>and on his medical records, he wont be able to ever have " top secret

>clearance " and that there are jobs he wont get because of it. Is this

>true?

>

>Thank you,

>Mandi s

>

>

>

>

>

>

[Guest guest]

Thank you all for the responses!!! It really helped both my husband

and I talk about our feelings on the dx.

I look forward to all the information I will learn from everyone here.

Mandi s

[Guest guest]

Hi Mandi,

WELCOME!

Ilike the replies you have received, except I don't understand

the 'clearance ' part,

Maybe you can explain that to me?!?! Was it used as a metaphore, or is

there something to that?!?!?!

*smile*

On the other hand, this is for your husband..

I totally understand where you are coming from . My husband actually

dislikes the diagnosis, and doesn't seem as 'nice'about it, though.

But I can only tell you that, from my prespective (?spelling?) it is

much easier to have them understand that your son has AS, then it is

to have them say to you , your child is Rude, Lazy, needs discipline,

ohhhh, the list goes on. I now prefer the AS. It isn't to be used as

an excuse, of course, but a way to explain certain behaviors to them.

(as long as they are learning about AS) Also, the DX of AS means that

your child needs a different approach to learning, socializing, etc.

Knowing Aspies like I do, you have a WONDERFUL son, and he doesn't

deserve the 'rude' labels.

OH, and congrats on such an early diagnosis. THat is fantastic. I wish

I had known about Aspergers when my sons were young (heck, when I was

YOung!!!!)

B

> Hi!!

>

> My 4 1/2 year old son was just diagnosed with Asperger's Syndrome

and

> I am rather lost in the whole sea of information. It seems like the

> answer and advise you get varies from person to person.

>

> My first question is more to ease my husbands mind then for me. He

> says that by giving him this label and making it known to the school

> and on his medical records, he wont be able to ever have " top secret

> clearance " and that there are jobs he wont get because of it. Is

this

> true?

>

> Thank you,

> Mandi s

[Guest guest]

B,

Thank you for your response.

As far as the " clearance " thing...he was meaning that my son could

never have a goverment job.

My son is very special and knowing now about his AS and having a

wonderful therapist has helped me appreciate ny's view of the

world. It also has helped make those not so nice remakes about my

baby boy and my parenting ablities not hurt so much.

I do have one question though......has anyone else has someone tell

them that they are just looking for an excuse for their child's

behavior? sorry just a little bothered by the in-laws comments.

Mandi

[Guest guest]

Yes Mandi, my mother in law is like that too. She chalked it up to what she

calls as " Turleyism " (our last name),because all of her children and

grandchildren act the same way (which is not true.) It really bothers me at

first, when my family does not believe the dx that was given by a professional

doctor and psycologist, but I have gotten over it. My mother in law will see

first hand my son dx when we go to see her at the end of the month. I wish her

all the luck in the world while we are there.

Turley

Austin, 5 yrs, AS/HFA

( ) Re: New to Group

B,

Thank you for your response.

As far as the " clearance " thing...he was meaning that my son could

never have a goverment job.

My son is very special and knowing now about his AS and having a

wonderful therapist has helped me appreciate ny's view of the

world. It also has helped make those not so nice remakes about my

baby boy and my parenting ablities not hurt so much.

I do have one question though......has anyone else has someone tell

them that they are just looking for an excuse for their child's

behavior? sorry just a little bothered by the in-laws comments.

Mandi

[Guest guest]

You are very welcome:)

> B,

> Thank you for your response.

>

You know, I tell my boys they are very special, too:) I told my 10 Yo

yesterday that he is VERY smart, and talks VERY intelligently. That

his AS helps him with all that knowledge. HE loved that, HE still says

he is not autistic. But he likes his AS diagnosis. I just had to

explain that he is HIGH FUNCTIONING. Even though he and his little

brother have the same diagnosis, his little brother has many more

appearant difficulties, so I think he doesn't want to be like that.

Anyway, just working on that.

> wonderful therapist has helped me appreciate ny's view of the

> world. It also has helped make those not so nice remakes about my

> baby boy and my parenting ablities not hurt so much.

I am pleased to hear you have a therapist that has helped you. IT is

so hard to deal with all those 'experts' around us. Just know that

those of us on this group support you and understand what you are

going through. We are all going through this, too. I adore your child,

never met your child, but don't care:) These kids need unconditional

support from outsiders too! Thank goodness for moms like you;)

>

> I do have one question though......has anyone else has someone tell

> them that they are just looking for an excuse for their child's

> behavior? sorry just a little bothered by the in-laws comments.

I just LOVE questions! (that is definitely the Aspie in me. I LOVE to

talk, and well, TYPE. hhehehehehehe!) YES YES YES in answer to your

question. THat is EXACTLY what I have heard. A LOT! No need for you

to apologize. It is an understandable question. My In-Laws , that I

consider out-laws, are actually MY OWN FAMILY. OK My in-laws have some

issues too, and don't really understand my boys, but most of them

actually try. MY family on the other hand, OHHHH I would love to go on

about how I hate how rude, obnoxiuos, down right nasty STUPID,

ignorant,,,, OK, OVER DOING IT A BIT, sorry;)

But they just don't get it. They say my kids have an 'illness', they

say the classics (lack of discipline, you know, the good ones!)

Let me tell you this, I know it is hard to deal with, after all,

aren't they family? But you are doing what you know how to do , with

what you have. YOU are the best for your child. That is so clear, even

to me.

My response to them is......

My child has a Neurological Disorder. IT is sometimes very difficult

for him to handle himself appropriately. It is NOT a lack of good

parenting, or discipline.

Because of my faith in my child, and my knowledge of his disorder, I

feel strongly that he will learn to cope with his issues, and over

come a lot of his issues. But he needs strong support (and so do I)

Can you speak fluently in Chinese, German, French and SPANISH any time

you want? (Yes all 4) No? If you woke up tomorrow, could you

say, " That is it, today I will speak all 4 languages fluently! " ???

NO you couldn't,,,,

With my son, he can't just wake up tomorrow and Say " I am going to

behave appropriately all the time, and I am going to understand the

social cues people give me, and the nonverbal language will come easy

to me. I am not going to get frustrated when something bothers me. I

am going to be an NT "

He sure would love to. It is frustrating have a neurological Disorder.

But he just can't! But one thing he can do, is accept lots of love and

understanding from anyone around him!

Ok, was that too long? I am just so STRONGLY connected with what you

are going through, it is hard to not feel involved completely!

You can't stop their comments (then again, we probably can, but it

takes a little more than what I have for energy) but we can educate

them , if they are willing. If not, DON'T waste your time at this

point.

Instead, put your energy into becoming a strong advocate for your

little one. The more you know about his difficulties, the more you

will be able to stand up for him, and he needs it!!

*hugs* to you Mandi!

you are really on a wonderful Journey right now!

And we are all right here with you:)

B

[Guest guest]

Mandi <vdubsgrl@...> wrote: B,

Thank you for your response.

As far as the " clearance " thing...he was meaning that my son could

never have a goverment job.

My son is very special and knowing now about his AS and having a

wonderful therapist has helped me appreciate ny's view of the

world. It also has helped make those not so nice remakes about my

baby boy and my parenting ablities not hurt so much.

I do have one question though......has anyone else has someone tell

them that they are just looking for an excuse for their child's

behavior? sorry just a little bothered by the in-laws comments.

Mandi

Yes. Still hearing that all the time. Whenever someone doesn't want to make an

accommodation, they pull out the " You want to baby him " or " You are making

excuses for him " stuff. You will get used to it. lol. I would just tell the

inlaws, " No, not excuses - reasons. "

Roxanna ô¿ô

Don't take life too seriously; No one gets out alive.

---------------------------------

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