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If you don't leave until then, then I would start them alongside the diet

now and just gradually ease out aspects of the diet - for us the things

which would show up problems first and would also make our lives easier by

the nature of what they were, were the first things to be trialled, i.e.

milk, bread, breakfast things and then we just carried on from there.Just

don't rush things.

But see what the others say - I'm not as knowledgeable as most on here :o)

Best of luck

Julea : o)

On the human chessboard, all moves are possible.

www.emagforall.netfirms.com

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Hi there,

I can completely understand how you feel. My daughter got her helmet

when she was 8 months and I was heartbroken. Believe me, you'll get

used to it though and your baby will probably get used to it even

quicker. In fact, you'll get so used to seeing her in it, it will

look odd to you when it is off. I don't recommend taking it off for

longer than an hour though (each day), even if she shows early

progress. It will correct a lot faster if you follow the plan. And

hey, if she is showing early progress she may get out of it that

sooner!! :-)

What type of helmet is she getting?

> We just learned that our 8 month old daughter will need a helmet -

> we're having her fitted this afternoon. I feel so sad that her

> beautiful, soft, fuzzy, sweet smelling little head is going to be

> covered. I feel like part of her babyhood is being stolen! :(

>

> It sounds like I can expect a bit less sleep for a while. Anything

> else I should expect? Will she lose her hair from the constant

> rubbing/pressure of the helmet? Is it difficult to position while

> breastfeeding? Is there a chance that she can wear it less than 23

> hours a day if she makes early progress?

>

> Ugh. This is so hard when all I see is a perfect little girl every

> time I look at her.

>

> I look forward to your responses and any advice you might have for

me.

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Hi! Where are you from? Not all of our babies had sleepless

nights - my daughter adjusted fine and slept well. We did

have to go back for 2 adjustments that first week, but after that it

was smooth sailing. You do have to stick to the 23 hours/day,

because the bands work by redirecting the baby's growth, and they

are growing all the time. It really does get easier, and before you

know it, it will be graduation day, and you'll be missing your

daughter's helmet - it becomes a part of them. I didn't have any

issues breastfeeding - you just need to adjust your positioning a

bit to see what works... We didn't have hair loss from the band,

but her hair didn't grow in the holding spot on the forehead until

after the band came off( was wore the band for 2 months,

beginning at 5 months old)Welcome to the group.

Kerri from NY

's mom (DOCgrad)

--- In Plagiocephaly , " ldfouch " <ldfouch2@n...>

wrote:

> We just learned that our 8 month old daughter will need a helmet -

> we're having her fitted this afternoon. I feel so sad that her

> beautiful, soft, fuzzy, sweet smelling little head is going to be

> covered. I feel like part of her babyhood is being stolen! :(

>

> It sounds like I can expect a bit less sleep for a while.

Anything

> else I should expect? Will she lose her hair from the constant

> rubbing/pressure of the helmet? Is it difficult to position while

> breastfeeding? Is there a chance that she can wear it less than

23

> hours a day if she makes early progress?

>

> Ugh. This is so hard when all I see is a perfect little girl

every

> time I look at her.

>

> I look forward to your responses and any advice you might have for

me.

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I completely understand what you are going through. It is a little

difficult to see them banded for the first couple of days, but then

you get used to it (and so do they!). Just remember that you're only

doing what is best for your baby. My motto in the past weeks has

been, " What's a couple of months in a band when it will correct her

head shape for life! " We spend a lot of cuddle time while she has

her band off for that 1 hr. per day. And decorating the band has

helped me, too.

CT says the band should be on 23 hrs a day to achieve maximum

correction. You just never, ever know when a sudden growth spurt

will hit. And once you're both used to it, 23 hrs isn't all that bad.

Jordyn has only had her band for a week, but I find the easiest

position to nurse her in is the " football clutch. " Basically, I sit

in an oversized chair with a high arms, put a pillow beside me and

lay Jordyn on the pillow to nurse. It has worked great with no

problems whatsoever. Some moms also recommend putting a towel or

small pillow over your arm if you are going to nurse in the cradle

hold. I just can't seem to get either of us very comfortable in that

position, but I know it has worked for others.

The lack of sleep only lasts for a couple of nights until they are

used to the band. It really isn't that bad, and you can always play

catch up that next weekend after getting the band while hubby or

family babysits! :)

Hope this helps. You are doing a wonderful thing for your baby. She

will thank you once she's old enough to realize what you went through

for her. :)

& Jordyn (DOCband 10/13)

Dallas

> We just learned that our 8 month old daughter will need a helmet -

> we're having her fitted this afternoon. I feel so sad that her

> beautiful, soft, fuzzy, sweet smelling little head is going to be

> covered. I feel like part of her babyhood is being stolen! :(

>

> It sounds like I can expect a bit less sleep for a while. Anything

> else I should expect? Will she lose her hair from the constant

> rubbing/pressure of the helmet? Is it difficult to position while

> breastfeeding? Is there a chance that she can wear it less than 23

> hours a day if she makes early progress?

>

> Ugh. This is so hard when all I see is a perfect little girl every

> time I look at her.

>

> I look forward to your responses and any advice you might have for

me.

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Hi,

Welcome to the group! Not all babies lose sleep once being banded. My

baby slept fine, it was never a problem. It is a must that your baby

be in her band for 23 hours a day. This is taken from Cranial Tech

web site:

Compliance:

With such a small window of opportunity to correct an infant's head,

it is critical that families are fully compliant with the treatment

protocol. The best outcome will be achieved when all protocols are

followed

A child's head grows consistently. In order to capture and direct all

growth, it is essential that the band is worn 23 hours a day, every

day.

Skin problems, if any, are typically resolved in the first week. If

you have any other problems, consult your clinician immediately.

Timely growth adjustments are a must. If growth adjustments are

delayed, it can negatively impact the head shape.

For those infants where neck exercises are necessary, stretching

instructions must be followed. In children with neck tightness, the

DOC Band alone cannot achieve the best outcome. Children can be left

with a less than optimal outcome because parents do not fully comply

with the stretching program.

Please let us know how your baby is adjusting.

> We just learned that our 8 month old daughter will need a helmet -

> we're having her fitted this afternoon. I feel so sad that her

> beautiful, soft, fuzzy, sweet smelling little head is going to be

> covered. I feel like part of her babyhood is being stolen! :(

>

> It sounds like I can expect a bit less sleep for a while. Anything

> else I should expect? Will she lose her hair from the constant

> rubbing/pressure of the helmet? Is it difficult to position while

> breastfeeding? Is there a chance that she can wear it less than 23

> hours a day if she makes early progress?

>

> Ugh. This is so hard when all I see is a perfect little girl every

> time I look at her.

>

> I look forward to your responses and any advice you might have for

me.

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Hi and welcome to the group. I understand where you are coming from, I

think that all of us do, but in the long run, it is well worth it, and you

will be able to kiss that nice round noggin all of the time. It is actually

funny, but once she has her helmet on, when you have it off, you will think

it looks so weird! You are doing the right thing for her, you are doing a

great job. Please do keep us posted as to how it went today. Best wishes,

Heidi, mom to Jeffry, local helmet grad, MN

Hugs & Drool,

Jeffry, Heidi & Brett

Zimmerman

>From: " ldfouch " <ldfouch2@...>

>Reply-Plagiocephaly

>Plagiocephaly

>Subject: New to group

>Date: Mon, 20 Oct 2003 16:04:03 -0000

>

>We just learned that our 8 month old daughter will need a helmet -

>we're having her fitted this afternoon. I feel so sad that her

>beautiful, soft, fuzzy, sweet smelling little head is going to be

>covered. I feel like part of her babyhood is being stolen! :(

>

>It sounds like I can expect a bit less sleep for a while. Anything

>else I should expect? Will she lose her hair from the constant

>rubbing/pressure of the helmet? Is it difficult to position while

>breastfeeding? Is there a chance that she can wear it less than 23

>hours a day if she makes early progress?

>

>Ugh. This is so hard when all I see is a perfect little girl every

>time I look at her.

>

>I look forward to your responses and any advice you might have for me.

>

>

>

>For more plagio info

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I ditto what everyone else said. You also may be surprised, Logan

only had 2 nights where he had a problem with the band & has slept

fine ever since. Just know that you are doing the right thing, and it

is true, you do get used to it very quickly.

Good luck!

n

SAHM to Riley & Logan

> We just learned that our 8 month old daughter will need a helmet -

> we're having her fitted this afternoon. I feel so sad that her

> beautiful, soft, fuzzy, sweet smelling little head is going to be

> covered. I feel like part of her babyhood is being stolen! :(

>

> It sounds like I can expect a bit less sleep for a while. Anything

> else I should expect? Will she lose her hair from the constant

> rubbing/pressure of the helmet? Is it difficult to position while

> breastfeeding? Is there a chance that she can wear it less than 23

> hours a day if she makes early progress?

>

> Ugh. This is so hard when all I see is a perfect little girl every

> time I look at her.

>

> I look forward to your responses and any advice you might have for

me.

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hello there!

It isn't all that bad, it takes a little bit of adjustment but then the helmet becomes part of them and they look just as cute! If you decorate it, it will probably make you feel better. I had so much fun in sticker shops deciding my "themes".

I have no advice on breastfeeding. My son did not lose any hair but he had one "pressure point" spot where the hair became thinner. He also never had any sleep issues.

For best results try and keep it on the full 23 hours a day. You want the maximum correction in the shortest time, right?

Hope the fitting went well, please keep us posted on you daughter's progress.

Natashaldfouch <ldfouch2@...> wrote:

We just learned that our 8 month old daughter will need a helmet - we're having her fitted this afternoon. I feel so sad that her beautiful, soft, fuzzy, sweet smelling little head is going to be covered. I feel like part of her babyhood is being stolen! :(It sounds like I can expect a bit less sleep for a while. Anything else I should expect? Will she lose her hair from the constant rubbing/pressure of the helmet? Is it difficult to position while breastfeeding? Is there a chance that she can wear it less than 23 hours a day if she makes early progress? Ugh. This is so hard when all I see is a perfect little girl every time I look at her.I look forward to your responses and any advice you might have for me.

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I'd not start enzymes without doing a lot of reading first. Not what you want to

hear I'm sure. But that is my advice. I looked at DeFelice's book and

thought, oh, that'll take me few days, but when I actually sat down to read it,

it read like a great novel. Finished it in a day. Of course I then had to

re-read parts after I verified a few things I'd read. No insult to the author,

but after the number the Doctors did on my son, I'm a bit.... can't find the

right word, about what I have him take. There aren't any shortcuts to enzymes

and adjustment, there is advice on how to minimize or eliminate certain issues,

but the adjustment is just that.

New to Group

This morning I ordered my first couple of bottles of the Houston

enzymes and then started brousing posts here to see if I could

figure out what I have gotten myself into, lol!

My son has been gfcf for 3 years now. Before the gfcf diet,

he was almost nonverbal, suffered from typical meltdowns and

difficult behavior, etc., etc., etc. Now, almost 3 years after

implementing the diet, you can barely tell he is autistic. In fact,

his neurologist said he wouldn't diagnose him today with autism

though he did 3 years ago. The diet has given us back our little

boy (he is almost 7 now) and we are grateful. But, the diet does

take a great deal of work (worth it for the effects, but work all

the same). We are getting ready to drive across country for a

trip " home " for Christmas and I thought it was time to experiment

with the enzymes. I know very little other than people tend to like

Houston's formulation better than Kirkman's.

Now I throw myself on your collective mercy and seek information,

preferably in summarized form. I am also homeschooling my son since

he just could not handle the stimulation of a typical classroom, but

does really well with one on one. But that too is a challenge. So

I guess what I am saying is I'm busy, I want to do what is best for

my son, but if there is an easier way, I want to know about it.

Deborah

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Does your son know all his letters? In the Montessori approach, we would

have him making phonetic words with an alphabet (you could use magnetic

refrigerator letters). You know, cat, rat, dog, hog, sit, rug, log, jot,

jog, and once he does well with three letter words, go on to phonetic four

letter words like jump, frog, etc. Sound out the words one letter at a time

c-a-t, so that he can hear the sounds in the word. Ask if he can find the

first sound. Repeat as necessary for the second and third sounds. You know

he's ready to move on to reading simple books when he starts to read his

words back to you without any help. If you want help with reading games, let

me know. I've got a few.

Liz

gjkinruralohio wrote:

> Greetings,

>

> We have a 5 yr old son w/ Aspergers and I am pulling my hair out!

> Since we homeschool I have no access to whatever the public school

> system may offer. We had done OT for Sensory Integration until the

> insurance cut us off. Any advice for agression and tantrums? How

> about teaching phoics?

>

>

>

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Welcome! Hope you enjoy the discussions here! My name is

and I have 3 kids but only one with a disability. Alot of friendly ,

helpful people here! I have a 9 year old with Aspergers! She was at

her worst at 4/5! Although its still rough now! Does he

talk/express himself well? That would be my first question! I don't

homeschool so I can't help you there but I bet there are others that

will jump in! What kind of things trigger these outbursts or does it

happen all the time when he does not get his way?

from Dallas Texas

> Greetings,

>

> We have a 5 yr old son w/ Aspergers and I am pulling my hair out!

> Since we homeschool I have no access to whatever the public school

> system may offer. We had done OT for Sensory Integration until the

> insurance cut us off. Any advice for agression and tantrums? How

> about teaching phoics?

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Since you new at this and having difficulties; find a local homeschooling group.

The parents their can be a wealth of information some are also very structured

with extra activities and field trips. there are also groups on the internet

for homeschooling you can join. Lastly, since many homwschoolers seen to have a

strong religious affiliation ( and support) I would ask around using that

avenue.

Good luck

( ) new to group

Greetings,

We have a 5 yr old son w/ Aspergers and I am pulling my hair out!

Since we homeschool I have no access to whatever the public school

system may offer. We had done OT for Sensory Integration until the

insurance cut us off. Any advice for agression and tantrums? How

about teaching phoics?

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Public schools offer very little. :( A behavioral therapist would be

beneficial for this sorta thing. Also a speech teacher who

specialises in pragmatics might help. You can try learning Sensory

ttechniques yourself such as deep pressure or brushing. Diet or

medication may also be helpful.

a

> Greetings,

>

> We have a 5 yr old son w/ Aspergers and I am pulling my hair out!

> Since we homeschool I have no access to whatever the public school

> system may offer. We had done OT for Sensory Integration until the

> insurance cut us off. Any advice for agression and tantrums? How

> about teaching phoics?

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Hi,

My 14.5 yr old son has had similar difficulties.

He doesn't have a problem staying on task (I don't think...) unless

maybe at home (more distractions I guess) but with organization, THAT

has always been a problem.

In middle school - well, long story but he began having problems with

OCD, Obsessive-Compulsive Disorder. So between the OCD, the AS

traits and his just plain not being organized, I began going thru his

work each night (folders for each subject) and getting it organized,

seeing what had/had not been turned in, etc. Plus his teachers

learned that he probably did the work but didn't turn it in; so they

would have him look thru his things at school for assignments not

turned in. Thus, the TEACHERS had to ask at times, knew not to leave

it up to him. We also get interim reports from each class which will

list missing assignments, so that helped me too.

We created a 504 Plan for him when his OCD flared up in 6th grade

with accommodations for him, including his organization problems.

He's allowed to turn in work late with no grade penalty ( & how late

depends on each teacher). You might want to see about that if his

grades are suffering.

Oh and was like your son re the video games! But he seems to

have less interest (finally!) as he's gotten older. It's not a daily

thing anymore. Now, TV still is; also recently he's been playing

more games he finds on the computer. So games are still involved,

just not the PlayStation/Nintendo, etc., ones. 's never been

an outdoor person or one with a hobby, etc., so video games were

about it, besides TV. But they were one of the first things he was

GOOD at (not counting schoolwork) and so in a way, video games have

been good for him in that respect.

SIGH, gotta go, chores to do! Keep us updated on things.

> Hi All,

>

> My son was just recently diagnosed as having Asperger's. You know

he

> has always had challenges at school but they never knew exactly

WHAT

> was up with him. He has always been a daydreamer and isn't on task

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Hi ,

My son, Aidan, has been in his DOC band for 2 weeks now as well. He is also 6 m/o. I am actually in So. Cal but wanted to say hi!

Deb w/ Aidan (DOC 10/21) and Ting

New to Group

Hi my name is and I am new to this group. I have a 6 month old son who has been wearing his STARband for 2weeks now. We are going in today for our first check-up. How does this group work? I need all the support that I can get. Wondering if we can try to connect with other moms and kids in our area. We live in Pleasanton, CA. Let me know. ThanksFor more plagio info

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Hi and welcome!

This is basically a support group for parents and a few grandparents

that are dealing with their child and plagiocephaly. We have several

members that live in California! Check back in and let us know how

his first adjustment went, we look forward to talking with you.

Natasha

Mommy to Aidan, DOCGrad

Atlanta, GA

--- In Plagiocephaly , " fab520032003 " <s.myer@c...>

wrote:

> Hi my name is and I am new to this group. I have a 6 month

> old son who has been wearing his STARband for 2weeks now. We are

> going in today for our first check-up. How does this group work?

I

> need all the support that I can get. Wondering if we can try to

> connect with other moms and kids in our area. We live in

> Pleasanton, CA. Let me know. Thanks

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Welcome to the group. Please let us know how your sons appointment goes. Hopefully some people in your area will chime in. I am in missouri.

Angie and Jenna(STARband grad 1/21/03)

New to Group

Hi my name is and I am new to this group. I have a 6 month old son who has been wearing his STARband for 2weeks now. We are going in today for our first check-up. How does this group work? I need all the support that I can get. Wondering if we can try to connect with other moms and kids in our area. We live in Pleasanton, CA. Let me know. ThanksFor more plagio info

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Hi and welcome to the group! How is your son tolerating the

band? I see that Debbie has added CA to the subject line to get the

attention of others in your area. You have definitely come to the

right place for support. Let us know how the adjustment goes today.

Dustie, mom to , DOCGrad'03

Texas

--- In Plagiocephaly , " fab520032003 " <s.myer@c...>

wrote:

> Hi my name is and I am new to this group. I have a 6 month

> old son who has been wearing his STARband for 2weeks now. We are

> going in today for our first check-up. How does this group work?

I

> need all the support that I can get. Wondering if we can try to

> connect with other moms and kids in our area. We live in

> Pleasanton, CA. Let me know. Thanks

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Hi !

Welcome to the group. As you may have noticed, we are pretty active group that loves to talk to new people. Please feel free to add pictures of your son so we can get to know him better. What is his name? How has his progress band in his band so far? The first couple of weeks can be the most difficult, with many adjustments and trips to see the orthotist. Hopefully his journey to a rounder head has been smooth so far!! Let us know how is check went today.

- mom to Aidan

STARband 8/26/03

GR MI

-----Original Message-----From: fab520032003 [mailto:s.myer@...]Sent: Tuesday, November 04, 2003 12:31 PMPlagiocephaly Subject: New to GroupHi my name is and I am new to this group. I have a 6 month old son who has been wearing his STARband for 2weeks now. We are going in today for our first check-up. How does this group work? I need all the support that I can get. Wondering if we can try to connect with other moms and kids in our area. We live in Pleasanton, CA. Let me know. ThanksFor more plagio info

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Hi,

Welcome to the group! How did your appt go today?

--- In Plagiocephaly , " fab520032003 " <s.myer@c...>

wrote:

> Hi my name is and I am new to this group. I have a 6 month

> old son who has been wearing his STARband for 2weeks now. We are

> going in today for our first check-up. How does this group work?

I

> need all the support that I can get. Wondering if we can try to

> connect with other moms and kids in our area. We live in

> Pleasanton, CA. Let me know. Thanks

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Thanks for all the replies. Unfortunately, 's appt. did not

go as well as I had hoped. No change thusfar. Oh well, I guess it

has only been 2 weeks, but I did expect to see a little change. A

bit disheartening. The plus side is that it is not getting any

worse. turns 6 months on the 11th of Nov and we were told

that he will most likely wear the helmet for 5 months. The past 2

weeks have seemed like an eternity to me and I am not sure I can

handle another 4.5 months of this. Anyhow, I will try to post his

pic this evening after my other 2 munchkins drift off to dreamland.

>

> Hi !

>

> Welcome to the group. As you may have noticed, we are pretty

active group

> that loves to talk to new people. Please feel free to add

pictures of your

> son so we can get to know him better. What is his name? How has

his

> progress band in his band so far? The first couple of weeks can

be the most

> difficult, with many adjustments and trips to see the orthotist.

Hopefully

> his journey to a rounder head has been smooth so far!! Let us

know how is

> check went today.

>

>

> - mom to Aidan

> STARband 8/26/03

> GR MI

>

>

>

>

> New to Group

>

>

> Hi my name is and I am new to this group. I have a 6

month

> old son who has been wearing his STARband for 2weeks now. We are

> going in today for our first check-up. How does this group work?

I

> need all the support that I can get. Wondering if we can try to

> connect with other moms and kids in our area. We live in

> Pleasanton, CA. Let me know. Thanks

>

>

>

>

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Hi ,

I understand how you feel about the time duration. For my son's

initial band they told me 3-4 months and I told all my family, he

will only be wearing it 3 months. Well, it ended up being over 7

months but I am really happy that we stuck it out. The time went by

quickly. Hang in there!

Natasha

> >

> > Hi !

> >

> > Welcome to the group. As you may have noticed, we are pretty

> active group

> > that loves to talk to new people. Please feel free to add

> pictures of your

> > son so we can get to know him better. What is his name? How has

> his

> > progress band in his band so far? The first couple of weeks can

> be the most

> > difficult, with many adjustments and trips to see the orthotist.

> Hopefully

> > his journey to a rounder head has been smooth so far!! Let us

> know how is

> > check went today.

> >

> >

> > - mom to Aidan

> > STARband 8/26/03

> > GR MI

> >

> >

> >

> >

> > New to Group

> >

> >

> > Hi my name is and I am new to this group. I have a 6

> month

> > old son who has been wearing his STARband for 2weeks now. We are

> > going in today for our first check-up. How does this group

work?

> I

> > need all the support that I can get. Wondering if we can try to

> > connect with other moms and kids in our area. We live in

> > Pleasanton, CA. Let me know. Thanks

> >

> >

> >

> >

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Hi ,

It does get easier, I promise! In time you'll think

looks " weird " withouth is band.

I'm sorry that he hasn't made any progress yet, I'm sure he will

though. Keep us posted on him!

> >

> > Hi !

> >

> > Welcome to the group. As you may have noticed, we are pretty

> active group

> > that loves to talk to new people. Please feel free to add

> pictures of your

> > son so we can get to know him better. What is his name? How has

> his

> > progress band in his band so far? The first couple of weeks can

> be the most

> > difficult, with many adjustments and trips to see the orthotist.

> Hopefully

> > his journey to a rounder head has been smooth so far!! Let us

> know how is

> > check went today.

> >

> >

> > - mom to Aidan

> > STARband 8/26/03

> > GR MI

> >

> >

> >

> >

> > New to Group

> >

> >

> > Hi my name is and I am new to this group. I have a 6

> month

> > old son who has been wearing his STARband for 2weeks now. We are

> > going in today for our first check-up. How does this group

work?

> I

> > need all the support that I can get. Wondering if we can try to

> > connect with other moms and kids in our area. We live in

> > Pleasanton, CA. Let me know. Thanks

> >

> >

> >

> >

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Do they have the scanner where you go? Jenna's ortho didn't have the scanner. I have heard they are really helpful in seeing progress.

Angie and Jenna(STAr grad)

New to Group> > > Hi my name is and I am new to this group. I have a 6 month > old son who has been wearing his STARband for 2weeks now. We are > going in today for our first check-up. How does this group work? I > need all the support that I can get. Wondering if we can try to > connect with other moms and kids in our area. We live in > Pleasanton, CA. Let me know. Thanks> > > >

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They do have a scanner where I go. It does help with the accuracy

of any changes but I was discouraged to see no change.

Myer - P'town, CA

Mother to (6mo)

STARband 2weeks

> >

> > Hi !

> >

> > Welcome to the group. As you may have noticed, we are pretty

> active group

> > that loves to talk to new people. Please feel free to add

> pictures of your

> > son so we can get to know him better. What is his name? How

has

> his

> > progress band in his band so far? The first couple of weeks

can

> be the most

> > difficult, with many adjustments and trips to see the

orthotist.

> Hopefully

> > his journey to a rounder head has been smooth so far!! Let us

> know how is

> > check went today.

> >

> >

> > - mom to Aidan

> > STARband 8/26/03

> > GR MI

> >

> >

> >

> >

> > New to Group

> >

> >

> > Hi my name is and I am new to this group. I have a 6

> month

> > old son who has been wearing his STARband for 2weeks now. We

are

> > going in today for our first check-up. How does this group

work?

> I

> > need all the support that I can get. Wondering if we can try

to

> > connect with other moms and kids in our area. We live in

> > Pleasanton, CA. Let me know. Thanks

> >

> >

> >

> >

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