New to Group

[Guest guest]

Welcome . I hope LDN works well for you as it does for me. Good

luck to you... take care, mrsDore

[Guest guest]

JULIE - WELCOME TO THE GROUP!! WISHING YOU GREAT SUCCESS WITH LDN!!

marshiris@...

See what's free at AOL.com.

[Guest guest]

Yaay ,

I started with Dr. Sullivan. My appt. was June 7th at 1:30. I was so happy, he started me on 1.5 mg. for 1 month. Looking forward to the 3.0 dosage. Guess you have beem seeing my postings. I can't hold myself back. I wasn't able to type more than a few sentences before, my fingers got weak and I had to stop. Can't wait to see how you fair. My dx was in 1998, but I'm sure, looking back, my sympthoms were as early as 1985.

Keep us all posted.

Annie

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of finchcage1Sent: Monday, June 18, 2007 12:33 PMlow dose naltrexone Subject: [low dose naltrexone] new to group

Hi Everyone,My name is and I was dx'd with MS in '95. I've done the ABC'S and Novantrone among other meds. I have SPMS now and wheelchair bound. I have been reading your postings and learning info I had questions about. Thank you! I have a consult with Dr. Sullivan Thurs. I'm excited to get started on LDN! I'll take whatever it will give me. Glad to be part of the group!

[Guest guest]

Welcome ! I'm happy for your positive attitude. Like you, I once was a "quiet reader" but now can actually offer help & encouragement to folks here. This is a wonderful site for sharing questions, thoughts and info about LDN. I started the second week of May and feel GREAT!! Praying you'll have good results as well. Keep us all posted :)Janetfinchcage1 <robinsnest.04@...> wrote: Hi Everyone, My name is and I was dx'd with MS in '95. I've done the ABC'S and Novantrone among other meds. I have SPMS now and wheelchair bound. I have been reading your postings and learning info I had questions about. Thank you! I have a consult with Dr. Sullivan Thurs. I'm excited to get started on LDN! I'll take whatever it will give me. Glad to be part of the group!

We won't tell. Get more on shows you hate to love(and love to hate): TV's Guilty Pleasures list.

[Guest guest]

Jen, Yes, we call Lucy "Lu" all the time! Our casting went as well as can be expected. She really hated being held down, but it's over and our band should be back on the 29th. I'm just enjoying the naked noggin time until then Lucy-12 months

Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games.

[Guest guest]

Welcome e!

Please put your info in our database so that other parents can easily find you if info is needed for Madison WI.

:-D

 Jen and Luli - 18 mo.

Left Tort - Right Plagio - Hanger Band Grad - CA

tallulah jayne

www.babiesonline.com/babies/j/jens5th/

New to group

Hi Everyone

I'm new to this group, but not to this topic. My daughter, , now

2.5 years old, was banded in Madison, Wisconsin when she was almost 5

months old. At the time, I did not know anyone who had their child

banded, nor had I ever really heard of it before. I have to say, the

decision to put in a DOC band was not an easy one, but has

proven to be one of the best decisions I've made as a new mom thus far.

Thanks for putting together a group of people who can support each

other on such a personal topic. Let me know if anyone has any questions

regarding the Madison, WI clinics. I have nothing but WONDERFUL things

to say about them.

e

AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

[Guest guest]

Hi e,

Welcome to the group. It is good to hear from you. How is your

daughter doing now? My daughter wore a starband and when it all

started I had never heard or banding either. This group was such a

huge help to me I became addicted to it, and eventually they asked me

to become a moderator :-)

-christine

sydney 17 mo starband grad

>

> Hi Everyone

> I'm new to this group, but not to this topic. My daughter, , now

> 2.5 years old, was banded in Madison, Wisconsin when she was almost 5

> months old. At the time, I did not know anyone who had their child

> banded, nor had I ever really heard of it before. I have to say, the

> decision to put in a DOC band was not an easy one, but has

> proven to be one of the best decisions I've made as a new mom thus far.

> Thanks for putting together a group of people who can support each

> other on such a personal topic. Let me know if anyone has any questions

> regarding the Madison, WI clinics. I have nothing but WONDERFUL things

> to say about them.

>

> e

>

[Guest guest]

e-

My 4.5 month old is getting his referral for his band today from the

Dr. We live in Appleton, WI and I was hoping he refers us to the CT

clinic in Mequon or Madison. Sam's PT knows both of the therapists

that do the banding. How long was your baby in the band?

Thanks!

Kris

> >

> > Hi Everyone

> > I'm new to this group, but not to this topic. My daughter,

, now

> > 2.5 years old, was banded in Madison, Wisconsin when she was

almost 5

> > months old. At the time, I did not know anyone who had their

child

> > banded, nor had I ever really heard of it before. I have to say,

the

> > decision to put in a DOC band was not an easy one, but has

> > proven to be one of the best decisions I've made as a new mom

thus far.

> > Thanks for putting together a group of people who can support

each

> > other on such a personal topic. Let me know if anyone has any

questions

> > regarding the Madison, WI clinics. I have nothing but WONDERFUL

things

> > to say about them.

> >

> > e

> >

>

[Guest guest]

Hi - Try not to stress too much. Your story is too familiar to many of us. It is so unfortunate that peds continue to dismiss the severity of this issue. My daughter's ped also told us that it would round out and by her nine month checkup I had to take matters into my own hands. Since my ped would not give me a prescription for the helmet, I went to another doctor who gave it to me. So my daughter started her hanger helmet at about 9.5 months and wore it until 12 months. She got some good correction, but I was skepitical about the ortho who was treating her, so I stopped using the helmet. Now at 16 months she has just started with a band from cranial technologies. We will see if she can get anymore correction with this band. The older the child is, the longer he/she may have to wear the band because the head growth rate has slowed down. However, at 12 months you should still see good

correction. Children can be banded up until 24 months. Try not to blame yourself and be thankful that something is now going to be done about your son's head shape. Just try to get the process moving quickly. The sooner he is in a band, the better. , NY siebels77 <bsiebels@...> wrote: Hi everyone,I'm now just getting started learning about plagiocephaly. My son has had a flattened head since he's been a

month old, or so, but at every doctor's appointment, his pediatrician said not to worry about it. Finally, at his 12 month check-up a NEW pediatrician to the practice saw my son, and to make a long story short, she's making the call on Monday to the place he'll be fitted for a helmet(?). Looking at all these pics of these babies, I now realize that my son's conditon is exactly the same, and this should have been taken more seriously. I'm furious that the original pediatrician did not see a need to take care of this sooner, and I'm mad at myself for being naive and believing that my son's head would just "round out on its own". I'm depressed, confused, mad....and I need to hear that it's not too late and things will be ok.And I will be grateful for any advice anyone has to share because right now searching the Internet, I'm completely overwhelmed.-Beth

oneSearch: Finally, mobile search that gives answers, not web links.

[Guest guest]

Thank you, ! I desperately needed to hear from someone about

this. I have been doing research all day in anticipation the doctor's

call tomorrow. I am very skeptical about the orthopedic lab she may be

sending us to since we live in a very isolated and somewhat deprived

area of Northern NYS. I have been researching Cranial Technologies as

they seem to be the " go to " place. It looks like the nearest locations

are in Connecticutt and NJ. Any thoughts on them?

Thanks,

Beth

NY

Re: New to Group

Plagiocephaly

> Hi - Try not to stress too much. Your story is too familiar to

> many of us. It is so unfortunate that peds continue to dismiss

> the severity of this issue. My daughter's ped also told us that

> it would round out and by her nine month checkup I had to take

> matters into my own hands. Since my ped would not give me a

> prescription for the helmet, I went to another doctor who gave it

> to me. So my daughter started her hanger helmet at about 9.5

> months and wore it until 12 months. She got some good correction,

> but I was skepitical about the ortho who was treating her, so I

> stopped using the helmet. Now at 16 months she has just started

> with a band from cranial technologies. We will see if she can get

> anymore correction with this band.

>

> The older the child is, the longer he/she may have to wear the

> band because the head growth rate has slowed down. However, at 12

> months you should still see good correction. Children can be

> banded up until 24 months.

>

> Try not to blame yourself and be thankful that something is now

> going to be done about your son's head shape. Just try to get the

> process moving quickly. The sooner he is in a band, the better.

>

> , NY

>

>

> siebels77 <bsiebels@...> wrote:

> Hi everyone,

> I'm now just getting started learning about plagiocephaly. My son

> has

> had a flattened head since he's been a month old, or so, but at

> every

> doctor's appointment, his pediatrician said not to worry about it.

> Finally, at his 12 month check-up a NEW pediatrician to the

> practice

> saw my son, and to make a long story short, she's making the call

> on

> Monday to the place he'll be fitted for a helmet(?). Looking at

> all

> these pics of these babies, I now realize that my son's conditon

> is

> exactly the same, and this should have been taken more seriously.

> I'm

> furious that the original pediatrician did not see a need to take

> care

> of this sooner, and I'm mad at myself for being naive and

> believing

> that my son's head would just " round out on its own " . I'm

> depressed,

> confused, mad....and I need to hear that it's not too late and

> things

> will be ok.And I will be grateful for any advice anyone has to

> share

> because right now searching the Internet, I'm completely overwhelmed.

> -Beth

>

>

>

>

>

>

> ---------------------------------

> oneSearch: Finally, mobile search that gives answers, not

> web links.

>

[Guest guest]

Where are you near Lake , Watertown? Could you go to Rochester?

They have a pretty good Starband Clinic at Strong. You would only

need to make trips every two weeks.

> > Hi everyone,

> > I'm now just getting started learning about plagiocephaly. My son

> > has

> > had a flattened head since he's been a month old, or so, but at

> > every

> > doctor's appointment, his pediatrician said not to worry about

it.

> > Finally, at his 12 month check-up a NEW pediatrician to the

> > practice

> > saw my son, and to make a long story short, she's making the call

> > on

> > Monday to the place he'll be fitted for a helmet(?). Looking at

> > all

> > these pics of these babies, I now realize that my son's conditon

> > is

> > exactly the same, and this should have been taken more seriously.

> > I'm

> > furious that the original pediatrician did not see a need to take

> > care

> > of this sooner, and I'm mad at myself for being naive and

> > believing

> > that my son's head would just " round out on its own " . I'm

> > depressed,

> > confused, mad....and I need to hear that it's not too late and

> > things

> > will be ok.And I will be grateful for any advice anyone has to

> > share

> > because right now searching the Internet, I'm completely

overwhelmed.

> > -Beth

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > oneSearch: Finally, mobile search that gives answers, not

> > web links.

> >

>

[Guest guest]

We are 40 miles north of Watertown. Rochester is certainly do-able. My

biggest fear is putting my son into the hands of someone who is not

properly trained with inadequate experience. Thank you for this info!

Beth

NY

Re: New to Group

Plagiocephaly

> Where are you near Lake , Watertown? Could you go to

> Rochester?

> They have a pretty good Starband Clinic at Strong. You would only

> need to make trips every two weeks.

>

>

>

> > > Hi everyone,

> > > I'm now just getting started learning about plagiocephaly. My

> son

> > > has

> > > had a flattened head since he's been a month old, or so, but

> at

> > > every

> > > doctor's appointment, his pediatrician said not to worry about

> it.

> > > Finally, at his 12 month check-up a NEW pediatrician to the

> > > practice

> > > saw my son, and to make a long story short, she's making the

> call

> > > on

> > > Monday to the place he'll be fitted for a helmet(?). Looking

> at

> > > all

> > > these pics of these babies, I now realize that my son's

> conditon

> > > is

> > > exactly the same, and this should have been taken more

> seriously.

> > > I'm

> > > furious that the original pediatrician did not see a need to

> take

> > > care

> > > of this sooner, and I'm mad at myself for being naive and

> > > believing

> > > that my son's head would just " round out on its own " . I'm

> > > depressed,

> > > confused, mad....and I need to hear that it's not too late and

> > > things

> > > will be ok.And I will be grateful for any advice anyone has to

> > > share

> > > because right now searching the Internet, I'm completely

> overwhelmed.

> > > -Beth

> > >

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > oneSearch: Finally, mobile search that gives answers,

> not

> > > web links.

> > >

> >

>

>

>

[Guest guest]

I did not go there myself but I know someone who recently did. She

started out in Buffalo with her first band and was very unhappy. She

switched to Rochester and was very happy with them. She got great

results from the Starband. I would feel comfortable with choosing

them if I were in your position. They do the scanning not the casting

so that would be much easier for your older child.

Give them a call. Here is the link

http://www.stronghealth.com/services/childrens/craniofacial/index.cfm

> > > > Hi everyone,

> > > > I'm now just getting started learning about plagiocephaly. My

> > son

> > > > has

> > > > had a flattened head since he's been a month old, or so, but

> > at

> > > > every

> > > > doctor's appointment, his pediatrician said not to worry

about

> > it.

> > > > Finally, at his 12 month check-up a NEW pediatrician to the

> > > > practice

> > > > saw my son, and to make a long story short, she's making the

> > call

> > > > on

> > > > Monday to the place he'll be fitted for a helmet(?). Looking

> > at

> > > > all

> > > > these pics of these babies, I now realize that my son's

> > conditon

> > > > is

> > > > exactly the same, and this should have been taken more

> > seriously.

> > > > I'm

> > > > furious that the original pediatrician did not see a need to

> > take

> > > > care

> > > > of this sooner, and I'm mad at myself for being naive and

> > > > believing

> > > > that my son's head would just " round out on its own " . I'm

> > > > depressed,

> > > > confused, mad....and I need to hear that it's not too late

and

> > > > things

> > > > will be ok.And I will be grateful for any advice anyone has

to

> > > > share

> > > > because right now searching the Internet, I'm completely

> > overwhelmed.

> > > > -Beth

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > ---------------------------------

> > > > oneSearch: Finally, mobile search that gives answers,

> > not

> > > > web links.

> > > >

> > >

> >

> >

> >

>

[Guest guest]

Hi Beth,

Welcome to the group! Sorry your ped blew you off so long. While

12 months isn't the idea time to start by any means, it certainly

isn't too late either. Many babies have had great correction after

a year old. There is one particular set of pictures here:

http://www.cranialtech.com/treatment/casef.html that I think is very

encouraging to parents of older babies. I read your posts about

being concerned about where to go. We use the Cranial Tech in CT

(and have for both of my children 4yrs apart) and have been very

happy with the. It's definitely worth the drive from MA to us!

Given that your baby is on the older side, just make sure wherever

you end up that they have experience with older babies specifially

(and can show you B & A pics). My oldest had severe plagio and wore

mulitple bands, with the last one being from 15.5 to 19.5 mos old.

She did great in it and did get some good results even then. I have

pics on her website below. Good luck with everything!

, mom to Hannah (4yrs, DOCgrad) and Jack (5mos, DOCbanded)

Cape Cod, Ma

http://hannahsnoggin.typepad.com

>

> Hi everyone,

> I'm now just getting started learning about plagiocephaly. My son

has

> had a flattened head since he's been a month old, or so, but at

every

> doctor's appointment, his pediatrician said not to worry about it.

> Finally, at his 12 month check-up a NEW pediatrician to the

practice

> saw my son, and to make a long story short, she's making the call

on

> Monday to the place he'll be fitted for a helmet(?). Looking at

all

> these pics of these babies, I now realize that my son's conditon

is

> exactly the same, and this should have been taken more seriously.

I'm

> furious that the original pediatrician did not see a need to take

care

> of this sooner, and I'm mad at myself for being naive and

believing

> that my son's head would just " round out on its own " . I'm

depressed,

> confused, mad....and I need to hear that it's not too late and

things

> will be ok.And I will be grateful for any advice anyone has to

share

> because right now searching the Internet, I'm completely

overwhelmed.

> -Beth

>

[Guest guest]

Hi Beth, Your story is almost identical to our situation. Lucy did not begin the band process until the 12 month point. We are just getting started. She'll be 13 months on Friday and she'll have had the band for 2 weeks on Friday. I know the furstration you are feeling due to our ped's misinformation/lack of education on the issue. We were told it would round out and it did not. I was reassured by those I spoke with at Cranial tech. There are lots of success stories for older infants. I also worried becuase she was older that she would fight the band and hate it. Not so...she acts like its not there and she's doing great. We're doing her first growth adjustment a few days early in fact because some rapid growth where her had should fill in has caused a red spot. I take this as a good sign, that things are moving in the right direction. It's going to be great, and feel good that you're doing the right thing for you and your baby now. Take care!! and Lucy-Doc band for 1 1/2 wks.

Pinpoint customers who are looking for what you sell.

[Guest guest]

I am only familiar with CT in NJ. They are great! Very understanding and professional. The office is clean and kid friendly. They even have a microwave to warm bottles. I have been very pleased with them so far. They really seem to know what they are doing. We have an appt tomorrow. Madison has had her CT helmet for one week now. , NYbsiebels@... wrote: Thank you, ! I desperately needed to hear from someone about this. I

have been doing research all day in anticipation the doctor's call tomorrow. I am very skeptical about the orthopedic lab she may be sending us to since we live in a very isolated and somewhat deprived area of Northern NYS. I have been researching Cranial Technologies as they seem to be the "go to" place. It looks like the nearest locations are in Connecticutt and NJ. Any thoughts on them?Thanks,BethNY Re: New to GroupPlagiocephaly > Hi - Try not to stress too much. Your story is too familiar to > many of us. It is so unfortunate that peds continue to dismiss > the severity of this issue. My daughter's ped also told us that

> it would round out and by her nine month checkup I had to take > matters into my own hands. Since my ped would not give me a > prescription for the helmet, I went to another doctor who gave it > to me. So my daughter started her hanger helmet at about 9.5 > months and wore it until 12 months. She got some good correction, > but I was skepitical about the ortho who was treating her, so I > stopped using the helmet. Now at 16 months she has just started > with a band from cranial technologies. We will see if she can get > anymore correction with this band.> > The older the child is, the longer he/she may have to wear the > band because the head growth rate has slowed down. However, at 12 > months you should still see good correction. Children can be > banded up until 24 months.> > Try not to blame yourself and be thankful that something is now > going to

be done about your son's head shape. Just try to get the > process moving quickly. The sooner he is in a band, the better.> > , NY> > > siebels77 <bsiebelstwcny (DOT) rr.com> wrote:> Hi everyone,> I'm now just getting started learning about plagiocephaly. My son > has > had a flattened head since he's been a month old, or so, but at > every > doctor's appointment, his pediatrician said not to worry about it. > Finally, at his 12 month check-up a NEW pediatrician to the > practice > saw my son, and to make a long story short, she's making the call > on > Monday to the place he'll be fitted for a helmet(?). Looking at > all > these pics of these babies, I now realize that my son's conditon > is > exactly the same, and this should have been taken more seriously. > I'm

> furious that the original pediatrician did not see a need to take > care > of this sooner, and I'm mad at myself for being naive and > believing > that my son's head would just "round out on its own". I'm > depressed, > confused, mad....and I need to hear that it's not too late and > things > will be ok.And I will be grateful for any advice anyone has to > share > because right now searching the Internet, I'm completely overwhelmed.> -Beth > > > > > > > ---------------------------------> oneSearch: Finally, mobile search that gives answers, not > web links. >

Looking for a deal? Find great prices on flights and hotels with FareChase.

[Guest guest]

My dd goes in for her CT scan tomorrow. Any advice?

> > Hi everyone,

> > I'm now just getting started learning about plagiocephaly. My

son

> > has

> > had a flattened head since he's been a month old, or so, but at

> > every

> > doctor's appointment, his pediatrician said not to worry about

it.

> > Finally, at his 12 month check-up a NEW pediatrician to the

> > practice

> > saw my son, and to make a long story short, she's making the

call

> > on

> > Monday to the place he'll be fitted for a helmet(?). Looking at

> > all

> > these pics of these babies, I now realize that my son's conditon

> > is

> > exactly the same, and this should have been taken more

seriously.

> > I'm

> > furious that the original pediatrician did not see a need to

take

> > care

> > of this sooner, and I'm mad at myself for being naive and

> > believing

> > that my son's head would just " round out on its own " . I'm

> > depressed,

> > confused, mad....and I need to hear that it's not too late and

> > things

> > will be ok.And I will be grateful for any advice anyone has to

> > share

> > because right now searching the Internet, I'm completely

overwhelmed.

> > -Beth

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > oneSearch: Finally, mobile search that gives answers, not

> > web links.

> >

>

>

>

>

>

> ---------------------------------

> Looking for a deal? Find great prices on flights and hotels with

FareChase.

>

[Guest guest]

Hi and welcome. I'm sorry to hear you're in so much pain. Do you see

a rheumatologist and a pain specialist? Lots of us have thyroid problems,

has been great on sending us articles on the overlap between RA and thyroid

problems. I have found swimming to be a lifesaver when I'm flaring. The cool

water seems to help my joints feel better and my mood improves b/c I've been

able to be active despite my RA.

I hope you feel better soon, best, Kate F

[ ] New to Group

Hi, I am . I have been dealing with both RA, Lupus and

Fibromyalgia for 1 year, I got all three diagnosis around the same time

one right after the other. I am struggling with the RA the most. It

hurts the most. My lupus just attacks my organs when it wants too. It

just shut down my thyroid and now I am on thyroid pills forever. I can

handle that no pain involved there. But the pain with RA is a killer.

It is in my feet now. It seems to hang around my feet, knees, hands

the most. It seems if it isn't attacking one it is attacking another.

But the feet hurt the most. I can't take any of the medicine they have

for RA due to my diagnosis the medicine is just as bad for me as ever,

so it is being treated with pain medicine. I just use tramadol and

hydrocodone to treat the pain. But I sure seem to stay in alot of pain

all the time, my question is, is there anyway to relieve the pain any,

I haven't found anyway to ease my pain at all. If a storm is within

100 miles of me, any change in temp gets to me, I haven't had any

relief in a year at all, even the summer I still sruggled with it, what

summer we had.

Thanks

________________________________________________________________________________\

____

Sick sense of humor? Visit TV's

Comedy with an Edge to see what's on, when.

http://tv./collections/222

[Guest guest]

Hi .

Sorry you had to come here but welcome. This is a great group of caring

people.

You did not mention what medications you were taking. While the pain is the

most difficult thing there are new medications that give many people relief.

Have you seen a Rheumatologist?

" il faut d'abord durer. " Hemingway

[ ] New to Group

> Hi, I am . I have been dealing with both RA, Lupus and

> Fibromyalgia for 1 year, I got all three diagnosis around the same time

> one right after the other. I am struggling with the RA the most. It

> hurts the most. My lupus just attacks my organs when it wants too. It

> just shut down my thyroid and now I am on thyroid pills forever. I can

> handle that no pain involved there. But the pain with RA is a killer.

> It is in my feet now. It seems to hang around my feet, knees, hands

> the most. It seems if it isn't attacking one it is attacking another.

> But the feet hurt the most. I can't take any of the medicine they have

> for RA due to my diagnosis the medicine is just as bad for me as ever,

> so it is being treated with pain medicine. I just use tramadol and

> hydrocodone to treat the pain. But I sure seem to stay in alot of pain

> all the time, my question is, is there anyway to relieve the pain any,

> I haven't found anyway to ease my pain at all. If a storm is within

> 100 miles of me, any change in temp gets to me, I haven't had any

> relief in a year at all, even the summer I still sruggled with it, what

> summer we had.

> Thanks

>

>

>

>

[Guest guest]

I had my thyroid removed last summer. You have to stay on the Dr. about it. It

can be hard to figure thyroid problems out sometimes. I am doing a lot better as

far as my energy and eating are going. Now I just have to deal with arthritis

and bipolar. Yeah for me. LOL Zoni

[ ] New to Group

Hi, I am . I have been dealing with both RA, Lupus and

Fibromyalgia for 1 year, I got all three diagnosis around the same time

one right after the other. I am struggling with the RA the most. It

hurts the most. My lupus just attacks my organs when it wants too. It

just shut down my thyroid and now I am on thyroid pills forever. I can

handle that no pain involved there. But the pain with RA is a killer.

It is in my feet now. It seems to hang around my feet, knees, hands

the most. It seems if it isn't attacking one it is attacking another.

But the feet hurt the most. I can't take any of the medicine they have

for RA due to my diagnosis the medicine is just as bad for me as ever,

so it is being treated with pain medicine. I just use tramadol and

hydrocodone to treat the pain. But I sure seem to stay in alot of pain

all the time, my question is, is there anyway to relieve the pain any,

I haven't found anyway to ease my pain at all. If a storm is within

100 miles of me, any change in temp gets to me, I haven't had any

relief in a year at all, even the summer I still sruggled with it, what

summer we had.

Thanks

__________________________________________________________

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[Guest guest]

>

> Hi everyone. I am the mom of 2 children. One has ASD with

> considerable gastrointestinal issues and the other is just

> extremely " quirky " with chronic constipation.

Constipation ideas

http://www.danasview.net/constip.htm

> Anyway, I am excited to try enzymes but there are so many out there.

> I have looked at the Houston website as well as the kirkman labs

> site. I would be so grateful if anyone could give me some of their

> wisdom on enzymes and probiotics.

Here is a site with good info. I used HNI with much success

http://www.enzymestuff.com/

Dana

[Guest guest]

Hi ..

I'm not sure if anyone answered your post or not..but, here is my 2 cents

I did GFCF for 1 year and then read Enzymes and Autism and switched to enzymes

for all my sons meals because he was so limited on the diet. He now eats gluten

and casein with enzymes with no problems. We use Houstons enzymes

www.houstonni.com He gets one AFP Peptizyde, 1/2 zyme prime and 1/2 no fenol at

all snacks and meals that aren't gfcf.

I used Kirkmans probiotics -probio gold and Super Pro Bio 75 billion strength.

Many people make good ones so you can find others that are good as well.

(Klaire labs has a few we've liked)

Good luck. Amy

Cornell <fourcornells@...> wrote:

Hi everyone. I am the mom of 2 children. One has ASD with

considerable gastrointestinal issues and the other is just

extremely " quirky " with chronic constipation. We have been

inplementing the GFCF on our son with ASD for 2 years. It has been so

beneficial for him. I have just finished reading " Children with

Starving Brains " and I am currently reading " Enzymes and Autism " . I

have already started probiotics (we are on week 3)on our son and have

seen great success so far. We have seen firmer stools and an increase

in his his mental clarity. I am currently using Renew for Life

Florabears. Has anyone heard of this brand?

Anyway, I am excited to try enzymes but there are so many out there.

I have looked at the Houston website as well as the kirkman labs

site. I would be so grateful if anyone could give me some of their

wisdom on enzymes and probiotics. I remember getting started on the

GFCF diet and how overwhelming it was. I am hoping that I can get

some info from other parents rather than going it alone. Thanks so

much!

---------------------------------

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[Guest guest]

Hi -

Welcome to the group and congratulations on the adoption of your new baby.

The stickers will wear off eventually, it is more that they start lifting at

the edges and peeling off. We used clear nail polish on them to make then

stay a bit longer. Other people have used Modge Podge to seal them.

Sometimes sleeping in the band takes a few nights to adjust to. I would

recommend putting some memory foam on the mattress pad to make it a bit more

comfortable (you can buy a twin size piece at Target and cut it down to fit

the size of the crib mattress; place it underneath a waterproof pad and the

sheet). Also, dress your son a bit cooler than you normally would as the

band makes them a bit warmer; at this time of year and depending upon where

you live a onsie with no sock might be sufficient. I also put a small fan

on the side of my son's crib but he was younger and not moving around so

there was no chance of him getting his hands on it. Good luck with the new

band! Where are you getting it from?

Molly

Novato, California

Nicolas, 23 months, tort & plagio, STARband 4/25/06-9/12/06, Graduate!

, 4.5

, 7.5

new to group

Hello! My name is and my husband Mathew and I have a son with

brachiocephaly (back of his head is flat). We adopted him from China at

that age of 14 months, and he has been with us about 1 month. He came from

an orphanage, and we feel that his brachiocephaly is the result of lying on

his back in the orphanage for many hours a day. Anyway, tomorrow he gets his

helmet to correct his head shape! We are excited to see the changes. We

want to put stickers on it, and welcome any ideas on how to decorate it

properly. Will the stickers wear off? Any way to protect them? I am sure

we will have more " real " questions once he gets the helmet. Anyone else out

there have an older child in a helmet? Did they leave it alone? How is it

for them to sleep on it? Any advice would be appeciated! We also have two

daughters. One is 4 1/2 years old and one is 14 months (yes, I have virtual

twins). They are my biological children. Take care and I look forward to

getting to know you better!

For more plagio info

[Guest guest]

Welcome !

Congratulations on your adoption of your baby boy!

As far as stickers go I know some have used Modge podge over the stickers - but we didn't. I just bought several stickers and as one would start to look shabby I'd just replace it - I probably re did the band about every 3-4 weeks.

There are several parents here who banded later and I am sure they will chime it.

Feel free to post any questions you have!!!

Jen and Luli - 21 months

Left tort - Right Plagio - Hanger Band Grad - CA

http://www.babiesonline.com/babies/j/jens5th/

new to group

Hello! My name is and my husband Mathew and I have a son

with brachiocephaly (back of his head is flat). We adopted him from

China at that age of 14 months, and he has been with us about 1 month.

He came from an orphanage, and we feel that his brachiocephaly is the

result of lying on his back in the orphanage for many hours a day.

Anyway, tomorrow he gets his helmet to correct his head shape! We are

excited to see the changes. We want to put stickers on it, and

welcome any ideas on how to decorate it properly. Will the stickers

wear off? Any way to protect them?

I am sure we will have more "real" questions once he gets the helmet.

Anyone else out there have an older child in a helmet? Did they

leave it alone? How is it for them to sleep on it? Any advice would

be appeciated!

We also have two daughters. One is 4 1/2 years old and one is 14

months (yes, I have virtual twins). They are my biological children.

Take care and I look forward to getting to know you better!

Email and AIM finally together. You've gotta check out free AOL Mail!

[Guest guest]

Congrats on adopting a new baby. Yes, you do have virtual

twins...that should be fun. My son is 14 1/2 months and his cousin

is a week older than him so it is fun seeing the 2 together.

Anyways. We used stickers (both clear and paper). The paper backed

ones are harder to get off but it is doable...you just have to use a

little bit more alcohol and rub hard. The clear back peeled a lot

easier. However, since your son is probably crawling and/or walking

they may not peel as much. Our son was 7.5 months when banded-9.5

months so he would roll a lot to get to things and had just started

army crawling around 9.5 months. We'd change the stickers weekly to

bi-weekly (basically whenever they'd start to wear). Towards the

end of our journey I saw Jen's idea to have duplicates so if one

sticker looks bad you could change that without changing the whole

theme...we started doing this at the end.

Have fun decorating. Hopefully, your journey will go well (which I'm

sure it will).

PS: You may have to play with clothing and temp. of house

especially at night. We did for the first 2 nights and then our son

was back to sleeping through the night.

>

> Hi -

>

> Welcome to the group and congratulations on the adoption of your

new baby.

> The stickers will wear off eventually, it is more that they start

lifting at

> the edges and peeling off. We used clear nail polish on them to

make then

> stay a bit longer. Other people have used Modge Podge to seal

them.

> Sometimes sleeping in the band takes a few nights to adjust to. I

would

> recommend putting some memory foam on the mattress pad to make it

a bit more

> comfortable (you can buy a twin size piece at Target and cut it

down to fit

> the size of the crib mattress; place it underneath a waterproof

pad and the

> sheet). Also, dress your son a bit cooler than you normally would

as the

> band makes them a bit warmer; at this time of year and depending

upon where

> you live a onsie with no sock might be sufficient. I also put a

small fan

> on the side of my son's crib but he was younger and not moving

around so

> there was no chance of him getting his hands on it. Good luck

with the new

> band! Where are you getting it from?

>

> Molly

> Novato, California

> Nicolas, 23 months, tort & plagio, STARband 4/25/06-9/12/06,

Graduate!

> , 4.5

> , 7.5

>

> new to group

>

>

> Hello! My name is and my husband Mathew and I have a son

with

> brachiocephaly (back of his head is flat). We adopted him from

China at

> that age of 14 months, and he has been with us about 1 month. He

came from

> an orphanage, and we feel that his brachiocephaly is the result of

lying on

> his back in the orphanage for many hours a day. Anyway, tomorrow

he gets his

> helmet to correct his head shape! We are excited to see the

changes. We

> want to put stickers on it, and welcome any ideas on how to

decorate it

> properly. Will the stickers wear off? Any way to protect them? I

am sure

> we will have more " real " questions once he gets the helmet.

Anyone else out

> there have an older child in a helmet? Did they leave it alone?

How is it

> for them to sleep on it? Any advice would be appeciated! We also

have two

> daughters. One is 4 1/2 years old and one is 14 months (yes, I

have virtual

> twins). They are my biological children. Take care and I look

forward to

> getting to know you better!

>

>

>

> For more plagio info