New to Group

[Guest guest]

....we are

> looking into using PECS (picture exchange communication system).

Does

> anyone have any experience with this system?

Does anyone have a good way of

> explaining apraxia to children? I would greatly appreciate any

advice

> or suggestions.

>

> Thank you!

> Amy

>

Amy, we use PECS, and we love them, it is so easy to use, we also

use story books (w/pecs) there is a website that you can print for

free which I use OR I use the teachers system and print those, I

just cut them out glue to a piece of construction paper then go to

office max or kinkos and have them laminated (hint put in groups (so

daily routine are on blue paper) (snacks on yellow) (food choices on

red)

or what ever, but thet makes it easy. I also got some poster board

and put velcroe on it in strips and hug it in the kitchen only put

pecs cards out that you have in the cuboard, I then ask Gage to pick

from the board what he wants to eat or if he is hungry he just pulls

a card off the board and brings it to me.

as for telling cousins I found an easy way. we sang this song

Frère Jacques, Frère Jacques

Dormez-vous, dormez-vous?

|: Sonnez les matines, :|

Ding ding dong, ding ding dong.

You may have known all the sounds to sing it in French, but had no

idea what the words were, or what the song was about. Many children

SPD, enjoy music, learn tunes and even lyrics but for them it is

also like learning a song in an unknown language.

but in a kid friendly way use the explination, just say that when he

hears you talk the words jumble and it is frustrating to him, like

trying to unknot a knot in your shoe, sometimes you need help.

we sing a lot of things to Gage, he responds 10 fold to music.

I hope that helps, you can e-mail me off list if you have more

questions.

heidiroy@...

Heidi

mom to Gage apraxia, SPD, aspergers

[Guest guest]

Hi Amy-

My son, who is now 5, starting using the PECS pictures around 2.5 or

3 to make choices at preschool and at home (which song to sing, food,

etc.) It wasn't a true PECS system which is very regimented and

rigid - sorta a behavioral approach. But just helping them attach

meaning to the picutres so they can use it to choose. It's a great

beginning way to communicate, esp. b/c my son's hypotonia and motor

planning issues made it hard for him to sign until he was almost 5.

Now, he signs, uses the pictures and objects around the room to

communicate. He has very few words and we are getting him a custom

assistive communication device through the school system.

Let me know if you have any questions.

[Guest guest]

HI Amy,

My son is also 2.5 yrs and has apraxia and

SID. His teacher in school as well as his speech teacher

use PECS. They have really helped alot. doesn't

get fustrated at all. As for your son's cousins, have you

tried just telling them that is still learning how to

speak and it is going to take him longer then it took them,

but there are people in his life who are helping him.

Have you read the book " The Late Talker " it is really

a wonderful book and lots of great advice. Well, I hope

this helped a bit.

Good luck,

Sue

Amy <amcbash@...> wrote:

Hello,

I am Amy, Mom to , age 2.5 who has been diagnosed with apraxia,

sensory integration dysfunction and hypotonia. He really is beginning

to understand what we say to him, which is exciting for us. I realize

that his expressive speech will be very slow to develop...we are

looking into using PECS (picture exchange communication system). Does

anyone have any experience with this system?

Also...I am having my own issues as a mom...how to explain this in a

child friendly way to his cousins ages 5, 6, 8, 10. I want them to

understand that there is nothing " wrong " with , but that

talking is very hard for him. Does anyone have a good way of

explaining apraxia to children? I would greatly appreciate any advice

or suggestions.

Thank you!

Amy

---------------------------------

Cheap Talk? Check out Messenger's low PC-to-Phone call rates.

[Guest guest]

Hi , thanks for the info. I am thinking of going to a PECS

workshop just to get the idea of how it works. I understand that it

is rigid...I just want to help my son communicate and feel like he is

understood. Any tips on how you got started w/ using pictures w/ your

son would be appreciated.

I just read a great book called " Becoming Verbal with Childhood

Apraxia " ..have you read it? it's a great one...thanks again,

Amy

>

> Hi Amy-

> My son, who is now 5, starting using the PECS pictures around 2.5 or

> 3 to make choices at preschool and at home (which song to sing, food,

> etc.) It wasn't a true PECS system which is very regimented and

> rigid - sorta a behavioral approach. But just helping them attach

> meaning to the picutres so they can use it to choose. It's a great

> beginning way to communicate, esp. b/c my son's hypotonia and motor

> planning issues made it hard for him to sign until he was almost 5.

> Now, he signs, uses the pictures and objects around the room to

> communicate. He has very few words and we are getting him a custom

> assistive communication device through the school system.

>

> Let me know if you have any questions.

>

>

[Guest guest]

Hi Sue, thank you for your advice. Glad to hear that is doing

well using PECS. How are you implementing it at home?

Yes, I've read the late talker..and just finished " Becoming Verbal

with Childhood Apraxia " ...I highly recommend it.

What type of school program is in? is in a mommy and

me class for developmentally delayed children. Next year when he is

3, he will most likely be in an integrated class...I'm nervous about

that of course.

Thanks...Amy

[Guest guest]

oops - I almost missed your message. I don't always read the whole

list.

We started Carson using the picture exchange by making pictures of

things he could use to make choices – food, toys – so that he would

understand that the pictures represented something real and weren't

just something pretty to look at. We started by giving him a yogurt

and pointing to the yogurt picture and saying " Carson is having

yogurt for lunch " . We basically assigned them a meaning, over and

over. And then after a period of time, offer him a chance to make a

choice using the pictures that we had been referring to. At first, I

used labels from the food or a digital picture of the item. He was

very literal at first – these days he can think very abstractly (is

that a word?) They also used them at daycare (it was pre-3 yrs old so

it was integrated and Early Intervention was going to daycare) so

that Carson could choose a song at circle time or a toy during free

time (he wasn't able to walk yet, so he would have to have someone

help him get things).

Just this school year, he has progressed (with the help of a floor

time therapist at home- as well as intensive help at school) to

telling us stories about his day using the pictures and signs. He

makes jokes (pretty much inside jokes) and still uses to communicate

his desires. Carson has only been on the EFAs for less than a year

and vitamin E for a few months – he made strides with the pictures

with these supplements.

I hope this was helpful - feel free to email me directly if I don't

respond to a question....

> >

> > Hi Amy-

> > My son, who is now 5, starting using the PECS pictures around 2.5

or

> > 3 to make choices at preschool and at home (which song to sing,

food,

> > etc.) It wasn't a true PECS system which is very regimented and

> > rigid - sorta a behavioral approach. But just helping them attach

> > meaning to the picutres so they can use it to choose. It's a great

> > beginning way to communicate, esp. b/c my son's hypotonia and

motor

> > planning issues made it hard for him to sign until he was almost

5.

> > Now, he signs, uses the pictures and objects around the room to

> > communicate. He has very few words and we are getting him a custom

> > assistive communication device through the school system.

> >

> > Let me know if you have any questions.

> >

> >

>

[Guest guest]

Sonja,

Welcome! This group deals with the treatment and recovery of

autistic kids and metal toxic children. One of the first things we

suggest is getting a hair test for your child through Doctors Data

Inc. Many autistic children are heavy metal toxic and respond very

well to treatment. We also suggest avoiding further exposure to

heavy metals by avoiding vaccination, fish and other enviornmental

sources.

Has your son had an evaluation by his school district? This will

help him with school and provide any help he may need. Also, if you

have metal fillings, ate fish, had any vaccines, or your children

did, it would be worth while to test their hair for heavy metals.

Since you already have one son on the spectrum, it is advisable to

avoid vaccination of your other sons, as there can be suseptibility

to damage from vaccines that is hereditary. Not saying that autism

is genetic, not really. But that genetically, some people do not

dump heavy metals as effeciently as others. Since your younger

children seem ok, it is wise to avoid further exposures and an

increase in problems for them.

We also advise reading through our files section, getting a hair

test and them posting the results on this board for interpretation.

Please feel free to ask questions, everyone here is wonderful and

supportive!

>

> Hi everyone. I came across your group and am excited to join! I

have

> a 4 year old on the spectrum, a typical 3 year old and a 5 month

old.

> All boys.

>

> Does anyone out there live in southeastern MI? I'm about 35 miles

> north of the Ohio border in downriver. If so, I'm always looking

for

> info on the local schools and what programs are offered for our

kids.

> My 4 year old is due to start kindergarten this fall and I'm VERY

> nervous.

>

> Thanks,

>

> Sonja

>

>

> Hi Sonja,

> I live downriver & have a son w/autism that goes to Summit Academy

in Flat Rock.

>

> Email me off list if you'd like some more info.

>

>

>

> L. Shearer

> Sales Associate

> 39533 Woodward Ave Suite 150

> Bloomfield Hills MI 48304

> (800) 422-2820

>

>

>

> For more information about Oppenheimer's products and services,

> visit our website at <http://www.opco.com> http://www.opco.com.

>

>

> This communication is for informational purposes only and nothing

> herein should be construed as a solicitation, recommendation or

> an offer to buy or sell any securities or product. The information

> contained herein has been obtained from sources believed to be

> reliable but we do not guarantee accuracy or completeness.

> Oppenheimer & Co. Inc and its affiliated companies, their

officers,

> directors and employees may have a position in or, make a market

> in any securities mentioned above and, may act as an investment

> banker or advisor to such companies. Client account information

> or transaction details do not supersede mailed confirmations or

> account statements which are the only official records containing

> this information. As a matter of policy, orders are not accepted

> via e-mail or voice mail and no responsibility shall accrue

> relating to any orders placed in this manner. If this

communication

> has been received in error, please delete or destroy immediately.

>

>

>

[Guest guest]

Hi Jill,

although 6 mo old is better than 8 for starting, it is definitely NOT

too late. I just read a post from a mom who started at 13 mo with at

starband and the correction they got surprised the ortho! I think her

baby was banded for 4 mo.

My daughter wore her band from 5 to 10 mo old, but most of the

correction was at the beginning and the end. she had a big spurt from

8.5 to 10 mo, and we were really glad we had decided to keep trying.

She had brachy (flat in back). I'm sure you'll see good results too.

-christine

mom to sydney/ 13 mo/ starband grad 10-06

>

> Hi Everyone,

>

> I just found out about this group while searching for information on

> the STARband webpage. I have spent the last few hours reading old

> messages and looking at all of your beautiful kids - kids who look

> exactly like my 7 month old son, Truman! It so nice to see other

> kids that started with heads like his looking so great now.

>

> He got his STARband on January 16, but after the first full night

> spent in it, he developed a nasty sore. We've had it shaved down

> twice since then, and we are just starting to ease him back into it.

> That's been sort of frustrating, because I thought he would have been

> in it for about two weeks by now, when in reality, we're still easing

> him into it. It's definitely a process.

>

> I am a little worried that we are starting this late. Does anyone

> have any good success stories for me? He will be 8 months old on

> February 2. I just don't want him to have to wear it forever.

>

> Thanks in advance for your response!

>

> Jill - Tru's mom

>

[Guest guest]

Hi Jill, My daughter, Ella is the same age as Truman, born 6/2/2006! She will turn 8 mos as well on 2/2...she has been in the starband since 12/21, but with the adjustment period and colds and last week's sore she is probably on the same schedule as your son. I have noticed a difference in the short period she has been in it, others have noticed as well. She has been in conjuntive therapy with Cranial Sacral Therapy and I believe that is helping too. The therapist said (and she is not a believer in helmet therapy!) she has noticed a tremendous difference since the banding with Ella's therapy and has been able to feel a lot more shifts than when she wasn't banded. I don't know if you are already in CST or are considering it but I would reccomend it. Other moms on this site can give you feedback on this as well...You have already done the hard part...making the decsion to band!! Now you just have to wait and see, which I suppose is much harder! There have

been so many success stories just on this group alone that makes the wait worth it!! There are also many, many older babies that have graduated with amazing results!! Hang in there and know you are doing the very best for your baby! Ella 8 mos Starband 12/21pel <jillhappel@...> wrote: Hi Everyone,I just found out about this group while searching for information onthe STARband webpage. I have spent the last few hours reading oldmessages and looking at

all of your beautiful kids - kids who lookexactly like my 7 month old son, Truman! It so nice to see otherkids that started with heads like his looking so great now.He got his STARband on January 16, but after the first full nightspent in it, he developed a nasty sore. We've had it shaved downtwice since then, and we are just starting to ease him back into it.That's been sort of frustrating, because I thought he would have beenin it for about two weeks by now, when in reality, we're still easinghim into it. It's definitely a process.I am a little worried that we are starting this late. Does anyonehave any good success stories for me? He will be 8 months old onFebruary 2. I just don't want him to have to wear it forever.Thanks in advance for your response!Jill - Tru's mom

The fish are biting.

Get more visitors on your site using Search Marketing.

[Guest guest]

Hi Jill, my son is exactly the same age as your son. He'll be

8months on 2/2. We just got his helmet on 1/25 and we're still

adjusting too. In fact, we still haven't had an overnight yet,

because he's having some sleep issues with the helmet. It seems like

this is definitely a process, but well worth it. I don't think it's

too late to see great results with our little guys. My ortho said to

expect treatment to last 3-4 months, so that's encouraging. If I

can't get him to sleep with it, our treatment may go longer, but I'll

keep trying. There are lots of babies that have started even later

and have seen good results. Good luck with Truman and let us know

how things are progressing. Soon we'll be kissing some sweet little

round heads!

>

> Hi Everyone,

>

> I just found out about this group while searching for information on

> the STARband webpage. I have spent the last few hours reading old

> messages and looking at all of your beautiful kids - kids who look

> exactly like my 7 month old son, Truman! It so nice to see other

> kids that started with heads like his looking so great now.

>

> He got his STARband on January 16, but after the first full night

> spent in it, he developed a nasty sore. We've had it shaved down

> twice since then, and we are just starting to ease him back into it.

> That's been sort of frustrating, because I thought he would have

been

> in it for about two weeks by now, when in reality, we're still

easing

> him into it. It's definitely a process.

>

> I am a little worried that we are starting this late. Does anyone

> have any good success stories for me? He will be 8 months old on

> February 2. I just don't want him to have to wear it forever.

>

> Thanks in advance for your response!

>

> Jill - Tru's mom

>

[Guest guest]

That's what I hate the most about this band - it's hard to kiss him. Thanks for the email - we are having some sleep issues, too. I finally gave up at 3:00 this morning and took him out of it until he woke up.lapellegrin <lapellegrin@...> wrote: Hi Jill, my son is exactly the same age as your son. He'll be 8months on 2/2. We just got his helmet on 1/25 and we're still adjusting too. In fact, we still haven't had an overnight yet, because he's having some sleep issues with the helmet. It

seems like this is definitely a process, but well worth it. I don't think it's too late to see great results with our little guys. My ortho said to expect treatment to last 3-4 months, so that's encouraging. If I can't get him to sleep with it, our treatment may go longer, but I'll keep trying. There are lots of babies that have started even later and have seen good results. Good luck with Truman and let us know how things are progressing. Soon we'll be kissing some sweet little round heads! >> Hi Everyone,> > I just found out about this group while searching for information on> the STARband webpage. I have spent the last few hours reading old> messages and looking at all of your beautiful kids - kids who look> exactly like my 7 month old son,

Truman! It so nice to see other> kids that started with heads like his looking so great now.> > He got his STARband on January 16, but after the first full night> spent in it, he developed a nasty sore. We've had it shaved down> twice since then, and we are just starting to ease him back into it.> That's been sort of frustrating, because I thought he would have been> in it for about two weeks by now, when in reality, we're still easing> him into it. It's definitely a process.> > I am a little worried that we are starting this late. Does anyone> have any good success stories for me? He will be 8 months old on> February 2. I just don't want him to have to wear it forever.> > Thanks in advance for your response!> > Jill - Tru's mom >

The fish are biting.

Get more visitors on your site using Search Marketing.

[Guest guest]

Welcome Jill! Sorry this is a little late but I did want to welcome you!!!

Jen and LuliRight Tort - Plagio - Hanger Band Grad - CATallulah Jayne -

[Guest guest]

Welcome Becca! My dd had a Hanger band - but we're out here in Cali. We recived good correction with the band. Feel free to ask any questions! This is a great group!

Jen and LuliRight Tort - Plagio - Hanger Band Grad - CATallulah Jayne -

[Guest guest]

Hi Debbie & welcome. I am raising my grandson who is 14 yrs old now Dx'd with

Asperger/Bipolar/ etc.......

When he was first Dx'd they said ADHD but I knew it was more then that. After

he was in 2nd grade I seen he wasn't making friends & some ran from him in the

school yard. He would not look anyone in the eye & that was a big clue. I hope

you like this group. They are are very nice bunch here. Take care,Betty

debsnest6 <debsnest6@...> wrote:

Hi, my name is Debbie and I am new to this group. I am excited that I

found this site. Thanks for having me. My son is 8 yrs old and has

been recently diagnosed with asperger's. We always thought he had some

type of mild autism and have finally pinpointed it. I would love to

hear others experiences and hope to be able to help others as well.

I live in Texas, anyone else here from Texas? I am planning on

starting a support group in my area, which is the Bastrop area.

Debbie

---------------------------------

It's here! Your new message!

Get new email alerts with the free Toolbar.

[Guest guest]

Hi Debbie,

I live in Boerne, TX.

[Guest guest]

Hi Betty,

Thank u for the welcome! Yes, I had the doctors office say needed to be

tested for ADHD, but is one of the calmest kids I know. I too, knew it

was not that. Sometimes it seems they always want to say ADHD or ADD because

thats the easy way out. But we have to stay strong and keep going for our

children and when we know its not right, we need to speak up. also would

not look anyone in the eye. He is getting better with that now as he continues

with therapy. Thank u again for the welcome. Keep in touch.

Debbie

Jewel <truegrittle@...> wrote:

Hi Debbie & welcome. I am raising my grandson who is 14 yrs old now

Dx'd with Asperger/Bipolar/ etc.......

When he was first Dx'd they said ADHD but I knew it was more then that. After he

was in 2nd grade I seen he wasn't making friends & some ran from him in the

school yard. He would not look anyone in the eye & that was a big clue. I hope

you like this group. They are are very nice bunch here. Take care,Betty

debsnest6 <debsnest6@...> wrote:

Hi, my name is Debbie and I am new to this group. I am excited that I

found this site. Thanks for having me. My son is 8 yrs old and has

been recently diagnosed with asperger's. We always thought he had some

type of mild autism and have finally pinpointed it. I would love to

hear others experiences and hope to be able to help others as well.

I live in Texas, anyone else here from Texas? I am planning on

starting a support group in my area, which is the Bastrop area.

Debbie

---------------------------------

It's here! Your new message!

Get new email alerts with the free Toolbar.

[Guest guest]

Kids with ADD can be very calm. My son has ADD and he is one of the

calmest kids I know. He just has problems focusing on things that

require concentration. Things that he LIKES to do are no problem,

like reading. He can also hyperfocus, where he expends superhuman

effort focusing on something and it takes a crane to pull him away.

Liz

On Feb 7, 2007, at 1:27 PM, Debbie wrote:

> Hi Betty,

>

> Thank u for the welcome! Yes, I had the doctors office say

> needed to be tested for ADHD, but is one of the calmest kids

> I know. I too, knew it was not that. Sometimes it seems they always

> want to say ADHD or ADD because thats the easy way out. But we have

> to stay strong and keep going for our children and when we know its

> not right, we need to speak up. also would not look anyone in

> the eye. He is getting better with that now as he continues with

> therapy. Thank u again for the welcome. Keep in touch.

>

> Debbie

>

>

> Jewel <truegrittle@...> wrote:

> Hi Debbie & welcome. I am raising my grandson who is 14 yrs old now

> Dx'd with Asperger/Bipolar/ etc.......

> When he was first Dx'd they said ADHD but I knew it was more then

> that. After he was in 2nd grade I seen he wasn't making friends &

> some ran from him in the school yard. He would not look anyone in

> the eye & that was a big clue. I hope you like this group. They are

> are very nice bunch here. Take care,Betty

>

> debsnest6 <debsnest6@...> wrote:

> Hi, my name is Debbie and I am new to this group. I am excited that I

> found this site. Thanks for having me. My son is 8 yrs old and has

> been recently diagnosed with asperger's. We always thought he had some

> type of mild autism and have finally pinpointed it. I would love to

> hear others experiences and hope to be able to help others as well.

> I live in Texas, anyone else here from Texas? I am planning on

> starting a support group in my area, which is the Bastrop area.

> Debbie

>

> ---------------------------------

> It's here! Your new message!

> Get new email alerts with the free Toolbar.

>

>

[Guest guest]

Hi Debbie,

Sorry to answer you late, I've been offline due to sick kids. I'm in Houston

and my 7 year old son has AS. His 3 year old brother is also being evaluated by

the school for similar issues. Welcome to the group from another Texan!

Liz

Houston

debsnest6 <debsnest6@...> wrote:

Hi, my name is Debbie and I am new to this group. I am excited that I

found this site. Thanks for having me. My son is 8 yrs old and has

been recently diagnosed with asperger's. We always thought he had some

type of mild autism and have finally pinpointed it. I would love to

hear others experiences and hope to be able to help others as well.

I live in Texas, anyone else here from Texas? I am planning on

starting a support group in my area, which is the Bastrop area.

Debbie

---------------------------------

Cheap Talk? Check out Messenger's low PC-to-Phone call rates.

[Guest guest]

Hi, nice to meet u. I believe thats only about 100 miles or so, not so bad.

Hope all is well with u and urs. Keep in touch.

Debbie

hfmbears@... wrote:

Hi Debbie,

I live in Boerne, TX.

[Guest guest]

Hi Liz,

Nice to meet u. Hope the kids are doing better. We were at ER last nite with

my son. Its going around. We get to Houston quite a bit, I have siblings that

live there. Keep in touch. And thanks for the warm welcome.

Debbie

Liz S <lizs.1234@...> wrote:

Hi Debbie,

Sorry to answer you late, I've been offline due to sick kids. I'm in Houston and

my 7 year old son has AS. His 3 year old brother is also being evaluated by the

school for similar issues. Welcome to the group from another Texan!

Liz

Houston

debsnest6 <debsnest6@...> wrote:

Hi, my name is Debbie and I am new to this group. I am excited that I

found this site. Thanks for having me. My son is 8 yrs old and has

been recently diagnosed with asperger's. We always thought he had some

type of mild autism and have finally pinpointed it. I would love to

hear others experiences and hope to be able to help others as well.

I live in Texas, anyone else here from Texas? I am planning on

starting a support group in my area, which is the Bastrop area.

Debbie

---------------------------------

Cheap Talk? Check out Messenger's low PC-to-Phone call rates.

[Guest guest]

Welcome, ...

This is a wonderful group for support, information and encouragement...

Blessings,

Gail

<BR><BR><BR>**************************************<BR> AOL now offers free

email to everyone. Find out more about what's free from AOL at

http://www.aol.com.

[Guest guest]

Bless you and your professor! Fire away with any questions.

Tonya

( ) New to group

Hi everyone. I just wanted to say hi. My name is and I am a

graduate student taking a class on behavior disorders. Partial

requirements of the class has us joing groups like this and

participating in dicussions. I like forward to chatting with you all.

[Guest guest]

Hi & welcome!

What are you getting your master's in?

Liz

Houston

Tonya Hettler UA <txua@...> wrote:

Bless you and your professor! Fire away with any questions.

Tonya

( ) New to group

Hi everyone. I just wanted to say hi. My name is and I am a

graduate student taking a class on behavior disorders. Partial

requirements of the class has us joing groups like this and

participating in dicussions. I like forward to chatting with you all.

[Guest guest]

Hi ,

Glad your here,

- C.

Mom to Cassie 15 PCOS, Austin 13 ADHD and a 3 HFA/AS & SPD/SID

( ) New to group

Hi everyone. I just wanted to say hi. My name is and I am a

graduate student taking a class on behavior disorders. Partial

requirements of the class has us joing groups like this and

participating in dicussions. I like forward to chatting with you all.

[Guest guest]

My masters is in Secondary Education. I have a daughter with

special needs so I look forward to chatting with you all.

> Bless you and your professor! Fire away with any

questions.

>

> Tonya

>

> ( ) New to group

>

> Hi everyone. I just wanted to say hi. My name is and I am a

> graduate student taking a class on behavior disorders. Partial

> requirements of the class has us joing groups like this and

> participating in dicussions. I like forward to chatting with you

all.

>

>

>

>

>