Being Told or Being Told Off?

[Guest guest]

Being Told or Being Told Off?

Reciprocity at the Diagnostic Interview

(a book chapter by Dawson)

Excerpt: " I need to be told that I am not a burden. I am not another

sad and tragic statistic requiring endless expensive services. I will,

however, be used this way by dishonest non-autistics who, honestly,

should be denounced for their irresponsibility then treated for their

emotional problems. "

Full text at

http://www.sentex.net/~nexus23/naa_bto.html

________________________________

Ooops....Wrong Planet! Syndrome

Autism Spectrum Resources

www.PlanetAutism.com

jypsy@...

[Guest guest]

Janet,

I notice that you consistently post articles and excerpts of the writings of

Dawson. I usually don't see comments by you to explain this. I

infer that you post these writings by Dawson, because you agree

with her positions?

I have read several of her articles and found that I disagree every time.

wants the world to be an ideal place where everyone is valued for

their differences and Autistic people are simply accepted as they are or

allowed to choose for themselves how to live their life.

This is a fantasy. It is not how the real world works, and it never will

be. In the " real world " , a person must be able to function in Society at a

minimal level allowing one to get to work on time, get along with other

people and do productive work to earn an income to provide a minimal level

of self-sufficiency. If an individual can't do that, they ARE by

definition, a burden on Society and the family that must care for them.

So when writes in the article you linked to, " And you must remind

me that regardless of the extraordinary against-all-odds accomplishments of

Asperger's people and autistics, we are still invariably considered to be a

devastating burden on society. I need to be told that I am not a burden. "

She is explicitly showing her vast disconnect between fantasy and reality.

It is nice that is high functioning enough to find time to

criticize all of us parents that provide PROACTIVE interventions to reduce

or eliminate Autistic symptoms. If my son recovers emough to the point to

allow him to write as eloquently as and explain his dissatisfaction

with what we have done for him (ABA, Bio-Medical, Chelation, etc.), I will

do cartwheels across the room. My son started out as non-verbal with a CARS

score of 38.5 (Moderate to Severe Autism).

My opinion is that is well-intentioned but very misguided. HAVING

Autism does not make one an expert in Autism. Her opinion is no more of

value than the next person.

People who KNOW about Autism, are the mothers that run daily, proactive,

intervention programs; program therapists that help recover children with

their treatment services; Doctors willing to invest themselves in the

pursuit of knowledge about the latest Biomedical treatments and then apply

them; and finally, parents of adult Autistics, still caring for individuals,

unable to care for themselves.

So, again, I am uninformed as to your purpose for posting links to these

articles, but for you to do so in newsgroups that are generally focused on

proactive action and intervention is at a minimum a waste of time and to

many, an insult to parents that dedicate and sacrifice themselves to the

goal of improving their children's lives.

J. Reirdon

Being Told or Being Told Off?

Being Told or Being Told Off?

Reciprocity at the Diagnostic Interview

(a book chapter by Dawson)

Excerpt: " I need to be told that I am not a burden. I am not another sad

and tragic statistic requiring endless expensive services. I will, however,

be used this way by dishonest non-autistics who, honestly, should be

denounced for their irresponsibility then treated for their emotional

problems. "

Full text at

<http://www.sentex.net/~nexus23/naa_bto.html>http://www.sentex.net/~nexus23/

naa_bto.<http://www.sentex.net/~nexus23/naa_bto.html>html

[Guest guest]

At 10:50 AM 8/30/2004 -0500, Reirdon, J. wrote:

>Janet,

>

>I notice that you consistently post articles and excerpts of the writings of

> Dawson. I usually don't see comments by you to explain this. I

>infer that you post these writings by Dawson, because you agree

>with her positions?

I would rather you didn't " infer " anything to my writing but take my words

as I write them. If you are asking me if I agree with Dawson's

positions on the topics I have been posting on, yes, many of them.

<snip>

>My opinion is that is well-intentioned but very misguided. HAVING

>Autism does not make one an expert in Autism. Her opinion is no more of

>value than the next person.

>

>People who KNOW about Autism, are the mothers that run daily, proactive,

>intervention programs; program therapists that help recover children with

>their treatment services; Doctors willing to invest themselves in the

>pursuit of knowledge about the latest Biomedical treatments and then apply

>them; and finally, parents of adult Autistics, still caring for individuals,

>unable to care for themselves.

So where does that leave me? An Aspergers mom of a 16 year old autistic and

a 14 year old Aspie?

According to " The OASIS Guide to Asperger Syndrome " Chapter 12 Paragraph

" Some True Pioneers " In a paragraph with Dr. Temple Grandin, Liane Holliday

Willey, Dave Spicer, Jerry Newport, Shore, Meyer, Martijn

Dekker, and Jim Sinclair: " Janet Norman-Bain, better known as jypsy, is

Webmaster of the " Ooops Wrong Planet " Web site. These individuals have all

made significant contributions to supporting not only individuals with

autism spectrum disorders but also educating those who love and care for

them. While there are many more, these particular individuals deserve our

thanks for the breadth and depth of their commitment. "

>So, again, I am uninformed as to your purpose for posting links to these

>articles,

I think they are very important

>but for you to do so in newsgroups that are generally focused on

>proactive action and intervention is at a minimum a waste of time and to

>many, an insult to parents that dedicate and sacrifice themselves to the

>goal of improving their children's lives.

but certainly not to parents like myself - and I am not alone (and no,

neither are you)

>J. Reirdon

-jypsy

> Being Told or Being Told Off?

>

>Being Told or Being Told Off?

>Reciprocity at the Diagnostic Interview

>(a book chapter by Dawson)

>

>Excerpt: " I need to be told that I am not a burden. I am not another sad

>and tragic statistic requiring endless expensive services. I will, however,

>be used this way by dishonest non-autistics who, honestly, should be

>denounced for their irresponsibility then treated for their emotional

>problems. "

>

>Full text at

><http://www.sentex.net/~nexus23/naa_bto.html>http://www.sentex.net/~nexus23/

>naa_bto.<http://www.sentex.net/~nexus23/naa_bto.html>html

________________________________

Ooops....Wrong Planet! Syndrome

Autism Spectrum Resources

www.PlanetAutism.com

jypsy@...

[Guest guest]

At 10:50 AM 8/30/2004 -0500, Reirdon, J. wrote:

>Janet,

>

>I notice that you consistently post articles and excerpts of the writings of

> Dawson. I usually don't see comments by you to explain this. I

>infer that you post these writings by Dawson, because you agree

>with her positions?

I would rather you didn't " infer " anything to my writing but take my words

as I write them. If you are asking me if I agree with Dawson's

positions on the topics I have been posting on, yes, many of them.

<snip>

>My opinion is that is well-intentioned but very misguided. HAVING

>Autism does not make one an expert in Autism. Her opinion is no more of

>value than the next person.

>

>People who KNOW about Autism, are the mothers that run daily, proactive,

>intervention programs; program therapists that help recover children with

>their treatment services; Doctors willing to invest themselves in the

>pursuit of knowledge about the latest Biomedical treatments and then apply

>them; and finally, parents of adult Autistics, still caring for individuals,

>unable to care for themselves.

So where does that leave me? An Aspergers mom of a 16 year old autistic and

a 14 year old Aspie?

According to " The OASIS Guide to Asperger Syndrome " Chapter 12 Paragraph

" Some True Pioneers " In a paragraph with Dr. Temple Grandin, Liane Holliday

Willey, Dave Spicer, Jerry Newport, Shore, Meyer, Martijn

Dekker, and Jim Sinclair: " Janet Norman-Bain, better known as jypsy, is

Webmaster of the " Ooops Wrong Planet " Web site. These individuals have all

made significant contributions to supporting not only individuals with

autism spectrum disorders but also educating those who love and care for

them. While there are many more, these particular individuals deserve our

thanks for the breadth and depth of their commitment. "

>So, again, I am uninformed as to your purpose for posting links to these

>articles,

I think they are very important

>but for you to do so in newsgroups that are generally focused on

>proactive action and intervention is at a minimum a waste of time and to

>many, an insult to parents that dedicate and sacrifice themselves to the

>goal of improving their children's lives.

but certainly not to parents like myself - and I am not alone (and no,

neither are you)

>J. Reirdon

-jypsy

> Being Told or Being Told Off?

>

>Being Told or Being Told Off?

>Reciprocity at the Diagnostic Interview

>(a book chapter by Dawson)

>

>Excerpt: " I need to be told that I am not a burden. I am not another sad

>and tragic statistic requiring endless expensive services. I will, however,

>be used this way by dishonest non-autistics who, honestly, should be

>denounced for their irresponsibility then treated for their emotional

>problems. "

>

>Full text at

><http://www.sentex.net/~nexus23/naa_bto.html>http://www.sentex.net/~nexus23/

>naa_bto.<http://www.sentex.net/~nexus23/naa_bto.html>html

________________________________

Ooops....Wrong Planet! Syndrome

Autism Spectrum Resources

www.PlanetAutism.com

jypsy@...