Guest guest Posted September 27, 2009 Report Share Posted September 27, 2009 That's good that J would let them take the blood; I can't even imagine how Karac would react to that. What have you tried with J besides the Zpraxa? What are the side effects of Lithium? Pat K Re: JJ-Suger!! {at, J got blood taken from him today....5 viels! I go back and see the Dr. next thrusday...(rgular Dr. not the Dr. that gives J zpraxa). He was a big guy and let them do it. I am afried when we take him off of it he will start having bad behaviours again. The zpraxa was helping him with that. I was thinking of trying Litheum (sp)? A guy that works at my school takes it.....he is just a little "slow" but is a good worker. He said he does well on it. Lois Re: JJ-Suger!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2009 Report Share Posted September 27, 2009 J has had resperdal....he took that for a long time........He has had albilify but he did bad on that. He had seraquil (sp)? too and didn't do well on it. The zpraxa has been the best with behaviours. I haven't read about the side effects yet.The guy that plays "Sonny" on General Hospital take it for bipoler. He was on Opral one time taking about Bipolaer and how Litheum helped him. Lois Re: JJ-Suger!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2009 Report Share Posted September 27, 2009 J has had resperdal....he took that for a long time........He has had albilify but he did bad on that. He had seraquil (sp)? too and didn't do well on it. The zpraxa has been the best with behaviours. I haven't read about the side effects yet.The guy that plays "Sonny" on General Hospital take it for bipoler. He was on Opral one time taking about Bipolaer and how Litheum helped him. Lois Re: JJ-Suger!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2009 Report Share Posted September 27, 2009 It's a real problem isn't it? You would think there would be something that would help these kids without the horrible side effects. Everything that we have tried with Karac has ended up being detrimental. I think we have tried just about everything but Lithium. Have you tried Geodon? I think it would have been effective with Karac if they had given him 20mg. instead of 80mg. The 80 mg's caused the TD. Pat K Re: JJ-Suger!! J has had resperdal....he took that for a long time........He has had albilify but he did bad on that. He had seraquil (sp)? too and didn't do well on it. The zpraxa has been the best with behaviours. I haven't read about the side effects yet.The guy that plays "Sonny" on General Hospital take it for bipoler. He was on Opral one time taking about Bipolaer and how Litheum helped him. Lois Re: JJ-Suger!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2009 Report Share Posted September 27, 2009 It's a real problem isn't it? You would think there would be something that would help these kids without the horrible side effects. Everything that we have tried with Karac has ended up being detrimental. I think we have tried just about everything but Lithium. Have you tried Geodon? I think it would have been effective with Karac if they had given him 20mg. instead of 80mg. The 80 mg's caused the TD. Pat K Re: JJ-Suger!! J has had resperdal....he took that for a long time........He has had albilify but he did bad on that. He had seraquil (sp)? too and didn't do well on it. The zpraxa has been the best with behaviours. I haven't read about the side effects yet.The guy that plays "Sonny" on General Hospital take it for bipoler. He was on Opral one time taking about Bipolaer and how Litheum helped him. Lois Re: JJ-Suger!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2009 Report Share Posted September 27, 2009 Lois, Cordell (8 years old) was taking it 3 times a day, 5 mg. Then we went to 1/2 in morning and afternoon then whole one in evening. It did not help him at all. I finally told the doctor I wsan't giving it to him anymore. We switched to Abilify, risperidone, and tenex 3 times a day. All the medications are low doses. Cordell has seizures so he also takes depakote, topamax and keppra. I know it is alot of meds. however he is a totally different child now. Cordell is really sensitive to meds. and tends to have bad reactions as the doses get higher so the dr. has put him on lower doses, much means he has to take more. A year ago, we had to remove him from the house for several weeks to get his behaviors under control. As long as he is one his meds. he is controlable. What meds. have you tried. JODI p.s. we have had him on seraquel and would not recommend that one for anyone. > > Jodi, > What did you switch him to? How much was he taking? J is taking 5mg. at night and a half a tab in the morning......We took him off the morning half a tab 2 days ago. Did the zpraxa help him? Thanks, Lois > Re: JJ-Suger!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2009 Report Share Posted September 27, 2009 Lois, Cordell (8 years old) was taking it 3 times a day, 5 mg. Then we went to 1/2 in morning and afternoon then whole one in evening. It did not help him at all. I finally told the doctor I wsan't giving it to him anymore. We switched to Abilify, risperidone, and tenex 3 times a day. All the medications are low doses. Cordell has seizures so he also takes depakote, topamax and keppra. I know it is alot of meds. however he is a totally different child now. Cordell is really sensitive to meds. and tends to have bad reactions as the doses get higher so the dr. has put him on lower doses, much means he has to take more. A year ago, we had to remove him from the house for several weeks to get his behaviors under control. As long as he is one his meds. he is controlable. What meds. have you tried. JODI p.s. we have had him on seraquel and would not recommend that one for anyone. > > Jodi, > What did you switch him to? How much was he taking? J is taking 5mg. at night and a half a tab in the morning......We took him off the morning half a tab 2 days ago. Did the zpraxa help him? Thanks, Lois > Re: JJ-Suger!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2009 Report Share Posted September 27, 2009 Lois could you and I talk privately? byrne2@... From: autism [mailto:autism ] On Behalf Of lois noland Sent: Saturday, September 26, 2009 8:24 PM autism Subject: Re: JJ-Suger!! J won't drink the ones with colors.I can't afford 5.00 for 4 cans. J drinks way to much in cans for me to do that. I wish I could. Lois ----- Original Message ----- From: debra lynn byrne autism Sent: Saturday, September 26, 2009 8:07 PM Subject: RE: JJ-Suger!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 Geodon......................BAD!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! J took one pill and within 15 min. put 2 holes in the walls and hit at me. Needless to say he never got that again. Lois Re: JJ-Suger!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 OMG!!!!!!!!!! That is a lot of meds!!!!!! i though giving J 5mg at night and a half in the morning was bad. We got rid of the morning dose and he seems to be doing good without it. J could never handle that many meds together and he is 21. I am glad it has helped our son. When J was 8 he was very laid back and loving. He got agression when he hit the puberity years. Lois Re: JJ-Suger!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 Wow, Karac became aggressive with it too, but I thought it was because of the high dosage. Re: JJ-Suger!! Geodon......................BAD!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! J took one pill and within 15 min. put 2 holes in the walls and hit at me. Needless to say he never got that again. Lois Re: JJ-Suger!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 Sure!! J e-mail me off list.Lois RE: JJ-Suger!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 It wsa the hardest dicussion we had to make, to put him on meds. But it got to the point he was conpletely out of control. It was the last option we used. We had exhausted every other options. He is doing wonderful now and we can tell if he didn't get even one dose during the day. JODI > > OMG!!!!!!!!!! That is a lot of meds!!!!!! i though giving J 5mg at night and a half in the morning was bad. We got rid of the morning dose and he seems to be doing good without it. J could never handle that many meds together and he is 21. > I am glad it has helped our son. When J was 8 he was very laid back and loving. He got agression when he hit the puberity years. Lois > Re: JJ-Suger!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 It wsa the hardest dicussion we had to make, to put him on meds. But it got to the point he was conpletely out of control. It was the last option we used. We had exhausted every other options. He is doing wonderful now and we can tell if he didn't get even one dose during the day. JODI > > OMG!!!!!!!!!! That is a lot of meds!!!!!! i though giving J 5mg at night and a half in the morning was bad. We got rid of the morning dose and he seems to be doing good without it. J could never handle that many meds together and he is 21. > I am glad it has helped our son. When J was 8 he was very laid back and loving. He got agression when he hit the puberity years. Lois > Re: JJ-Suger!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 I agree. Geodon is a bad one. Ricky took that along with Depakote and Wellbutrin (all at the same time). Just horrible. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 I agree. Geodon is a bad one. Ricky took that along with Depakote and Wellbutrin (all at the same time). Just horrible. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 Lois, Would he drink the bottle water with the flavoring? Maybe you could put the can in a "cozy insulated thingy" and eventually make a transistion to a bottle with the cozy thingy? Long shot...but maybe. Re: JJ-Suger!! Pat, I WISH he drink water!!!!!!!!! I can't get nothing but pop in him!! Its a mess! I have tried water and he won't touch it. All he wants are cans. He won't even drink pop in a bottle. Lois Re: JJ-Suger!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 , Hi! He won't drink out of a bottle. I have been deleted the soda with water and he has been drinking it. My older son (jason) said to look in the food store in the organic ale...he thinks they have a sods there with natural suger. Lois Re: JJ-Suger!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 , Hi! He won't drink out of a bottle. I have been deleted the soda with water and he has been drinking it. My older son (jason) said to look in the food store in the organic ale...he thinks they have a sods there with natural suger. Lois Re: JJ-Suger!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2009 Report Share Posted September 29, 2009 Well said Jodi, I like this...obviously you thought it out...as well as I'm so happy your child is doing better That's a great thing! e From: crandjr1999 <crandjr1999@...>autism Sent: Sunday, September 27, 2009 7:56:51 PMSubject: Re: JJ-Suger!! .. Quote Link to comment Share on other sites More sharing options...
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