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LOL...i wonder if they problems stem from those darn

hackers that are bombarding and others w/ e

mail?

What joke! I cant believe people find joy in that kind

of stuff!

--- GVanHouten <rjvh@...> wrote:

> test

>

=====

:)

mom to Katy (11 this month) and Denton (5.5)

both DS.

__________________________________________________

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  • 1 year later...
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  • 1 month later...
  • 2 weeks later...
  • 3 months later...
  • 4 months later...
  • 1 month later...

Hi Pat,

Sounds like you are going to have a busy day on Tuesday. I wish you all the

best and I'll be praying for a positive outcome from your tests!

I'm sorry about the death in your family. You do have interesting family

history.

Hugs and blessings, Ann

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Hi Pat,

Sounds like you are going to have a busy day on Tuesday. I wish you all the

best and I'll be praying for a positive outcome from your tests!

I'm sorry about the death in your family. You do have interesting family

history.

Hugs and blessings, Ann

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  • 10 months later...
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In a message dated 2/26/2005 8:58:12 PM Pacific Standard Time,

yhwhworship@... writes:

We're still here. I'm up late doing Sam's Subq. Hopefully neither line will

leak tonight and I'll get to go to bed before midnight!

Wenoka,

I hope it went well!! Does Sam do some of the procedure himself?

Sandi, Mom to , age 12. CVID, Tetrology of Fallot, Pulmonary valve

transplant (2003), Mitral valve stenosis, COPD, asthma, Carnitine deficiency,

GERD,

suspected Velocardiofacial syndrome.

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Hi ,

We're still here. I'm up late doing Sam's Subq. Hopefully neither line will

leak tonight and I'll get to go to bed before midnight!

God bless,

Wenoka

test

Have not had any emails all day. Just checking. hope everyone is having a

good day.

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the sole

responsibility of the poster and should not be taken as professional advice.

To unsubscribe -unsubscribegroups (DOT)

To search group archives go to: /messages

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Thanks Wenoka, just thought it was awful quiet. I'm at work and it's slow

right now......I hope you're almost ready for bed.....Hope the sub q goes

okay.

Quoting Wenoka & <yhwhworship@...>:

>

>

>

>

>

>

> Hi ,

>

>

>

> We're still here.  I'm up late doing Sam's Subq.  Hopefully neither line will

> leak tonight and I'll get to go to bed before midnight!

>

>

>

> God bless,

>

>

>

> Wenoka

>

>

>

>   test

>

>

>

>

>

>

>

>

>

>   Have not had any emails all day.  Just checking.  hope everyone is having a

>

>

>   good day. 

>

>

>

>

>

>   This forum is open to parents and caregivers of children diagnosed with a

> Primary Immune Deficiency.  Opinions or medical advice stated here are the

> sole responsibility of the poster and should not be taken as professional

> advice.

>

>

>

>   To unsubscribe -unsubscribegroups (DOT)

>

>   To search group archives go to:

> /messages

>

>

>

>

>

>        

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,

No problems this time. Just waiting for it to absorb a bit more before I pull

it. Much, much better than last time.

Hope your shift is a pleasant one.

Later,

Wenoka

test

>

>

>

>

>

>

>

>

>

> Have not had any emails all day. Just checking. hope everyone is having

a

>

>

> good day.

>

>

>

>

>

> This forum is open to parents and caregivers of children diagnosed with a

> Primary Immune Deficiency. Opinions or medical advice stated here are the

> sole responsibility of the poster and should not be taken as professional

> advice.

>

>

>

> To unsubscribe -unsubscribegroups (DOT)

>

> To search group archives go to:

> /messages

>

>

>

>

>

>

Link to comment
Share on other sites

,

No problems this time. Just waiting for it to absorb a bit more before I pull

it. Much, much better than last time.

Hope your shift is a pleasant one.

Later,

Wenoka

test

>

>

>

>

>

>

>

>

>

> Have not had any emails all day. Just checking. hope everyone is having

a

>

>

> good day.

>

>

>

>

>

> This forum is open to parents and caregivers of children diagnosed with a

> Primary Immune Deficiency. Opinions or medical advice stated here are the

> sole responsibility of the poster and should not be taken as professional

> advice.

>

>

>

> To unsubscribe -unsubscribegroups (DOT)

>

> To search group archives go to:

> /messages

>

>

>

>

>

>

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Share on other sites

It went fine. No. He's eight and kind of interested in it and kind of would

rather just sleep during all of it. I'm hoping that in the next year or two I

can get him more interested in setting it up himself.

If Bri goes on Subq, I'm sure that he would be responsible enough to start doing

most/all of it himself as soon as he was comfortable with it. I think the

earlier a child is trained to take care of their own medical needs (with a

watchful eye, of course) the better able they will be able to handle things

themselves as they transition into adulthood. I'm just waiting a while to see

if Sam starts showing an interest. In a couple of years, if he hasn't, I'll

start working to peak his interest. But at eight, and where he's at maturity

wise, probably best for mom to do it for now.

Hope you guys are doing well. When is Bri's next IVIG???

God bless,

Wenoka

Re: test

In a message dated 2/26/2005 8:58:12 PM Pacific Standard Time,

yhwhworship@... writes:

We're still here. I'm up late doing Sam's Subq. Hopefully neither line will

leak tonight and I'll get to go to bed before midnight!

Wenoka,

I hope it went well!! Does Sam do some of the procedure himself?

Sandi, Mom to , age 12.

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In a message dated 2/27/2005 7:21:51 AM Pacific Standard Time,

yhwhworship@... writes:

If Bri goes on Subq, I'm sure that he would be responsible enough to start

doing most/all of it himself as soon as he was comfortable with it. I think the

earlier a child is trained to take care of their own medical needs

Hi Wenoka,

If Bri goes on SubQ, he would try to do everything himself. He has

performed his own strep tests, suction (starting the day of his open heart) and

removed his own catheter. I think he's at an age where it's very important to

him

to take some of the control back with his health. I'm sure Sam will start

wanting to do things on his own, too. At eight, Bri wasn't into it, yet. The

next IVIG is this coming Friday--March 4.

Sandi, Mom to , age 12. CVID, Tetrology of Fallot, Pulmonary valve

transplant (2003), Mitral valve stenosis, COPD, asthma, Carnitine deficiency,

GERD,

suspected Velocardiofacial syndrome.

Sandi, Mom to , age 12. CVID, Tetrology of Fallot, Pulmonary valve

transplant (2003), Mitral valve stenosis, COPD, asthma, Carnitine deficiency,

GERD,

suspected Velocardiofacial syndrome.

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In a message dated 2/27/2005 7:21:51 AM Pacific Standard Time,

yhwhworship@... writes:

If Bri goes on Subq, I'm sure that he would be responsible enough to start

doing most/all of it himself as soon as he was comfortable with it. I think the

earlier a child is trained to take care of their own medical needs

Hi Wenoka,

If Bri goes on SubQ, he would try to do everything himself. He has

performed his own strep tests, suction (starting the day of his open heart) and

removed his own catheter. I think he's at an age where it's very important to

him

to take some of the control back with his health. I'm sure Sam will start

wanting to do things on his own, too. At eight, Bri wasn't into it, yet. The

next IVIG is this coming Friday--March 4.

Sandi, Mom to , age 12. CVID, Tetrology of Fallot, Pulmonary valve

transplant (2003), Mitral valve stenosis, COPD, asthma, Carnitine deficiency,

GERD,

suspected Velocardiofacial syndrome.

Sandi, Mom to , age 12. CVID, Tetrology of Fallot, Pulmonary valve

transplant (2003), Mitral valve stenosis, COPD, asthma, Carnitine deficiency,

GERD,

suspected Velocardiofacial syndrome.

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  • 1 year later...
Guest guest

Not many posts today. I was wondering if something was up. I miss hearing from

you guys!

strawberrycascade <no_reply > wrote: Has anyone else had

problems posting? Lea

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