Guest guest Posted April 11, 2012 Report Share Posted April 11, 2012 Headaches and High B/P more likey SX of Pheochromocytomas. But low K doesn't seem to be listed as a SX. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I went ahead and had the saline infusion > > > > > > test done but > > > > > > > > > > > > > > > > wondered if Dr. Grim could answer a question > > > > > > about it for me. I know > > > > > > > > > > > > > > > > you do not do it anymore, but I thought that > > > > > > since I do not intake > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2012 Report Share Posted April 11, 2012 That headache sounds really similar to the kind of headaches I used to get before my adrenal adenoma was removed. For this reason, I was screened for pheo before I was screened for PA as my symptoms were almost textbook pheo symptoms. -msmith1928 Successful left laparoscopic adrenalectomy 10/13/11 > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I went ahead and had the saline infusion > > > > > > > test done but > > > > > > > > > > > > > > > > > wondered if Dr. Grim could answer a question > > > > > > > about it for me. I know > > > > > > > > > > > > > > > > > you do not do it anymore, but I thought that > > > > > > > since I do not intake > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2012 Report Share Posted April 11, 2012 I thought with renal artery stenosis renin would be on the high side. Think she is saying hers is low. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I went ahead and had the saline > > infusion > > > > > > test done but > > > > > > > > > > > > > > > > wondered if Dr. Grim could answer a > > question > > > > > > about it for me. I know > > > > > > > > > > > > > > > > you do not do it anymore, but I thought > > that > > > > > > since I do not intake > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2012 Report Share Posted April 11, 2012 Agree. I however was on NO medicines when the " headache " started dec 2008. I say headache because it is always there, not just come and go, but always there. I have had the BP under control too with 3 meds for a time, well it would go low to normal and headache was there just as before. So I do not see how it is due to HTN, but that it may be the Low K. I have not gotten it up high enough yet to see if my headache improves. I pray it does. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I went ahead and had the > > saline infusion > > > > > > > > test done but > > > > > > > > > > > > > > > > > > wondered if Dr. Grim could answer a > > question > > > > > > > > about it for me. I know > > > > > > > > > > > > > > > > > > you do not do it anymore, but I > > thought that > > > > > > > > since I do not intake > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2012 Report Share Posted April 11, 2012 Had blood and urine catecholamines tested in 2010. Initally blood high but when off BB, it was normal. Pheo R/o. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I went ahead and had the > > saline infusion > > > > > > > > > test done but > > > > > > > > > > > > > > > > > > > wondered if Dr. Grim could answer > > a question > > > > > > > > > about it for me. I know > > > > > > > > > > > > > > > > > > > you do not do it anymore, but I > > thought that > > > > > > > > > since I do not intake > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2012 Report Share Posted April 11, 2012 I am off all of the BP meds except for Spiro now, but BP is still high. Very careful to keep low sodium. Newest Blood test showing iron deficiency too. Did take your article to them. No licorice or BCP. Never been told about a bruit, what would that be caused from? Stacey > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I went ahead and had the > > saline infusion > > > > > > > test done but > > > > > > > > > > > > > > > > > wondered if Dr. Grim could answer a > > question > > > > > > > about it for me. I know > > > > > > > > > > > > > > > > > you do not do it anymore, but I > > thought that > > > > > > > since I do not intake > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2012 Report Share Posted April 11, 2012 Answered my last question. Had renal ultrasound to rule out renal artery stenosis already. I am just one of those people that do not fit in the box. Wish I did. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I went ahead and had the saline > > infusion > > > > > > test done but > > > > > > > > > > > > > > > > wondered if Dr. Grim could answer a > > question > > > > > > about it for me. I know > > > > > > > > > > > > > > > > you do not do it anymore, but I thought > > that > > > > > > since I do not intake > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2012 Report Share Posted April 11, 2012 I am pretty sure it was only an US. I will bring it up to the cardiologist when I go back next month. I am pretty sure he did not carefully listen for bruits. He spends less than 5 minutes with me at a visit and is dictating his note for half of that time. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I went ahead and had the saline > > > > infusion > > > > > > > > test done but > > > > > > > > > > > > > > > > > > wondered if Dr. Grim could answer a > > > > question > > > > > > > > about it for me. I know > > > > > > > > > > > > > > > > > > you do not do it anymore, but I thought > > > > that > > > > > > > > since I do not intake > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2012 Report Share Posted April 11, 2012 I was taking No medicines, well except for synthroid which I had taken since 1998. Before that day, I was healthy and medicine free except for hypothyroid. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I went ahead and had the > > > > saline infusion > > > > > > > > > > test done but > > > > > > > > > > > > > > > > > > > > wondered if Dr. Grim could answer a > > > > question > > > > > > > > > > about it for me. I know > > > > > > > > > > > > > > > > > > > > you do not do it anymore, but I > > > > thought that > > > > > > > > > > since I do not intake > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2012 Report Share Posted April 11, 2012 None. Have not had BCP since 2005 and no OTC at the time the headache started. I was not even taking a multi vitamin. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I went ahead and had the > > > > > > saline infusion > > > > > > > > > > > > test done but > > > > > > > > > > > > > > > > > > > > > > wondered if Dr. Grim could answer a > > > > > > question > > > > > > > > > > > > about it for me. I know > > > > > > > > > > > > > > > > > > > > > > you do not do it anymore, but I > > > > > > thought that > > > > > > > > > > > > since I do not intake > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2012 Report Share Posted April 11, 2012 Board certified in cardiology and internal medicine. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I went ahead and had the saline > > > > > > infusion > > > > > > > > > > test done but > > > > > > > > > > > > > > > > > > > > wondered if Dr. Grim could answer a > > > > > > question > > > > > > > > > > about it for me. I know > > > > > > > > > > > > > > > > > > > > you do not do it anymore, but I thought > > > > > > that > > > > > > > > > > since I do not intake > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2012 Report Share Posted April 11, 2012 I know. This Dr. is my 2nd cardiologist as the first one would not even do any tests, just wanted me on meds when the HTN started suddenly. Did not believe me that it was sudden, tells me that I just did not realize it. I am a physical therapist and checked my BP regularly and told him so. Still did not buy it. Family history = essential hypertension regardless of the other sxs. At least this one did some testing, but every time I go there, he seems to listen less to me. Once he was dictating and said I had no episodes of presyncope. I stopped him and said I did last week, he never even asked so why would he be dictating that I had none. He just shook his head and kept dictating on his little recorder. Never added or changed what he said. There are really no good alternatives here. I am stuck trying to diagnose myself. My neurologist and primary doctor actually listen to me. Get this, the endocrinologist I went to that took 2 months for follow up on testing saw me and said she needed to research a couple things for tests she may want to do and if the meds would affect results. I get a call from her office the next day because she forgot what it was she was suppose to look up and wanted me to tell her what it was. Now that is professionalism at its best. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I went ahead and had the saline > > > > > infusion > > > > > > > > > test done but > > > > > > > > > > > > > > > > > > > wondered if Dr. Grim could answer a > > > > > question > > > > > > > > > about it for me. I know > > > > > > > > > > > > > > > > > > > you do not do it anymore, but I thought > > > > > that > > > > > > > > > since I do not intake > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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