Re: Question about Saline Infusion Test

[Guest guest]

Yes for ones that are not already contributed in the data base. Can also scan

the bar code and if it has K as part of the nutrition info. There is a lot in

the data base already.

> > > > > > > > > > >

> > > > > > > > > > > > I went ahead and had the saline infusion test done but

> > > > > > > > wondered if Dr. Grim could answer a question about it for

> > > > me. I know

> > > > > > > > you do not do it anymore, but I thought that since I do not

> > > > intake

> > > > > > > > much salt it would ensure I got enough to make the test more

> > > > > > > > reliable. However, after taking 4 weeks to get the test done

> > > > and

> > > > > > > > today the infusion center had never done one. I brought up the

> > > > > > > > protocol I got online for it and this helped them know what

> > > > tubes to

> > > > > > > > use for the lab draw and the positioning issues.

> > > > > > > > > > > > I slept for the first 2 hours then had to go to the

> > > > > > > > bathroom. I did convince them to let me check my total urine

> > > > > > > > eliminated. I saw that the iv had it at a rate of 250ml/hr

> > > > at that

> > > > > > > > time. I questioned the nurse and she looked back and said oh i

> > > > > > > > thought it was only 1 liter not 2. 2 hours already into the

> > > > test and

> > > > > > > > i have only gotten in 500ml. She then raised the rate to

> > > > 810ml/hr

> > > > > > > > and was able to get the 2 liters in 2 hours.

> > > > > > > > > > > > My question, 1. will that mess up effect the lab

> > > > results and

> > > > > > > > 2. will it effect the urine excretion amount since it was so

> > > > slow at

> > > > > > > > first, then really fast for the last 2 hours. My urine was

> > > > 1.1L in

> > > > > > > > the 4 hours of testing.

> > > > > > > > > > > >

> > > > > > > > >

>

[Guest guest]

Sorry, I believe it was Effexor at 150 mg. this is just a guess that it was

caused by the meds. Sxs disappeared a month after I was off that medicine. I

have been on so many meds to stop the headache that I do not know what side

effects are from what.

> > >

> > > Cold all the time. Under tons of blankets with feet and hands cold. Have

> > > you been properly tested for hypothyroidism? That would be FREE T3, FREE

T4

> > > and TSH.

> > >

> > > Val

> > >

> > > From: hyperaldosteronism

> > > [mailto:hyperaldosteronism ] On Behalf Of StaceyF

> > >

> > > No vomit, diarrhea, or excess sweat. Ism cold all the time now. Under tons

> > > of blankets and my feet and hands are cold. Was not on diuretics at the

time

> > > either. My serum K was 3.5. I am having trouble keeping K up even with

diet

> > > and pill form. It's never gone past 3.8. Just started aldactone so I hope

it

> > > brings it up. My aldactone dose before was only 25 mg and it did not

really

> > > increase K to much. Now on 100 mg.

> > >

> >

> >

>

[Guest guest]

Sorry, I believe it was Effexor at 150 mg. this is just a guess that it was

caused by the meds. Sxs disappeared a month after I was off that medicine. I

have been on so many meds to stop the headache that I do not know what side

effects are from what.

> > >

> > > Cold all the time. Under tons of blankets with feet and hands cold. Have

> > > you been properly tested for hypothyroidism? That would be FREE T3, FREE

T4

> > > and TSH.

> > >

> > > Val

> > >

> > > From: hyperaldosteronism

> > > [mailto:hyperaldosteronism ] On Behalf Of StaceyF

> > >

> > > No vomit, diarrhea, or excess sweat. Ism cold all the time now. Under tons

> > > of blankets and my feet and hands are cold. Was not on diuretics at the

time

> > > either. My serum K was 3.5. I am having trouble keeping K up even with

diet

> > > and pill form. It's never gone past 3.8. Just started aldactone so I hope

it

> > > brings it up. My aldactone dose before was only 25 mg and it did not

really

> > > increase K to much. Now on 100 mg.

> > >

> >

> >

>

[Guest guest]

the app MY NET DIARY, many foods are already in the data base of this program.

you can enter ones that are not there or scan the bar code. Some of the

contributed info does not have K, but i did find many that do.

> > > > > > > > > > > > >

> > > > > > > > > > > > > Stac nice thumbnail.

> > > > > > > > > > > > > Your saline story is typical. I have done over 1000 I

> > > > > > would

> > > > > > > > > > guess. Most have never done one. I think we need to get some

> > > > > > > > > > instructions to take in so it is done correctly. Based on

your

> > > > > > > > > > thumbnail and pee during saline u have PA.

> > > > > > > > > > > > >

> > > > > > > > > > > > > I trust they have their own normals as we use ~ 2 L

> > > > > > over 4

> > & g

>

[Guest guest]

No worries about me becoming a cyberchondriac, I do not have that kind of time!

I do consult research online, here and at PUB Med, and in my field when

necessary. I voted today, did you?

> > > > > > > >

> > > > > > > > Cold all the time. Under tons of blankets with feet and hands

cold. Have

> > > > > > > > you been properly tested for hypothyroidism? That would be FREE

T3, FREE T4

> > > > > > > > and TSH.

> > > > > > > >

> > > > > > > > Val

> > > > > > > >

> > > > > > > > From: hyperaldosteronism

> > > > > > > > [mailto:hyperaldosteronism ] On Behalf Of StaceyF

> > > > > > > >

> > > > > > > > No vomit, diarrhea, or excess sweat. Ism cold all the time now.

Under tons

> > > > > > > > of blankets and my feet and hands are cold. Was not on diuretics

at the time

> > > > > > > > either. My serum K was 3.5. I am having trouble keeping K up

even with diet

> > > > > > > > and pill form. It's never gone past 3.8. Just started aldactone

so I hope it

> > > > > > > > brings it up. My aldactone dose before was only 25 mg and it did

not really

> > > > > > > > increase K to much. Now on 100 mg.

> > > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

yep, I figured low k was the culprit...had to go off of it during the infection

due to some incompatability with the antibiotics. Back on it now, feel somewhat

human again.

> >> > > > > >

> >> > > > > > Cold all the time. Under tons of blankets with feet and hands

cold. Have

> >> > > > > > you been properly tested for hypothyroidism? That would be FREE

T3, FREE T4

> >> > > > > > and TSH.

> >> > > > > >

> >> > > > > > Val

> >> > > > > >

> >> > > > > > From: hyperaldosteronism

> >> > > > > > [mailto:hyperaldosteronism ] On Behalf Of StaceyF

> >> > > > > >

> >> > > > > > No vomit, diarrhea, or excess sweat. Ism cold all the time now.

Under tons

> >> > > > > > of blankets and my feet and hands are cold. Was not on diuretics

at the time

> >> > > > > > either. My serum K was 3.5. I am having trouble keeping K up even

with diet

> >> > > > > > and pill form. It's never gone past 3.8. Just started aldactone

so I hope it

> >> > > > > > brings it up. My aldactone dose before was only 25 mg and it did

not really

> >> > > > > > increase K to much. Now on 100 mg.

> >> > > > > >

> >> > > > >

> >> > > >

> >> > > >

> >> > >

> >> >

> >> >

> >>

> >

> >

>

[Guest guest]

So I finally got back into my Endo after waiting 2 months from test date. My

aldo supressed on the infusion test so she said even if it is early PA, no one

will do surgery. I realize this but wanted to know how to manage it correctly

with meds/diet. See if I am taking enough Spiro and if there is something else

that can lower my BP as it is still 160/85.

Have been Dashing and taking 40 meq potassium, 100mg spiro, so as you suggested

I asked for a spot urine Na K and Creat. I am not sure if they actually did the

creat as it did not come back on the report. Will not see the doc until July

now.

Urine K was 102.9 meq/L and Urine Na is 72 meq/L. Can you tell by this without

the creat. if this means I am doing ok on my K intake. My K in serum has gone

up only a bit to 3.8.

Doc ordered new labs but have not had much time to see what they are for. Any

ideas? androstenedione, Testosterone total and free, 11-deoxycortisol,

11-deoxycorticosterne, 17-hydrooxyprogesterone, and DHEA sulfate.

Thanks,

Stacey

TAG--- not dx'd yet. Pheo R/o. MRI of adrenals 1.5 years ago

normal. Very Low Renin, normal aldo, ARR: 27. Hx of Low K+ 2.8-3.7,

headache, new onset HBP, 3 meds with labile BP. High PTH, high bone

ALK phos, need high doses of vit d and Magnesium to stay in normal

range, Diet: salt under 1500 and K+ near 4700 with supplementation

(feel better, but not myself). sx started 3 years ago: brain fog,

fatigue, pain in joints and muscles, exercise intolerence, light

headed, palpitations and above mentioned. SIT- suppressed Aldo with low renin.

> > > > > > >

> > > > > > > > I went ahead and had the saline infusion test done but

> > > > wondered if Dr. Grim could answer a question about it for me. I know

> > > > you do not do it anymore, but I thought that since I do not intake

> > > > much salt it would ensure I got enough to make the test more

> > > > reliable. However, after taking 4 weeks to get the test done and

> > > > today the infusion center had never done one. I brought up the

> > > > protocol I got online for it and this helped them know what tubes to

> > > > use for the lab draw and the positioning issues.

> > > > > > > > I slept for the first 2 hours then had to go to the

> > > > bathroom. I did convince them to let me check my total urine

> > > > eliminated. I saw that the iv had it at a rate of 250ml/hr at that

> > > > time. I questioned the nurse and she looked back and said oh i

> > > > thought it was only 1 liter not 2. 2 hours already into the test and

> > > > i have only gotten in 500ml. She then raised the rate to 810ml/hr

> > > > and was able to get the 2 liters in 2 hours.

> > > > > > > > My question, 1. will that mess up effect the lab results and

> > > > 2. will it effect the urine excretion amount since it was so slow at

> > > > first, then really fast for the last 2 hours. My urine was 1.1L in

> > > > the 4 hours of testing.

> > > > > > > >

> > > > > > > > It will take a week for the labs, but I just wanted to know

> > > > your thoughts so I can be prepared should the results be

> > > > indeterminate.

> > > > > > > >

> > > > > > > > Stacey- not dx'd yet. Pheo R/o. MRI of adrenals 1.5 years

> > > > ago normal. Very Low Renin, normal aldo, ARR: 27. Hx of Low K+

> > > > 2.8-3.7, headache, new onset HBP, 3 meds with labile BP. High PTH,

> > > > high bone ALK phos, need high doses of vit d and Magnesium to stay

> > > > in normal range, Diet: salt under 1500 and K+ near 4700 with

> > > > supplementation (feel better, but not myself). sx started 3 years

> > > > ago: brain fog, fatigue, pain in joints and muscles, exercise

> > > > intolerence, light headed, palpitations and above mentioned.

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

I never pee that much in a day usually. The average was 1.2 L per day. I am

always told to drink more, but even with 8-10 glasses per day, I never produce

more than 1.5 L. Here are my saline results from before, you had already

commented on them as it was in Feb., but here they are again.

Got my results back. Will not convince anyone that I have PA

now.

Renin -.23ng/ml/hr at 8 am and less than .15 ng/ml/hr at 12:45 pm.

aldosterone- 11.8 ng//dl and 3.1 after the infusion.

Cortisol is 10.6 ug/dl at 8 am and 6.3 at 12:45 pm.

Serum K was 3.7 before and 3.6 after. I was doubling my k

supp. so 40 meq and drinking coconut water to get more k and still

has such a low norm level.

NA serum was 138 before and 140 meq/ l after.

My chloride was borderline high at 109 meq/l.

Co2 was low at 22 before and borderline low at 24 meq/l after. From

I passed 1.1L of urine during the test but it was not lab tested.

Also, as a reminder, they did the test wrong on accident and infused .5L in 2

hours, then realized the error and ran it very fast and got the 3.5 in the next

2 hours but blew out my vein.

Do you know why the endo would be doing these other labs. She mentioned

congenital adrenal hyperplasia, but I thought that was in kids and you had male

sex characteristics and I am not either of them.

androstenedione, Testosterone total and free, 11-deoxycortisol,

11-deoxycorticosterone, 17-hydroxyprogesterone, and DHEA sulfate.

> > > > > > > > >

> > > > > > > > > > I went ahead and had the saline infusion test done but

> > > > > > wondered if Dr. Grim could answer a question about it for me. I know

> > > > > > you do not do it anymore, but I thought that since I do not intake

> > > > > > much salt it would ensure I got enough to make the test more

> > > > > > reliable. However, after taking 4 weeks to get the test done and

> > > > > > today the infusion center had never done one. I brought up the

> > > > > > protocol I got online for it and this helped them know what tubes to

> > > > > > use for the lab draw and the positioning issues.

> > > > > > > > > > I slept for the first 2 hours then had to go to the

> > > > > > bathroom. I did convince them to let me check my total urine

> > > > > > eliminated. I saw that the iv had it at a rate of 250ml/hr at that

> > > > > > time. I questioned the nurse and she looked back and said oh i

> > > > > > thought it was only 1 liter not 2. 2 hours already into the test and

> > > > > > i have only gotten in 500ml. She then raised the rate to 810ml/hr

> > > > > > and was able to get the 2 liters in 2 hours.

> > > > > > > > > > My question, 1. will that mess up effect the lab results and

> > > > > > 2. will it effect the urine excretion amount since it was so slow at

> > > > > > first, then really fast for the last 2 hours. My urine was 1.1L in

> > > > > > the 4 hours of testing.

> > > > > > > > > >

> > > > > > > > > > It will take a week for the labs, but I just wanted to know

> > > > > > your thoughts so I can be prepared should the results be

> > > > > > indeterminate.

> > > > > > > > > >

> > > > > > > > > > Stacey- not dx'd yet. Pheo R/o. MRI of adrenals 1.5 years

> > > > > > ago normal. Very Low Renin, normal aldo, ARR: 27. Hx of Low K+

> > > > > > 2.8-3.7, headache, new onset HBP, 3 meds with labile BP. High PTH,

> > > > > > high bone ALK phos, need high doses of vit d and Magnesium to stay

> > > > > > in normal range, Diet: salt under 1500 and K+ near 4700 with

> > > > > > supplementation (feel better, but not myself). sx started 3 years

> > > > > > ago: brain fog, fatigue, pain in joints and muscles, exercise

> > > > > > intolerence, light headed, palpitations and above mentioned.

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

> >

> > Reply to sender | Reply to group | Reply via web post |

>

[Guest guest]

If I am in this stage and I am understanding your article, why am I having

sudden onset of high BP, low K that I am having difficulty getting it up with

low sodium. Is there anything else that would cause this myriad of sxs, lab

abnormalities and hypogammaglobulemia.

> > > > > > > > > > >

> > > > > > > > > > > > I went ahead and had the saline infusion test done but

> > > > > > > > wondered if Dr. Grim could answer a question about it for me. I

know

> > > > > > > > you do not do it anymore, but I thought that since I do not

intake

> > > > > > >

>

[Guest guest]

You won't convince anyone you have what? What is the lab range for your renin.

Yes, I have some wild ass guess why they might be doing these tests. Where are

you located? I don't know the exact markers they are looking at but you might

check out a great resort in Bethesda, MD called NIH! Protocol 00-CH-0160.

> > > > > > > > > >

> > > > > > > > > > > I went ahead and had the saline infusion test done but

> > > > > > > wondered if Dr. Grim could answer a question about it for me. I

know

> > > > > > > you do not do it anymore, but I thought that since I do not intake

> > > > > > > much salt it would ensure I got enough to make the test more

> > > > > > > reliable. However, after taking 4 weeks to get the test done and

> > > > > > > today the infusion center had never done one. I brought up the

> > > > > > > protocol I got online for it and this helped them know what tubes

to

> > > > > > > use for the lab draw and the positioning issues.

> > > > > > > > > > > I slept for the first 2 hours then had to go to the

> > > > > > > bathroom. I did convince them to let me check my total urine

> > > > > > > eliminated. I saw that the iv had it at a rate of 250ml/hr at that

> > > > > > > time. I questioned the nurse and she looked back and said oh i

> > > > > > > thought it was only 1 liter not 2. 2 hours already into the test

and

> > > > > > > i have only gotten in 500ml. She then raised the rate to 810ml/hr

> > > > > > > and was able to get the 2 liters in 2 hours.

> > > > > > > > > > > My question, 1. will that mess up effect the lab results

and

> > > > > > > 2. will it effect the urine excretion amount since it was so slow

at

> > > > > > > first, then really fast for the last 2 hours. My urine was 1.1L in

> > > > > > > the 4 hours of testing.

> > > > > > > > > > >

> > > > > > > > > > > It will take a week for the labs, but I just wanted to

know

> > > > > > > your thoughts so I can be prepared should the results be

> > > > > > > indeterminate.

> > > > > > > > > > >

> > > > > > > > > > > Stacey- not dx'd yet. Pheo R/o. MRI of adrenals 1.5 years

> > > > > > > ago normal. Very Low Renin, normal aldo, ARR: 27. Hx of Low K+

> > > > > > > 2.8-3.7, headache, new onset HBP, 3 meds with labile BP. High PTH,

> > > > > > > high bone ALK phos, need high doses of vit d and Magnesium to stay

> > > > > > > in normal range, Diet: salt under 1500 and K+ near 4700 with

> > > > > > > supplementation (feel better, but not myself). sx started 3 years

> > > > > > > ago: brain fog, fatigue, pain in joints and muscles, exercise

> > > > > > > intolerence, light headed, palpitations and above mentioned.

> > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > > >

> > > >

> > >

> > >

> > > Reply to sender | Reply to group | Reply via web post |

> >

>

[Guest guest]

You are using some big words that I don't know but bet they would recognize them

at NIH!

> > > > > > > > > > > >

> > > > > > > > > > > > > I went ahead and had the saline infusion test done but

> > > > > > > > > wondered if Dr. Grim could answer a question about it for me.

I know

> > > > > > > > > you do not do it anymore, but I thought that since I do not

intake

> > > > > > > >

> >

>

[Guest guest]

Interesting, what is the treatment for what you have?

> > > > > > > > > > > > >

> > > > > > > > > > > > > > I went ahead and had the saline infusion test done

but

> > > > > > > > > > wondered if Dr. Grim could answer a question about it for

me. I know

> > > > > > > > > > you do not do it anymore, but I thought that since I do not

intake

> > > > > > > > >

> > >

> >

>

[Guest guest]

Who did you see at DHMC? There have been At least 4 in this group that haven't

had very good luck at DHMC.

> > > > > > > > > > > > >

> > > > > > > > > > > > > > I went ahead and had the saline infusion test done

but

> > > > > > > > > > wondered if Dr. Grim could answer a question about it for

me. I know

> > > > > > > > > > you do not do it anymore, but I thought that since I do not

intake

> > > > > > > > >

> > >

> >

>

[Guest guest]

Thanks I checked on DHMC site this is his information J. Comi, MD

Section Chief, Endocrinology, Diabetes & Metabolism

Institution Affiliations:

Dartmouth-Hitchcock Medical Center, Lebanon

Diabetes Program

Endocrinology

Endocrinology Fellowship

Endocrine Tumors Program

Medical School:

MD, Harvard Medical School, Boston, MA , 1980

Residency:

Massachusetts General Hospital, Boston, MA, Internal Medicine, 1980-83

Fellowship:

National Institutes of Health, Bethesda, MD, Endocrinology, Diabetes Branch,

1983-88

Board Certification:

Endocrinology & Metabolism, 1987

Internal Medicine, 1983

Specialties:

Cancer / Oncology

Endocrine Tumors Program

Endocrinology

Endocrinology - Cancer

Joined Staff in 1988

Practice Note:

Cystic Fibrosis-Related Diabetes, Diabetes, Diabetic Foot Ulcers, Endocrinology,

HIV Related Endocrine Disorder, Hypoglycemia, Insulin Pump, Pituitary Disease,

Thyroid Aspiration, Thyroid Disorders.

> > > > > > > > > > > > > >

> > > > > > > > > > > > > > > I went ahead and had the saline infusion test done

but

> > > > > > > > > > > wondered if Dr. Grim could answer a question about it for

me. I know

> > > > > > > > > > > you do not do it anymore, but I thought that since I do

not intake

> > > > > > > > > >

> > > >

> > >

> >

>

[Guest guest]

I won't convince anyone I have PA. I am in Lansing, MI. We have no docs here

that have any knowledge of PA. I was diagnosed with hypogammaglobulinemia which

is an immune system disorder where my immune system is supressed.

> > > > > > > > > > >

> > > > > > > > > > > > I went ahead and had the saline infusion test done but

> > > > > > > > wondered if Dr. Grim could answer a question about it for me. I

know

> > > > > > > > you do not do it anymore, but I thought that since I do not

intake

> > > > > > > > much salt it would ensure I got enough to make the test more

> > > > > > > > reliable. However, after taking 4 weeks to get the test done and

> > > > > > > > today the infusion center had never done one. I brought up the

> > > > > > > > protocol I got online for it and this helped them know what

tubes to

> > > > > > > > use for the lab draw and the positioning issues.

> > > > > > > > > > > > I slept for the first 2 hours then had to go to the

> > > > > > > > bathroom. I did convince them to let me check my total urine

> > > > > > > > eliminated. I saw that the iv had it at a rate of 250ml/hr at

that

> > > > > > > > time. I questioned the nurse and she looked back and said oh i

> > > > > > > > thought it was only 1 liter not 2. 2 hours already into the test

and

> > > > > > > > i have only gotten in 500ml. She then raised the rate to

810ml/hr

> > > > > > > > and was able to get the 2 liters in 2 hours.

> > > > > > > > > > > > My question, 1. will that mess up effect the lab results

and

> > > > > > > > 2. will it effect the urine excretion amount since it was so

slow at

> > > > > > > > first, then really fast for the last 2 hours. My urine was 1.1L

in

> > > > > > > > the 4 hours of testing.

> > > > > > > > > > > >

> > > > > > > > > > > > It will take a week for the labs, but I just wanted to

know

> > > > > > > > your thoughts so I can be prepared should the results be

> > > > > > > > indeterminate.

> > > > > > > > > > > >

> > > > > > > > > > > > Stacey- not dx'd yet. Pheo R/o. MRI of adrenals 1.5

years

> > > > > > > > ago normal. Very Low Renin, normal aldo, ARR: 27. Hx of Low K+

> > > > > > > > 2.8-3.7, headache, new onset HBP, 3 meds with labile BP. High

PTH,

> > > > > > > > high bone ALK phos, need high doses of vit d and Magnesium to

stay

> > > > > > > > in normal range, Diet: salt under 1500 and K+ near 4700 with

> > > > > > > > supplementation (feel better, but not myself). sx started 3

years

> > > > > > > > ago: brain fog, fatigue, pain in joints and muscles, exercise

> > > > > > > > intolerence, light headed, palpitations and above mentioned.

> > > > > > > > > > > >

> > > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > > > Reply to sender | Reply to group | Reply via web post |

> > >

> >

>

[Guest guest]

Interesting. I'm on high dose magnesium to keep it normal. My Vit D is low

even on mega dose per week and K low too.

this is actually my 4th opinion, one from mayo clinic.

We have no nephro that have knowledge of this here, would have to look into it.

Thanks

> > > > > > > > > > > > >

> > > > > > > > > > > > > > I went ahead and had the saline infusion test done

but

> > > > > > > > > > wondered if Dr. Grim could answer a question about it for

me. I know

> > > > > > > > > > you do not do it anymore, but I thought that since I do not

intake

> > > > > > > > >

> > >

> >

>

[Guest guest]

My initial Urine K was 30 but since on the spiro it is 109. I will try the 2

week dash and see what it does. My BP was high normal until 12/2008. The high

BP 170/100 sudden and came the same time my 24/7 headache started. Now it is

labile with the meds they try. Some high and some very low. Headache for 3 1/2

years. First time I had a low K was also when I went to ER in 12/2008. My

family does have high BP and that is why to many have ignored my sxs. Docs do

not believe me that it was sudden onset of BP.

> > > > > > > > > > > > >

> > > > > > > > > > > > > > I went ahead and had the saline infusion test done

but

> > > > > > > > > > wondered if Dr. Grim could answer a question about it for

me. I know

> > > > > > > > > > you do not do it anymore, but I thought that since I do not

intake

> > > > > > > > >

> > >

> >

> >

>

[Guest guest]

I do not have to get up at night. That is why I do not seem to fit this

disease.

> > > > > > > > > > > >

> > > > > > > > > > > > > I went ahead and had the saline infusion test

> > done but

> > > > > > > > > wondered if Dr. Grim could answer a question about it

> > for me. I know

> > > > > > > > > you do not do it anymore, but I thought that since I

> > do not intake

> > > > > > > > > much salt it would ensure I got enough to make the

> > test more

> > > > > > > > > reliable. However, after taking 4 weeks to get the

> > test done and

> > > > > > > > > today the infusion center had never done one. I

> > brought up the

> > > > > > > > > protocol I got online for it and this helped them know

> > what tubes to

> > > > > > > > > use for the lab draw and the positioning issues.

> > > > > > > > > > > > > I slept for the first 2 hours then had to go

> > to the

> > > > > > > > > bathroom. I did convince them to let me check my total

> > urine

> > > > > > > > > eliminated. I saw that the iv had it at a rate of

> > 250ml/hr at that

> > > > > > > > > time. I questioned the nurse and she looked back and

> > said oh i

> > > > > > > > > thought it was only 1 liter not 2. 2 hours already

> > into the test and

> > > > > > > > > i have only gotten in 500ml. She then raised the rate

> > to 810ml/hr

> > > > > > > > > and was able to get the 2 liters in 2 hours.

> > > > > > > > > > > > > My question, 1. will that mess up effect the

> > lab results and

> > > > > > > > > 2. will it effect the urine excretion amount since it

> > was so slow at

> > > > > > > > > first, then really fast for the last 2 hours. My urine

> > was 1.1L in

> > > > > > > > > the 4 hours of testing.

> > > > > > > > > > > > >

> > > > > > > > > > > > > It will take a week for the labs, but I just

> > wanted to know

> > > > > > > > > your thoughts so I can be prepared should the results be

> > > > > > > > > indeterminate.

> > > > > > > > > > > > >

> > > > > > > > > > > > > Stacey- not dx'd yet. Pheo R/o. MRI of

> > adrenals 1.5 years

> > > > > > > > > ago normal. Very Low Renin, normal aldo, ARR: 27. Hx

> > of Low K+

> > > > > > > > > 2.8-3.7, headache, new onset HBP, 3 meds with labile

> > BP. High PTH,

> > > > > > > > > high bone ALK phos, need high doses of vit d and

> > Magnesium to stay

> > > > > > > > > in normal range, Diet: salt under 1500 and K+ near

> > 4700 with

> > > > > > > > > supplementation (feel better, but not myself). sx

> > started 3 years

> > > > > > > > > ago: brain fog, fatigue, pain in joints and muscles,

> > exercise

> > > > > > > > > intolerence, light headed, palpitations and above

> > mentioned.

> > > > > > > > > > > > >

> > > > > > > > > > > > >

> > > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > > >

> > > > > Reply to sender | Reply to group | Reply via web post |

> > > >

> > >

> >

> >

>

[Guest guest]

I think it is about 25% of the time night time peeing is not a problem.

Do you pee a lot during the day? Do you drink and within about 10 min you have

to go pee?

> > > > > > > > > > > > >

> > > > > > > > > > > > > > I went ahead and had the saline infusion test

> > > done but

> > > > > > > > > > wondered if Dr. Grim could answer a question about it

> > > for me. I know

> > > > > > > > > > you do not do it anymore, but I thought that since I

> > > do not intake

> > > > > > > > > > much salt it would ensure I got enough to make the

> > > test more

> > > > > > > > > > reliable. However, after taking 4 weeks to get the

> > > test done and

> > > > > > > > > > today the infusion center had never done one. I

> > > brought up the

> > > > > > > > > > protocol I got online for it and this helped them know

> > > what tubes to

> > > > > > > > > > use for the lab draw and the positioning issues.

> > > > > > > > > > > > > > I slept for the first 2 hours then had to go

> > > to the

> > > > > > > > > > bathroom. I did convince them to let me check my total

> > > urine

> > > > > > > > > > eliminated. I saw that the iv had it at a rate of

> > > 250ml/hr at that

> > > > > > > > > > time. I questioned the nurse and she looked back and

> > > said oh i

> > > > > > > > > > thought it was only 1 liter not 2. 2 hours already

> > > into the test and

> > > > > > > > > > i have only gotten in 500ml. She then raised the rate

> > > to 810ml/hr

> > > > > > > > > > and was able to get the 2 liters in 2 hours.

> > > > > > > > > > > > > > My question, 1. will that mess up effect the

> > > lab results and

> > > > > > > > > > 2. will it effect the urine excretion amount since it

> > > was so slow at

> > > > > > > > > > first, then really fast for the last 2 hours. My urine

> > > was 1.1L in

> > > > > > > > > > the 4 hours of testing.

> > > > > > > > > > > > > >

> > > > > > > > > > > > > > It will take a week for the labs, but I just

> > > wanted to know

> > > > > > > > > > your thoughts so I can be prepared should the results be

> > > > > > > > > > indeterminate.

> > > > > > > > > > > > > >

> > > > > > > > > > > > > > Stacey- not dx'd yet. Pheo R/o. MRI of

> > > adrenals 1.5 years

> > > > > > > > > > ago normal. Very Low Renin, normal aldo, ARR: 27. Hx

> > > of Low K+

> > > > > > > > > > 2.8-3.7, headache, new onset HBP, 3 meds with labile

> > > BP. High PTH,

> > > > > > > > > > high bone ALK phos, need high doses of vit d and

> > > Magnesium to stay

> > > > > > > > > > in normal range, Diet: salt under 1500 and K+ near

> > > 4700 with

> > > > > > > > > > supplementation (feel better, but not myself). sx

> > > started 3 years

> > > > > > > > > > ago: brain fog, fatigue, pain in joints and muscles,

> > > exercise

> > > > > > > > > > intolerence, light headed, palpitations and above

> > > mentioned.

> > > > > > > > > > > > > >

> > > > > > > > > > > > > >

> > > > > > > > > > > > >

> > > > > > > > > > > >

> > > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > > > Reply to sender | Reply to group | Reply via web post |

> > > > >

> > > >

> > >

> > >

> >

>

[Guest guest]

No I only pee 3 times a day on average.

> > > > > > > > > > > > > >

> > > > > > > > > > > > > > > I went ahead and had the saline infusion test

> > > > done but

> > > > > > > > > > > wondered if Dr. Grim could answer a question about it

> > > > for me. I know

> > > > > > > > > > > you do not do it anymore, but I thought that since I

> > > > do not intake

> > > > > > > > > > > much salt it would ensure I got enough to make the

> > > > test more

> > > > > > > > > > > reliable. However, after taking 4 weeks to get the

> > > > test done and

> > > > > > > > > > > today the infusion center had never done one. I

> > > > brought up the

> > > > > > > > > > > protocol I got online for it and this helped them know

> > > > what tubes to

> > > > > > > > > > > use for the lab draw and the positioning issues.

> > > > > > > > > > > > > > > I slept for the first 2 hours then had to go

> > > > to the

> > > > > > > > > > > bathroom. I did convince them to let me check my total

> > > > urine

> > > > > > > > > > > eliminated. I saw that the iv had it at a rate of

> > > > 250ml/hr at that

> > > > > > > > > > > time. I questioned the nurse and she looked back and

> > > > said oh i

> > > > > > > > > > > thought it was only 1 liter not 2. 2 hours already

> > > > into the test and

> > > > > > > > > > > i have only gotten in 500ml. She then raised the rate

> > > > to 810ml/hr

> > > > > > > > > > > and was able to get the 2 liters in 2 hours.

> > > > > > > > > > > > > > > My question, 1. will that mess up effect the

> > > > lab results and

> > > > > > > > > > > 2. will it effect the urine excretion amount since it

> > > > was so slow at

> > > > > > > > > > > first, then really fast for the last 2 hours. My urine

> > > > was 1.1L in

> > > > > > > > > > > the 4 hours of testing.

> > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > It will take a week for the labs, but I just

> > > > wanted to know

> > > > > > > > > > > your thoughts so I can be prepared should the results be

> > > > > > > > > > > indeterminate.

> > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > Stacey- not dx'd yet. Pheo R/o. MRI of

> > > > adrenals 1.5 years

> > > > > > > > > > > ago normal. Very Low Renin, normal aldo, ARR: 27. Hx

> > > > of Low K+

> > > > > > > > > > > 2.8-3.7, headache, new onset HBP, 3 meds with labile

> > > > BP. High PTH,

> > > > > > > > > > > high bone ALK phos, need high doses of vit d and

> > > > Magnesium to stay

> > > > > > > > > > > in normal range, Diet: salt under 1500 and K+ near

> > > > 4700 with

> > > > > > > > > > > supplementation (feel better, but not myself). sx

> > > > started 3 years

> > > > > > > > > > > ago: brain fog, fatigue, pain in joints and muscles,

> > > > exercise

> > > > > > > > > > > intolerence, light headed, palpitations and above

> > > > mentioned.

> > > > > > > > > > > > > > >

> > > > > > > > > > > > > > >

> > > > > > > > > > > > > >

> > > > > > > > > > > > >

> > > > > > > > > > > > >

> > > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > >

> > > > > > > Reply to sender | Reply to group | Reply via web post |

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

Dr. Grim, my first sign of all of this was HIGh BP, Low K and headache. Low

renin and normal aldo

> > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > I went ahead and had the saline infusion

> > test done but

> > > > > > > > > > > > wondered if Dr. Grim could answer a question

> > about it for me. I know

> > > > > > > > > > > > you do not do it anymore, but I thought that

> > since I do not intake

> > > > > > > > > > >

> > > > >

> > > >

> > >

> >

> >

>

[Guest guest]

THe 30 was per 24 hour, the other was a spot check, but I only pass on average

1.2 L, so it is close. I know my blood K has gone from 3.6 to 3.9. I feel less

pain going up stairs in my legs (cramping pain). I have had really no change in

my BP's since starting the Spiro, my PCP put me on 100 1x a day, but the endo

switched it to 50 BID. I have been on so many meds to stop the headache and

every drug seems to cause headache. However this headache started 3 1/2 years

ago and has not ever gone away. Now only on Spiro, K , vit D, Mag, wellbutrin,

synthroid, Klonopin, Nuvigil and simvastatin. This is a short list compared to

the previous years trying to stop the headache.

> > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > I went ahead and had the saline infusion

> > test done but

> > > > > > > > > > > > wondered if Dr. Grim could answer a question

> > about it for me. I know

> > > > > > > > > > > > you do not do it anymore, but I thought that

> > since I do not intake

> > > > > > > > > > >

> > > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

Can you give more information on what headache is like? Are you also light

headed or dizzy?

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > > I went ahead and had the saline infusion

> > > test done but

> > > > > > > > > > > > > wondered if Dr. Grim could answer a question

> > > about it for me. I know

> > > > > > > > > > > > > you do not do it anymore, but I thought that

> > > since I do not intake

> > > > > > > > > > > >

> > > > > >

> > > > >

> > > > >

> > > >

> > >

> > >

> >

>

[Guest guest]

woke with it December 30,2008 and I never really get headaches. Behind eyes and

over the top of my head like a strip over the top of my head ending at the top

of the back of my head. I get shock like pain behind my ears, but that is not

all the time. Head pain is usually about a 3 out 10 on pain scale and climbs

for no known reason when it wants to to a 7-8/10. It feels like your eyeballs

have no room and it is pushing out. Compression like. Although, putting

pressure on my head and eyes makes the pain lessen. I sleep with a rice eye bag

tightly pressed to my eyes every night.

They call it New Daily Persistent Headache but it came at the same time as the

high BP, shortness of breath doing minimal activity, cramping pain in legs on

inclines/stairs, generalized exhaustion that is not relieved by sleep. It was

like having the flu with no respiratory problems. My BP then shot to 170/100 in

3 days, went to ER, had minor EKG changes, found out it was likely due to low K.

my K was 3.1. Given a K pill and did stress test, heart ok, sent home. Then

went on ACE for bp problems and K went up to 3.6. Tests and drugs, nothing

could stop the headache. I go to sleep at night with it and wake (when I am

aware of being awake) the headache is there.

SO I do not fit the new daily headache diagnosis cause it does not cause all the

other problems, and I refuse to believe that I have 3 or 4 diagnoses that just

popped up the same day. to much of a coincidence.

> > > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > > > I went ahead and had the saline infusion

> > > > test done but

> > > > > > > > > > > > > > wondered if Dr. Grim could answer a question

> > > > about it for me. I know

> > > > > > > > > > > > > > you do not do it anymore, but I thought that

> > > > since I do not intake

> > > > > > > > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

They must have done CT or MRI on your head. Just to rule one thing out did you

have a change in eye glasse short time before headaches started?

> > > > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > > > > I went ahead and had the saline infusion

> > > > > test done but

> > > > > > > > > > > > > > > wondered if Dr. Grim could answer a question

> > > > > about it for me. I know

> > > > > > > > > > > > > > > you do not do it anymore, but I thought that

> > > > > since I do not intake

> > > > > > > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > > >

> > > >

> > >

> >

>