- Patty

[Guest guest]

Patty I am sorry you are confused. Believe me I have walked in your shoes. I was told in 1985 that I had an auto-immune

disease that was attacking my Liver. It turned my liver into cirrhosis and I had a Liver Transplant My 15th 1995.

Ask on Group and questions you have?

There are children with Liver Diseases and they have never drank. Many of them had not even left the hospital after being born.

There are many Liver Diseases but most people do not believe you when you say you do not drink, A few months ago I

had in home hospice and I fired them because they treated me as if I was a Drunk.

You said blood test done and you tested negative and your Liver is swollen. The Liver will be swollen if it is being attacked

by some form of Liver Disease - that has nothing to do with Drinking. A healthy Liver is not swollen - I am not saying this to

scare you. There are many drugs that can turn around the cirrhosis and you could live a very long life. Those drugs were not

available for me back in 1985. There are many tests to see what kind of Liver Disease you may have or rule out that you

have a Liver Disease.

I STRESS THAT CIRRHOSIS DOES NOT MEAN YOU OR ANYONE DRINKS. HEPATITIS JUST MEANS INFLAMMATION

IN THE LIVER - NOT BECAUSE OF DRINKING IN MANY CASES.

Patty I know it is hard to accept that something may or may not be wrong with your Liver. Do not let it concern you until they

have a prognosis. Then they can get you on medicine that will slow down or stop the Liver Disease. You need see a hepatologists

(Liver Doctor) Primary Care Doctors do not know very much about Liver Diseases - I know more than they do.

My spelling is horrible always has been.

{{{{{CARING HUGS}}}}}}

Jo Lynne

http://www.mayoclinic.org/transplantcenter-rst/

http://www.mayoclinic.org/liver-transplant/

Liver Transplant

Since the Mayo Clinic Liver Transplant Program began in 1985, more than 2,100 transplants have been performed, with some of the highest survival rates in the world.

I was Liver Transplant at Baylor in Dallas TX #1004 and that was 13 + years ago.

Genetic Liver Diseases - Diagnosis and Treatment Options at Mayo ... or

http://www.mayoclinic.org/genetic-liver-diseases/

Treatment for genetic liver diseases such as Gilbert syndrome and hereditaryhemochromatosis at Mayo Clinic. ... Genetic Liver Diseases. ... www.mayoclinic.org/genetic-liver-diseases/ - 31k

About Genetic Liver Diseases

More than 100 liver diseases are genetic (inherited). Some disease symptoms may be present in parents; other parents may have no symptoms, but their children may have the disease. Improved understanding of genetics has given great hope for the future for parents of children with inherited metabolic liver disorders (diseases related to the metabolism of protein or metals in the liver). In the future, gene therapy may allow doctors to treat a disorder by inserting a missing gene into a patient's cells instead of using drugs or surgery.

I am the only one in my Family that has/had a Liver Disease.

More at the link above,

Liver Disease - Diagnosis and Treatment Options at Mayo Clinic or

http://www.mayoclinic.org/liver-disease/

.... Overview. Mayo Clinic is internationally recognized for its expertise andexperience in diagnosing and treating liver diseases. Mayo ... www.mayoclinic.org/liver-disease/ - 33k

Liver diseases treated at Mayo Clinic include:

Cirrhosis — There are many causes and types of cirrhosis. These include:

Primary biliary cirrhosis This is the one I had and have back

http://www.mayoclinic.org/primary-biliary-cirrhosis/

Primary sclerosing cholangitis or

http://www.mayoclinic.org/primary-sclerosing-cholangitis/

Autoimmune hepatitis I have this one also - No link for this one.

Nonalcoholic fatty liver disease or

http://www.mayoclinic.org/nonalcoholic-fatty-liver-disease/

Hemochromatosis or

http://www.mayoclinic.org/genetic-liver-diseases/hemochromatosis.html

Cryptogenic cirrhosis

Secondary biliary cirrhosis

Genetic liver diseases or http://www.mayoclinic.org/genetic-liver-diseases/

Many genetic liver disease cases are discovered in childhood. Experienced pediatric hepatologists are available at Mayo Clinic in Minnesota. When a genetic liver disease is discovered later in life, the condition can be treated by hepatologists at each Mayo Clinic location.

disease or http://www.mayoclinic.org/wilsons-disease/

Alpha-1-Antitrypsin deficiency or http://www.mayoclinic.org/copd/alpha1.html

Crigler-Najjar syndrome or http://www.mayoclinic.org/genetic-liver-diseases/crigler-najjar.html

Gilbert syndrome or http://www.mayoclinic.org/genetic-liver-diseases/gilberts.html

Dubin- syndrome or http://www.mayoclinic.org/genetic-liver-diseases/dubin-johnson.html

Hyperbilirubinemia or http://www.mayoclinic.org/genetic-liver-diseases/hyperbilirubinemia.html

Hepatitis

Hepatitis A

Hepatitis B

Hepatitis C

Hepatitis D

Hepatitis E

Hepatitis G

Autoimmune hepatitis

Alcoholic hepatitis

Nonalcoholic fatty liver disease (nonalcoholic steatohepatitis) or

http://www.mayoclinic.org/nonalcoholic-fatty-liver-disease/

Liver cancer — or http://www.mayoclinic.org/liver-cancer/

Approximately 90 percent of patients who develop liver tumors suffer from cirrhosis. or

http://www.mayoclinic.org/cirrhosis/

Types of liver cancer include:

Hepatocellular carcinoma

Fibrolamellar carcinoma

Secondary liver cancer

Cholangiocarcinoma (bile duct tumor) or http://www.mayoclinic.org/bile-duct-cancer/

Liver transplantation or http://www.mayoclinic.org/liver-transplant/

About Liver Disease

A healthy liver has many important roles, including breaking down harmful substances, removing waste products from the blood, storing nutrients and vitamins, and moderating chemical levels in the body. When the liver becomes diseased these important functions can be disrupted.

Read more atwww.MayoClinic.com A service of Mayo Foundation for Medical Education and Research

Re: Happy New Year

Happy New Year..'m confused my dr did blood and said hep came back neg. my liver is swollen?? now she is wondering if I have scroces? I've never benn a drinker ??? Confused

[Guest guest]

Thank you for your help

From: Jo Lynne <jolynne4@...>Subject: - Patty Date: Wednesday, December 31, 2008, 9:21 AM

Patty I am sorry you are confused. Believe me I have walked in your shoes. I was told in 1985 that I had an auto-immune

disease that was attacking my Liver. It turned my liver into cirrhosis and I had a Liver Transplant My 15th 1995.

Ask on Group and questions you have?

There are children with Liver Diseases and they have never drank. Many of them had not even left the hospital after being born.

There are many Liver Diseases but most people do not believe you when you say you do not drink, A few months ago I

had in home hospice and I fired them because they treated me as if I was a Drunk.

You said blood test done and you tested negative and your Liver is swollen. The Liver will be swollen if it is being attacked

by some form of Liver Disease - that has nothing to do with Drinking. A healthy Liver is not swollen - I am not saying this to

scare you. There are many drugs that can turn around the cirrhosis and you could live a very long life. Those drugs were not

available for me back in 1985. There are many tests to see what kind of Liver Disease you may have or rule out that you

have a Liver Disease.

I STRESS THAT CIRRHOSIS DOES NOT MEAN YOU OR ANYONE DRINKS. HEPATITIS JUST MEANS INFLAMMATION

IN THE LIVER - NOT BECAUSE OF DRINKING IN MANY CASES.

Patty I know it is hard to accept that something may or may not be wrong with your Liver. Do not let it concern you until they

have a prognosis. Then they can get you on medicine that will slow down or stop the Liver Disease. You need see a hepatologists

(Liver Doctor) Primary Care Doctors do not know very much about Liver Diseases - I know more than they do.

My spelling is horrible always has been..

{{{{{CARING HUGS}}}}}}

Jo Lynne

http://www.mayoclin ic.org/transplan tcenter-rst/

http://www.mayoclin ic.org/liver- transplant/

Liver Transplant

Since the Mayo Clinic Liver Transplant Program began in 1985, more than 2,100 transplants have been performed, with some of the highest survival rates in the world.

I was Liver Transplant at Baylor in Dallas TX #1004 and that was 13 + years ago.

Genetic Liver Diseases - Diagnosis and Treatment Options at Mayo ... or

http://www.mayoclin ic.org/genetic- liver-diseases/

Treatment for genetic liver diseases such as Gilbert syndrome and hereditaryhemochromatosis at Mayo Clinic. ... Genetic Liver Diseases. ... www.mayoclinic. org/genetic- liver-diseases/ - 31k

About Genetic Liver Diseases

More than 100 liver diseases are genetic (inherited). Some disease symptoms may be present in parents; other parents may have no symptoms, but their children may have the disease. Improved understanding of genetics has given great hope for the future for parents of children with inherited metabolic liver disorders (diseases related to the metabolism of protein or metals in the liver). In the future, gene therapy may allow doctors to treat a disorder by inserting a missing gene into a patient's cells instead of using drugs or surgery.

I am the only one in my Family that has/had a Liver Disease.

More at the link above,

Liver Disease - Diagnosis and Treatment Options at Mayo Clinic or

http://www.mayoclin ic.org/liver- disease/

.... Overview. Mayo Clinic is internationally recognized for its expertise andexperience in diagnosing and treating liver diseases. Mayo ... www.mayoclinic. org/liver- disease/ - 33k

Liver diseases treated at Mayo Clinic include:

Cirrhosis — There are many causes and types of cirrhosis. These include:

Primary biliary cirrhosis This is the one I had and have back http://www.mayoclin ic.org/primary- biliary-cirrhosi s/ Primary sclerosing cholangitis or http://www.mayoclin ic.org/primary- sclerosing- cholangitis/ Autoimmune hepatitis I have this one also - No link for this one. Nonalcoholic fatty liver disease or http://www.mayoclin ic.org/nonalcoho lic-fatty- liver-disease/ Hemochromatosis or

http://www.mayoclin ic.org/genetic- liver-diseases/ hemochromatosis. html Cryptogenic cirrhosis

Secondary biliary cirrhosis

Genetic liver diseases or http://www.mayoclin ic.org/genetic- liver-diseases/ Many genetic liver disease cases are discovered in childhood. Experienced pediatric hepatologists are available at Mayo Clinic in Minnesota. When a genetic liver disease is discovered later in life, the condition can be treated by hepatologists at each Mayo Clinic location.

disease or http://www.mayoclin ic.org/wilsons- disease/ Alpha-1-Antitrypsin deficiency or http://www.mayoclin ic.org/copd/ alpha1.html Crigler-Najjar syndrome or http://www.mayoclin ic.org/genetic- liver-diseases/ crigler-najjar. html Gilbert syndrome or http://www.mayoclin ic.org/genetic- liver-diseases/ gilberts. html Dubin- syndrome or http://www.mayoclin ic.org/genetic- liver-diseases/ dubin-johnson. html Hyperbilirubinemia or http://www.mayoclin ic.org/genetic- liver-diseases/ hyperbilirubinem ia.html

Hepatitis

Hepatitis A

Hepatitis B

Hepatitis C

Hepatitis D

Hepatitis E

Hepatitis G

Autoimmune hepatitis

Alcoholic hepatitis

Nonalcoholic fatty liver disease (nonalcoholic steatohepatitis) or

http://www.mayoclin ic.org/nonalcoho lic-fatty- liver-disease/

Liver cancer — or http://www.mayoclin ic.org/liver- cancer/ Approximately 90 percent of patients who develop liver tumors suffer from cirrhosis. or http://www.mayoclin ic.org/cirrhosis /

Types of liver cancer include:

Hepatocellular carcinoma

Fibrolamellar carcinoma

Secondary liver cancer

Cholangiocarcinoma (bile duct tumor) or http://www.mayoclin ic.org/bile- duct-cancer/ Liver transplantation or http://www.mayoclin ic.org/liver- transplant/

About Liver Disease

A healthy liver has many important roles, including breaking down harmful substances, removing waste products from the blood, storing nutrients and vitamins, and moderating chemical levels in the body. When the liver becomes diseased these important functions can be disrupted.

Read more atwww.MayoClinic. com A service of Mayo Foundation for Medical Education and Research

Re: Happy New Year

Happy New Year..'m confused my dr did blood and said hep came back neg. my liver is swollen?? now she is wondering if I have scroces? I've never benn a drinker ??? Confused

[Guest guest]

patty; don't worry untill you have a second oppinion on any thing..if

you are not sure of what your dr. is thinking about your

symtoms..before you go to the next app. write a list of ??? you have

and ask even the ones yoy think may be dumb..they can't read your mind

either..if they want to do more testing..great..at least they are

trying..if you get brushed off..and still confused..get another drs.

oppinion..it could be alot of resons your liver is swollen..and how

swollen is it??they do blood work to see if the liver is filtering out

the bad shemicals, even which ones..don't get too upset yet..just keep

on the sr. untill you get the right answer..hope it goes well..