RE: Re: First appointment with Rheumatology

[Guest guest]

It depends on what you want to do. If you are wanting a T & A, which is sounds

you do, then I would skip the Rheum and head straight for the ENT. Bring the

study, and your fever journal and your child's FULL medical records, but I have

found that ENTs do not need convincing. They are aware of this disorder and it

is widely accepted in the ENT community that T & A is an effective means to

relieve these children. IF the ENT is NOT aware of and the recent

research, I would conclude the meeting and move on to another ENT. It would be

to me a warning sign if the ENT was not up on his/her research. I would not

want my child going under the knife of someone who was not on top of their game.

I think what you will get from a Rheum is more blood tests and some

prescriptions to try out.

Personally, I was glad to have all of the tests done. It really made me feel

comfortable that T & A was the last option since it did not seem that had

anything else more serious going on. If you have already had a ton of tests

done, you might not want to go through that again.

I think pretty much an ID, Pediatrician, or Immunologist give the

diagnosis. We came to the conclusion with our Pediatrician.

Good luck, my vote is for ENT!

[Guest guest]

From what I have read most ENT are aware of the and T & A connection and are

pro surgery.  I don't think you would need to get a new diagnosis or diagnosis

confirmation for the ENT to reccomend surgery.