Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 My little girl went through all the hometown CBCs with no luck. Finally we went to Devoss childrens Hospital in Michigan to an IDS who drew a bunch of blood in one visit. These specialists rule out all the stuff they need to and then say (diagnosis by exclusion). The diagnosis took one visit but the test for cyclic nuetropenia involved six weeks of weekly blood draws( lots of fun). Steve. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 My little girl went through all the hometown CBCs with no luck. Finally we went to Devoss childrens Hospital in Michigan to an IDS who drew a bunch of blood in one visit. These specialists rule out all the stuff they need to and then say (diagnosis by exclusion). The diagnosis took one visit but the test for cyclic nuetropenia involved six weeks of weekly blood draws( lots of fun). Steve. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 My little girl went through all the hometown CBCs with no luck. Finally we went to Devoss childrens Hospital in Michigan to an IDS who drew a bunch of blood in one visit. These specialists rule out all the stuff they need to and then say (diagnosis by exclusion). The diagnosis took one visit but the test for cyclic nuetropenia involved six weeks of weekly blood draws( lots of fun). Steve. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 Hi Im bec and im almost 13 and i have had for almost a year. I have had about 28 - 30 PAGES of blood work done! you name it EVERYTHING and they all come back normal except my CRP which is alway <1 Iv had 3 sets of blood coltures, 6 bottles!!! all the immune ones you can think of! A urine test for Dutch fever syndrom that has to be sent away for 6 weeks. Iv stopped having them for now, YAY!!! but if i dont start to get better its more blood work for me! also i have been on colchicine for 2 months and steroids for almost 2 months, and if they dont work it may be a T & a Removal!!!! Anyway good luck to you and Mikey!! Bec Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 Hi Im bec and im almost 13 and i have had for almost a year. I have had about 28 - 30 PAGES of blood work done! you name it EVERYTHING and they all come back normal except my CRP which is alway <1 Iv had 3 sets of blood coltures, 6 bottles!!! all the immune ones you can think of! A urine test for Dutch fever syndrom that has to be sent away for 6 weeks. Iv stopped having them for now, YAY!!! but if i dont start to get better its more blood work for me! also i have been on colchicine for 2 months and steroids for almost 2 months, and if they dont work it may be a T & a Removal!!!! Anyway good luck to you and Mikey!! Bec Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 Hi Im bec and im almost 13 and i have had for almost a year. I have had about 28 - 30 PAGES of blood work done! you name it EVERYTHING and they all come back normal except my CRP which is alway <1 Iv had 3 sets of blood coltures, 6 bottles!!! all the immune ones you can think of! A urine test for Dutch fever syndrom that has to be sent away for 6 weeks. Iv stopped having them for now, YAY!!! but if i dont start to get better its more blood work for me! also i have been on colchicine for 2 months and steroids for almost 2 months, and if they dont work it may be a T & a Removal!!!! Anyway good luck to you and Mikey!! Bec Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 >Bec and Steve, thank you so much for your feedback. I just cannot believe the amount of blood work you have had to endure. I just can't imagine putting my 4 year old through all of that. I'm hoping that if these fevers keep coming and they rule out Cyclic Neut.; we'll opt for the T & a removal. From the research I've done on the internet, it looks as if the T & a removal helped in 9 out of 11 cases, and drastically lowered the effects of the if it didn't cause it to stop completely. Anyway, Thank you again for sharing!!-Jenn > Quote Link to comment Share on other sites More sharing options...
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