Glad i found everyone

[Guest guest]

hi everyone my name is melissa and my 16 month old daughter was

diagnosed with a week ago. i was skeptical at first since she

never had any of the other symprtoms other than the fever but today,

it looks like she has a sore in her mouth. we were at every 2 weeks

but i dont know, she had a fever for a week, cleared for the weekend

and has been fevering again since monday. her little body goes to 105

and it breaks my heart.tomarrow she starts the Tagamet treatment and

im hoping it works. i want to avoid prednisoe since ive read that the

episodes come closer together. are there any studies at hospitals on

i could get her into? im so exausted as im sure you all have

been. we dont sleep anymore, shes so tired but cant sleep. anyone want

to talk, ill be around or email me! thank you for having this group.