Re: Digest Number 332

[Guest guest]

Dear All,

Pardon my delay in keeping up with the list. I just read yesterday's

digest and am so very grateful for all your wonderful imput about my husband

and how to get him to seek help. Dana, you're suggestions should almost as

if you know him (especially the part about getting the audio tape for him).

, you DO know him - he may respond to your suggestions b/c they come

from a " real: person. Kathy and Kathy - thanks for the imput. The CHADD

chapter here in New Orleans is heavily weighted on children's issues so they

are not my best resource. However, I do plan to work on finding the " right "

dr. through my kids' pdoc as well as my professional sources.

Once again, you all are phenomenal! Thank you!

Gail in N'Awlins

[Guest guest]

Hi. I am a subscriber to a tourettes and autism/tourettes email group. It

was posted on there. The side effects weren't listed. It was only one

clinical study. I am sure it will be looked into further. I found it to be

interesting, too. You can buy the nicotine patches over the counter. I

would imagine the side effects would be the same as those for people who

smoke, decreased appetite, jitters, etc. But, I did not read that. I am

just guessing. Someone emailed me saying Rimland's newsletter had reported

a while back. I don't remember reading it.

Trina

RE: Bewildering Increase In Child Autism Cases - Rash of

Diagnoses

>

> The rash of diagnoses, in my opinion, may well be the awareness of

autistic

> symptoms. (Did that many health professionals see Rainman?) I also truly

> believe there are immune system problems and other physical causes that

> create symptoms in a child making him present as autistic.

>

> When my son was first diagnosed 3 years ago, many of my pediatrician's

> nurses would just look at me blankly when I would discuss his state and

> symptoms. They simply didn't know what I was talking about. One

> occupational therapist thought swinging him on a big swing and fitting him

> for orthotics was the only way she could help. No matter that he screamed

> bloody murder on the swing (he didn't understand what the heck was going

on,

> or why all these big people wanted him on that contraption.) What really

> helped was pragmatic therapy and visual/speech and language and sensory

> integration as well as dietary intervention.

>

> As soon as a parent knows something is wrong, first check with your

> pediatrician. Then do your own research (there is a lot more out there

now

> than 3 years ago!). Remove possible allergens and consider chronic

> infections (like the ear) which lead to chronic use of antibiotics. Get

> your child healthy. If you are blessed (as we were) perhaps the future

will

> be a child that is still somewhat emotionally and socially delayed, but

very

> intelligent. Our son no longer meets the criteria for autism. Perhaps

> another neurobiological disorder will become apparent later in life that

> will explain his developmental delays. I hope not. But in any case,

> accepting what one or two physicians tell you may cost you the possibility

> of recovery.

>

> Let's work together, pray together, and refuse to dismiss alternative

> therapies until proven ineffective rather that just accept the diagnosis

of

> autism and do only the conservative treatments. I remember how I felt

when

> I was handed the pamphlets on " Raising Your Autistic Child " and shuttled

out

> the door of Easter Seals after his evaluation, with no hope in sight. I

was

> actually told by a well respected pediatric development physician that we

> might get lucky, he might have Aspergers and just be " a dork " for the rest

> of his life. She really used the word dork.

>

> Many of these children can improve. It is up to us to look for new

methods

> of helping them be healthy, thus develop neurologically and begin to

> understand their world again.

>

>

> *****

> " It's not people sitting around reading phone books, " he says. " It's

> children in pain. "

> *****

>

>

>

>

>

>

____________________________________________________________________________

___

>

____________________________________________________________________________

___

>

>

>

[Guest guest]

Just my opinion but as a former smoker, (who keeps going back) I would be

hesitant to give a kid, especially one with autism too, a drug as adicitve as

nicotine. I can not even imagine having to deal with my son, who has

tourettes and autism, going through withdrawal!! Some reports say it is more

adictive than herione which given my experience doesn't surprise me.

On the other hand I have to say that my husband who has had problems with

mild/moderate depression, chronic irritability, and mood swings started

smoking again about a year ago. He was doing it on the sly so I didn't know

it for about 3 months but I had noticed that he wasn't depressed anymore and

no more mood swings. It was about 3 months after I discovered he was smoking

that I put 2 and 2 together. He hasn't had a depressive episode and is rarely

irritable since he has been smoking (about 5 cigerettes a day). I told him he

couldn't quit until he saw a doctor and got on some kind of medication!

And the articlke about nicotine was in Rimlands newsletter about a year ago

maybe a little longer. I can't remember the other problems it mentioned that

were helped by nicotine.

JAN

[Guest guest]

Lately I have had pains shooting from the arch of my foot up to my knees.

Then it feels like my foot is trying to pull away from my my leg like the

muscles are stretching. Danieta

[Guest guest]

HELLO!!!

I'm here!!! Just lurking at the moment.....Most of my feet pain

is on the top of my feet above where my arch is....goofy way to explain

it but the only way!! LOL!!

Hugs to all

[Guest guest]

Wow le,

11 pounds..whar are you doing beside the ll? that is great..

my weight loss is very slow..but I guess I have to be happy with it..

at least inches going down...a few more and maybe I won't feel so porky.

this weekend will be a challenge..my son's 21st birthday party..mostly his

friends so I think I'll just do the wine thing..very little food that is not

good..veggies and veggy burgers...

I can handle that.

Ellen

[Guest guest]

steve? are you back + able to receive?

[Guest guest]

> > Oh yes, the problem was not so much receive as I could read

> > at he eGroups web site ( and post) but I couldn't send from

> > home - but it was only this group could post to - strange.

> > Anyway all appears to be fixed now, so I can fill your mail

> > boxes with trivial information.

>

> Actually, lately I've been getting duplicate messages from you,

Steve. Not a

> problem, really, but thought you might want to know.

My apologies, I see the last two have been duplicated. Strange when

my mailer send that they hadn't been sent. Also strange that I not

receiving some of the posts or they are taking a lot longer to get

here.

I do my best not to muck things up, but sometimes the software just

does give you a second chance.

My apologies to one and all once again.

LnL

Steve

[Guest guest]

Steve Howes wrote:

> My apologies to one and all once again.

No apology needed.

Also, I've been wondering what LnL means???

[Guest guest]

> > My apologies to one and all once again.

>

> No apology needed.

>

> Also, I've been wondering what LnL means???

Love aNd Light

Not that there is a place for the opposites, just that most people

wouldn't find 'Hate and Dark' such a friendly message :¬)

Steve

[Guest guest]

Dear Steve

Thanks for all the info - it is so wonderful to have a great guy like you around

- you provide us with some much info that it saves me having to spend hours to

find relevant info on the net.

A friend of mine also struggling with ME or Cron. Fatigue etc just told me that

she has been going for Ultraviolet Blood Iradiation treatment and that she is

feeling much better.

Does anyone know of this treatment and what side effects there could be at a

later stage?

would love to know more.

Best wishes to all

Elize

Johannesburg

>>> borago@... 08/03/00 12:09AM >>>

[Guest guest]

> Dear Steve

>

> Thanks for all the info - it is so wonderful to have a great guy

like you around - you provide us with some much info that it saves me

having to spend hours to find relevant info on the net.

>

> A friend of mine also struggling with ME or Cron. Fatigue etc just

told me that she has been going for Ultraviolet Blood Iradiation

treatment and that she is feeling much better.

>

Sorry poor excuse but I am quite tired at the moment so I 'll just

give these addresses:

http://www.ephca.com/uvbi.htm

http://www.caringmedical.com/photo.html

http://www.thorne.com/townsend/oct/ultraviolet.html

http://www.mamma.com/

http://members.aol.com/liptc/alt.htm

from here:

Ultraviolet Blood Irradiation (oxidative-phototherapy)

Ultraviolet Blood Irradiation (UBI) was first introduced in the

1930s to combat the polio virus, and was ignored in later decades

of medical use. With today's virus resistance to antibiotics UBI

has again emerged.

UBI is intravenously applied by irradiating blood with a

controlled amount of ultraviolet energy in the accepted

therapeutic UV band. This produces a rapid detoxifying effect with

subsidence of toxic symptoms. No harmful effects have been

observed in UBI therapy in thousands of cases of viral infections,

hepatitis, bacterial infections, and many other illnesses.

not sure whether this is directly related:

http://www.madsci.org/posts/archives/oct98/909790089.An.r.html

I haven't read through them to know how relevent they are to your

question, so I hope they are of some help.

LnL

Steve

[Guest guest]

Welcome "

I thing you'll get a great deal of information by Participating, In

addition, yo will have the best support group abatable. We try to share

as much information as possible, as well ass a place to get whatever

suggestions you may come across.

The members may be ahead of where you are, but, some, like yourself

will will be ahead or beyond you in their therapy. But the most

important aspect will be to gain knowledge, have people who " been here

and done that " , to help in any way they can. We are like a family so we

can focus, or direct you to the correct answers you may have now and in

the future.

I think you'll find everyone on the list are here for each other.

While you go through the routine stuff it's nice to know that you have

FRIENDS to ask questions, review current studies, and, in essence

participate in you care.

The facts are that this is a " support " group, to listen, help,

direct, and make sure you are getting best care you can. At the moment,

there are only 2 providers on the list, and that may be beneficial if

you need us. No one is expert, but, by participating, you get a better

knowledge of what the disease is, what should be done, and what others

have experienced.

While many have succeed, others are in an experimental regime.

So, don't be shy, read whatever you can, and never hesitate to ask

any questions. That is why this list serve has done so well. It is the

sharing of information and being able to commiserate with people who may

be able to offer some guidance, and what to expect.

Again welcome, and remember that we want you become part of the

" extended " family. THere is no such thing as a " stupid " question,

especially since the odds are that someone else experienced the same

problems. Marty

[Guest guest]

Marty,

Isn't it about time for your wife to get her 6 month pcr done or are you

waiitng fotr the results? have been thinking of both of you and hope that

she clears the virus, keep us posted.

Suzy

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[Guest guest]

Marty - I have been wondering the same thing it is almost the end of October.

Please share the results with us - wishing you and your wife the best.

Winne

Isn't it about time for your wife to get her 6 month pcr done or are you

waiitng fotr the results? have been thinking of both of you and hope that

she clears the virus, keep us posted.

Suzy

[Guest guest]

Is there any way we, as a group, can register our feelings about this cutback? Theo1415

[Guest guest]

As I understand what I've been reading, it's not congress but

medicare that is putting these cuts into effect on Jan. 1st, 2002...

Congress is asking for an extension while they look into the effects

this will have on the expense of medical care for ICD/Pacemaker

patients as well as chemo patients that now get treated as

outpatients. I would suggest writing to your congressmen... you can

usually do so via the internet... let them know how you feel about

these cutbacks... check out www.congress.org ... you can also read

reports on this matter by doing a search for Medicare cutbacks.

JES in NJ...

Happiness doesn't depend on how much you have to enjoy...

But how much you enjoy what you have

> Is there any way we, as a group, can register our feelings about

this

> cutback? Theo1415

[Guest guest]

Dear Darryl,

I totally know what you mean about being way too young to have these

problems. I'm seveteen, and I was diagnosed with Achalasia last December. I

had the dilations, too, but they didn't offer swallowing relief for more than

a month. Yes, I did have big problems with heartburn. It's because the valve

that is stretched in the dilation to allow food down also allows more food

and acid up, regardless of what you eat. The thing that worked for me was the

myotomy surgery with a fundilplication. Basically, they cut all the muscles

in the esophogus to make a food shoot where food could freely go up nd down

(myotomy) and added a fundilplication or partial wrap to keep food down and

avoid heartburn. It worked out really well. Plus, the surgery is no biggy,

especially since you're young and have no real health problems. I was walking

around the wardthe day after the surgery and was only in the hospital for

five days. After about a month I was running and everything - back to new.

[Guest guest]

well im glad things are good for you. I met w/another gi specialist on tues who said that they are extreemlely frustrated w/my type of illness and so im a bunch of medicine and hoping i dont get worse. I had blood tests today on my throid and like a 1000 other things so I just hope that something turns up thats causing it. My case may be different than yours in that the doc didnt say i have achalasia, he said im having spasms all over my esophagus thats causing me pain etc. You said they cut all ur mucles, but im wondering if u meant they cut the lower sphincter. My problem affects me many times b4 i even eat anything. To be honest w/everyone my life sucks right now, not feeling sorry just being honest, and since ive just got worse and worse ill probably die of this, which would be good right now. If i didnt havent a family or God I would do it myself. But hey its good that you feel good and maybe some day i will but im not counting on it.

-Darryl G.

[Guest guest]

-----Original Message-----

From:

[mailto: ]

Sent: Friday, November 09, 2001 5:13 AM

Subject: [ ] Digest Number 332

To Post a message, send it to: Groups

To Unsubscribe, send a blank message to:

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------------------------------------------------------------------------

There is 1 message in this issue.

Topics in this digest:

1. New report on California farm worker health status

From: Don Villarejo <donfarm@...>

________________________________________________________________________

________________________________________________________________________

Message: 1

Date: Thu, 08 Nov 2001 14:55:17 -0800

From: Don Villarejo <donfarm@...>

Subject: New report on California farm worker health status

Hi Everyone - Several people have contacted me regarding how to obtain

copies of the new report on the California Agricultural Worker Health

Survey. The first run of print copies has been depleted and a new print

run is now planned. In the meantime, I decided to post the Word 2000

text

file and the Excel 2000 graphics file with this message as the simplest

and

least time-consuming way to make the report available. The two files

are

not large (~250k in total) so folks should not be burdened by long

downloads. They can be easily deleted if you don't want them.

The attached files were used to prepare the print edition. The report

was

initially presented as an invited paper at the U.S. Mexico Symposium on

Migration and Health, October 19, 2001, sponsored by the California

Policy

Research Center at the University of California, Berkeley, as a part of

their California Program on Access to Care (CPAC).

Warm regards,

Don Villarejo

----------

[This message contained attachments]

________________________________________________________________________

________________________________________________________________________

[Guest guest]

Hi Don,

I failed to receive the attachments. Could you resend them? Thank you.

ybice@...

Bice

Central Valley Health Network

1025 Ninth Street, Ste. 217

Sacramento, CA 95831

(916) 552-2846

-----Original Message-----

From: Quick, [mailto:cquick@...]

Sent: Friday, November 09, 2001 9:19 AM

Subject: RE: [ ] Digest Number 332

-----Original Message-----

From:

[mailto: ]

Sent: Friday, November 09, 2001 5:13 AM

Subject: [ ] Digest Number 332

To Post a message, send it to: Groups

To Unsubscribe, send a blank message to:

-unsubscribe

------------------------------------------------------------------------

There is 1 message in this issue.

Topics in this digest:

1. New report on California farm worker health status

From: Don Villarejo <donfarm@...>

________________________________________________________________________

________________________________________________________________________

Message: 1

Date: Thu, 08 Nov 2001 14:55:17 -0800

From: Don Villarejo <donfarm@...>

Subject: New report on California farm worker health status

Hi Everyone - Several people have contacted me regarding how to obtain

copies of the new report on the California Agricultural Worker Health

Survey. The first run of print copies has been depleted and a new print

run is now planned. In the meantime, I decided to post the Word 2000

text

file and the Excel 2000 graphics file with this message as the simplest

and

least time-consuming way to make the report available. The two files

are

not large (~250k in total) so folks should not be burdened by long

downloads. They can be easily deleted if you don't want them.

The attached files were used to prepare the print edition. The report

was

initially presented as an invited paper at the U.S. Mexico Symposium on

Migration and Health, October 19, 2001, sponsored by the California

Policy

Research Center at the University of California, Berkeley, as a part of

their California Program on Access to Care (CPAC).

Warm regards,

Don Villarejo

----------

[This message contained attachments]

________________________________________________________________________

________________________________________________________________________

[Guest guest]

Evan wrote:

>Hi. My name is Evan. I have a question for the group. I've been

>ordering palm oil along with my orders of coconut oil from tropical

>traditions for a while now. When I ran out last week I noticed that

>their palm oil is now backordered. Does anyone else know of other

>sources for virgin palm oil? Ok thanks in advance.

Hi Evan. I see that Alobar answered your question, but I have one for you.

What does the palm oil taste like, and how do you use it?

Thanks.

~~ Jocelyne