My 15 year old daughter..

[Guest guest]

I don't know if I feel relief or deep sadness when I read this group

letter. My 15 year old daughter began getting high fevers and throwing

up at the end of September. We took the regular courses thinking it a

virus, and went the gambit of antibiotics, even though it wasn't

diagnosed as an infection.

In December when she continued to be ill in this every 2 week cycle, we

brought her to the ER with a 105. temp; She remained in the hospital

for 4 days of blood and urine tests, and x-rays, and bone scan. All

tests came back negative!!! They had her on IV antibiotics for 3 days

and sent us home with 10 more day supply by mouth. All of her organs

checked out perfect, we tested for Hepatitis, all immune system tests

were perfect. They sent her home on the 4th day with 101. fever and

said she is a " perfectly healthy teen. "

Four weeks went by and no sickness. We thought YES! they knocked it

out once and for all. Then week 5 she became ill again, throwing up in

the middle of the night (always starts during sleeping hours) and high

fever. The strangest part was that she had 102.4 and after one dose of

Motrin it disappeared.

One week later she was ill again. This time we took her to the Chief of

Staff for infectious disease at Tx Children's Hospital. He noted that

her lymph glands were slightly swolen in her neck, and a blood test

showed positive for inflammation. He discussed the potential diagnosis

of a " Periodic Fever Syndrome " . Her IgD test came back clear.

I have been talking with a co worker about a Holistic approach, but am

not sure. My daughter also gets severe leg muscle aches, as well as the

other symptoms, but so far has not has mouth blisters. At this point, I

am just trying to reduce the symptoms for her. I want to find natural

recipes using essential oils for leg massages. I have also started her

with massage therapy for deep tissue. We feel like we are preparing for

war. A beautiful almost 16 year old about to get her driver's license,

and this has begun to affect every area of her life, and the family's.

It is very sad for us right now, and we are just trying to come to grips

with it. She has missed 24 days of school since October, and I've

missed 13 days of work since October. No one I know can understand the

ramifications of something chronic like this. It will be great to talk

with others who can relate.

Thanks for making this forum! I can already see that I am going to

learn a lot here.

Debi

Chelsea's Mom

Katy, Texas