Feeding Issues

[Guest guest]

I just have a question for other parents.... Again, my son was

diagnosed with at 2 1/2, and at almost 8 is still having the

cycled fevers. I am very curious to know if there are many kids out

there that have that also have feeding and eating issues. Our

son has had a feeding tube since he was 6 months old. He had a very

hard start to life due to a heart condition and had open heart

surgery at the age of 4 months. Many complications later and 3 weeks

of being flat on his back without eating orally cause a huge feeding

aversion. He literally would throw up if we touched his mouth with a

bottle. We struggled through that for a couple months but then had a

feeding tube placed at 6 months of age. It was at about 1 1/2 years

that the cycled fevers began. He has been labeled failure to thrive

and is a month away from being 8 and weighs 43 lbs. The more posting

I read makes me wonder if this feeding and appetite issue he still

has could somehow be related to the . So just looking for

comment from anyone else. He doesn't suffer from GI problems, just

has no interest in eating, and no appetite.

If anyone out there has any comments, I would love to hear them.

Maybe someday this whole puzzle will come together.

Thanks,

Patti, mother of Brady 7 1/2