Guest guest Posted April 4, 2006 Report Posted April 4, 2006 DEAR FRAN, I AM GALD TO SEE THAT YOU HAD QUITE POSITIVE NEWS FROM THE NIH ABOUT JOSEPH AND HIS DIAGNOSIS, SORRY I HAVENT BEEN IN TOUCH RECENTLY BUT THINGS ARE CRAZY AT THE MOMENT WITH FYN. HE HAS HAD A ROUGHT TIME WITH THE ANAKINRA AND WAS EXPOSED TO CHICKEN POX AND BECAUSE OF HIS PREDNISOLONE DEPENDENCY HAD TO HAVE INJECTIONS TO GIVE HIM A TEMPORARY IMUUNITY TO IT. ANYWAY, I HAVE FOUND OUT SOME INTERESTING NEWS FROM MY MUM THE OTHER DAY THAT I THOUGHT I WOULD SHARE WITH YOU ALL. IT TURNS OUT THAT MYSELF AND AND ALSO BROTHER AND SISTER HAVE ALL HAD OUR TONSILS REMOVED BEFORE THE AGE OF THREE DUE TO EVERY MONTH HAVEING VERY LARGE TONSILS, AND HIGH FEVERS. WE WERE ALL PERSCRIBED ANTI-BIOTICS AND PAIN KILLERS EACH OF US HAD PERSISTANT SYMPTOMS AND WE ALL EVENTUALLY HAD OUR TONSILS REMOVED WHICH SOLVED THE PROBLEM. I DO FIND THIS INFORMATION QUITE REMARKABLE , ALTHUGH I KNOW FYNLEY HAS NOT GOT DUE TO THE RASHES AND OTHER SYMPTOMS IT DOES MAKE ME WONDER IT THESE PERIODIC FEVERS ARE RELATED. I HOPE JOSEPH IS WELL AND YOU AND THE FAMILY, HELLO TO ALL LOL LISA FYN'S MUMMUY Quote
Guest guest Posted April 5, 2006 Report Posted April 5, 2006 I am wondering how many of the parents have had their tonsils out as children. I was a healthy child - - but seemed to fall apart at the seams around 7th - 8th grade. I had my tonsils out at about age 16. Ellyn Mom of possibly (5), Alyssa(8), and Kate(3) Philadelphia, PA " glastonbury_02 " <glastonbury_02@...> Sent by: 04/04/2006 05:45 PM Please respond to cc: Subject: DEAR FRAN DEAR FRAN, I AM GALD TO SEE THAT YOU HAD QUITE POSITIVE NEWS FROM THE NIH ABOUT JOSEPH AND HIS DIAGNOSIS, SORRY I HAVENT BEEN IN TOUCH RECENTLY BUT THINGS ARE CRAZY AT THE MOMENT WITH FYN. HE HAS HAD A ROUGHT TIME WITH THE ANAKINRA AND WAS EXPOSED TO CHICKEN POX AND BECAUSE OF HIS PREDNISOLONE DEPENDENCY HAD TO HAVE INJECTIONS TO GIVE HIM A TEMPORARY IMUUNITY TO IT. ANYWAY, I HAVE FOUND OUT SOME INTERESTING NEWS FROM MY MUM THE OTHER DAY THAT I THOUGHT I WOULD SHARE WITH YOU ALL. IT TURNS OUT THAT MYSELF AND AND ALSO BROTHER AND SISTER HAVE ALL HAD OUR TONSILS REMOVED BEFORE THE AGE OF THREE DUE TO EVERY MONTH HAVEING VERY LARGE TONSILS, AND HIGH FEVERS. WE WERE ALL PERSCRIBED ANTI-BIOTICS AND PAIN KILLERS EACH OF US HAD PERSISTANT SYMPTOMS AND WE ALL EVENTUALLY HAD OUR TONSILS REMOVED WHICH SOLVED THE PROBLEM. I DO FIND THIS INFORMATION QUITE REMARKABLE , ALTHUGH I KNOW FYNLEY HAS NOT GOT DUE TO THE RASHES AND OTHER SYMPTOMS IT DOES MAKE ME WONDER IT THESE PERIODIC FEVERS ARE RELATED. I HOPE JOSEPH IS WELL AND YOU AND THE FAMILY, HELLO TO ALL LOL LISA FYN'S MUMMUY Quote
Guest guest Posted April 5, 2006 Report Posted April 5, 2006 I had to have my tonsils removed by the 5th grade cause I was ill even as a child. sacora ellyn.trickey@... wrote: I am wondering how many of the parents have had their tonsils out as children. I was a healthy child - - but seemed to fall apart at the seams around 7th - 8th grade. I had my tonsils out at about age 16. Ellyn Mom of possibly (5), Alyssa(8), and Kate(3) Philadelphia, PA " glastonbury_02 " <glastonbury_02@...> Sent by: 04/04/2006 05:45 PM Please respond to cc: Subject: DEAR FRAN DEAR FRAN, I AM GALD TO SEE THAT YOU HAD QUITE POSITIVE NEWS FROM THE NIH ABOUT JOSEPH AND HIS DIAGNOSIS, SORRY I HAVENT BEEN IN TOUCH RECENTLY BUT THINGS ARE CRAZY AT THE MOMENT WITH FYN. HE HAS HAD A ROUGHT TIME WITH THE ANAKINRA AND WAS EXPOSED TO CHICKEN POX AND BECAUSE OF HIS PREDNISOLONE DEPENDENCY HAD TO HAVE INJECTIONS TO GIVE HIM A TEMPORARY IMUUNITY TO IT. ANYWAY, I HAVE FOUND OUT SOME INTERESTING NEWS FROM MY MUM THE OTHER DAY THAT I THOUGHT I WOULD SHARE WITH YOU ALL. IT TURNS OUT THAT MYSELF AND AND ALSO BROTHER AND SISTER HAVE ALL HAD OUR TONSILS REMOVED BEFORE THE AGE OF THREE DUE TO EVERY MONTH HAVEING VERY LARGE TONSILS, AND HIGH FEVERS. WE WERE ALL PERSCRIBED ANTI-BIOTICS AND PAIN KILLERS EACH OF US HAD PERSISTANT SYMPTOMS AND WE ALL EVENTUALLY HAD OUR TONSILS REMOVED WHICH SOLVED THE PROBLEM. I DO FIND THIS INFORMATION QUITE REMARKABLE , ALTHUGH I KNOW FYNLEY HAS NOT GOT DUE TO THE RASHES AND OTHER SYMPTOMS IT DOES MAKE ME WONDER IT THESE PERIODIC FEVERS ARE RELATED. I HOPE JOSEPH IS WELL AND YOU AND THE FAMILY, HELLO TO ALL LOL LISA FYN'S MUMMUY Quote
Guest guest Posted April 5, 2006 Report Posted April 5, 2006 Ellyn I do not know how many people have had tonsils removed. From the few surveys returned (about 50) approximately 5% of kids who have been treated for have had their tonsils removed. From that percentage.... there is a 40% success rate. I have not had any new members return surveys in many many many months. It is difficult to get an accurate success rate nevertheless, since some of the people who go for tonsil removal have not had genetic studies thus leading to inaccurate failure rates. God Bless Fran Fran A Bulone Mom to ph 6 yrs old Waxhaw, NC Owner & Moderator Group Quote
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.