Resunken eyes

[Guest guest]

Eva, gets sunken eyes and dark,dark cirles,

under his eyes before and during his episodes. I call

it raccoon eyes. Cheri

--- Jeff <evakirstie@...> wrote:

> Hi, My son seemed to be older too when he started.

> He

> started when he was 6. He is 7 1/2 now. He will

> have

> fevers every 2 weeks but most of the time they are

> all

> over the place. Just keep that fever log for the

> doc's. My I.D. doc said he fit all the profiles of

> but is hesitant to diagnose him because he was

> so old when he started levering. I would also like

> to

> know if anyones child started later on. Eva

>

> --- Cheri Payton <mycheribaby@...> wrote:

>

> > Hi ,

> >

> > Thanks for your reply. sent a few words to

> > Josh...hope he gets it. Are you guys from CA? If

> > so...where? We live in Galt, CA. Just south of

> > Sacramento. Did you mention that Josh was

> > diagnosised

> > with FMF? or ? I'm having a hard time

> > remembering everyones different stories. I'm

> > feeling

> > overjoyed at learning so much from others and

> being

> > able to connect with others going through the same

> > thing I am, but at the same time I feel a little

> > over

> > whelmed too. I don't understand why 's

> fevers

> > are not like clock work...he has only had 6

> episodes

> > so far...the first two were 11 days apart...then

> > 75,19,20,64...do you see any kind of pattern? I'm

> > really confused...he's older than anyone else(when

> > he

> > started his fever's) and there doesn't seem to be

> a

> > pattern of his fever's. Yet...All his symptons

> > match

> > the other kids who have . Maybe it's to

> early

> > to

> > try to figure things out. I need to be patient

> and

> > keep researching. Sorry for unloading. Cheri

> >

> > --- & <bgatesjr@...> wrote:

> >

> > > Hi Cheri,

> > > Josh will be 8 in Oct. We just made a decision

> to

> > > try pred. his next episode. Our ID is VERY

> leery

> > so

> > > we will take him in to make sure he isn't just

> > > " sick " . As far as school and fevers go...our

> dr.

> > > said same thing that maybe it's stress, but we

> > have

> > > been charting since before he started school and

> > the

> > > pattern was the same so, who knows. We have not

> > > been to NIH yet. We were told it was going to

> > take

> > > about 1 yr. We've already dealt with it this

> long

> > > and it doesn't seem that he's " out-growing it "

> > > (we've heard that since he was 3, lol) so we'll

> > > wait. Depending on the next few months and how

> > > things go with the pred, we are scheduled for

> > > tonsillectomy in December. Done some reading

> > > from...Israel researchers, but of course our

> dr's

> > > are not for it, said same as yours. Anyways,

> good

> > > to hear from someone with same symptoms. Thanks

> > for

> > > responding.

> > > , Josh SD, CA

> > > RE: Fever free for 5 and a

> > half

> > > months

> > > >

> > > >

> > > > Us too! PJ usually stops fevering in late

> May,

> > > early June and the

> > > episodes resume in mid-September. Weird, huh?

> > This

> > > has been his

> > > pattern for the past several years.

> > > >

> > > > Pat, mom to PJ, 13yo, clinical FMF

> > > >

> > > >

> > > > ---------------------------------

> > > > Get your own web address for just $1.99/1st

> > yr.

> > > We'll help.

> > > Small Business.

> > > >

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> > __________________________________________________

> >