NIH Appointment in July

[Guest guest]

We (Jonah, his dad and I) will be at the NIH for our second visit on

Tuesday, July 18th.

I think this time we will fly in a few days early and do some sight-

seeing -- try to make something positive out of all of this. Then

check into the Childrens' Inn on July 17th for the night and have our

appointment, which is at 10 a.m. on July 18th.

If anyone else is going to be there early that week, let me know and

perhaps we can meet.

When I made this appointment with Plass last week, she told me

that the FMF blood test came back negative, but the results of the

TRAPS and Hyper IgD blood tests haven't come in yet.

Thanks.

Chad, mother to Jonah, age 5 with diagnosis to date.

(Tampa, Florida)