Guest guest Posted August 28, 2006 Report Posted August 28, 2006 Hi Fran and everyone I have just been to my doctor and he has finally agreed to put my son onto cimetidine after 9 years of fighting but he needs to no as much information as possible like what dose for a 9 year old other children are on all names it is call like scientific names genetic names etc how often to take how long children are on it for could anyone please help me thanx Anne Goodin mother of Koby-Dean (9) ---------- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.394 / Virus Database: 268.11.6/428 - Release Date: 25/08/2006 Quote
Guest guest Posted August 29, 2006 Report Posted August 29, 2006 Re: For Fran Anne, Where are you located? Just wondering. LOL Fran Fran Bulone RN Mom to ph 7yr Waxhaw NC / Quote
Guest guest Posted October 2, 2006 Report Posted October 2, 2006 Fran, I am so sorry we did not get to say good bye at NIH. Email me. kathebarch@.... I hope your time in New York was great! It was fun to meet the family from Canada. Have you heard from them? Kathe Barchus, mom to Isaac with unknown PFD Re: Update on Kianna Azzie, I am so happy to hear from you. Great news about the Cimetidine... It is definitely a medication worth the try for 6 months! If it works... no thought of surgery!! And congrats about Bella! Yes we chatted on the telephone and an email after her birth so I did know her name! Send a picture of the kids to my email when you have some time !! Stay well... With Love and best regards, Fran Fran Bulone RN Mom to ph 7yr CIAS1 mutation 11/05 Waxhaw NC / Quote
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