New to the group

[Guest guest]

Hello All my name is and I have two children who I suspect have some form

of PFS.

My daughter Ashlyn is 3 and her episodes started at 8months old. She got her

first

episode when she cut her first teeth. A very high fever 103-104 and high WBC

count.

Doctors ran the standard tests, urine, blood culture. Nothing showed up. This

continued

every time she cut teeth and after about the 3 time doing all the standard tests

and

everyting coming back negative they told me that is was a virus. When she gets a

fever she

acts fine except for being really tired and complaining that her neck hurts. She

always

grabs the back of her neck and acts as though it's stiff. She has also had knee

pain. Every

fever seems to differ in severity but never vomitting or diarrhea. My son Teagan

is 11

months old and his fevers started at 7 months again when he cut his first teeth!

His first

fever they did all the same routine tests and came up with nothing. His fevers

tend to get

higher than my daughers last night it capped at 105.5 for about 12-13 hours. I

thought I

was imagining things and I kept telling the doctors that it must be from

teething because

my daughter had the same thing. Well now that he has had 3-4 episodes and my

daughter

continues to get them and she has all of her teeth...I'm starting to worry and

I'm feeling

frustrated that I get the " it's a virus " answer. My children act happy and

fine..they do eat

and drink..although it's not very much when they are ill. We just moved to

Colorado from

FL about a month ago and I really like the pediatrician here. He is the first

one to mention

PFS to us. We are trying to get the records together and are going to be getting

a

recommendation next Wednesday for an Pediatric ID doctor in Denver. If anyone

lives in

this area and can recommend I would love to hear your thoughts! I'm feeling

exremely

overwhelmed kinda like I'm in the twilight zone! We moved here away from all of

our

family and support in Florida so I'm struggling with having to be there for both

my kids on

our own!