Colchicine Question

[Guest guest]

Hi Everyone

I was wondering if anybodies child is currently taking or has taken

colchicine. Hannah is currently on it. Her fevers have gotten a

little better and the fatigue is better but I can't be sure if it is

the medicine or just her normal cycles. Her joint pain and swelling,

rashes and constipation is the same. She tends to have a temporary

break following a particularly bad episode which she had in October

and November. We were recently at NIH and they have decided to leave

her on it for another 3 months to be sure. However, my question is

about behavior. Hannah was put on the colchicine this past

November. Since then she seems to be very excitable and has crying

episodes which she also had when she was on the prednisone. It is

not her normal behavior. So I was wondering if anyone elses child

has reacted to the colchicine that way? I am trying to determine if

it is the medicine or if she is just going through some kind of phase

that 4 year olds go through. I do notice her hyper behavior is worse

in the afternoons following her second dose of medicine. Of course,

I have considered that maybe the medicine is just making her feel

better and I am just not use to her feeling well enough to have so

much energy. Just would like to hear from some other parents

opinions on it. Thank you!

Carey

Mom to Hannah Rose 4 years old not yet diagnosed.

ville, TN