NEED ADVICE

[Guest guest]

HI EVERYONE-

I need some advice. I am stuck and don't know what to do.Okay I have

talk and talked to the doctors here and am getting nowhere with

nicolas. He has been getting more fatigued, , tired especially with

activities, he is complaining now of always feeling like he is gonna

pass out(dizzy and lightheaded), he says he has been getting blurred

vision, headaches, joint pains, stomach pains this is going on alot

and even more symptoms since getting his tonsils out. I spoke with

his pediatrician today and she said she will see him on Friday and

see about a second opinion cause she is stump with knowing what is

going on with him. She said she can send him to a Rhematologist

again and the ones here deal with mainly adults do you having any

ideas at this point?Could you see him again?What do you think? I am

trying to get him back east to get thermal testing but haven't heard

anything and it can take up to 18 months. Curious could it be

leukemia or something like that? The RHematologist here thinks I

have TRAPS and not the FMF but they are not sure. My doctor tested

my IgD and it is still elevated. Please let me know what you think

if you would see him or if you know someone that would see him there

that would be good to help us.

Thank you

Sacora