Re: Re: Cimetidine--WOW- Hi Kathy

[Guest guest]

Hi Kathy,

started getting the fevers when he was four and everytime I went to the

pediatric doctor they told me that it's viral. We went a year before they

suggested I see an Infectious disease specialist. It was the hardest year I've

ever had. The only remission had before treatment was last summer we

went 8 weeks but then it just started right back up at the 2-3 week periods. I

couldn't thank the specialist enough either. After he was diagnosed I came

right home and found this group. It was very supportive and helpful to know

there were others out there with the same problems. We were very fortunate in

the fact that only had fevers not other symptoms, but the fevers would

run as high as 106 and that was scary especially since he also had fibrel

seizures since he was 18 months old and I think we have now grown out of that

now. Stick with it I've been told it does work in most cases.

ann

Cimetidine--WOW, it really works!!!

>

>

>

> Hi!

>

> I haven't been on to check posts in a while (I guess that's a

good

> thing...I usually am on whenever my son, ny, is sick). Just

> wanted to share with anyone considering to start using

Cimetidine.

>

> ny, who was finally diagnosed with in Oct. 2004 (at

the

> age of 27 mos.--he started at 7 mos.) was recently put on

Cimetidine

> daily and has only had 1 fever since he started the meds on Jan.

> 31. Today is 5 weeks (and counting!!!) since his last episode

> started. That may not seem especially long to some of you, but

he

> was having episodes every 2 weeks before then. I am so

ecstatic!!!

> He's only had 1 fever in the last 8 weeks! And, the fever he

had

> was most definitely of lesser intensity and his appetite was not

> nearly so poor.

>

> This stuff is a miracle! I had read that the " magic number " for

> this drug to take effect is 6-8 months, but with ny it

seemed

> almost immediate. Have any of you had similar experiences?

Oddly,

> though, during his last, less severe episode, he got mouth sores

(2

> HUGE ones). During all the episodes he had for the last 2+

years.

> he had only gotten a small mouth sore one time. I just thought

it

> was weird to have them now, right after he started the

Cimetidine.

>

> I continue to be positive and hope for the best. He seemed to

have

> had 1 or 2 " silent " episodes since his last fever, in which he

was a

> little pale, gagged on his food a little, and was a bit cranky

(but

> no actual fever!). But, if that's what we're going to be

dealing

> with from now on until he outgrows this...then fine and dandy

with

> me! His quality of life will just be that much better and he

won't

> miss out on all the fun stuff. He's going to start preschool

soon

> and it would be so much better for him to not miss school. It

> always killed me to see him suffer so much during his fevers.

(I'm

> sure you all feel the same with your children.) I hope and pray

> that this Cimetidine will keep us from such suffering for a

long,

> long time.

>

> Anyway, just wanted to share in my joy. I hope this good luck

> streak lasts for us. I hope your doctors consider this very

benign

> treatment option for your children, too, if they haven't already.

>

>

> Good luck to us all...

> Kathy, Mom to ny (32 mos.)

> Vienna, VA

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