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NIH appt

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Hi there,

My son Mason (2 yr) and daughter Madison (3 yr) have their appts at NIH on Aug.

2nd. For those of you that have already gone...what paperwork do I need to

bring? I already had faxed their info and their ID doc also faxed information.

We got the appt pretty quick so nothing much new is going on with them other

than they get a fever, we give prednisone, and then it goes away. So other than

a list of their episodes, what else do I need if everything has already been

faxed? My daughter is on day 43...she has never gone past day 46...it would be

kind of nice if she would have one when we get there. She has had 11 fevers

since Nov. 04. My sons fevers are really slowing down. He's only had 3 fevers

this year so far and only had 5 fevers in 2004. I can't wait to talk with Drs

who won't be blowing me off but that will actually be interested! Any advice on

our trip would be greatly appreciated!

Austin, Tx

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