introduction

[Guest guest]

I am glad to have found this list. I feel so overwhelmed currently

and just feel so frustrated. Let me first give an intro on myslef. My

name is Marie Mac and I have two children Madalyn age 9 and

(10 mo almost 11 mo). has been very healthy since he

was about 4 mo old. He never even had a ear infection yet! When he

was 8 mo old my milk dried up so we stopped breastfeeding. He started

to use formula. In June 2004 he developed a high fever 107.8! We took

him to ER they said he had pneumonia which I thoiught was werid since

has hasn't even wheezed. They tried to get him an IV and evetually

succeded. They gaev him a shot of rosephin and tried to send us home.

I raised a big deal since he wasn't eatign and drinking and they

were going to send us home and todl us to give him an antiboic and

switch Ibu and tylenol every 4 hours. They called my reg doc and the

doc requested they send us to Cook's children hospital in Fort Worth,

TX. An ambulance took us there. After the doc looked him over he said

he only had a virus and sent us home after givign him a full dose of

Iv's and more intraveinous antibotics. The fever evetualy subsided

and he was back to normal. In July he got fever again this tiem

highest was 106.9. He had diarehha this time. First tiem he had it

there were no other symptoms. They checked him for a lot of different

things. He had a cat scan and upper and lower GI. They thought he

had C-dif and sent off culture and it was neg. They thought he had

crohns and that was teh reason for the GI's. He was in hospital 5

days. He was really dehydrated with this one too and had a hard time

with Iv's and takign blood. IN Aug he got in again and thsi tiem it

was highest 106.8. No other symptoms. I called doc and he called

infectious disese doctor at Cook's CHildrens. We went to ER and saw

an ER doc since Infectiuos doc was not able to make it in that night.

They gave him ibuprofen adn took labs. The doc saw him while he was

actibg okay since fever was down and said it probably a virus adn

will send us home. I just lost it and asked him why would he send a

baby hoem with high fever that is not eatign or drinking? Adn

stressed to him again thsi was not a virus and he gets it regulrly.

He seemed to clow us off and said he'd wait for labs. s fever

went up again to 106. He got like a " hot puddle " just floppy and

weak. I todl them to call that doc in to look at him. He came adn

was as he said " quite impressed with difference " . He also said white

blood cells were high and so were sed? test results. He said he woudl

call the infectiuos disesae doc again. Suprise, Surprise they

admitted us. He was in for 4 days and was very dehydrated. At one

tiem the only place they could take blood or get an IV in was his

head. He's always perk right up when fever was down due to meds but

wasn't eating or drinking till 4th day hospital stay and 5th day

illness. THey checked him from everything from HIV to Cat scratch

fever. The doctor thinks he has and sent us hoem with a

prescription for steroid just in case. We are suppossed to call her

when he has next episode because she wants to see him when it first

starts. She'd liek to administer Steroid if its during week or she's

on call but she gave us a steroid prescription just in case we aren't

able to see her. He is fine for now and we just dread the next three

to four weeks. Do you all have so many problems with dehydration? Do

your kids have to be hospitalized frequently? How well does the

steriod work?

Marie

Mom to 10 mo (almost 11 mo), and Madalyn age 9 in

ville, Texas