Re: Adult son with Asperger's

[Guest guest]

I have had very good help from a Homeopath, my personaly rewarding experience, natural chelation for my OCD son worked. ng

Adult son with Asperger's

I need help. My son has not only Asperger's but many chronic ailments. He has chronic diarrhea and abdominal pain, he has chronic pain throughout his body, he has a tremor in both hands, he has deformed ankles, he has chronic maigraines, insomnia, chronic fatigue. His life consists of lying in bed trying to sleep most of the day and if he feels a little better which is rarely, he uses the computer to play games. His pain is constant and everything hurtst. As a mother I have watched my son deteriorate everyday. I have taken him to gastroenterologists, neurologists, psychologists, allergists, ear nose and throat doctors, etc. to no avail. He is on pain medications, sleep medications and only gets minimal relief from his pain,. I do not know what to do. Can someone please help me.

[Guest guest]

Where do you reside? I live near

Atlantic City, NJ. There do not seem to be anyone with anyexpertise

in this subject. Do you know of anyone in this area?

Could you give me the name of your neuropath?

Thanksf

[Guest guest]

Driving a long distancesf especially

5 hour trip both ways a few times a week when you have a 9 hour a

day job. Then couple that with a son that is chronicly ill and spends

3 hours a day on the toilet, doesn't sleep at night and tries to sleep

during the day. A lot of days he can not even keep his regular appointments

with his Doctors who are only 20 minutes away. I risk loosing these

doctors when you cancel appointments so many times.

I am a widow, my husband passed away

1 year ago with lung cancer. I have to take care of my son and work.

I have noone to help me.

I am just tsrying to keep my son alive.

None of these doctors have any clue how to help my son. I

[Guest guest]

I never spoke with Rick but I spoke

with Neubrander.

[Guest guest]

I have already had a comprehensive stool

anaylis done and many other test throughSmokey Diagnostics. It showed

had clostridium at one time, celiac disease, and high levels of yeast.

The doctor tried Nystatin but did not help. He ws treated for

Lymes Disease and had an IV in his arm for 2 months. That did not

help. He has had 3 colonoscopies which indicated that he had Gastritis

and a past infection. He has had every conceivable neurological test.

He has been diagnosed with Reflex Sympathetic Dystrophy, Myotonic

Diystrophy (which is the same as Muscular Dystrophy. He has chronic

pain throughout his body, cannot sleep at night and tries to sleep during

the day. He has a very poor quality of life. He has no friends.

I am the only person he has. My husband passed ago 1 year ago.

II work 45 hours a week and run to doctors,

psychologists, psychiatrists, dentist, behavioral optometrists, neurologists,

ear nose and throat doctors, allergists, occupational therapists, physical

therapists, Endocrinologists He is really now to sick to go anywhere. He

lost 21 pounds and is very skinny. I am afraid he will not live.

I will try a DAN doctor at this point

in time if I can get my son out of bed.

Thank you for answering my e-mail. Please

keep in touch.

[Guest guest]

Thank you for your input. I will

listen to the doc's speak. Take care and keep in touch.

[Guest guest]

I have alrady been told that the doctor

wanats to see my son in person before he treats him. Dr. Neubrander

said the same thing. My son is too ill to travel

[Guest guest]

Elaine, I don't know of any DAN! visits that are several times a week.

It's closer to several times a year, and many of them will do phone

consultations.

I'll tell you what (parent-to-parent, I'm not a medical professional

or offering medical advice) you could start off with a $500

comprehensive digestive stool culture with parisitology from

www.directlabs.com & learn a LOT. You'd have to pay out of pocket,

though. Is there any chance you could talk your local doctor into

paying it.

Have you put him on a gluten-free, casein-free diet? Do you know what

that is? It's okay if you don't, we can explain it to you. It sounds

like he could have parasites, bacteria, or even celiac.

May I ask why he doesn't keep his appointments? Is it because he's

sleeping or having bowel movements? I can imagine he's probably so

depressed it's hard to keep appointments if he feels it's another dead

end.

I'm so sorry about your situation. I know it's hard. One of my best

friends lost her husband to lung cancer 3 days after their daughter's

first birthday. She had no job & her family was 4 hours away. I know

it's not easy, there were many times that friends offering to feed

them & their landlord giving them breaks on rent was how they

survived. I know it's not easy.

Debi

>

[Guest guest]

I have already had comprehensive stool

analysis performed by Smokey Diagnostics and it was paid for by Medicaid.

My gastroenterologist also ordered stool testing but did not come

up with anything. However, the Smokey tests showed Celiac Disease

and high levels of yeast. My son went on Nystatin and it did not

help him.

As for going to see a doctor that is

miles away, the day I would have my appointment my son could not get out

of bed and he did not sleep the many days before and was too tired and

if e did get up he would go to the bathroom and repeatedly move his bowels

with bouts of diarrheat. He also frequently urinates. By the

time he can get out of the house it is around 5PM in the evening. Very

rarely can he go anywhere at an earlier time. I am living a very

difficult life and I go to the enth degree to make things happen. But

it never does.

[Guest guest]

Elaine - YOU CAN DO THIS. Of course the doc wants to meet your son. No

one diagnosis over the phone.

Unless your son has a broken back I can not see how he is too sick to

travel.

This is not an easy journey - you're close to getting him help - now

you'll need to find family or friends who will HELP YOU to help your

son. FInd three people who will ride in the car with you. Plan a day

trip to Edison to Dr. Neubrander. One day of discomfort is far better

than a lifetime for a young man to suffer.

You went through labor to deliver him - that took pain. Pain with a

purpose. Think of this as the very same - pain for progress.

If you continue to say your son is too sick to travel to a doctor then

this really isn't the list for you. We ACT for our kids. You can

too. It's hard. It's ugly. It sucks that we have to do it.

Now schedule that appointment or live with your son's pain. Those are

your choices, Elaine. You've asked for help. Many have offered a

starting point. The rest is up to you.

God Bless,

Kim (channeling a little Holly.)

Dr. Neubrander said the same thing. My son is too

> ill to travel

>

[Guest guest]

Put him into an adult diaper and drive. He doesn't have to live like

this. You can do it, Elaine. We're not giving up on you or him.

[Guest guest]

Okay, where do you live? Maybe some listmates nearby can help?

Barb

Re: Re: Adult son with Asperger's

Driving a long distancesf especially 5 hour trip both ways a few times a week when you have a 9 hour a day job. Then couple that with a son that is chronicly ill and spends 3 hours a day on the toilet, doesn't sleep at night and tries to sleep during the day. A lot of days he can not even keep his regular appointments with his Doctors who are only 20 minutes away. I risk loosing these doctors when you cancel appointments so many times. I am a widow, my husband passed away 1 year ago with lung cancer. I have to take care of my son and work. I have noone to help me. I am just tsrying to keep my son alive. None of these doctors have any clue how to help my son. I

[Guest guest]

I live in Atlantic City, New Jerseyj.

I can't seem to find anyone.

I appreciate your help.

[Guest guest]

Is he not getting out of bed because he can't physically move or

because he doesn't want to? The too tired thing seems like an excuse

to me. Please don't think I'm bashing you or him at all, that's not my

intent. But if he can get up and go to the bathroom repeatedly he can

walk from bed to car, can he not? He has to be willing to work with

you, you cannot do it all by yourself.

Have you tried any sleep aids like 5-hydroxytryptophan or melatonin to

help him sleep? Is he drinking caffeine? I asked in an email to you,

is he following the celiac diet to a T? Even tiny infractions can have

disasterous consequences. I

You can also take a portable potty for him to sit on in the vehicle.

You can also sometimes get transportation aid, like an ambulance, I

don't know the details on that.

Have you considered getting a social worker? I don't know if he/she

could help, might come up with some better solutions.

HTH,

Debi

>

> I have already had comprehensive stool analysis performed by Smokey

> Diagnostics and it was paid for by Medicaid. My gastroenterologist

also

> ordered stool testing but did not come up with anything. However, the

> Smokey tests showed Celiac Disease and high levels of yeast. My son

went

> on Nystatin and it did not help him.

>

> As for going to see a doctor that is miles away, the day I would

have my

> appointment my son could not get out of bed and he did not sleep the

many

> days before and was too tired and if e did get up he would go to the

> bathroom and repeatedly move his bowels with bouts of diarrheat. He

also

> frequently urinates. By the time he can get out of the house it is

around

> 5PM in the evening. Very rarely can he go anywhere at an earlier

time. I

> am living a very difficult life and I go to the enth degree to make

things

> happen. But it never does.

>

[Guest guest]

Maybe your home doctor can give you a script for

valiums. A valium or two and your son will go happily

anywhere. We use them for blood draws, dentist appts

and a few other potentially impossible situations. I

do not like to drug my child but sometimes the gains

are worth it.

--- elaine.mack@... wrote:

> I have alrady been told that the doctor wanats to

> see my son in person

> before he treats him. Dr. Neubrander said the same

> thing. My son is too

> ill to travel

>

>

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[Guest guest]

Nora, e mail me privately and I will share….

corinne

From:

EOHarm [mailto:EOHarm ] On Behalf Of Nora Gottlieb

Sent: Friday, February 23, 2007

10:30 AM

EOHarm

Subject: Re: Adult son

with Asperger's

I have had very good help from a Homeopath, my personaly

rewarding experience, natural chelation for my OCD son worked. ng

Adult son

with Asperger's

I need help. My son has not only Asperger's but

many chronic ailments. He has chronic diarrhea and abdominal pain, he has

chronic pain throughout his body, he has a tremor in both hands, he has

deformed ankles, he has chronic maigraines, insomnia, chronic fatigue. His

life consists of lying in bed trying to sleep most of the day and if he feels a

little better which is rarely, he uses the computer to play games. His

pain is constant and everything hurtst.

As

a mother I have watched my son deteriorate everyday. I have taken him to

gastroenterologists, neurologists, psychologists, allergists, ear nose and

throat doctors, etc. to no avail. He is on pain medications, sleep

medications and only gets minimal relief from his pain,.

I

do not know what to do. Can someone please help me.

[Guest guest]

Hi, Nora. What is natural chelation?

Carolyn

>

> I have had very good help from a Homeopath, my personaly rewarding

experience, natural chelation for my OCD son worked. ng

> Adult son with Asperger's

>

>

>

> I need help. My son has not only Asperger's but many chronic

ailments. He has chronic diarrhea and abdominal pain, he has chronic

pain throughout his body, he has a tremor in both hands, he has

deformed ankles, he has chronic maigraines, insomnia, chronic

fatigue. His life consists of lying in bed trying to sleep most of

the day and if he feels a little better which is rarely, he uses the

computer to play games. His pain is constant and everything

hurtst.

>

> As a mother I have watched my son deteriorate everyday. I have

taken him to gastroenterologists, neurologists, psychologists,

allergists, ear nose and throat doctors, etc. to no avail. He is on

pain medications, sleep medications and only gets minimal relief from

his pain,.

>

> I do not know what to do. Can someone please help me.

>

[Guest guest]

Hi

Elaine

There

is a group for people who are doing DAN and other biomedical

interventions in South New Jersey.

It is listed as autismbiomed on the home page. Everyone there is very helpful and use

the doctors in the area including Dr. Neubrander, Dr. Freedenfeld, Dr.

Foss-, Dr. Magaziner, Dr. Deng and probably a few others I am

forgetting. You can find out about

other resources in our area as well.

Please join the group and we can better guide you.

Take

care,

[Guest guest]

I need your email address... I will be gone for a week...n Adult son with Asperger's

I need help. My son has not only Asperger's but many chronic ailments. He has chronic diarrhea and abdominal pain, he has chronic pain throughout his body, he has a tremor in both hands, he has deformed ankles, he has chronic maigraines, insomnia, chronic fatigue. His life consists of lying in bed trying to sleep most of the day and if he feels a little better which is rarely, he uses the computer to play games. His pain is constant and everything hurtst. As a mother I have watched my son deteriorate everyday. I have taken him to gastroenterologists, neurologists, psychologists, allergists, ear nose and throat doctors, etc. to no avail. He is on pain medications, sleep medications and only gets minimal relief from his pain,. I do not know what to do. Can someone please help me.

[Guest guest]

Carolyn,

In our case after removing amalgams, we were then ready to use cilantro tincture ,lots of eggs, chorella (green food from ponds),apple pectin,to chelate. Homeopathic remedies to address the behavior symptoms and other issues.

This kind of chelation took 4 years, to clear the mercury my son had. I also gave lots of vitamins/minerals (magnesium for the tremor he had). Punch -line when tested again he had gained 14 iq points over the last test 11 years before. He is now clear of all OCD symtoms. And back to work.

My son has given me permission to share his storey to help others. Thanks for asking. Nora

ps

I really appreciate learning how you all deal with this, I feel it's all a long line with many *names* attached depending on where the poisons land in the person..and how heavily the have been slammed with same. n

Adult son with Asperger's> > > > I need help. My son has not only Asperger's but many chronic ailments. He has chronic diarrhea and abdominal pain, he has chronic pain throughout his body, he has a tremor in both hands, he has deformed ankles, he has chronic maigraines, insomnia, chronic fatigue. His life consists of lying in bed trying to sleep most of the day and if he feels a little better which is rarely, he uses the computer to play games. His pain is constant and everything hurtst. > > As a mother I have watched my son deteriorate everyday. I have taken him to gastroenterologists, neurologists, psychologists, allergists, ear nose and throat doctors, etc. to no avail. He is on pain medications, sleep medications and only gets minimal relief from his pain,. > > I do not know what to do. Can someone please help me.>

[Guest guest]

Hi Nora, here is my e mail address corinnevela@.......

Have a great week…

Corinne

From: EOHarm

[mailto:EOHarm ] On Behalf Of Nora

Gottlieb

Sent: Saturday, February 24, 2007

11:20 AM

EOHarm

Subject: Re: Adult son

with Asperger's

I need your email address... I will be gone for

a week...n Adult son with Asperger's

I need help. My son has not only Asperger's but many chronic

ailments. He has chronic diarrhea and abdominal pain, he has chronic pain

throughout his body, he has a tremor in both hands, he has deformed ankles, he

has chronic maigraines, insomnia, chronic fatigue. His life consists of lying

in bed trying to sleep most of the day and if he feels a little better which is

rarely, he uses the computer to play games. His pain is constant and

everything hurtst.

As a

mother I have watched my son deteriorate everyday. I have taken him to

gastroenterologists, neurologists, psychologists, allergists, ear nose and

throat doctors, etc. to no avail. He is on pain medications, sleep

medications and only gets minimal relief from his pain,.

I do

not know what to do. Can someone please help me.

[Guest guest]

My son can not make his appointments

because he is in chronic pain, didn't sleep for days, overwhelmed by everything,

and cannot comprehend what people say to him, and is in the bathroom with

diarrhea for 2 hours at a time.

[Guest guest]

Who was the Homeopath? Maybe I

can get in touch with him.

[Guest guest]

Where is he located?

[Guest guest]

No he does not have Rheumatoid Arthriitis.

I took him to a Rheumatologist so I know he doesn't.