Guest guest Posted October 12, 2004 Report Share Posted October 12, 2004 I printed off a lot of the articles that were posted on the board and read them last night and I have a few questions, hopefully you guys can answer them... 1. Does my daughter have to have an epidsode in order to have the bloodwork, or with are the levels the same with an episode or without? I will leave this one for Fran to answer in general, but I know personally with our experience that it wasn't until Mathieu had fevers that the docs took us serioulsy, and they began running everything; including testing him for the Genetic fever disorders. 2. Were any of you or the children's fathers in the military? Yes, my husband has been in for over 15 years. We have moved three times since Matheiu has been born. This does make it difficult to continue care where docs have left off, and they all have their own theories. Jay Mom to: 5 1/2 Mathieu 20 1/2 months Crohn's 20# 29 1/2 " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2004 Report Share Posted October 12, 2004 I printed off a lot of the articles that were posted on the board and read them last night and I have a few questions, hopefully you guys can answer them... 1. Does my daughter have to have an epidsode in order to have the bloodwork, or with are the levels the same with an episode or without? I will leave this one for Fran to answer in general, but I know personally with our experience that it wasn't until Mathieu had fevers that the docs took us serioulsy, and they began running everything; including testing him for the Genetic fever disorders. 2. Were any of you or the children's fathers in the military? Yes, my husband has been in for over 15 years. We have moved three times since Matheiu has been born. This does make it difficult to continue care where docs have left off, and they all have their own theories. Jay Mom to: 5 1/2 Mathieu 20 1/2 months Crohn's 20# 29 1/2 " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2004 Report Share Posted October 12, 2004 , No I am sorry my daughter's father was not in the military he is in sales, we have to wait untill Olivia has an attack untill we are able to get more test from her, certain levels change in the body, the only saving grace at the moment is she is not having to many attacks as the colchicine keeps them at bay and she has to have a full blown attack. Hope this finds you all well Regards Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2004 Report Share Posted October 12, 2004 , No I am sorry my daughter's father was not in the military he is in sales, we have to wait untill Olivia has an attack untill we are able to get more test from her, certain levels change in the body, the only saving grace at the moment is she is not having to many attacks as the colchicine keeps them at bay and she has to have a full blown attack. Hope this finds you all well Regards Quote Link to comment Share on other sites More sharing options...
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