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Hello,

My name is Bonnie and I have a son Grant, now 3 yrs 2 months, the youngest of 5

kids. He is a very Happy healthy little boy but has had periodic fevers since

he was about a year old. It took us about another year to notice the frequency

of the fevers. We investigated allergies, ear infections, etc. When he was

about 18 months I started circling the dates he was sick on the calendar and

noticed it was every 21 days. The Doctors at first just kept saying he was

catching a virus. But he really wasn't ever " sick " . He has only had one cold

since he was born. I began to do the research myself and narrowed the

possibilities of what it may be done to about 3. We switch pediatricians and

thankfully, our new Dr., a very young Dr. who did his residency at Vanderbilt,

was very aware of . With only a blood test we were able to rule our

cyclical Neutropenia and a few other ailments. So, it is.

He gets a sudden high fever of 103-105 every 21 days. The day before he tends

to be weak and complain about his eyes hurting. At the onset of his fever his

glands in the back of his neck get really big and tender and he complains of his

neck hurting. Usually he has at least one cancer sore and complains of his

tongue hurting. I try not to give him too many drugs like Advil and Tylenol

unless the fever gets above 103 or he seems to be in too much pain. We plan our

weekends around his out breaks that happen every third weekend. The time

between fevers lengthen in the fall to about 30 days and if he does get sick it

seems to shorten the time between fevers and make the fever higher for the next

few cycles. The last few times his tonsils get covered in white spots.

We have not tried the Steroids because I don't want to risk having the fevers

more often. Also, we are investigating alternative health means to see what we

may be able to do to lower the fever and reduce symptoms during a fever and

perhaps stop them all together.

I love to read and am so curious what the doctors think could be causing this.

I am so thankful to have found this group and am excited to read about your

children and families, what similarities we have, what you are doing to help you

child.

Thanks,

Bonnie

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