Re: Rheumatologist Question......

[Guest guest]

Dr Skoda is WONDERFUL!

She assisted our immunologist Dr Sleasman with diagnosing my son

ph. She is VERY familiar with .... She was bu my side when ph

was about a year old and ambulenced 5 hours away to Gainesville.... from WPB

Florida.

She knows the appropriate testing for as she did much of the

ordering... she was a Registered Nurse who later went on to Medical

school....

Holley, I know you will be happy with her.

As for the inflammatory response probably shown through a SED or ESR rate or

CRP.... that occurs in many of the disorders... Dr Skoda- will pursue

more testing. Just let her know when she orders the GENETIC studies for the

other fever disorders such as FMF, HIDs and TRAPs, to contact and send them

to Genedx... When we were there years ago, Dr Sleasman preferred Boston...

(Mass General)

Pleeeeeeease tell Dr Skoda ... we ph and I relocated to NC and that

ph is doing better.... I REALLY believe she will remember ph as he

was a VERY sick infant and toddler!! We were inpatients at Shands for about

2 weeks....

God Bless and Pleeeeease let me know how your visit goes.

By the way, Dr Sleasman, the immunologist who followed ph too went to do

research at All Children's in St Pete. He only follows a few of his old

patients....

Fran A Bulone

Mom to ph 4yrs old

Waxhaw, NC

Owner & Moderator Group

[Guest guest]

Dr Skoda is WONDERFUL!

She assisted our immunologist Dr Sleasman with diagnosing my son

ph. She is VERY familiar with .... She was bu my side when ph

was about a year old and ambulenced 5 hours away to Gainesville.... from WPB

Florida.

She knows the appropriate testing for as she did much of the

ordering... she was a Registered Nurse who later went on to Medical

school....

Holley, I know you will be happy with her.

As for the inflammatory response probably shown through a SED or ESR rate or

CRP.... that occurs in many of the disorders... Dr Skoda- will pursue

more testing. Just let her know when she orders the GENETIC studies for the

other fever disorders such as FMF, HIDs and TRAPs, to contact and send them

to Genedx... When we were there years ago, Dr Sleasman preferred Boston...

(Mass General)

Pleeeeeeease tell Dr Skoda ... we ph and I relocated to NC and that

ph is doing better.... I REALLY believe she will remember ph as he

was a VERY sick infant and toddler!! We were inpatients at Shands for about

2 weeks....

God Bless and Pleeeeease let me know how your visit goes.

By the way, Dr Sleasman, the immunologist who followed ph too went to do

research at All Children's in St Pete. He only follows a few of his old

patients....

Fran A Bulone

Mom to ph 4yrs old

Waxhaw, NC

Owner & Moderator Group

[Guest guest]

Fran, Thank you so much for the information you have given us. We

will keep in touch and let you know how our visit goes with Dr. Skoda

. I truly do not know where we would be with out this wonderful

group you have started. THANK YOU!!!

Holley(Orlando, Fl)

l (2 1/2)

> Dr Skoda is WONDERFUL!

>

> She assisted our immunologist Dr Sleasman with diagnosing my

son

> ph. She is VERY familiar with .... She was bu my side when

ph

> was about a year old and ambulenced 5 hours away to Gainesville....

from WPB

> Florida.

>

> She knows the appropriate testing for as she did much of the

> ordering... she was a Registered Nurse who later went on to Medical

> school....

>

> Holley, I know you will be happy with her.

>

> As for the inflammatory response probably shown through a SED or

ESR rate or

> CRP.... that occurs in many of the disorders... Dr Skoda- will

pursue

> more testing. Just let her know when she orders the GENETIC studies

for the

> other fever disorders such as FMF, HIDs and TRAPs, to contact and

send them

> to Genedx... When we were there years ago, Dr Sleasman preferred

Boston...

> (Mass General)

>

> Pleeeeeeease tell Dr Skoda ... we ph and I relocated to NC

and that

> ph is doing better.... I REALLY believe she will remember

ph as he

> was a VERY sick infant and toddler!! We were inpatients at Shands

for about

> 2 weeks....

>

> God Bless and Pleeeeease let me know how your visit goes.

> By the way, Dr Sleasman, the immunologist who followed ph too

went to do

> research at All Children's in St Pete. He only follows a few of his

old

> patients....

>

> Fran A Bulone

> Mom to ph 4yrs old

> Waxhaw, NC

>

> Owner & Moderator Group

>

>

>

>

[Guest guest]

Fran, Thank you so much for the information you have given us. We

will keep in touch and let you know how our visit goes with Dr. Skoda

. I truly do not know where we would be with out this wonderful

group you have started. THANK YOU!!!

Holley(Orlando, Fl)

l (2 1/2)

> Dr Skoda is WONDERFUL!

>

> She assisted our immunologist Dr Sleasman with diagnosing my

son

> ph. She is VERY familiar with .... She was bu my side when

ph

> was about a year old and ambulenced 5 hours away to Gainesville....

from WPB

> Florida.

>

> She knows the appropriate testing for as she did much of the

> ordering... she was a Registered Nurse who later went on to Medical

> school....

>

> Holley, I know you will be happy with her.

>

> As for the inflammatory response probably shown through a SED or

ESR rate or

> CRP.... that occurs in many of the disorders... Dr Skoda- will

pursue

> more testing. Just let her know when she orders the GENETIC studies

for the

> other fever disorders such as FMF, HIDs and TRAPs, to contact and

send them

> to Genedx... When we were there years ago, Dr Sleasman preferred

Boston...

> (Mass General)

>

> Pleeeeeeease tell Dr Skoda ... we ph and I relocated to NC

and that

> ph is doing better.... I REALLY believe she will remember

ph as he

> was a VERY sick infant and toddler!! We were inpatients at Shands

for about

> 2 weeks....

>

> God Bless and Pleeeeease let me know how your visit goes.

> By the way, Dr Sleasman, the immunologist who followed ph too

went to do

> research at All Children's in St Pete. He only follows a few of his

old

> patients....

>

> Fran A Bulone

> Mom to ph 4yrs old

> Waxhaw, NC

>

> Owner & Moderator Group

>

>

>

>