Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 Beverly, Rashes are distinguishing symptoms of TRAPS (although I don't think my son who has TRAPS has had them). I have an article from NIH that includes 3 pictures of patients' rashes. It's a large file, which won't make it through unless you have a large e-mail box. If you have one where you work, I can e-mail it to you and you can see it/print it in color. Otherwise, I can fax it to you, -- it's less clear in black and white, but still helpful. It's also posted on the TRAPS site file section: TNFReceptorFeverSyndromeSupport Fran, should it be added here as well? Charyn Mom to Kenny, 3, Traps Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 Beverly, Rashes are distinguishing symptoms of TRAPS (although I don't think my son who has TRAPS has had them). I have an article from NIH that includes 3 pictures of patients' rashes. It's a large file, which won't make it through unless you have a large e-mail box. If you have one where you work, I can e-mail it to you and you can see it/print it in color. Otherwise, I can fax it to you, -- it's less clear in black and white, but still helpful. It's also posted on the TRAPS site file section: TNFReceptorFeverSyndromeSupport Fran, should it be added here as well? Charyn Mom to Kenny, 3, Traps Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 Hi Charyn, I am very interested in the pictures. Send them to bdettis@.... I plan on calling the NIH tomorrow and signing Shane up. What was your experience with the NIH? I'm at the point now that I would really like more answers regarding Shane's conditon. Thanks for the pictures and info. Bev Dettis Roseville, CA > Beverly, > > Rashes are distinguishing symptoms of TRAPS (although I don't think my son > who has TRAPS has had them). I have an article from NIH that includes 3 > pictures of patients' rashes. It's a large file, which won't make it > through unless you have a large e-mail box. If you have one where you work, > I can e-mail it to you and you can see it/print it in color. > Otherwise, I can fax it to you, -- it's less clear in black and white, but > still helpful. > > It's also posted on the TRAPS site file section: > TNFReceptorFeverSyndromeSupport > > Fran, should it be added here as well? > > Charyn > Mom to Kenny, 3, Traps Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 Hi Charyn, I am very interested in the pictures. Send them to bdettis@.... I plan on calling the NIH tomorrow and signing Shane up. What was your experience with the NIH? I'm at the point now that I would really like more answers regarding Shane's conditon. Thanks for the pictures and info. Bev Dettis Roseville, CA > Beverly, > > Rashes are distinguishing symptoms of TRAPS (although I don't think my son > who has TRAPS has had them). I have an article from NIH that includes 3 > pictures of patients' rashes. It's a large file, which won't make it > through unless you have a large e-mail box. If you have one where you work, > I can e-mail it to you and you can see it/print it in color. > Otherwise, I can fax it to you, -- it's less clear in black and white, but > still helpful. > > It's also posted on the TRAPS site file section: > TNFReceptorFeverSyndromeSupport > > Fran, should it be added here as well? > > Charyn > Mom to Kenny, 3, Traps Quote Link to comment Share on other sites More sharing options...
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