Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 Sadly, that "gem" of advice, is true. There are so many people who are much more willing to help our kids, or to make allowances for "odd" behaviour when they are young. People are much more likely to feel threatened, afraid, or even disgusted by our kids as they grow into teenagers and adults. It's actually probably more painful for us as parents, than for our kids, since some of the kids don't notice/interpret the facial expressions, tone of voice,etc. Early intervention has good results. It's an honest statement, in my opinion. He may have been trying to be helpful and realistic, rather than hurtful. I would tend to give him the benefit of the doubt on this particular statement. I try to question everything, and try not to get too hung up on labels, just use what I can to get services for my child. I believe that my son also has a mild CP. One of the peds said the same thing, but never wrote it in his chart. When I asked the pediatric neurologist about it, after his ASD diagnosis, he told me that he considers CP "a garbage phrase, a 'catch-all' for the soft neurological signs, and minimal brain dysfunction, which most ASD kids have". This lack of a CP label is probably why it took my about 6 years of asking about a keyboard device before my school actually tried one! Oh, well- everyone here knows how tough life can be, for us, and for our children, and everyone of us is being as strong, and as persistent, and as stubborn as we need to be, to find answers, and help, and effective treatments for our children. When we have days where we are too overwhelmed, and exhausted, that we just want to cry for hours, and give up, other parents inspire us, and after we rest for a while, we go on. I truly believe that we are very close to the answers, and I am so grateful for parents on this group, and the group, and all of the other medical, and educational groups which I participate in. There is strength in numbers!!! Everyone is raving about the all-new beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 How about a second toe that is longer than the big toe. ? anybody heard any comments on that. ? My grandson has that on both feet. Maurine autism sign or not????????????????Holly <inticci@...> wrote: My dev ped at CHOP(Offit's hospital) told me my daughter has a larger space between two of he toes which she is seeing a lot in kids with autsim. But her ears are regular size-Oh if only Dr. Leventhal and my dev ped could work together they could put this whole mysterious puzzle to rest with a ruler. HollyDr. Grinker's bio> > >> > > http://www.unstrange.com/grinkerbio.html> > >> > > > Everyone is raving about the all-new beta.> >> Now that's room service! Choose from over 150,000 hotels in 45,000 destinations on Travel to find your fit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 No - My husband has perfect feet that could have been the model for the " HANG TEN " logo in the 1970's, toes that slope gently around in order to the pinky. He tells me I should be climbing trees with my second toe, which is longer than the first. However, my husband has attached earlobes, as does his mother. ly, they look weird, they do not wobble to and fro and you can't fit a big honking diamond on them. Several women in my family have a genetic anomoly that used to brand women as witches in the dark ages. So many genetic variances, so FEW ANSWERS! Good thing we have hundreds of millions of dollars to look into all this! KS > > How about a second toe that is longer than the big toe. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 Alright if we are talking about feet, here's my story. I have those perfect feet you describe with the gentle slope, except my husband calls my pinky toe " chisel toe " . Why you ask? Because it looks like a little chisel, a shovel if you will. My kids both have it too. My husband has what I refer to as " finger toes " . They are all so long they could be fingers. He hates to wear sandles or have his feet exposed. He could never get a pedicure, or have anyone touch his feet. (freak) My son, has a humongous big toe, finger toes and chisel toe. When I was pregnant and had an ultra sound they gave me a picture that captured his big toe. It was hugecback then. I wondered what the hell am I having???? He's 10 almost 11 and he wears a mans size 10. Oh, and he is very talented with being able to pick things up and move things with his feet. > > > > How about a second toe that is longer than the big toe. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 Waterworld is the cause of the autism epidemic!!! Re: Time on Grinker: What Autism Epidemic? No - My husband has perfect feet that could have been the model for the "HANG TEN" logo in the 1970's, toes that slope gently around in order to the pinky. He tells me I should be climbing trees with my second toe, which is longer than the first. However, my husband has attached earlobes, as does his mother. ly, they look weird, they do not wobble to and fro and you can't fit a big honking diamond on them. Several women in my family have a genetic anomoly that used to brand women as witches in the dark ages. So many genetic variances, so FEW ANSWERS! Good thing we have hundreds of millions of dollars to look into all this!KS>> How about a second toe that is longer than the big toe. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 What autism epidemic? On Jan 12, 2007, at 5:11 PM, H wrote: > Waterworld is the cause of the autism epidemic!!! > Â > Â >> Re: Time on Grinker: What Autism Epidemic? >> >> >> No - My husband has perfect feet that could have been the model for >> the " HANG TEN " logo in the 1970's, toes that slope gently around in >> order to the pinky. He tells me I should be climbing trees with my >> second toe, which is longer than the first. However, my husband has >> attached earlobes, as does his mother. ly, they look weird, they >> do not wobble to and fro and you can't fit a big honking diamond on >> them. Several women in my family have a genetic anomoly that used to >> brand women as witches in the dark ages. So many genetic variances, >> so FEW ANSWERS! Good thing we have hundreds of millions of dollars to >> look into all this! >> >> KS >> >> >> > >> > How about a second toe that is longer than the big toe. >> > J. Krakow Attorney At Law 2001 Marcus Avenue, Suite N125 Lake Success, New York 11042 (516) 354-3300 (646) 349-1771 (fax) (212) 227-0600 (NYC telephone) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 I did hear that too. No Epidemic. > >> > > >> > How about a second toe that is longer than the big toe. > >> > > > J. Krakow > Attorney At Law > 2001 Marcus Avenue, Suite N125 > Lake Success, New York 11042 > (516) 354-3300 > (646) 349-1771 (fax) > (212) 227-0600 (NYC telephone) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 When CJ was regressing into Autism and diagnosed PDD at 1st before full regression by Early Intervention (I brought him there on my own, no referral from pedi), my pedi said it’s the “new diagnosis” like ADD and ADHD was a few years before. My neurologist, after CJ clearly lost all of his skills and verbal ability, told me that if CJ had Autism spectrum disorder than so did he. Well at age 7 he still can’t have a conversation among a million other things, even with much early intervention, so they were both wrong and my son clearly has autism. This theory of better diagnosing is such Bull. I get phone calls all the time from people who tell me they have other friends whose kids won’t look at them and have no words at all by 3yrs and their pediatricians say “Don’t worry, he’ll talk, he’s just speech delayed” or “he’s not talking because you do everything for him”. Pediatricians would rather give any other diagnosis than ASD. As long as they gain the right amount of weight paralleled with the height chart, heart beat fine, and 2 testicles (for some reason my pedi checks for this every time as if a testi would disappear) nothing else matters. - From: EOHarm [mailto:EOHarm ] On Behalf Of krstagliano Sent: Friday, January 12, 2007 11:40 AM EOHarm Subject: Re: Time on Grinker: What Autism Epidemic? In 1998 my pediatrician told me he had never heard of a family with more than one autistic child. He diagnosed my first by scribbling " PDD " on her chart - but he never bothered to tell ME. I found it when we moved and I got her records sent directly to me. Maybe Letterman should have a " Stupid pedatrician tricks " segment? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 No-one here has mentioned the "environmental" factor yet. Many of us may have been born with lovely, well-formed feet only to have them somewhat "deformed" by the time we reach adulthood from abuse through wearing too-tight or otherwise illfitting shoes, etc. It happens...that's why the tops of my big toes are both pointed towards the outsides of my feet. It's from wearing pointy-toed shoes for too long. Even though that was decades ago, the changes to one's feet don't undo themselves easily, if at all. Aasa andrea52521991 <mkeller@...> wrote: Alright if we are talking about feet, here's my story.I have those perfect feet you describe with the gentle slope, except my husband calls my pinky toe "chisel toe". Why you ask? Because it looks like a little chisel, a shovel if you will. My kids both have it too.My husband has what I refer to as "finger toes". They are all so long they could be fingers. He hates to wear sandles or have his feet exposed. He could never get a pedicure, or have anyone touch his feet. (freak)My son, has a humongous big toe, finger toes and chisel toe.When I was pregnant and had an ultra sound they gave me a picture that captured his big toe. It was hugecback then. I wondered what the hell am I having????He's 10 almost 11 and he wears a mans size 10. Oh, and he is very talented with being able to pick things up and move things with his feet.> >> > How about a second toe that is longer than the big toe.> Quote Link to comment Share on other sites More sharing options...
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