Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 my 15 year old daughter with SMA Type II just asked me how people with SMA fly. I really didn't know how to respond. Can anyone tell me their experience - especially as far as seating and comfort? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 Wow! Are you on a ventilator? Kemp Director, OurGV Rewards <http://www.ourgvrewards.com/> http://www.ourgvrewards.com Phone: 714-974-5799 Business Phone: 714-974-5693 Cell Phone: 714-244-5920 Phone: 949-579-9465 Email 1: d-kemp@... Email 2: dkemp@... <http://www.ourgvmall.com/djk> banner021.jpg <http://www.benefitbar.com/benefitbar/subscribe/toolbar.php?toolbarId=1136> http://new.a2success.com/files/Image/banner_468w60h_82608.jpg From: [mailto: ] On Behalf Of Amy Sent: Sunday, October 26, 2008 6:29 PM Subject: Re: airline travel Last time I did air travel I passed out at cruising altitude and later turned blue as my airway closed up while we began landing. No plane staff would give me any on board oxygen during the time I was gasping and turning blue because I " hadn't cleared " or " brought my own oxygen tank " and I " was in the bulkhead row where no oxygen tanks were allowed " . {the only row I could use with a leg fracture making my leg stick out by the way}. When we landed- the business passengers trampled the paramedics and delayed them from helping me. A few assholes had the nerve to say " Handicapped people can't leave before the rest of us normal people do! It's the rule! I don't have to wait for someone like THAT to get off first! " . And my MDA clinic, pulmonary, primary and other 'experts' in my health care team had told me flying was totally safe and okay.... > > my 15 year old daughter with SMA Type II just asked me how people with SMA fly. I really didn't know how to respond. Can anyone tell me their experience - especially as far as seating and comfort? > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 Please remeber- many airlines have rentable containers that are designed to protect wheelchairs and keep them upright and in tact during transport. The rental fees {last I saw} were $75 to $100 but the money's worth it to me if you can't sit up in a standard non customized wheelchair. You do have to ask airline {more than one dept. as well usually} to lease a wheelchair cargo container. Airlines don't openly announce or offer them. Partly to avoid cranky elderly travelers from bitching at the staff to put a standard manual wheelchair into the containers for free. I'm not on a vent for the replier who asked me that in re to flying. If I had access to a bi-pap, c-pap, or vent I think I would've been way better off but my pulmonary and primary drs at that time were adamantly against 'part time' pulmonary devices. Years before the 'turning blue event' I had some good air travel experiences. I also used to work and study in the travel tourism and hospitality industry. It is very important to get to the airport ridiculously early. Pull every removeable part off of your wheelchair and carry it onto the plane. > > > > If you were on a ventilator, how would you go about flying? If > you wasn't > > going overseas, would you travel by train instead? If you were > going > > overseas, would it be easier to travel by ship? > > > > > > > Quote Link to comment Share on other sites More sharing options...
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