Re: cleveland free times

[Guest guest]

Hi, Robin. I lived in Cleveland for 6 years (Hudson) just moved to

New England (where I was raised.) May I offer a suggestion --

google Dr. Max Wiznitzer from UH and pull his quotes from the The

Plain Dealer -- he wrote a letter to the editor last year saying

there was NO mercury in vaccines any longer. As you know, he's the

autism expert in Cleveland. His entire group at UH appalled me with

their incredible ignorance. The head of ped. neuro there actually

told me my Mia (who was a health child) was having non stop grand

mal seizures " Because she's autistic. " That was all he needed to

know -- no further diagnosis or investigating needed. Take home

your autistic kid, she has a seizures, bye bye. Email me offline

for more. GO FOR IT! KRStagliano@....

>

>

> I sent a letter to the Cleveland Free Times. It is a little

local free paper that's distributed here, usually in the record or

music stores, and such. Not very family friendly, aimed more at the

young single crowd. But I didn't notice a lot of pharmaceutical ads

when I was leafing thru it (actually most of the ads look like

they're for strip clubs or head shops, but oh well...), so I said to

myself, hmm, why not send them a letter.

>

> I got an email back from the editor, saying that he would be

happy to tell my story, and wanting to know if we can meet. Ack. I'm

not really so sure that I’m interested in telling my story. I

wrote the letter with lots of personal information, hoping that it

would spark more interest than if I'd just pasted lots of urls for

studies. But I asked them to please not publish the letter, as I

don't want my name out and about with regards to all of this. Which

makes me feel kind of bad, but I have four children, three of whom

would much prefer that I not be involved with this at all, and that

isn't even taking into account the husband. Who absolutely freaked

when he did a google on my name and learned that I think I'm self

diagnosed with Aspergers. My oldest child says that I should ignore

them and just do what I have to do, but I can't do that. It seems

kind of silly to try hiding in the shadows, now, after seeing what

shows up when I google my own name. But I really want to

> respect the rest of the families wishes on this.

>

> Also, there is this. I think that maybe I was never diagnosed not

because I don't meet the criteria, but because I believe that a lot

of people thought that this would be better for me, and tho I

sometimes wonder whether they were right or wrong, I find that I

don't want the names of my children to be associated with something

that unfortunately, even for the highest functioning, has a stigma

attached. I am sorry. (For the neurodiverse crowd, I will be doubly

so, although I don’t suppose that will make them feel any

better...)

>

> What I was hoping he would do would be to just look into the

matter and publish something about it. Something positive for us.

It's not Oprah, but apparently the editor of the Cleveland Free

Times isn't so very afraid as she is.

>

> And so I'd like to meet with this man, but at the same time I'm

very leery. I turned down an interview with the LA Times some months

back because I knew little about the newspaper other than that it

was a sister paper to the NY Times. And I certainly won't ever

forget what they did when reporting on this. And I was very afraid

that whatever I said might get all twisted around, and I'm afraid

that the same thing might happen no matter who I'm talking to. But

perhaps I should stop being so paranoid.

>

> Also, I'm wonder if there is really much point to talking with

him, if I'm going to insist that he not use my name in anything he

publishes. Do reporters have to respect a request like this? They

do, don't they? Have some sort of ethical if not legal obligation to

honor the wishes of their sources?

>

> I guess I am going to write back and tell him that I would like

to meet. But since the kids are all off school for spring break and

I would want to wait til next week to do that, anyway, I thought I

would write to you all and see what you all might think about this.

>

> (If I do speak with him, I promise I will not say anything about

wanting to put a pipe thru certain guilty parties heads'. And I will

try not to say anything else your average person might find

similarly disturbing. Altho I am somewhat PC challenged...)

>

[Guest guest]

I've looked and looked trying to find his letter to the Plain Dealer online, but I can't seem to. I do know who he is. I saw a special on PBS that he was on, talking about autism with some other expert. I believe she was from the Cleveland Clinic. This was fairly recently. In the whole half hour program they did not make a single mention of vaccines. I thought that this was very strange. It was as though they were clueless that anyone on the planet had ever questioned the possibility that there was a link. I mean, even if they felt that there wasn't any connection, it seemed odd to me that they wouldn't at least bring up the theory. If only to poo poo it. Given how much attention it has been getting recently. It seemed to me that only someone who didn't want to discuss the matter at all because they had something to hide could so easily and so thoroughly ignore what to me seems to be a white elephant standing in the middle of the room.We used to send

money to PBS, but after that program I was about fit to be tied, and I swore that I never would again. I also sent a letter to Wiznitzer and maybe to the other woman on the program too but I don't remember for sure. And to PBS, voicing my displeasure. Not that they care much, I'm sure. They get lots of money from pharmaceutical companies, I've noticed, to air their advertisements. Hi, Robin. I lived in Cleveland for 6 years (Hudson) just moved to New England (where I was raised.) May I offer a suggestion -- google Dr. Max Wiznitzer from UH and pull his quotes from the The Plain Dealer -- he wrote a letter to the editor last year saying there was NO mercury in vaccines any longer.

[Guest guest]

For publicatiom, use an alias, but get the story out!

H.H. Fudenberg, M.D., D.D.G., I.O.M.

226 Edgewater Road

Inman, SC 29349

Reply- robin nemeth

>EOHarm

>Subject: cleveland free times

>Date: Wed, 19 Apr 2006 12:01:07 -0700 (PDT)

>

>

> I sent a letter to the Cleveland Free Times. It is a little local free

>paper that's distributed here, usually in the record or music stores, and

>such. Not very family friendly, aimed more at the young single crowd. But I

>didn't notice a lot of pharmaceutical ads when I was leafing thru it

>(actually most of the ads look like they're for strip clubs or head shops,

>but oh well...), so I said to myself, hmm, why not send them a letter.

>

> I got an email back from the editor, saying that he would be happy to

>tell my story, and wanting to know if we can meet. Ack. I'm not really so

>sure that I’m interested in telling my story. I wrote the letter with

>lots of personal information, hoping that it would spark more interest than

>if I'd just pasted lots of urls for studies. But I asked them to please not

>publish the letter, as I don't want my name out and about with regards to

>all of this. Which makes me feel kind of bad, but I have four children,

>three of whom would much prefer that I not be involved with this at all,

>and that isn't even taking into account the husband. Who absolutely freaked

>when he did a google on my name and learned that I think I'm self diagnosed

>with Aspergers. My oldest child says that I should ignore them and just do

>what I have to do, but I can't do that. It seems kind of silly to try

>hiding in the shadows, now, after seeing what shows up when I google my own

>name. But I really want to

> respect the rest of the families wishes on this.

>

> Also, there is this. I think that maybe I was never diagnosed not because

>I don't meet the criteria, but because I believe that a lot of people

>thought that this would be better for me, and tho I sometimes wonder

>whether they were right or wrong, I find that I don't want the names of my

>children to be associated with something that unfortunately, even for the

>highest functioning, has a stigma attached. I am sorry. (For the

>neurodiverse crowd, I will be doubly so, although I don’t suppose that

>will make them feel any better...)

>

> What I was hoping he would do would be to just look into the matter and

>publish something about it. Something positive for us. It's not Oprah, but

>apparently the editor of the Cleveland Free Times isn't so very afraid as

>she is.

>

> And so I'd like to meet with this man, but at the same time I'm very

>leery. I turned down an interview with the LA Times some months back

>because I knew little about the newspaper other than that it was a sister

>paper to the NY Times. And I certainly won't ever forget what they did when

>reporting on this. And I was very afraid that whatever I said might get all

>twisted around, and I'm afraid that the same thing might happen no matter

>who I'm talking to. But perhaps I should stop being so paranoid.

>

> Also, I'm wonder if there is really much point to talking with him, if

>I'm going to insist that he not use my name in anything he publishes. Do

>reporters have to respect a request like this? They do, don't they? Have

>some sort of ethical if not legal obligation to honor the wishes of their

>sources?

>

> I guess I am going to write back and tell him that I would like to meet.

>But since the kids are all off school for spring break and I would want to

>wait til next week to do that, anyway, I thought I would write to you all

>and see what you all might think about this.

>

> (If I do speak with him, I promise I will not say anything about wanting

>to put a pipe thru certain guilty parties heads'. And I will try not to say

>anything else your average person might find similarly disturbing. Altho I

>am somewhat PC challenged...)

>