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Re: EOHarm] Thoughtful House not so thoughtful-Dot

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Posted

I agree with you .

Dot, this passage you wrote below is quite an attack. I think

slamming respected and passionate doctors who treat our children and

who are in this fight for US is counterproductive.

Please reserve your anger and strength for the REAL bad guys.

I do notice though the

> price

> > of endoscopy is much more. Pretty thoughtful of thier pocket.I do

> NOT

> > believe for one minute that sedation posses no risk to these kids.

> A

> > genetics doc. in Boston told me specifically that they should be

> > sedated in a very careful way or they may not wake up. I guess they

> > feel thier study[ and pocket] are more important than my kid waking

> > up.

> > Doesn't really matter,at any rate. I will treat him without them

> and

> > spare him the risk of the ordeal of possibly being further

> harmed,and

> > exploited for thier study, and quest for a pulizer, as my son is

> more

> > important.Moreover, I know there have been some inquiries from the

> > medical lisc. board with cosequence.I prefer to work with folks who

> > have a clean record.

> >

> > have a great night,

> > Dot

> >

>

> I feel really uncomfortable when I hear terms like " bamboozle " used

about

> the folks at Thoughtful House.

>

> Let's remember that Dr. Andy Wakefield put his career on the line

for us,

> and so did Dr. Krigsman. They are not in this for the money!!

(One look

> at Dr. Krigsman's tiny office in NY would convince you of that!)

>

> As somebody who runs a non-profit autism organization also, I can

tell you

> there are SO MANY expenses that most people are not aware of. Our

> operating budget is huge, and yet everybody is underpaid because

every time

> we turn around there is some other huge expense we hadn't expected.

After 5

> years, last month was our first month that we didn't lose money.

(And even

> that doesn't count because I haven't taken a salary yet.)

>

> While I have no information about the inner workings of Thoughtful

House, I

> would be really surprised if their situation was any different.

It's hard

> to raise money for autism. There are so many other causes out there

that

> have an established contribution base, and it's only been in the

last few

> years that there has been any awareness in the general public that

autism is

> a cause that needs all the help it can get! I know that many

people still

> have the attitude that it's not worth " throwing away good money " on

these

> kids, because " they'll never get better anyway " . This will change

in time

> as we, the autism community, continue to raise awareness, but it's

still an

> uphill battle.

>

> We have enough people and organizations we should be putting our

energies

> into " battling " . Let's not be knocking the people who are really

helping

> our kids!

>

>

> s

> persistentC@...

> President and Executive Director

> The Mariposa School

> for Children with Autism

> 203 Gregson Drive

> Cary, NC 27511

> 919-461-0600

> www.MariposaSchool.org <http://www.mariposaschool.org/>

>

>

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