Re:Feeding Tube- don't always have to get knocked out

[Guest guest]

I just wanted to add that I think it depends on the surgeon. My son got his done

in New Jersey and we specifically flew 2,000 miles so he would not have to get

knocked out. They used versed and then pain management afterwards and it went

just fine- I personally would not have done it any other way. My suggestion is

to talk to your local surgeons and see if they offer an option. Keep us updated!

Kristal

Mom to Brett- SMA II- 6-1/2 years old

Sponsor Brett for the 6th Annual RoeFest Cure SMA Race-n-Roll for FSMA:

www.firstgiving.com/BJ

Visit Brett's website at: http://www.our-sma-angels.com/brett/index.htm

Learn more about SMA:

www.fsma.org

www.smasupport.com

Re: metabolic acidosis

I was informed by my physicians that yes you do have to get knocked

out with general anaesthesia in order to get a permanent feeding

tube. They also told me it would take less than 15 mins.

While I had anion gap metabolic acidosis in August 05, I had a

temporary feeding tube put in via my nose with only novicaine sprayed

into my nostril first. It did the job and honestly did not hurt at

all.

Since you've brought children into the world, correct me if I'm

wrong, but if you need a feeding tube, IMHO I think you'd be able to

get through a feeding tube surgery alright.

Anything that keeps you away from any -God Forbid- other matabolic

acidosis attack is a risk worth taking.

Blueyedaze/Amy, I know we've had diferences in the past but please,

please, please, know that I wish you a full recovery and I pray for

you to be healthy. You have many people who care about you, your

well being, quality of life and a husband and little ones who need

you. Please hang in there, know we care, and do whatever you have to

do to recover.

God bless & God speed.

>

>

> In a message dated 10/1/2006 10:03:27 PM Eastern Standard Time,

> mom2armybratz@... writes:

>

> Metabolic acidosis is very common in the smaller or weaker folks

w/ SMA.

> Technically speaking, those with SMA are not supposed to go for

more than 2-3

> hours (some even less) w/out taking in calories. That's why many of

our kids

> are on continuous feeds. There is tons of info about it on SMA

support's site (

> www.smasupport.Metab

>

>

> Wow, that sucks! Do you know if getting a g-tube requires general

> anesthesia?

>

>

> Amy

> Wife to Will 11/3/95

> Mama to Olivia Isabelle 9/18/03

> &

> Phineas Maximilian 11/30/05

>

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