Hello! Pinktulip1977 I'm sorry you feel that way...

[Guest guest]

Hello, I was glad to get some responses, but sorry to hear how you are

feeling. My daughter is only 1 1/2yr old with Type 2. I am doing my

best to make her life as good as it can be. I understand your

frustration with this terrible disease, but I'm sure you are very loved

by your family and they would do anything to help you. I hope things

get better for you. I'm praying for you!

With SMA is it typical to have pain in feet or legs or like you had,

arm pain?

Thanks, Amy