Guest guest Posted February 27, 2006 Report Posted February 27, 2006 Missy, It struck me as odd that Ian's docs won't follow Dr. Bach's protocols. It seems like docs should try Dr. Bach's settings and check Ian's blood gas levels before ruling it all out. Ever since I began using a vent at age 14, a respiratory therapist would work with me on the settings until it felt right, check my pulse O2, and then give the doc the numbers for my chart and Rx. I adjust my own settings. When I feel wonky and I can't find the right setting we do a blood gas to see what's going on...rarely. Usually it's my CO2 going up. I've always taken charge of this, and haven't gotten resistance. Hmm... Alana > > My sons settings are not what most SMA kids are... I know you are not a kid, but I think the same rule from goes with all SMA patents. The epap should be the lowest the machine goes. and the Ipap should be something like 10 more than that. That is what Dr. Bach explained to me, but can't get the docs here to do that for Ian. His settings are 6/9. Bad ones. > > Now for the humidifier, Ian uses a heated one with the bipap. > I hope this helped some. > Missy > Quote
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