Re: Neurologist Needed

[Guest guest]

Meg I have been to a lot of doctors that sucked but I have been to a

place like no other and it's really not that far from you ---- The

Mayo Clinic. Rochester Minnesota you may have to stay a few days but

I was living in Kansas 3 years ago and after 2 different MDA Clinics

couldn't help I called them and I had to tell them what was going on

they then talk to the doctors and accept or deny your visit you send

your records ahead of time and I can say it was the most amazing

place I have ever been to. I was there 2 days all test were in house

and the ordered an EMG and I had it done a few hours later. I don't

know if this is a viable option for you but I started trying to find

out what was wrong with me at 8 years old and saw so many doctors

that were clueless at the Mayo they knew it was SMA from reading my

records. Doctor walked in and said this is an easy One. Ordered EMG

and DNA test did an exam and I got the result to the DNA test back in

2 weeks.

I just think the world of that place it's like no other facility I

have ever seen and they may be able to help you out.

Good luck I deal with a lot of pain also in my back (Long Story) but

I take (3) 40mg Oxcycotin - (6) 10/325 perocet and Valium as a muscle

relaxant I have deep tissue massage every week and Chiropractor every

week it sucks and I hope they can help.

Good luck and don't give up the fight

Terry

[Guest guest]

Well, I know a good children's Neurologist in Milwaukee. But for most of my

pain/weakness issues I don't bother with a neurologist... I go to my Rehab

doctor in Madison. He works with children and adults with many disabilities and

I feel he really listens 95% of the time compared to others who just blow you

off. I've seen him for about 10 years and haven't had too much to complain

about his care. It can be hard to get an appointment if your new patient but

if you want the info let me know....

[Guest guest]

Yes, please, I'd love to have his info.

This pain is getting unbearable and some

people look at me like I am making it

up. But it's a constant pain, it gets

better sometimes, but the decrease in

pain lasts a day, if I am lucky. Then

its like I have an attack, or a flare

up, and it lasts for weeks.

Thank you for the info. I'd love to

have the doctor's info. Maybe I'll find

someone who can diagnose the pain and

then get it under some control.

Thank you everyone for all your feedback

and suggestions. Keep them coming

please! :-)

Eternal Blessings,

Meg.

* (My Blog:

<http://360./pink-tulip@amerite

ch.net>

http://360./pink-tulip@ameritec

h.net)

_____

From:

[mailto: ] On

Behalf Of esma1999@...

Sent: Monday, February 20, 2006 4:06 PM

Subject: Re: Neurologist

Needed

Well, I know a good children's

Neurologist in Milwaukee. But for most

of my

pain/weakness issues I don't bother with

a neurologist... I go to my Rehab

doctor in Madison. He works with

children and adults with many

disabilities and

I feel he really listens 95% of the time

compared to others who just blow you

off. I've seen him for about 10 years

and haven't had too much to complain

about his care. It can be hard to get

an appointment if your new patient but

if you want the info let me know....

[Non-text portions of this message have

been removed]

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[Guest guest]

I emailed the info to you. If do come for an appointment let me know and

maybe I can help you find a hotel and something fun to do while you are here!

[Guest guest]

Hi Meg,

Have you tried seeing a doctor at the Rehab Institute of Chicago, maybe even

a physiatrist could help...or at least refer you to a specialist? I see Dr.

Kristi Kirschner, and she is phenomenal. You can schedule an appointment

with her, or any doc at RIC by calling 312-238-6100.

Good luck,

Amy M.

Neurologist Needed

I am still having severe arm

pain and its not getting better. Does

anyone know of a good neurologist or any

other doctor that could help me? I live

in the north-western part of Illinois,

close to Wisconsin. I really need to

find a doctor who will take my pain

seriously and diagnose me properly.