To Clay and

[Guest guest]

Becky wrote:

> Any docs out there willing to study this? I don't know about costs

> of administering a study, but I don't think it would cost a whole

> lot. I recall that the test for my son's blood cysteine and gluta-

> thione was about $50.

If the Doctors are on this List, wouldn't that constitute a pre-

existing bias? We need a double-blind mechanism to assure accurate

results. I'm willing to take the tests, but at $50 per person, for

200 people, we're already up to $10,000. Not a huge cost for a

study, but unless you have a rich benefactor, we'll need to find a

grant.

Clay

> As far as how many people we would need to be significant, I'm

> not sure. 100 of each group sounds good, but I'm not sure.

> Becky W.

[Guest guest]

I posted this morning but see it did not take, so i am rewriting,

excuse me if some of you get both posts.

Clay/

I really appreciate the view you have expressed without the parent

bashing I have personally witnessed on some of the other ND boards.

I have been personally attacked as to pushing " snake-oil " on

autistic children by promoting the effects of MB12. If you are not

familiar with mb12, you can go to our website and download some of

the abstracts or listen to over 9 hours of video of parents saying

what mb12 has done for their children. www.drneubrander.com

No place have I or Jim ever said it is a " cure " . It is not a magic

bullet, it is a treatment that 9 out of 10 kids respond favorably to

in our practice and many do lose their diagnosis.

What I am looking for is your opinion on the mb12 and autism. I will

take this as an opinion, but I do have some concerns on how this all

fits in with the belief that all autism is " Hard Wired " .

If 9 out of 10 (our practice's statistics, other docs using mb12

have different stats) respond favorably in that their cognition goes

up, their focus increases, their receptive language increases and

often the expressive language increases, sensory overload decreases,

and many times potty training occurs shortly after taking mb12, then

how can this be a hard wired issue of the brain? Is it not an issue

in the methylation pathway that can be treated biomedically? If

truly a genetic wiring issue, then biomed treatments should not

lessen the degree of autism seen in an individual.

For those who were originally diagnosed as having autism and then

after treatment lose that diagnosis (although not cured, if

treatment stops, they do regress) does this not show that there was

not a hard-wired issue but a disrupted biochemical pathway? Would

you advocate that the child not be treated with mb12 as it

alleviated the symptoms of autism, or would you admit that there

might be a form of autism that is not hard-wired and that parents

should treat this form of autism?

Now granted, some do not respond. Could it be that a group that does

not respond to mb12 or chelation be the truly autistic group, but

that the majority have a disruption in their biological pathways?

(The reason I say majority is that 9 out of 10 do respond to mb12, I

do not know the statistics on chelation or diet)

Also, since 9 out of 10 respond favorably and have the debilitating

symptoms are ameliorated, is not the quality of life for the child

and the family increased? Why do so many of the ND groups strike out

so at parents who investigate the BioMed approach? I would like to

think that ultimately making the child healthier, happier and having

less debilitating symptoms would be the goal of NT and Autistics

alike.

I have really enjoyed reading your posts in that you do not seem to

have a caustic attitude to the parents who are working to get their

children to be the best they can be. Both of you have put forth your

views without offense and for that I am grateful. I am very

interested into your take on mb12, supplementation, diets, chelation

and how they (in your opinion) play into children on the spectrum.