Re: Repost: Or not to work...

[Guest guest]

or give yourself an open sore....!

. . .. . .

" Talkin' the talk, rollin' the walk'

[Guest guest]

Kris and -

Although my situation isn't great, I think I'll pass on self-mutilation

for the time being...

--

Jenn Malatesta

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My web page: http://www.isoc.net/brokeninside/nekrosys/

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Philo of andria:

" Be kind, for everyone you meet is fighting a great battle. "

[Guest guest]

wrote:

> I worked for 10 years doing 'cold calls' to try to set up

> appointments for the salesmen in my husbands small

> business. I still have a 'phone phobia' myself from it!

I'm glad I'm not the only one! Maybe we should start a support group -

online of course!

> I am happy that I at least

> have Medicare (it's better than nothing), but they don't

> cover anything when it comes to home healthcare (or

> bathroom equipment, or, or...etc).

I about fell over when I found out my Medicare agreed to pay for a tiny

potion of my new wheelchair. All other equipment expenses and

wheelchair repairs have been 'out-of-pocket' if MDA doesn't cover it.

> I absolutely think it sucks too! Why should we be

> penalized for deciding to be legally married? I just went

> through this with my HMO recently, they say I don't qualify

> for home healthcare because my husband works. It's kind of

> a 'catch-22' situation. His income isn't enough for us to

> be able to afford to hire our own help, but they say it's

> just high enough to put us over the limit so we are not

> eligible to receive any assistance.

I get the same story too. Ugh!

--

Jenn Malatesta

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My web page: http://www.isoc.net/brokeninside/nekrosys/

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Philo of andria:

" Be kind, for everyone you meet is fighting a great battle. "

[Guest guest]

wrote:

> Now that

> I finally have it straight with them, I'm going to have to

> change insurance again when we move...not looking forward

> to that.

>

Bleeck! Our insurance is about to change again soon, since Lee quit his

job to become a fulltime college student. I'll soon be on Medicare

ONLY! Geez, I hope my medical equipment and health hold together until

he's working again. Well, actually, it'd be good if they permanantly

held out, but I settle for the next few years right now.

--

Jenn Malatesta

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My web page: http://www.isoc.net/brokeninside/nekrosys/

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Philo of andria:

" Be kind, for everyone you meet is fighting a great battle. "

[Guest guest]

In a message dated 1/20/2004 8:46:49 PM Pacific Standard Time,

laurenmarie791@... writes:

For those who do not work, I'm wondering if you ever get

rude/inconsiderate comments from people such as how " lucky " you are

to not have to work, to get to " sleep all day and watch soap

operas " and receive " free " money from the govt. I get these

comments ALL the time, from family and friends even and when I

explain how I wish I could do for myself more, they still continue

to say how " great it must be " for me. I find this incredibly

insulting, as if I'm some sort of lazy bum. I would love to hear

how others respond to this.

Hey Laurn,

Yea, I get the " I wish I could stay home all day and do nothing " crap too.

It's usually mostly from my brother who's never home (he has work, school, ect)

so when he comes home after a long day and sees me " doing nothing, " he

comments on it. I don't " do nothing " all day but b/c he's never here, he doesn't

see

it. I'm in college and have tons of homework, I help my other brother and

sister with their homework, and I do a million other things too. Then there's

dealing all the medical stuff. He just doesn't understand that it's not a walk

in

the park. It's as if this was some sort of conscience choice on my part or

something. Like I woke up one day and decided that I was going to stay home and

be a lazy bum. He even calls me up sometimes and will ask for a favor. When I

tell him that I can't do it because I'm busy doing something else, he just

laughs it off as if that was hard for him to fathom. So yea, you're not the only

one who gets it.

Deena