Re: COALITIONS/Generation Rescue

June 13, 2005

It is just that you typed "frink" and it cracked me up. I needed to giggle.

S

June 13, 2005

We think it's a great idea - count us in.

& JB

> > Autism Speaks would talk to people if they wanted to donate

money,

> but had nothing to offer these callers in terms of support? So

they

> took the money and then passed the people on to UA - where you

used

> your hard-earned resources to help these families and got nothing

in

> the way of support from the rest of the coalition? Sounds like

they

> are using you - big time.

> >

> > Other than the wonderful support to families given through UA

and

> your call center, what exactly is the Autism Coalition doing with

> the millions and millions of dollars being funneled into it? What

> are they doing for my daughter? I'm sick to death of organizations

> formed to " raise awareness " . SCREW RAISING AWARENESS. 1 in 6 kids

> in this country requires special ed services! If we are still

> unaware, we're in big trouble. (, you know I am not

> directing these comments toward UA - I fully support and am in awe

> of all that you do.)

> >

> > I think the time has come for a new coalition. A coalition in

the

> true sense of the word - one that will work TOGETHER for our kids.

> A group of like-minded orgs who are willing to really work as a

> team. We all have different appoaches and agendas, but the big

> issue that we agree on is thimerosal.

> >

> > I propose a new Coalition and invite Unlocking Autism,

SafeMinds,

> Generation Rescue, TACA, Autism One, A-Champ PAC, CoMed, NAA and

any

> other groups who wish to lend their voices to do so now. It's time

> to sing in unison. We can start with the Combating Autism Act of

> 2005.

> >

> > The Combating Autism Act has got to be changed. It specifies

that

> no research studies on immune, endocrine, gastro and toxicological

> issues can be done for 3 years!!!! Everything that we KNOW is

> important to help our kids get better will have ZERO chance of

> getting funded if this bill should pass as is.

> >

> > The Autism Coalition wrote this bill. Now the other

organizations,

> and parents that will support us, have to stand strong to make

this

> bill work for our kids. NAA is working on this issue and we invite

> all other autism orgs, including Unlocking Autism, to stand united

> for biomedical, immune, gastrointestinal, toxicological and

> environmental research for our kids that will help them now.

> Together we can achieve great things....

> >

June 13, 2005

I don't know if you should allow JB and in, have you read what the Autism Diva said about them?? I wouldn't trust my child with them!!!

They actually believe Mercury is the second most toxic substance in the world!!! Everyone knows(I'm not a toxicologist or a gynecologist) but there are some other reallllly bad things out there too.....like like....

Cornflakes for example...they are preserved with BHT!!!!

BHT is probably the reason why kids hand flap and smear poop.

But there is dignity to poop smearing we must all grow to appreciate.

Autism smautism.

oooooh I get so tired bashing innocent parents

it's time for me to put my little Diva butt in bed!!!

signed

who is really Leroy

who is really Mable

who is really Tyrone

who had way too much Diet Coke tonight.

12:37 6/12 bradfordhandley <bradfordhandley@...> wrote:

We think it's a great idea - count us in. & JB> > Autism Speaks would talk to people if they wanted to donate money,> but had nothing to offer these callers in terms of support? So they> took the money and then passed the people on to UA - where you used> your hard-earned resources to help these families and got nothing in> the way of support from the rest of the coalition? Sounds like they> are using you - big time.> >> > Other than the wonderful support to families given through UA

and> your call center, what exactly is the Autism Coalition doing with> the millions and millions of dollars being funneled into it? What> are they doing for my daughter? I'm sick to death of organizations> formed to "raise awareness". SCREW RAISING AWARENESS. 1 in 6 kids> in this country requires special ed services! If we are still> unaware, we're in big trouble. (, you know I am not> directing these comments toward UA - I fully support and am in awe> of all that you do.)> >> > I think the time has come for a new coalition. A coalition in the> true sense of the word - one that will work TOGETHER for our kids.> A group of like-minded orgs who are willing to really work as a> team. We all have different appoaches and agendas, but the big> issue that we agree on is

thimerosal.> >> > I propose a new Coalition and invite Unlocking Autism, SafeMinds,> Generation Rescue, TACA, Autism One, A-Champ PAC, CoMed, NAA and any> other groups who wish to lend their voices to do so now. It's time> to sing in unison. We can start with the Combating Autism Act of> 2005.> >> > The Combating Autism Act has got to be changed. It specifies that> no research studies on immune, endocrine, gastro and toxicological> issues can be done for 3 years!!!! Everything that we KNOW is> important to help our kids get better will have ZERO chance of> getting funded if this bill should pass as is.> >> > The Autism Coalition wrote this bill. Now the other organizations,> and parents that will support us, have to stand strong to make

this> bill work for our kids. NAA is working on this issue and we invite> all other autism orgs, including Unlocking Autism, to stand united> for biomedical, immune, gastrointestinal, toxicological and> environmental research for our kids that will help them now.> Together we can achieve great things....> >> > > >__________________________________________________

June 13, 2005

ROTFLMAO

- they never said second most toxic SUBSTABCE they said second

most toxic METAL.

I am going to bed My head is spinning from ZImas. emailed me

that I am misspelling stuff.

~Becky

> > > Autism Speaks would talk to people if they wanted to donate

> money,

> > but had nothing to offer these callers in terms of support? So

> they

> > took the money and then passed the people on to UA - where you

> used

> > your hard-earned resources to help these families and got

nothing

> in

> > the way of support from the rest of the coalition? Sounds like

> they

> > are using you - big time.

> > >

> > > Other than the wonderful support to families given through UA

> and

> > your call center, what exactly is the Autism Coalition doing

with

> > the millions and millions of dollars being funneled into it?

What

> > are they doing for my daughter? I'm sick to death of

organizations

> > formed to " raise awareness " . SCREW RAISING AWARENESS. 1 in 6

kids

> > in this country requires special ed services! If we are still

> > unaware, we're in big trouble. (, you know I am not

> > directing these comments toward UA - I fully support and am in

awe

> > of all that you do.)

> > >

> > > I think the time has come for a new coalition. A coalition in

> the

> > true sense of the word - one that will work TOGETHER for our

kids.

> > A group of like-minded orgs who are willing to really work as a

> > team. We all have different appoaches and agendas, but the big

> > issue that we agree on is thimerosal.

> > >

> > > I propose a new Coalition and invite Unlocking Autism,

> SafeMinds,

> > Generation Rescue, TACA, Autism One, A-Champ PAC, CoMed, NAA

and

> any

> > other groups who wish to lend their voices to do so now. It's

time

> > to sing in unison. We can start with the Combating Autism Act of

> > 2005.

> > >

> > > The Combating Autism Act has got to be changed. It specifies

> that

> > no research studies on immune, endocrine, gastro and

toxicological

> > issues can be done for 3 years!!!! Everything that we KNOW is

> > important to help our kids get better will have ZERO chance of

> > getting funded if this bill should pass as is.

> > >

> > > The Autism Coalition wrote this bill. Now the other

> organizations,

> > and parents that will support us, have to stand strong to make

> this

> > bill work for our kids. NAA is working on this issue and we

invite

> > all other autism orgs, including Unlocking Autism, to stand

united

> > for biomedical, immune, gastrointestinal, toxicological and

> > environmental research for our kids that will help them now.

> > Together we can achieve great things....

> > >

>

> ---------------------------------

>

June 13, 2005

Thanks and JB. Lord knows, we need and appreciate all your help!

The validation that your NY Times ad gave us made my wife cry (fulfilling

biomedical

protocols is a stressful endeavor and sometimes we feel like there is no

support--public

validation is vital).

Bob K.

> > > Autism Speaks would talk to people if they wanted to donate

> money,

> > but had nothing to offer these callers in terms of support? So

> they

> > took the money and then passed the people on to UA - where you

> used

> > your hard-earned resources to help these families and got nothing

> in

> > the way of support from the rest of the coalition? Sounds like

> they

> > are using you - big time.

> > >

> > > Other than the wonderful support to families given through UA

> and

> > your call center, what exactly is the Autism Coalition doing with

> > the millions and millions of dollars being funneled into it? What

> > are they doing for my daughter? I'm sick to death of organizations

> > formed to " raise awareness " . SCREW RAISING AWARENESS. 1 in 6 kids

> > in this country requires special ed services! If we are still

> > unaware, we're in big trouble. (, you know I am not

> > directing these comments toward UA - I fully support and am in awe

> > of all that you do.)

> > >

> > > I think the time has come for a new coalition. A coalition in

> the

> > true sense of the word - one that will work TOGETHER for our kids.

> > A group of like-minded orgs who are willing to really work as a

> > team. We all have different appoaches and agendas, but the big

> > issue that we agree on is thimerosal.

> > >

> > > I propose a new Coalition and invite Unlocking Autism,

> SafeMinds,

> > Generation Rescue, TACA, Autism One, A-Champ PAC, CoMed, NAA and

> any

> > other groups who wish to lend their voices to do so now. It's time

> > to sing in unison. We can start with the Combating Autism Act of

> > 2005.

> > >

> > > The Combating Autism Act has got to be changed. It specifies

> that

> > no research studies on immune, endocrine, gastro and toxicological

> > issues can be done for 3 years!!!! Everything that we KNOW is

> > important to help our kids get better will have ZERO chance of

> > getting funded if this bill should pass as is.

> > >

> > > The Autism Coalition wrote this bill. Now the other

> organizations,

> > and parents that will support us, have to stand strong to make

> this

> > bill work for our kids. NAA is working on this issue and we invite

> > all other autism orgs, including Unlocking Autism, to stand united

> > for biomedical, immune, gastrointestinal, toxicological and

> > environmental research for our kids that will help them now.

> > Together we can achieve great things....

> > >

June 13, 2005

I misspelth stuff all the time and I don't even drink. Must be all those healthful non-toxic amalgams!

Good night!

Becky <nelsons@...> wrote:

ROTFLMAO - they never said second most toxic SUBSTABCE they said second most toxic METAL. I am going to bed My head is spinning from ZImas. emailed me that I am misspelling stuff.~Becky> > > Autism Speaks would talk to people if they wanted to donate > money,> > but had nothing to offer these callers in terms of support? So > they> > took the money and then passed the people on to UA - where you > used> > your hard-earned resources to help these families and got nothing > in> > the way of support from the rest of the coalition? Sounds like > they> > are using you - big time.> > >> > > Other than the wonderful support to

families given through UA > and> > your call center, what exactly is the Autism Coalition doing with> > the millions and millions of dollars being funneled into it? What> > are they doing for my daughter? I'm sick to death of organizations> > formed to "raise awareness". SCREW RAISING AWARENESS. 1 in 6 kids> > in this country requires special ed services! If we are still> > unaware, we're in big trouble. (, you know I am not> > directing these comments toward UA - I fully support and am in awe> > of all that you do.)> > >> > > I think the time has come for a new coalition. A coalition in > the> > true sense of the word - one that will work TOGETHER for our kids.> > A group of like-minded orgs who are willing to really work as a>

> team. We all have different appoaches and agendas, but the big> > issue that we agree on is thimerosal.> > >> > > I propose a new Coalition and invite Unlocking Autism, > SafeMinds,> > Generation Rescue, TACA, Autism One, A-Champ PAC, CoMed, NAA and > any> > other groups who wish to lend their voices to do so now. It's time> > to sing in unison. We can start with the Combating Autism Act of> > 2005.> > >> > > The Combating Autism Act has got to be changed. It specifies > that> > no research studies on immune, endocrine, gastro and toxicological> > issues can be done for 3 years!!!! Everything that we KNOW is> > important to help our kids get better will have ZERO chance of> > getting funded if this bill should pass as

is.> > >> > > The Autism Coalition wrote this bill. Now the other > organizations,> > and parents that will support us, have to stand strong to make > this> > bill work for our kids. NAA is working on this issue and we invite> > all other autism orgs, including Unlocking Autism, to stand united> > for biomedical, immune, gastrointestinal, toxicological and> > environmental research for our kids that will help them now.> > Together we can achieve great things....> > >> > > > > >> > > > > --------------------------------->

June 13, 2005

Well I gave all my books away so I'll have to take your word fro it

but I knew what he MEANT.

Shucks. Some people are so pick.

~Beckuy

> > > > > Autism Speaks would talk to people if they wanted to

donate

> > > money,

> > > > but had nothing to offer these callers in terms of support?

So

> > > they

> > > > took the money and then passed the people on to UA - where

you

> > > used

> > > > your hard-earned resources to help these families and got

> > nothing

> > > in

> > > > the way of support from the rest of the coalition? Sounds

like

> > > they

> > > > are using you - big time.

> > > > >

> > > > > Other than the wonderful support to families given

through UA

> > > and

> > > > your call center, what exactly is the Autism Coalition

doing

> > with

> > > > the millions and millions of dollars being funneled into

it?

> > What

> > > > are they doing for my daughter? I'm sick to death of

> > organizations

> > > > formed to " raise awareness " . SCREW RAISING AWARENESS. 1 in

6

> > kids

> > > > in this country requires special ed services! If we are

still

> > > > unaware, we're in big trouble. (, you know I am not

> > > > directing these comments toward UA - I fully support and am

in

> > awe

> > > > of all that you do.)

> > > > >

> > > > > I think the time has come for a new coalition. A

coalition in

> > > the

> > > > true sense of the word - one that will work TOGETHER for

our

> > kids.

> > > > A group of like-minded orgs who are willing to really work

as a

> > > > team. We all have different appoaches and agendas, but the

big

> > > > issue that we agree on is thimerosal.

> > > > >

> > > > > I propose a new Coalition and invite Unlocking Autism,

> > > SafeMinds,

> > > > Generation Rescue, TACA, Autism One, A-Champ PAC, CoMed,

NAA

> > and

> > > any

> > > > other groups who wish to lend their voices to do so now.

It's

> > time

> > > > to sing in unison. We can start with the Combating Autism

Act of

> > > > 2005.

> > > > >

> > > > > The Combating Autism Act has got to be changed. It

specifies

> > > that

> > > > no research studies on immune, endocrine, gastro and

> > toxicological

> > > > issues can be done for 3 years!!!! Everything that we KNOW

is

> > > > important to help our kids get better will have ZERO chance

of

> > > > getting funded if this bill should pass as is.

> > > > >

> > > > > The Autism Coalition wrote this bill. Now the other

> > > organizations,

> > > > and parents that will support us, have to stand strong to

make

> > > this

> > > > bill work for our kids. NAA is working on this issue and we

> > invite

> > > > all other autism orgs, including Unlocking Autism, to stand

> > united

> > > > for biomedical, immune, gastrointestinal, toxicological and

> > > > environmental research for our kids that will help them now.

> > > > Together we can achieve great things....

> > > > >

> > >

> > > ---------------------------------

> > >

June 13, 2005

Same here!!! Thanks!!

> > > > Autism Speaks would talk to people if they wanted to donate

> > money,

> > > but had nothing to offer these callers in terms of support?

So

> > they

> > > took the money and then passed the people on to UA - where

you

> > used

> > > your hard-earned resources to help these families and got

nothing

> > in

> > > the way of support from the rest of the coalition? Sounds

like

> > they

> > > are using you - big time.

> > > >

> > > > Other than the wonderful support to families given through

UA

> > and

> > > your call center, what exactly is the Autism Coalition doing

with

> > > the millions and millions of dollars being funneled into it?

What

> > > are they doing for my daughter? I'm sick to death of

organizations

> > > formed to " raise awareness " . SCREW RAISING AWARENESS. 1 in 6

kids

> > > in this country requires special ed services! If we are still

> > > unaware, we're in big trouble. (, you know I am not

> > > directing these comments toward UA - I fully support and am

in awe

> > > of all that you do.)

> > > >

> > > > I think the time has come for a new coalition. A coalition

in

> > the

> > > true sense of the word - one that will work TOGETHER for our

kids.

> > > A group of like-minded orgs who are willing to really work as

a

> > > team. We all have different appoaches and agendas, but the big

> > > issue that we agree on is thimerosal.

> > > >

> > > > I propose a new Coalition and invite Unlocking Autism,

> > SafeMinds,

> > > Generation Rescue, TACA, Autism One, A-Champ PAC, CoMed, NAA

and

> > any

> > > other groups who wish to lend their voices to do so now. It's

time

> > > to sing in unison. We can start with the Combating Autism Act

of

> > > 2005.

> > > >

> > > > The Combating Autism Act has got to be changed. It

specifies

> > that

> > > no research studies on immune, endocrine, gastro and

toxicological

> > > issues can be done for 3 years!!!! Everything that we KNOW is

> > > important to help our kids get better will have ZERO chance of

> > > getting funded if this bill should pass as is.

> > > >

> > > > The Autism Coalition wrote this bill. Now the other

> > organizations,

> > > and parents that will support us, have to stand strong to

make

> > this

> > > bill work for our kids. NAA is working on this issue and we

invite

> > > all other autism orgs, including Unlocking Autism, to stand

united

> > > for biomedical, immune, gastrointestinal, toxicological and

> > > environmental research for our kids that will help them now.

> > > Together we can achieve great things....

> > > >

June 13, 2005

http://www.geocities.com/arthurstroudprodigy (DOT) net/autismdiva.html

Don;t know if this link will show up all the way cause there is an

email address in the middle but anyhoo....

Now I am reaaaaaly going to bed. This time for sure after I finish

this zima. Tastes like orange pop!!!

~Becky

> > > > > Autism Speaks would talk to people if they wanted to

donate

> > > money,

> > > > but had nothing to offer these callers in terms of support?

So

> > > they

> > > > took the money and then passed the people on to UA - where

you

> > > used

> > > > your hard-earned resources to help these families and got

> > nothing

> > > in

> > > > the way of support from the rest of the coalition? Sounds

like

> > > they

> > > > are using you - big time.

> > > > >

> > > > > Other than the wonderful support to families given

through UA

> > > and

> > > > your call center, what exactly is the Autism Coalition

doing

> > with

> > > > the millions and millions of dollars being funneled into

it?

> > What

> > > > are they doing for my daughter? I'm sick to death of

> > organizations

> > > > formed to " raise awareness " . SCREW RAISING AWARENESS. 1 in

6

> > kids

> > > > in this country requires special ed services! If we are

still

> > > > unaware, we're in big trouble. (, you know I am not

> > > > directing these comments toward UA - I fully support and am

in

> > awe

> > > > of all that you do.)

> > > > >

> > > > > I think the time has come for a new coalition. A

coalition in

> > > the

> > > > true sense of the word - one that will work TOGETHER for

our

> > kids.

> > > > A group of like-minded orgs who are willing to really work

as a

> > > > team. We all have different appoaches and agendas, but the

big

> > > > issue that we agree on is thimerosal.

> > > > >

> > > > > I propose a new Coalition and invite Unlocking Autism,

> > > SafeMinds,

> > > > Generation Rescue, TACA, Autism One, A-Champ PAC, CoMed,

NAA

> > and

> > > any

> > > > other groups who wish to lend their voices to do so now.

It's

> > time

> > > > to sing in unison. We can start with the Combating Autism

Act of

> > > > 2005.

> > > > >

> > > > > The Combating Autism Act has got to be changed. It

specifies

> > > that

> > > > no research studies on immune, endocrine, gastro and

> > toxicological

> > > > issues can be done for 3 years!!!! Everything that we KNOW

is

> > > > important to help our kids get better will have ZERO chance

of

> > > > getting funded if this bill should pass as is.

> > > > >

> > > > > The Autism Coalition wrote this bill. Now the other

> > > organizations,

> > > > and parents that will support us, have to stand strong to

make

> > > this

> > > > bill work for our kids. NAA is working on this issue and we

> > invite

> > > > all other autism orgs, including Unlocking Autism, to stand

> > united

> > > > for biomedical, immune, gastrointestinal, toxicological and

> > > > environmental research for our kids that will help them now.

> > > > Together we can achieve great things....

> > > > >

> > >

> > > ---------------------------------

> > >

June 13, 2005

The most toxic substance has to be dihydrogen monoxide. It has been

found in every cancerous tumor and is a component of every identified

severe neurological cell pathology. It's in every vaccine, too. Every

child with autism has injested a notable quantity of it within the 24

hour period preceeding the onset of severe autism symptoms. The

scientific notation of dihydrogen monoxide, just so you know, is H2O.

> My copy of 's book says, on page 48 that organic compounds of

mercury is a

> " dangerous form of mercury, which is considered to be the second

most toxic substance

> on earth, after plutonium. " ?

June 13, 2005

Yes, water is extremely dangerous. It fuels thunderstorms and hurricanes...and

can kill en

masse during a tsunami. Some people have even been killed slipping in the

bathtub!

All the same, I'll drink my bottled water, happily...and anyone who considers

thimerosal

" safe " is welcome to ALL THE FLU VACCINES THEY CAN HANDLE! :-)

> > My copy of 's book says, on page 48 that organic compounds of

> mercury is a

> > " dangerous form of mercury, which is considered to be the second

> most toxic substance

> > on earth, after plutonium. " ?

June 13, 2005

Yeah, sure.

It's water.

What were we all thinking?

~Becky

> > My copy of 's book says, on page 48 that organic compounds of

> mercury is a

> > " dangerous form of mercury, which is considered to be the second

> most toxic substance

> > on earth, after plutonium. " ?

June 13, 2005

Thanks and JB.

Bob - I'll collect the responses I've gotten from interested groups so we can start a contact list.

I really like the idea of a "peer network".

So far I've got NAA, UA, Generation Rescue, A-CHAMP, Charlotte STAR, SafeMinds, Autism One and that really hot guy from California. Did I miss anyone that has already responded?

NAA-LI? NAA-NJ? You guys in?

Re: COALITIONS/Generation Rescue

We think it's a great idea - count us in. & JB> > Autism Speaks would talk to people if they wanted to donate money,> but had nothing to offer these callers in terms of support? So they> took the money and then passed the people on to UA - where you used> your hard-earned resources to help these families and got nothing in> the way of support from the rest of the coalition? Sounds like they> are using you - big time.> >> > Other than the wonderful support to families given through UA and> your call center, what exactly is the Autism Coalition doing with> the millions and millions of dollars being funneled into it? What> are they doing for my daughter? I'm sick to death of organizations> formed to "raise awareness". SCREW RAISING AWARENESS. 1 in 6 kids> in this country requires special ed services! If we are still> unaware, we're in big trouble. (, you know I am not> directing these comments toward UA - I fully support and am in awe> of all that you do.)> >> > I think the time has come for a new coalition. A coalition in the> true sense of the word - one that will work TOGETHER for our kids.> A group of like-minded orgs who are willing to really work as a> team. We all have different appoaches and agendas, but the big> issue that we agree on is thimerosal.> >> > I propose a new Coalition and invite Unlocking Autism, SafeMinds,> Generation Rescue, TACA, Autism One, A-Champ PAC, CoMed, NAA and any> other groups who wish to lend their voices to do so now. It's time> to sing in unison. We can start with the Combating Autism Act of> 2005.> >> > The Combating Autism Act has got to be changed. It specifies that> no research studies on immune, endocrine, gastro and toxicological> issues can be done for 3 years!!!! Everything that we KNOW is> important to help our kids get better will have ZERO chance of> getting funded if this bill should pass as is.> >> > The Autism Coalition wrote this bill. Now the other organizations,> and parents that will support us, have to stand strong to make this> bill work for our kids. NAA is working on this issue and we invite> all other autism orgs, including Unlocking Autism, to stand united> for biomedical, immune, gastrointestinal, toxicological and> environmental research for our kids that will help them now.> Together we can achieve great things....> >> > > >

June 13, 2005

NAANJ has been kicking this idea around for a while. NJ is so divided among the groups and I can only imagine that this is a national problem.

I would be honored to help this Coalition

Jenn

From: EOHarm [mailto:EOHarm ] On Behalf Of FournierSent: Monday, June 13, 2005 8:38 AMEOHarm Subject: Re: Re: COALITIONS/Generation Rescue

Thanks and JB.

Bob - I'll collect the responses I've gotten from interested groups so we can start a contact list.

I really like the idea of a "peer network".

So far I've got NAA, UA, Generation Rescue, A-CHAMP, Charlotte STAR, SafeMinds, Autism One and that really hot guy from California. Did I miss anyone that has already responded?

NAA-LI? NAA-NJ? You guys in?

Re: COALITIONS/Generation Rescue

We think it's a great idea - count us in. & JB> > Autism Speaks would talk to people if they wanted to donate money,> but had nothing to offer these callers in terms of support? So they> took the money and then passed the people on to UA - where you used> your hard-earned resources to help these families and got nothing in> the way of support from the rest of the coalition? Sounds like they> are using you - big time.> >> > Other than the wonderful support to families given through UA and> your call center, what exactly is the Autism Coalition doing with> the millions and millions of dollars being funneled into it? What> are they doing for my daughter? I'm sick to death of organizations> formed to "raise awareness". SCREW RAISING AWARENESS. 1 in 6 kids> in this country requires special ed services! If we are still> unaware, we're in big trouble. (, you know I am not> directing these comments toward UA - I fully support and am in awe> of all that you do.)> >> > I think the time has come for a new coalition. A coalition in the> true sense of the word - one that will work TOGETHER for our kids.> A group of like-minded orgs who are willing to really work as a> team. We all have different appoaches and agendas, but the big> issue that we agree on is thimerosal.> >> > I propose a new Coalition and invite Unlocking Autism, SafeMinds,> Generation Rescue, TACA, Autism One, A-Champ PAC, CoMed, NAA and any> other groups who wish to lend their voices to do so now. It's time> to sing in unison. We can start with the Combating Autism Act of> 2005.> >> > The Combating Autism Act has got to be changed. It specifies that> no research studies on immune, endocrine, gastro and toxicological> issues can be done for 3 years!!!! Everything that we KNOW is> important to help our kids get better will have ZERO chance of> getting funded if this bill should pass as is.> >> > The Autism Coalition wrote this bill. Now the other organizations,> and parents that will support us, have to stand strong to make this> bill work for our kids. NAA is working on this issue and we invite> all other autism orgs, including Unlocking Autism, to stand united> for biomedical, immune, gastrointestinal, toxicological and> environmental research for our kids that will help them now.> Together we can achieve great things....> >> > > >

June 13, 2005

on 6/13/05 8:37 AM, Fournier at @... wrote:

Thanks and JB.

Bob - I'll collect the responses I've gotten from interested groups so we can start a contact list.

I really like the idea of a " peer network " .

So far I've got NAA, UA, Generation Rescue, A-CHAMP, Charlotte STAR, SafeMinds, Autism One and that really hot guy from California. Did I miss anyone that has already responded?

NAA-LI? NAA-NJ? You guys in?

Can I tell you how funny this is because I just told Gilmore this sunday morning- that when we send out an action alert or important email, or even press release- we should go around and have people sign on to it. So, it shows the actually groups coming together and getting involved. I think it adds more to the item- like it just doesn't come from one person. Makes people pay attention and take it more seriously.

-

June 13, 2005

Another suggestion: I think it would also be wise to consider local

political groups working with A-CHAMP and this new coalition. That

way, all the biggies are in, but all the people working at the state

level are also involved. I know it may be impossible to have a

delegate from each state, but for the states with people already in

place, already pushing for the right kind of legislation to help our

kids, it could bring in more support. Just my .02

-

> > > Autism Speaks would talk to people if they wanted to donate

> money,

> > but had nothing to offer these callers in terms of support?

So

> they

> > took the money and then passed the people on to UA - where

you

> used

> > your hard-earned resources to help these families and got

nothing

> in

> > the way of support from the rest of the coalition? Sounds

like

> they

> > are using you - big time.

> > >

> > > Other than the wonderful support to families given through

UA

> and

> > your call center, what exactly is the Autism Coalition doing

with

> > the millions and millions of dollars being funneled into it?

What

> > are they doing for my daughter? I'm sick to death of

organizations

> > formed to " raise awareness " . SCREW RAISING AWARENESS. 1 in 6

kids

> > in this country requires special ed services! If we are still

> > unaware, we're in big trouble. (, you know I am not

> > directing these comments toward UA - I fully support and am

in awe

> > of all that you do.)

> > >

> > > I think the time has come for a new coalition. A coalition

in

> the

> > true sense of the word - one that will work TOGETHER for our

kids.

> > A group of like-minded orgs who are willing to really work as

a

> > team. We all have different appoaches and agendas, but the big

> > issue that we agree on is thimerosal.

> > >

> > > I propose a new Coalition and invite Unlocking Autism,

> SafeMinds,

> > Generation Rescue, TACA, Autism One, A-Champ PAC, CoMed, NAA

and

> any

> > other groups who wish to lend their voices to do so now. It's

time

> > to sing in unison. We can start with the Combating Autism Act

of

> > 2005.

> > >

> > > The Combating Autism Act has got to be changed. It

specifies

> that

> > no research studies on immune, endocrine, gastro and

toxicological

> > issues can be done for 3 years!!!! Everything that we KNOW is

> > important to help our kids get better will have ZERO chance of

> > getting funded if this bill should pass as is.

> > >

> > > The Autism Coalition wrote this bill. Now the other

> organizations,

> > and parents that will support us, have to stand strong to

make

> this

> > bill work for our kids. NAA is working on this issue and we

invite

> > all other autism orgs, including Unlocking Autism, to stand

united

> > for biomedical, immune, gastrointestinal, toxicological and

> > environmental research for our kids that will help them now.

> > Together we can achieve great things....

> > >

>

> -------------------------------------------------------------------

-----------

>

June 13, 2005

Thanks, Christinia. That is precisely what we had in mind.

By the way, I know that TACA, A.'s group, is very supportive and

is interested in helping to lead this effort.

On Jun 13, 2005, at 9:11 AM, christinablakey wrote:

> Another suggestion: I think it would also be wise to consider local

> political groups working with A-CHAMP and this new coalition. That

> way, all the biggies are in, but all the people working at the state

> level are also involved. I know it may be impossible to have a

> delegate from each state, but for the states with people already in

> place, already pushing for the right kind of legislation to help our

> kids, it could bring in more support. Just my .02

> -

>

> > > > Autism Speaks would talk to people if they wanted to donate

> > money,

> > > but had nothing to offer these callers in terms of support?

> So

> > they

> > > took the money and then passed the people on to UA - where

> you

> > used

> > > your hard-earned resources to help these families and got

> nothing

> > in

> > > the way of support from the rest of the coalition? Sounds

> like

> > they

> > > are using you - big time.

> > > >

> > > > Other than the wonderful support to families given through

> UA

> > and

> > > your call center, what exactly is the Autism Coalition doing

> with

> > > the millions and millions of dollars being funneled into it?

> What

> > > are they doing for my daughter? I'm sick to death of

> organizations

> > > formed to " raise awareness " . SCREW RAISING AWARENESS. 1 in 6

> kids

> > > in this country requires special ed services! If we are still

> > > unaware, we're in big trouble. (, you know I am not

> > > directing these comments toward UA - I fully support and am

> in awe

> > > of all that you do.)

> > > >

> > > > I think the time has come for a new coalition. A coalition

> in

> > the

> > > true sense of the word - one that will work TOGETHER for our

> kids.

> > > A group of like-minded orgs who are willing to really work as

> a

> > > team. We all have different appoaches and agendas, but the big

> > > issue that we agree on is thimerosal.

> > > >

> > > > I propose a new Coalition and invite Unlocking Autism,

> > SafeMinds,

> > > Generation Rescue, TACA, Autism One, A-Champ PAC, CoMed, NAA

> and

> > any

> > > other groups who wish to lend their voices to do so now. It's

> time

> > > to sing in unison. We can start with the Combating Autism Act

> of

> > > 2005.

> > > >

> > > > The Combating Autism Act has got to be changed. It

> specifies

> > that

> > > no research studies on immune, endocrine, gastro and

> toxicological

> > > issues can be done for 3 years!!!! Everything that we KNOW is

> > > important to help our kids get better will have ZERO chance of

> > > getting funded if this bill should pass as is.

> > > >

> > > > The Autism Coalition wrote this bill. Now the other

> > organizations,

> > > and parents that will support us, have to stand strong to

> make

> > this

> > > bill work for our kids. NAA is working on this issue and we

> invite

> > > all other autism orgs, including Unlocking Autism, to stand

> united

> > > for biomedical, immune, gastrointestinal, toxicological and

> > > environmental research for our kids that will help them now.

> > > Together we can achieve great things....

> > > >

> >

> > -------------------------------------------------------------------

> -----------

> >

June 13, 2005

,

I see Bob Krakow has already answered your email. I would just like to add

A-CHAMP intends to

do this and is already working with and is supportive of several

organizations in their state level initiatives.

One of the reoccurring comments made by congressional staff is that 'the

autism community is

NOT united'. This has enabled them to dismiss our concerns saying, 'you

people don't even agree

amongst yourselves'. Even one of our best allies, Congressman Weldon, has

made this observation.

And they can always find some people to point too and say they disagree with

us. And while we may

not always agree on every issue, we do agree in principle on most issues and

that our children's rights and

health must be protected and made a priority by our elected officials.

It has been suggested by several senior staffers that they would like one

group to deal with. They have

difficulty and don't have the time to meet individually with everyone. While

sympathetic to individual

parents stories, they are not generally persuaded to take policy positions

or enact legislation based on

them. We feel our elected officials are responsible to all of their

constituents, and each individual has a right

to be heard. However, if we provide them with an organization that

represents many in our community they

will take us and our issues more seriously. We take away their excuse for

doing nothing. The more supporting

groups included in that organization, the more powerful our community

becomes. Each group or individual is

still able to pursue areas of interest with their representatives, but we

need to have our own lobbying group that

will coordinate with our organizations, become a presence in DC and take our

issues forward in order to influence

our elected officials and develop long term strategies that will benefit all

our children.

Having a list of supporting organizations gives our community power when we

address political issues whether it

be in Congress or in the state legislatures. When A-CHAMP goes, it will go

with the support of numerous other

organizations. A-CHAMP has just begun to list supporting organizations

(large national and small state groups)

on the website as well as supporting individuals who want their voice heard.

Several well respected organizations

have already agreed to add their name in support of A-CHAMP. We are

extremely honored to have their support

and confidence. Any individual or organization, no matter how small, can

join A-CHAMP by going to the website.

http://www.a-champ.org/contact.html

I have every confidence in the power of our community and believe that we

can be every bit as influential as NRA, AARP

or any other special interest organization. Like a well prepared militia,

the more battalions, the more soldiers we have, the

more we can influence the outcome of the battle. And like a choir, the

bigger we are, the more powerful our voice becomes.

Bobbie

A-CHAMP for my son, .

Re: COALITIONS/Generation Rescue

> Another suggestion: I think it would also be wise to consider local

> political groups working with A-CHAMP and this new coalition. That

> way, all the biggies are in, but all the people working at the state

> level are also involved. I know it may be impossible to have a

> delegate from each state, but for the states with people already in

> place, already pushing for the right kind of legislation to help our

> kids, it could bring in more support. Just my .02

> -

>

> > > > Autism Speaks would talk to people if they wanted to donate

> > money,

> > > but had nothing to offer these callers in terms of support?

> So

> > they

> > > took the money and then passed the people on to UA - where

> you

> > used

> > > your hard-earned resources to help these families and got

> nothing

> > in

> > > the way of support from the rest of the coalition? Sounds

> like

> > they

> > > are using you - big time.

> > > >

> > > > Other than the wonderful support to families given through

> UA

> > and

> > > your call center, what exactly is the Autism Coalition doing

> with

> > > the millions and millions of dollars being funneled into it?

> What

> > > are they doing for my daughter? I'm sick to death of

> organizations

> > > formed to " raise awareness " . SCREW RAISING AWARENESS. 1 in 6

> kids

> > > in this country requires special ed services! If we are still

> > > unaware, we're in big trouble. (, you know I am not

> > > directing these comments toward UA - I fully support and am

> in awe

> > > of all that you do.)

> > > >

> > > > I think the time has come for a new coalition. A coalition

> in

> > the

> > > true sense of the word - one that will work TOGETHER for our

> kids.

> > > A group of like-minded orgs who are willing to really work as

> a

> > > team. We all have different appoaches and agendas, but the big

> > > issue that we agree on is thimerosal.

> > > >

> > > > I propose a new Coalition and invite Unlocking Autism,

> > SafeMinds,

> > > Generation Rescue, TACA, Autism One, A-Champ PAC, CoMed, NAA

> and

> > any

> > > other groups who wish to lend their voices to do so now. It's

> time

> > > to sing in unison. We can start with the Combating Autism Act

> of

> > > 2005.

> > > >

> > > > The Combating Autism Act has got to be changed. It

> specifies

> > that

> > > no research studies on immune, endocrine, gastro and

> toxicological

> > > issues can be done for 3 years!!!! Everything that we KNOW is

> > > important to help our kids get better will have ZERO chance of

> > > getting funded if this bill should pass as is.

> > > >

> > > > The Autism Coalition wrote this bill. Now the other

> > organizations,

> > > and parents that will support us, have to stand strong to

> make

> > this

> > > bill work for our kids. NAA is working on this issue and we

> invite

> > > all other autism orgs, including Unlocking Autism, to stand

> united

> > > for biomedical, immune, gastrointestinal, toxicological and

> > > environmental research for our kids that will help them now.

> > > Together we can achieve great things....

> > > >

> >

> > -------------------------------------------------------------------

> -----------

> >

June 13, 2005

Ettina,

We are not discussing logic or facts, we are discussing core beliefs

here. You and the " autism diva " have a set of beliefs that is

fundamentally at odds with those of everyone else here. We see a

crisis in childhood health, where there is an epidemic of disability

among children who would have previously not have had these

disabilities. We do not accept that this illness is inevitable or

positive for our children, we see it as a change imposed by external

causes (there is no such thing as a genetic epidemic) to who are

children truly are. Many of us have children who cannot express

themselves, carry on sophisticated debates and comprehend

abstractions like discrimination and group pride. If they ended up as

high functioning as you, it would be a celebration for most families

here. So congratulations on your work, your acheivements and your

strong sense of self esteem. That is wonderful.

But to the extent that you seek debate on the question of first

principles, you are wasting all of our time, including yours. We have

work to do and don't really have much patience for abstract debates

that require us to accept your beliefs on our children and their

futures as reasonable. We have responsibilities to provide for the

best future for our children: their health, their progress, their

maximum potential. To those " autistics " (most of whom do not carry

the official diagnosis of " autistic disorder " ) who want us to stop

doing this work, I think we have to say: stop wasting our time with

unproductive debates. We have more important concerns to attend to.

Mark

> > > > > > Autism Speaks would talk to people if they wanted to

> donate

> > > > money,

> > > > > but had nothing to offer these callers in terms of

support?

> So

> > > > they

> > > > > took the money and then passed the people on to UA - where

> you

> > > > used

> > > > > your hard-earned resources to help these families and got

> > > nothing

> > > > in

> > > > > the way of support from the rest of the coalition? Sounds

> like

> > > > they

> > > > > are using you - big time.

> > > > > >

> > > > > > Other than the wonderful support to families given

through

> UA

> > > > and

> > > > > your call center, what exactly is the Autism Coalition

doing

> > > with

> > > > > the millions and millions of dollars being funneled into

it?

> > > What

> > > > > are they doing for my daughter? I'm sick to death of

> > > organizations

> > > > > formed to " raise awareness " . SCREW RAISING AWARENESS. 1 in

6

> > > kids

> > > > > in this country requires special ed services! If we are

still

> > > > > unaware, we're in big trouble. (, you know I am not

> > > > > directing these comments toward UA - I fully support and

am

> in

> > > awe

> > > > > of all that you do.)

> > > > > >

> > > > > > I think the time has come for a new coalition. A

coalition

> in

> > > > the

> > > > > true sense of the word - one that will work TOGETHER for

our

> > > kids.

> > > > > A group of like-minded orgs who are willing to really work

> as a

> > > > > team. We all have different appoaches and agendas, but the

> big

> > > > > issue that we agree on is thimerosal.

> > > > > >

> > > > > > I propose a new Coalition and invite Unlocking Autism,

> > > > SafeMinds,

> > > > > Generation Rescue, TACA, Autism One, A-Champ PAC, CoMed,

NAA

> > > and

> > > > any

> > > > > other groups who wish to lend their voices to do so now.

> It's

> > > time

> > > > > to sing in unison. We can start with the Combating Autism

> Act of

> > > > > 2005.

> > > > > >

> > > > > > The Combating Autism Act has got to be changed. It

> specifies

> > > > that

> > > > > no research studies on immune, endocrine, gastro and

> > > toxicological

> > > > > issues can be done for 3 years!!!! Everything that we KNOW

is

> > > > > important to help our kids get better will have ZERO

chance

> of

> > > > > getting funded if this bill should pass as is.

> > > > > >

> > > > > > The Autism Coalition wrote this bill. Now the other

> > > > organizations,

> > > > > and parents that will support us, have to stand strong to

> make

> > > > this

> > > > > bill work for our kids. NAA is working on this issue and

we

> > > invite

> > > > > all other autism orgs, including Unlocking Autism, to

stand

> > > united

> > > > > for biomedical, immune, gastrointestinal, toxicological and

> > > > > environmental research for our kids that will help them

now.

> > > > > Together we can achieve great things....

> > > > > >

> > > >

> > > > ---------------------------------

> > > >

June 13, 2005