Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 Dear , thank you, sometimes when my daughter is haveing bad times she will call her grandma, last night we went over my mom and dads and before we left my dad tells her you and your mom need to get along cause none of us in the family needs this in our lives we have problems to , i cried alot after shauna went to bed cause you know they dont have a clue about what she going through or i , im so very angry , i will never talk to them about our problem , nor shauna , im angry , but again im devestated that he would tell her that, she has no friends, thats why she calls her grandma to talk, i have let them know about shaunas illness and they still dont gaet it cause if they did it would probably be different, shaunas therapist said she would be glad to speak with them in person to explain shaunas illness if they would make apt, and go see her, well its been about a month know and no apt. has been made, I dont know what to think of it anymore , i cant be trying to figure them out, but on the other hand i need someone, Its hard for my family to believe me probably cause shauna is so good around them and dosent show any ocd behaviors around them ( why do you think that is) please reply back thank you Patty in calif. To Patty in CA Hi Patty, If you haven't already put a call in to Shauna's psychiatrist, you need to do so NOW! It doesn't matter that it is the weekend. You are the sole caretaker for your daughter, and from what you have said in your posts there is NO ONE to really help you when you need a break. It sounds like you need one desperately now. I have been in your shoes many many times and I know how the anger and fear build up and collide within you in situations like this. It sounds like Shauna may need a change in her meds. Don't be shy with her Dr. Tell him/her that something must be done this weekend as the situation is very bad. I have done this and have gotten results from my son's psychiatrist before. When we have been in the change/adjusting med stage there have been a couple of times when he wasn't doing well and was uncontrollable. Our Dr. will respond in these situations as he knows that even one day can make a difference for these kids when we are changing/adjusting meds. Make sure the Dr. knows that you do not have anyone to help you right now. I hope this helps you. Let us know what you end up doing. in Southeastern PA --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 Hi Patty, I'm really sorry you and Shauna are having such a hard time right now. I'm wondering if there is a support group in your area that might be helpful. I feel SO fortunate that in our area we have a kids OCD support group and a group for the parents which meets at the same time. I know that such groups don't exist in very many places. You could call your Children's Hospital psychiatry dept. or if there is a psychiatric hospital near you they may have groups. You might also try the National Alliance for the Mentally Ill to ask about groups. It sounds like most of the other adults in your life really don't understand what you are going through. A group of parents all dealing with similar issues should be able to offer you some support. Have you asked here on the list if anyone lives near you? Maybe you could meet for coffee? Good Luck. We'll be thinking of you. Kathy At 8:45 AM -0800 11/4/2001, patricia manzanares wrote: > > Dear , thank you, sometimes when my daughter is haveing bad times >she will call her grandma, last night we went over my mom and dads and >before we left my dad tells her you and your mom need to get along cause >none of us in the family needs this in our lives we have problems to , i >cried alot after shauna went to bed cause you know they dont have a clue >about what she going through or i , im so very angry , i will never talk >to them about our problem , nor shauna , im angry , but again im >devestated that he would tell her that, she has no friends, thats why she >calls her grandma to talk, i have let them know about shaunas illness and >they still dont gaet it cause if they did it would probably be different, >shaunas therapist said she would be glad to speak with them in person to >explain shaunas illness if they would make apt, and go see her, well its >been about a month know and no apt. has been made, I dont know what to >think of it anymore , i cant be trying to figure them out, but on the >other hand i need someone, Its hard for my family to believe me probably >cause shauna is so good around them and dosent show any ocd behaviors >around them ( why do you think that is) please reply back thank you >Patty in calif. > > > > To Patty in CA > > > >Hi Patty, If you haven't already put a call in to Shauna's psychiatrist, >you need to do so NOW! It doesn't matter that it is the weekend. You are >the sole caretaker for your daughter, and from what you have said in your >posts there is NO ONE to really help you when you need a break. It sounds >like you need one desperately now. I have been in your shoes many many >times and I know how the anger and fear build up and collide within you in >situations like this. It sounds like Shauna may need a change in her >meds. Don't be shy with her Dr. Tell him/her that something must be done >this weekend as the situation is very bad. I have done this and have >gotten results from my son's psychiatrist before. When we have been in >the change/adjusting med stage there have been a couple of times when he >wasn't doing well and was uncontrollable. Our Dr. will respond in these >situations as he knows that even one day can make a difference for these >kids when we are changing/adjusting meds. Make sure the Dr. knows that >you do not have anyone to help you right now. I hope this helps you. Let >us know what you end up doing. in Southeastern PA > > > > > >--------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 Hi Patty, From what I have heard over the years from many other people, some with children who have OCD and some who have other disorders, it is not uncommon for family to not truly understand or comprehend what we are living. You often hear on this list that a lot of the kids who have OCD can mostly control their symptoms while out of the house...it is where they feel safe that they can let go enough to be symptomatic, which in many cases is home. I guess in some ways I am lucky that my son is pretty much the same no matter where he goes, which the school doesn't always like! My family has been supportive of what I have had to do for Tommy, but I am estranged from my father-in-law and his wife...they are completely non-supportive and disengaged from my children, and I am married still!Have you been able to get in touch with the Doctor who is prescribing Shauna's medication? If he/she doesn't call you back right away, please keep calling. I cannot tell you enough that we are all glad you are posting - remember YOU ARE STRONG!!! Only STRONG people can recognize when they need help and ask for it! I hope things have been a little calmer for you today. I don't remember, have you been able to do any CBT or ERP with Shauna yet? Let us know and hang in there! Blessings, in Southeastern PA patricia manzanares <pattymanzanares@...> wrote: Dear , thank you, sometimes when my daughter is haveing bad times she will call her grandma, last night we went over my mom and dads and before we left my dad tells her you and your mom need to get along cause none of us in the family needs this in our lives we have problems to , i cried alot after shauna went to bed cause you know they dont have a clue about what she going through or i , im so very angry , i will never talk to them about our problem , nor shauna , im angry , but again im devestated that he would tell her that, she has no friends, thats why she calls her grandma to talk, i have let them know about shaunas illness and they still dont gaet it cause if they did it would probably be different, shaunas therapist said she would be glad to speak with them in person to explain shaunas illness if they would make apt, and go see her, well its been about a month know and no apt. has been made, I dont know what to think of it anymore , i cant be trying to figure them out, but on the other hand i need someone, Its hard for my family to believe me probably cause shauna is so good around them and dosent show any ocd behaviors around them ( why do you think that is) please reply back thank you Patty in calif. To Patty in CA Hi Patty, If you haven't already put a call in to Shauna's psychiatrist, you need to do so NOW! It doesn't matter that it is the weekend. You are the sole caretaker for your daughter, and from what you have said in your posts there is NO ONE to really help you when you need a break. It sounds like you need one desperately now. I have been in your shoes many many times and I know how the anger and fear build up and collide within you in situations like this. It sounds like Shauna may need a change in her meds. Don't be shy with her Dr. Tell him/her that something must be done this weekend as the situation is very bad. I have done this and have gotten results from my son's psychiatrist before. When we have been in the change/adjusting med stage there have been a couple of times when he wasn't doing well and was uncontrollable. Our Dr. will respond in these situations as he knows that even one day can make a difference for these kids when we are changing/adjusting meds. Make sure the Dr. knows that you do not have anyone to help you right now. I hope this helps you. Let us know what you end up doing. in Southeastern PA --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 whats cbt or erp , im not sure what that is, and thank you soooo much for your support, i dont know what id do without wonderful people like you,your all i have right now, you hang in there to ok Patty in calif, To Patty in CA Hi Patty, If you haven't already put a call in to Shauna's psychiatrist, you need to do so NOW! It doesn't matter that it is the weekend. You are the sole caretaker for your daughter, and from what you have said in your posts there is NO ONE to really help you when you need a break. It sounds like you need one desperately now. I have been in your shoes many many times and I know how the anger and fear build up and collide within you in situations like this. It sounds like Shauna may need a change in her meds. Don't be shy with her Dr. Tell him/her that something must be done this weekend as the situation is very bad. I have done this and have gotten results from my son's psychiatrist before. When we have been in the change/adjusting med stage there have been a couple of times when he wasn't doing well and was uncontrollable. Our Dr. will respond in these situations as he knows that even one day can make a difference for these kids when we are changing/adjusting meds. Make sure the Dr. knows that you do not have anyone to help you right now. I hope this helps you. Let us know what you end up doing. in Southeastern PA --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 Hi Patty, CBT stands for Cognitive Behavioral Therapy and ERP is for Exposure Response , which is the recommended therapy for treating OCD. It is possible that Shauna's therapist is not trained in this, or it is possible that Shauna is not stable enough to participate in this form of therapy yet. There have been several times during the course of my son's illness that he has not been able to " boss back " his symptoms to keep OCD at bay. It is during those times that he has needed some more help medically. meaning needed a change or increase in medication. Have you gotten in touch with Shauna's psychiatrist yet? in Southeastern PA patricia manzanares <pattymanzanares@...> wrote: whats cbt or erp , im not sure what that is, and thank you soooo much for your support, i dont know what id do without wonderful people like you,your all i have right now, you hang in there to ok Patty in calif, To Patty in CA Hi Patty, If you haven't already put a call in to Shauna's psychiatrist, you need to do so NOW! It doesn't matter that it is the weekend. You are the sole caretaker for your daughter, and from what you have said in your posts there is NO ONE to really help you when you need a break. It sounds like you need one desperately now. I have been in your shoes many many times and I know how the anger and fear build up and collide within you in situations like this. It sounds like Shauna may need a change in her meds. Don't be shy with her Dr. Tell him/her that something must be done this weekend as the situation is very bad. I have done this and have gotten results from my son's psychiatrist before. When we have been in the change/adjusting med stage there have been a couple of times when he wasn't doing well and was uncontrollable. Our Dr. will respond in these situations as he knows that even one day can make a difference for these kids when we are changing/adjusting meds. Make sure the Dr. knows that you do not have anyone to help you right now. I hope this helps you. Let us know what you end up doing. in Southeastern PA --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 Thank you , Im going to email her psychiatrist, it would be faster to email him verses call thanks LOL patty in calif, To Patty in CA Hi Patty, If you haven't already put a call in to Shauna's psychiatrist, you need to do so NOW! It doesn't matter that it is the weekend. You are the sole caretaker for your daughter, and from what you have said in your posts there is NO ONE to really help you when you need a break. It sounds like you need one desperately now. I have been in your shoes many many times and I know how the anger and fear build up and collide within you in situations like this. It sounds like Shauna may need a change in her meds. Don't be shy with her Dr. Tell him/her that something must be done this weekend as the situation is very bad. I have done this and have gotten results from my son's psychiatrist before. When we have been in the change/adjusting med stage there have been a couple of times when he wasn't doing well and was uncontrollable. Our Dr. will respond in these situations as he knows that even one day can make a difference for these kids when we are changing/adjusting meds. Make sure the Dr. knows that you do not have anyone to help you right now. I hope this helps you. Let us know what you end up doing. in Southeastern PA --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 Dear Patty - If you've not been on the OCD Foundation's website (www.ocfoundation.org) you will find a wealth of information there. In a recent article in their newsletter, in addition to featuring this online support group and others started by Louis Harkins, OCF profiled the UCLA program for OCD. I don't know where you are in California, but, if anywhere in the LA area, the clinical staff (director is Gerald Tarlow) has an intensive therapy program for OCD sufferers. If you are not in southern California, Tarlow and staff may still be able to recommend this specialized therapy from someone nearer to your location. Good luck, and give yourself a hug! You are doing the right things for Shauna, and people who don't understand what you are both going through may second guess you. Moms mostly have an instinct for what is the right thing to pursue for their kids, and you are on the right track. Don't doubt yourself, just keep searching for the light. Shauna may not like you very much right now, but someday she'll realize all you have done to get the information you both need to cope with this. Quid " Sometimes there is no greater gift we can give each other than simply 'being there'. " Dear , thank you, sometimes when my daughter is haveing bad times she will call her grandma, last night we went over my mom and dads and before we left my dad tells her you and your mom need to get along cause none of us in the family needs this in our lives we have problems to , i cried alot after shauna went to bed cause you know they dont have a clue about what she going through or i , im so very angry , i will never talk to them about our problem , nor shauna , im angry , but again im devestated that he would tell her that, she has no friends, thats why she calls her grandma to talk, i have let them know about shaunas illness and they still dont gaet it cause if they did it would probably be different, shaunas therapist said she would be glad to speak with them in person to explain shaunas illness if they would make apt, and go see her, well its been about a month know and no apt. has been made, I dont know what to think of it anymore , i cant be trying to figure them out, but on the other hand i need someone, Its hard for my family to believe me probably cause shauna is so good around them and dosent show any ocd behaviors around them ( why do you think that is) please reply back thank you Patty in calif. > > To Patty in CA > > Hi Patty, If you haven't already put a call in to Shauna's psychiatrist, you need to do so NOW! It doesn't matter that it is the weekend. You are the sole caretaker for your daughter, and from what you have said in your posts there is NO ONE to really help you when you need a break. It sounds like you need one desperately now. I have been in your shoes many many times and I know how the anger and fear build up and collide within you in situations like this. It sounds like Shauna may need a change in her meds. Don't be shy with her Dr. Tell him/her that something must be done this weekend as the situation is very bad. I have done this and have gotten results from my son's psychiatrist before. When we have been in the change/adjusting med stage there have been a couple of times when he wasn't doing well and was uncontrollable. Our Dr. will respond in these situations as he knows that even one day can make a difference for these kids when we are changing/adjusting meds. Make sure the Dr. knows that you do not have anyone to help you right now. I hope this helps you. Let us know what you end up doing. in Southeastern PA > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
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