Re: Digest Number 345

[Guest guest]

This question is directed to all who have rhuematoid arthritis or who's

children have jra. Are you or are your children on

SSI?

Ok - we are in the process of getting SSI for our JRA son - our 3 yr. old

daughter gets it, due to the fact she is losing her site, has failure to

thrive and a verbal delay (although some days I'd disagree - LOL). We have

made the examiners desk and his teachers and doctors are being questioned

currently. Will keep you updated if you'd like.

Kat

[Guest guest]

Hi everyone!

I am so happy to have found this informative and supportive group.

About a week ago, my son was diagnosed with jra. Now that I look back, I see

so many signs that eventually led us to this diagnosis. Tobias is 11 and has

had complaints of " stiffness " and pain in his knees, ankles, toes, wrists,

fingers and neck. They were fairly infrequent but the intensity grew. Two

weeks ago, Toby could hardly walk. It scared us so much! We took him to our

pediatrician, she ordered several different blood tests, x-rays and did a

rather extensive exam. A couple days later, she requested a meeting and we

got the results of some of the tests. Toby was positive with the rheumatoid

factor and several other tests indicated the diagnosis of jra.

As of now, we are still reeling! We are trying to keep things as " normal " as

possible. Toby is a swimmer, so we are fortunate that he can continue that

sport. He also enjoys hockey but hasn't wanted to play so much this year-he

now tells us that it bothers his knees. He seems to be handling things fairly

well and even said he was relieved to at least know what it is that has been

bothering him. He has started on Naproxen and seems to tolerate it well. He

is still complaining of some stiffness but our doc said it takes about a

month to see full effect. We are hoping that the nsaid do the job.

Well, that's our intro into the support group. We have read several of the

entries and everyone is so supportive of one another. Thank you for helping

us " ease " in to this.

I am not sure we understand everything that has happened so far. I know for

myself, I worry about what the prognosis is for Toby. But will we ever know

with such a wide range of branches this disease can take?

Thanks again for your sharing and your support!

Tarbero@...

[Guest guest]

,

WELCOME:) were are a bunch around here but, we have one thing in

common all our babes have jra and we are here for support and just spilling

your guts more or less about how you are feeling and how your child is

feeling. And how the family copes:) Get a cup of java and listen! Take care:)

Teena

[Guest guest]

Hi ,

I was just wondering how your son was doing these days? Has Tobias had

any improvement in his joint pain and stiffness, now that he's been

taking the Naproxen for a while? I hope it works well enough for him to

control all of his symptoms and I hope it doesn't bother his stomache

any. You're right. Swimming is probably the very best form of exercise

for people with arthritis, so that's great that it also happens to be

one of your son's favorite sports activities. Has your pediatrician

recommended that he be seen by a pediatric rheumatologist? If not, maybe

that's something to look into.

Anyway, I just wanted to ask how things were going. I hope eveything's

okay

Take care,

Georgina

Tarbero@... wrote:

> Hi everyone!

> I am so happy to have found this informative and supportive group.

> About a week ago, my son was diagnosed with jra. Now that I look back, I see

> so many signs that eventually led us to this diagnosis. Tobias is 11 and has

> had complaints of " stiffness " and pain in his knees, ankles, toes, wrists,

> fingers and neck. They were fairly infrequent but the intensity grew. Two

> weeks ago, Toby could hardly walk. It scared us so much! We took him to our

> pediatrician, she ordered several different blood tests, x-rays and did a

> rather extensive exam. A couple days later, she requested a meeting and we

> got the results of some of the tests. Toby was positive with the rheumatoid

> factor and several other tests indicated the diagnosis of jra.

> As of now, we are still reeling! We are trying to keep things as " normal " as

> possible. Toby is a swimmer, so we are fortunate that he can continue that

> sport. He also enjoys hockey but hasn't wanted to play so much this year-he

> now tells us that it bothers his knees. He seems to be handling things fairly

> well and even said he was relieved to at least know what it is that has been

> bothering him. He has started on Naproxen and seems to tolerate it well. He

> is still complaining of some stiffness but our doc said it takes about a

> month to see full effect. We are hoping that the nsaid do the job.

> Well, that's our intro into the support group. We have read several of the

> entries and everyone is so supportive of one another. Thank you for helping

> us " ease " in to this.

> I am not sure we understand everything that has happened so far. I know for

> myself, I worry about what the prognosis is for Toby. But will we ever know

> with such a wide range of branches this disease can take?

> Thanks again for your sharing and your support!

>

> Tarbero@...

[Guest guest]

Barbara, I have had four surgeries. My youngest one was when I was 6. The

recovery was, at longest, three months in casts. I think what got me through

the recovery most was that I was so eager to get back to the horses, I was

determined to get well. I guess that you should just try to encourage your

daughter to get better without pushing it. Maybe make it into a game...

like " if you do all of your exercises this week, you can have... or do this. "

Liz

<< Have you had any surgeries? If so, what was the recovery like? Do

you have any advice I can pass on to my daughter? >>

[Guest guest]

Boy I am so tired of the bickering. Can't everyone just ignore stupidness.

What they want is attention, and if it is not given they will go away. IGNORE

IGNORANCE!!!

Jacque

[Guest guest]

TO DEBRA MITCHELL IN NEW ORLEANS ----

I don't think anyone really answered you about the MSM. It is very good, it is

an antifungal, and somewhat antiparasitic. It's good for joint health too. It

will

clear up your head in minutes of congestion. It knocks out tapeworm. Let me

see, ......what else? It is a versatile product.

Great to contact you. Let me know if I can help with anything else. You can

e-mail me directly at my e-mail address. I don't know everything (who does?)

but will

try to help... You can help me too.

Take care....

- D. in land

egroups wrote:

>

>

> You are receiving this email because you elected to subscribe to the

mailing list.

[Guest guest]

In a message dated 8/12/00 3:19:12 AM Pacific Daylight Time,

egroups writes:

<< Which of course nobody with mercury intoxication ever ever ever ever ever

ever has since their problem is the pituitary gets poisoned and doesn't make

enough TSH, which is why their thyroid levels are too low.

I have never heard of anyone actually having an endocrinologist do something

sensible about their endocrine problems - medicine appears to have become a

Kafka-esque bureaucracy where those MD's who are supposed to treat something

properly are the last ones who are about to do it.

Andy

>>

This explains why we had to go to h$#@ and back finding some thyroid hormones

for my daughter. She had all the signs of hypothyroidism and more, and she

started to develop that emaciated autistic look. But at 4.56 or something

like that, her TSH was in the " normal " range. Two endocrinologists at

Children's assured our pediatrician there was no problem. What will it take

to wake these idiots up?

[Guest guest]

<< But at 4.56 or something

like that, her TSH was in the " normal " range. Two endocrinologists at

Children's assured our pediatrician there was no problem. What will it take

to wake these idiots up? >>

The elimination of licensure protection so the go bankrupt from competent

competition. That is the minimum requirement to get their attention.

BTW, most sane MD's realize that a TSH above 2.0 is high enough to merit

treatment if other things suggest it.

Andy

[Guest guest]

I have a wasted autistic son (literally). Please explain what you did?

KAthy

Re: [ ] Digest Number 345

>In a message dated 8/12/00 3:19:12 AM Pacific Daylight Time,

> egroups writes:

>

><< Which of course nobody with mercury intoxication ever ever ever ever

ever

> ever has since their problem is the pituitary gets poisoned and doesn't

make

> enough TSH, which is why their thyroid levels are too low.

>

> I have never heard of anyone actually having an endocrinologist do

something

> sensible about their endocrine problems - medicine appears to have become

a

> Kafka-esque bureaucracy where those MD's who are supposed to treat

something

> properly are the last ones who are about to do it.

>

> Andy

> >>

>This explains why we had to go to h$#@ and back finding some thyroid

hormones

>for my daughter. She had all the signs of hypothyroidism and more, and she

>started to develop that emaciated autistic look. But at 4.56 or something

>like that, her TSH was in the " normal " range. Two endocrinologists at

>Children's assured our pediatrician there was no problem. What will it take

>to wake these idiots up?

>

>

>

>

>

>

[Guest guest]

-----Original Message-----

From: ldamico [mailto:ldamico@...]

I don't think anyone really answered you about the MSM.

--------------------------

Hmmm, maybe we didn't. I found my information through the GSE

(grapefruit seed extract) http://www.nutriteam.com newsletter link

which had a link to MSM information. This is what it said:

" Please let me digress from the subject of GSE for this particular

newsletter, because of a product that has produced positive results with

enormously reliable frequency. This product is MSM. I urge you list

members to take a look at the information available, in spite of the 'up

front' appearance. Yes, anything with a name like " methyl sulfonyl

methane " , why, it sounds like it could blow up, or worse!

But in reality, MSM really is a part of the normal food chain, and an

insufficiency of this form of biological sulfur in the diet can produce

all kinds of problems. The very good news is that a small supplement

daily for a few weeks(and in many cases just a few days) has produced

amazingly good results for many of our NutriTeam customers, and many of

my

own personal friends. Conditions like arthritis, back pain, rash,

inflammation, ulcerous skin conditions, and more, have responded with

such

predictability, that I feel obligated to direct your attention to this

substance. And it is truly safe: one of the lead researchers calls it

" safer than water " . It's been available for nearly 20 years, but it has

gained wide acceptance only recently.

I hope you'll check out the information at http://nutriteam.com/msm.htm

and let us know what you think. You will also find that the rest of the

internet health community is buzzing with the news, as any search engine

search will reveal. "

The link has a lot of information. Hope this helps.

& , Mississippi Gulf Coast, USA

[Guest guest]

I keep getting these and don't know how to access the articles listed. Once,

I got the info. Please help

[Guest guest]

-

As I understand it, the benefits of sourdough bread besides the

elimination of phytic acid are that it feeds friendly bacteria in the

gut and helps to stimulate peristalsis. Even after being heated,

apparently some lactobacillius remain. Sources besides NT that I've seen

discuss this are Laurel's Bread Book, The Grain and Salt Society and

this page at French Meadow Bakery

http://www.frenchmeadowbakery.com/noyeast.htm

The fact that the bread continues to sour a bit in the days after baking

and that it ages well seems to indicate that it is somewhat a living

food, or at least a good host for friendly bacteria, unlike most cooked

foods which spoil quickly. I think I read in NT, correct me if I'm

wrong, that even the mold that might form on it is not harmful.

I've done some experimenting with the seed cheeses. I'm trying to devise

a sandwich spread. Some I've made have been pretty good, but nothing

good enough to repeat. My dog is always willing to eat my flops :-).

Anyway, I've been grinding a combination of seeds and spices with whey

in the Vita-Mix and then putting them in a covered jar for a few days.

Baker has recipes in her Uncook Book using fermec (rejuvelac)

in place of whey. She says that the mold that forms on the sesame cheese

is good to eat and that if it is stirred back into the cheese will

impart a blue cheese flavor. Her recipe calls for 3 cups seed meal, 1 c.

or more fermec & 2-3 tsp. kelp. Cover, press into covered dish and leave

out 1-2 days, then refrigerate.

Meg

http://community.webtv.net/MegDCL/ForGoodnessSakeRanch

[Guest guest]

Hi .

A loss is a loss. :-) I had the bad cookout day, too. And a birthday party

tonight with like half of a 1/2 sheet cake in here. And the sugar cravings

have been intense! I'm going to try the FoodMover 30 challenge starting

tomorrow and hopefully see some changes. Sigh, hormones.... Hang in there,

girlie. :-) You're doing great!

Hiya !

Way to go! Great job! Soon we'll meet up to do a little shopping I hope.

:-) We'll be driving through your area tomorrow and stopping by the thrift

store & flea markets. Maybe I'll see you there. :-)

Hi Sylvie. :-)

Hugs! That's a small gain that you'll lose soon. You can do it!

Have a wonderful Sunday, all.

BB!

Sherrie

-----------------

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HREF= " http://members.ebay.com/aboutme/sc_wahm/ " >http://members.ebay.com/aboutme/\

sc_wahm/</A>

http://members.ebay.com/aboutme/jillryangifts

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HREF= " http://user.auctions.shopping./user/sc_wahm " >http://user.auctions\

..shopping./user/sc_wahm</A>

http://www.bidbay.com/index.php?page=aboutme & user=964312859

==========

<A

HREF= " auctionspam " >a\

uctionspam</A>

[Guest guest]

>Hi Sylvie. :-)

>Hugs! That's a small gain that you'll lose soon. You can do it!

>

>Have a wonderful Sunday, all.

>BB!

>Sherrie

Thanks Sherrie, I'm okay about it. When I stopped smoking in 1998 I gained

15 pounds in 2 weeks so I'm happy about the just 2 pounds. Plus I'm sorted

finally feeling proud about stopping smoking.

Sylvie

*~:.:~**~:.:~**~:.:~**~:.:~**~:.:~**~:.:~**~:.:~**~:.:~*

" Happiness is doing with a smile

what you have to do anyway "

- anonymous

" You better slow down. Don't dance so fast.

Time is short. The music won't last. "

- anonymous

[Guest guest]

I asked the same question a while ago, then went to their website and noticed there were two models, both the same price (about $800) which had widely different specs. From reading, I couldn't determine which was preferable. Both were cheap neurofeedback devices, stand-alone without a computer, and portable.

From: Goldring <paul.goldring@...>Subject: Re: Pocket NeurobicsPardon my ignorance but what is POCKET NEUROBICS?

[Guest guest]

You can create two identities with different files. Then it is a short step to go back and select the second identity, without a lot of fiddling while the client is there. Later, you will have two graphs, which can be opened by selecting their names, and printed separately.________________________________________________________________________________________________________________________________________________Message: 4 Date: Fri, 25 Apr 2003 08:33:35 -0400 From: Goldring <paul.goldring@...>Subject: two questions1) If I run two protocols on a patient do I have to stop the session, go back to the home screen and change all the settings? Then if I do I have essentially two sessions for a person on the same day. Then the end session graph has two seperate graphs for that person that day. Is there a work around?2) I have Space Crystal on my desktop (not sure exactly how it got there) but it isn't listed in the Launch Window under add-on games. How do I run it?

[Guest guest]

Actually the specs aren't THAT different.

One allows you to do light and sound driving (the A2) and up to 4 channels of monopolar neurofeedback. The other (A1) trades off the light driving for the ability to do up to two channels of HEG (blood flow feedback) or to combine HEG in one channel with EEG in one channel (though you have to buy a $500 headband from Hershel Toomim to do the HEG).

Pete

-----Original Message-----From: Gene [mailto:genedoug@...]Sent: Saturday, April 26, 2003 8:07 AM Subject: Re: Digest Number 345

I asked the same question a while ago, then went to their website and noticed there were two models, both the same price (about $800) which had widely different specs. From reading, I couldn't determine which was preferable. Both were cheap neurofeedback devices, stand-alone without a computer, and portable.

[Guest guest]

Gene,

Your point is a good one.

I never create an ID for a client alone. Every ID is for a client and a protocol. I use a simply formula for naming them (given that the name is limited to 8 characters): first two letters of the first name, first two letters of the last name, and two letters for the reward and two for the inhibit. So beta up/theta down for Pete Van Deusen would be pebebeth. That's with a lot of clients. It allows me to look quickly through the list of ID's and know what each of them is. It also keeps all the specific type of training for a specific client in one place. Obviously if you are working with one or two clients, you can simplify the system: mybethF3.

Pete

-----Original Message-----From: Gene [mailto:genedoug@...]Sent: Saturday, April 26, 2003 8:12 AM Subject: Re: Digest Number 345

You can create two identities with different files. Then it is a short step to go back and select the second identity, without a lot of fiddling while the client is there. Later, you will have two graphs, which can be opened by selecting their names, and printed separately.

[Guest guest]

Do you think that getting off these drugs make people think of sucidie. If we

were not on them and tried to get off maybe we would not be suicidal! Am

somewhat worried.

bluefrannie

exapro wrote:

>

>

[Guest guest]

I would just keep at it, diligence in your immunics. The prayers, vows and your

personal RIKs, lessons, audios playing in the background. I used to have a

vending machine for my best friend and now I hardly notice it there, freedom.

Some things took a little more work.

Blessings

Moiselle

Ok, so you get to the point where you're getting familiar with immunics and

it's working. How do you gain the ability to respect your body to where all

you want to do it treat it with good nutrition and healthy behaviors. 100% ?

I'm curing myself of various diseases but I'm still drawn to lattes and

chocolate chips. Would one work on eliminating addictions? Or install desire

for

things that are good for you ? (doesn't seem to be working)... Or does it

come from just plain having willpower, standing up to temptation ? Ps. the

Nutrition group doesn't seem active,, anyone interested?

Cures include eliminating the hiccups immediately two times !!! and working

on my son's rash, once I got the name of it I knew exactly what to work on

,,, (just generally removing " rash " didn't do it). Aligning my spine in each

of my bodies, really seems to eliminate back troubles....haven't gotten strep

in awhile but still hope to eliminate the vulnerability. My son is having a

healthier year than last year (as am I !) ,, thanks all !

[Guest guest]

, I know what you mean.

Sometimes you feel like you have all your food-related behaviors under control,

and then you get hit with temptation! I think you have to never assume that

anything is under control and keep RIKing. It must be part of the " first you

remove it, then you remove it " thing. I still think it has a lot to do with

agreements also. Somewhere, sometime, we made an agreement not to really try to

lose weight or not to even address the subject in some way. I am trying to

remove agreements, but everytime I think of doing that, I feel a great

resistance. I am currently searching for how to get past the resistance. Any

ideas on that, anybody?

Meredith

lescase@... wrote:

I would just keep at it, diligence in your immunics. The prayers, vows and your

personal RIKs, lessons, audios playing in the background. I used to have a

vending machine for my best friend and now I hardly notice it there, freedom.

Some things took a little more work.

Blessings

Moiselle

Ok, so you get to the point where you're getting familiar with immunics and

it's working. How do you gain the ability to respect your body to where all

you want to do it treat it with good nutrition and healthy behaviors. 100% ?

I'm curing myself of various diseases but I'm still drawn to lattes and

chocolate chips. Would one work on eliminating addictions? Or install desire

for

things that are good for you ? (doesn't seem to be working)... Or does it

come from just plain having willpower, standing up to temptation ? Ps. the

Nutrition group doesn't seem active,, anyone interested?

Cures include eliminating the hiccups immediately two times !!! and working

on my son's rash, once I got the name of it I knew exactly what to work on

,,, (just generally removing " rash " didn't do it). Aligning my spine in each

of my bodies, really seems to eliminate back troubles....haven't gotten strep

in awhile but still hope to eliminate the vulnerability. My son is having a

healthier year than last year (as am I !) ,, thanks all !

[Guest guest]

Hi

What came to mind here is to look closely at immune

dysfunctions and missing functions. Look at what

those causes of those dysfunctions are and remove

those root causes, ex: deformity and traumas.

Then accelerate.

Love

PS I found the only way to remove those long term

immune dysfunctions for good, ex: I had cutoffs as a

long term dysfunction......, was to of course install

pro-actions, but to follow the RIK as far as I could

go.

(Join the yeast group!)

Love

--- lescase@... wrote:

---------------------------------

I would just keep at it, diligence in your immunics.

The prayers, vows and your personal RIKs, lessons,

audios playing in the background. I used to have a

vending machine for my best friend and now I hardly

notice it there, freedom. Some things took a little

more work.

Blessings

Moiselle

Ok, so you get to the point where you're getting

familiar with immunics and

it's working. How do you gain the ability to respect

your body to where all

you want to do it treat it with good nutrition and

healthy behaviors. 100% ?

I'm curing myself of various diseases but I'm still

drawn to lattes and

chocolate chips. Would one work on eliminating

addictions? Or install desire for

things that are good for you ? (doesn't seem to be

working)... Or does it

come from just plain having willpower, standing up to

temptation ? Ps. the

Nutrition group doesn't seem active,, anyone

interested?

Cures include eliminating the hiccups immediately two

times !!! and working

on my son's rash, once I got the name of it I knew

exactly what to work on

,,, (just generally removing " rash " didn't do it).

Aligning my spine in each

of my bodies, really seems to eliminate back

troubles....haven't gotten strep

in awhile but still hope to eliminate the

vulnerability. My son is having a

healthier year than last year (as am I !) ,, thanks

all !