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HELP! Fever, hives, allergic to EVERYthing ... is this an immune

Posted by: "Suzanne" szmidford@... iverus

Mon Aug 14, 2006 7:00 pm (PST)

I am very worried about my 3.9 y.o. son. He's had a low-grade fever for 10 days, and doesn't seem to be shaking the bug that caused it. It began with a real illness - my husband and I both have it, me going on 6 days, and it's a pretty bad bug – sore throat, swollen glands, sinus infection - but no fever in us. My son has had an ear infection (ped says it's gone now), a fever of 99-100, and lethargy and low energy for 10 days now. He is never this sick. He usually shakes off a cold or bug in a normal amount of time, more or less like a typical kid. I'm worried that this is a further sign that his immune system is in the process of crashing. I heard you (Dr. JM) speak about this at the DC DAN this spring, and now I'm wondering if that's what we're witnessing.My son is a hyper-allergic child. He has had severe food allergies from shortly after birth. They've gotten worse over time, to the point he tolerates only a few foods now (we rotate, etc.). Since June, he's suddenly started reacting to foods he's tolerated for a long time and totally new classes of things – airborne stuff, topicals (carpet cleaner, cats, mild creams like Eucerin that he's tolerated since birth). Saturday he got a spot of my makeup on his shirt, and broke out in hives all over. We're seeing this more and more frequently. Some days he'll break out in hives several times over the course of a day, for no apparent cause. Today he woke up in the morning with hives all over his arms.Some recent history --He started SCD in Feb. for yeast/leaky gut/inflammation. He had a great initial response - burst of natural language development, started to become conversational, completed potty training, was starting to feed himself (he has a feeding disorder), social, seeking out peers for play. We did a lot of other interventions this spring that all seemed to help – HBOT, pushed to full-dose LDN from low dose where he'd been for 8 mos., finally found an effective antifungal. I also weaned him in May (though he was only getting about ½ oz. of milk from my by then). The first evidence of a problem was that his stools became undigested in April, and by late May his gains started to slowly collapse. By June he had regressed to his pre-SCD status, and since July he's regressed further and faster. Now he's back to echoic, scripted speech (with a little progress in "trained" language thanks to ABA), playing alone in his own world, obsessed with cars and trains. Potty skills are gone, he must be fed by hand, and he often doesn't notice people around him. He's unresponsive much of the time. This was a kid who eagerly looked forward to seeing his friends at his integrated preschool just 3 months ago, loved to play chase and tag and hide and seek.A June CDSA showed yeast and inflammation were gone, but he had some klebsiella and other opportunistic bacteria. We had just begun stronger probiotics (Custom Probiotics) to address this when he got sick, and we pulled them temporarily because he was showing a lot of gut pain along with the fever. What worries me now is what I originally thought was a good sign. His SigA has decreased into normal range. Yet his actual immune functioning seems worse than it's ever been. Now I am worried that we caught a measurement of the SIgA as it declined ... and that this was perhaps an interim measurement that's simply a snapshot of his SIgA as it crashes to zero. Does this sound like what could happen in an immune crash? If so, what can we do for him? We are running out of things to feed him, and his two very good DANs are running out of ideas. We plan to start TD-Actos in a few weeks, but I'm worried that he'll react to those ingredients (lactose, etc.). He's SUCH a sensitive kid that his allergenicity has really restricted us from trying many treatments that might be able to help. We have been doing biomed for 2 years, and have been told his gut's still not healthy enough to chelate. Dr. JM, or anyone with ideas, please help us figure out what we can do for this poor little guy.Suzanne