Guest guest Posted May 30, 2006 Report Share Posted May 30, 2006 Dear listmates, Below you will find a very long update on the viral protocol I did with my son. I know people are becoming more and more interested in the viral nature of autism, so this may be of some help to a few of you. My son clearly regressed at the age of 21 months after thimerosal containing flu vaccinations, given while he was on antibiotics, but in retrospect I can look back and see that he changed after his MMR which he received very shortly after a severe bout of chicken pox. These changes were slight. Not noticeable to us at the time, but he found it harder to be around people and he started some repetitive activity like opening and closing cupboard doors. I didn¡¦t notice anything amiss at the time because he was still talking like mad, affectionate and joyful with his family. During his regression after the flu vaxs, he stopped talking, started self-injuring, stopped playing, stopped showing affection, etc. We have done two viral protocols. One I stopped after only a couple weeks because his response frightened me. He was lethargic, feverish, vomiting. For this one, we had worked up to only 9 Virastop a day, Sambucol, and a very small amount of OLE I want to talk about the second viral protocol: what we did, what we saw, the results. My son is three. He weighs 34 pounds. He is moderately autistic. Before starting the second VP I had my son on Sambucol, colostrum, astragalus and Echinacea rotated, IP6, and the other more usual assortment of immune boosters our kids tend to get daily (zinc, Vit C, etc). My idea was that a strengthened immune system would be a better starting point for a viral protocol. We started very slowly on March 15, with just one Virastop a day and a couple of Lauricidin pellets. Over time, until our last day of the protocol on May 26, we worked up to 45 Virastop a day, 3 scoops of Lauricidin pellets, and a high of 750 mg of OLE a day. The OLE had to be stopped during the viral protocol as it constipated my son, but I did use it for 3 days in the final kick of the protocol. Because we started slowly the reactions we saw at the beginning were quite minimal. Very small rashes that would last for 12 hours, sometimes as small as one or two spots on the cheek. A bit more fatigue. More yeast (a yeast protocol being a very important aspect of the process). When we started getting to higher doses, we started seeing bigger reactions. This was difficult as these reactions were obviously causing my son pain. He would have sores on his lips that didn¡¦t look like cold sores, but sort of close, that would come and go. He developed larger rashes, generally on his neck, that at times obviously pained or itched him (he is nonverbal and cannot explain anything to us). He would want to watch TV for great lengths of time, obviously feeling badly. As I said, we did have constipation from the OLE, but one time constipation while not using OLE. When this episode of constipation ended with an enema-induced BM, vomiting, and then copious amounts of the foulest smelling poop you can imagine, he seemed to be through the worst. We raised the number of VS after that to 45, gave 750 mg of OLE for three days, but there was no effect other than his very sore looking lips. His poops since that time have been normal. The kind you talk about in wonderment to other ASD moms. They only take him a normal amount of time, rather than hours of off and on pushing. The way we stopped is not what ¡¦s studies seemed to show was best. We stopped the VS cold turkey. Quite frankly, I found the idea of maintaining my son at 45 VS a day for three weeks to be too daunting. This was only five days ago¡Xif we do experience any regressions that I think may be a result of our decision, I¡¦ll be sure to post them here. We continue to give my son the sambucol, the immune boosters, and 2 scoops of lauricidin each day. I¡¦m not sure if we¡¦ve kicked out all the viruses, but our outcomes make me believe that something has been dealt with to some level. There is no apparent yeast problems using these smaller amounts of antivirals, and I¡¦m not sure they are doing anything, but they are easy to dose and seem to be a worthwhile effort. These have been the outcomes of our protocol: He no longer has trouble breathing through his nose. For a long time it was as if we lived with Darth Vader. I think this was a very long term sinus infection. About 4 weeks into the protocol his nose shrunk to its normal size and he was able to breathe clearly. That healthy state has remained. Virastop can work on both viruses and bacteria¡XI¡¦m not sure the nature of his sinus infection, but it has clearly been dealt with. He started swimming again, although he will still not take baths (or enter the bathroom for that matter). He also started gesturing he wants to go outside. This is a completely new thing. Before, it was very difficult to get him to leave the house. Now he stands in front of the door often and will play outside at a park for 90 minutes at a time, easily. This newfound energy is remarkable to us. He has also stopped being obsessive about swinging. He still loves swinging, but will not scream if you take him out of the swing before 60-80 minutes has passed. Now he will swing joyfully for 10 minutes and then spend the rest of the time climbing, sliding, etc. He once played chase with a little girl at the park and clearly loved the experience. He will play chase with us and try hiding in different places with obvious anticipation on his face when we find him. He became affectionate with his father. Prior to the viral protocol, his father was an adult he tolerated but didn¡¦t show any affection for. Now he will snuggle with his dad, rub his buzz cut, leave the house happily with him, even play games. This has been a wonderful thing for all of us. He has initiated games. The other day he started a game which involved biting his dad¡¦s finger. This has never happened before. His receptive language has improved. He now seems to understand things that meant nothing to him before. He has started to eat. My son was severely self-limited in his diet and he ate very little total. Enzymes allowed us to leave GFCF but didn¡¦t improve his appetite very much or encourage him to eat anything other than his 9 or 10 acceptable foods. About 7 weeks into the protocol, he grabbed a half a bun that had been left on the table and clearly wanted to eat it. We¡¦ve not looked back since then. Now he¡¦ll eat almost anything you put in front of him and he searches out food. He has never searched out food, even when he was hungry. Just a few days ago, he actually grabbed a cookie I had just baked from the counter and shoved the whole thing in his mouth. Now he¡¦ll eat meat. He¡¦ll look at what you¡¦re eating and ask gesture for some. He has learned to bite, whereas before you had to break all of his food into pieces or risk him shoving the entire thing whole into his mouth. Mealtimes are now consistently lovely ƒº Sorry for the too-long post, but I know people have lots of questions about viral protocols. Anita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 In a message dated 30/05/2006 22:21:29 GMT Daylight Time, mysuperteach@... writes: Sorry for the too-long post, but I know people have lots of questions about viral protocols Dear Anita I am a bit behind on my posts so have been redaing about your experiences and wondered how things are now 10 days on. Is your son still maintaining these gains... This is something we have to adress at some point so it was really useful thanks forposting. Luv Caroline xxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2006 Report Share Posted June 11, 2006 Dear Anita Thanks for your post, it was brilliant reading your initail ones... IMHO, viruses are one of the biggest issues, I am actually wondering whether this should be our aim for this summers hols when is off school... We are with Dr U, has massive bowel issues, we are soon seeing Krigsman. We have had one IV-EDTA, first chelation on May 1st, we first saw Dr U last March so that shows things have been TOUGH!!!! We are now gonna start DMSA supps, s bowel issues will not tolerate oral right now although that is of course my preferred option. We have started and stoppped supplements SO MANY times, changed supps or forms, Nightmare City as many of you know is one of my most favourite expressions.... Viruses are an issue she has titre of Hep B at 230 should be 10... Also we just did a homeopthic ourse of treatment with Dr U for 2-3 months we had many starnge rashes and the most horrendous few months that has ever had... I am not very aggressive with treatment, if its bothersome, I wimp out and Stop... I think sometimes this is not the best way to be, yes of course low and slow is good, but its also a bit chicken and egg, she has massive toxicity for heavy metals, bowel stuff which is as bad as any kid on this list, bugs for sure from the CS succesfulness (Mandi you are a *) ...viruses, nutritional deficiencies.... Sometimes you ahve just got to keep barging on... Maybe we have stopped too much or not strted early enough.. (eg Chelation) Sorry I am waffling but I just keep thinking about this... MOre aggressive approach called for in the Traa household... Will Keep y'all posted.. Luv caroline xxx Quote Link to comment Share on other sites More sharing options...
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